‘CHARLIE: PLEASE RESPOND!’ Using a participatory methodology with individuals on the autism spectrum

References

• Bagatell, N. (2007). Orchestrating voices: Autism, identity and the power of discourse. Disability & Society, 22(4), 413–26. doi: 10.1080/09687590701337967
   Web of Science ®Google Scholar
• Bourke, L. (2009). Reflections on doing participatory research in health: Participation, method and power. International Journal of Social Research Methodology, 12(5), 457–74. doi: 10.1080/13645570802373676
   Web of Science ®Google Scholar
• Brewster, S., and L. Coleyshaw (2010). Participation or exclusion? Perspectives of pupils with autistic spectrum disorders on their participation in leisure activities. British Journal of Learning Disabilities, 39(4), 284–91. doi: 10.1111/j.1468-3156.2010.00665.x
   Web of Science ®Google Scholar
• Carr, W. (2007). Educational research as a practical science. International Journal of Research and Method in Education, 30(3), 271–86. doi: 10.1080/17437270701614774
   Google Scholar
• Chappell, A. L. (2000). Emergence of participatory methodology in learning difficulty research: Understanding the context. British Journal of Learning Disabilities, 28(1), 38–43. doi: 10.1046/j.1468-3156.2000.00004.x
   Google Scholar
• Dawson, M., L. Mottron, and M. A. Gernsbacher (2008). Learning in autism. In Learning and memory: A comprehensive reference: Cognitive psychology, ed. ByrneH.RoedigerH., (pp. 759–72). New York: Elsevier.
   Google Scholar
• Dyson, A. (1998). Professional intellectuals from powerful groups: Wrong from the start?. In Articulating with difficulty, ed. P.C.L. Barton, (pp. 1–15). London: Paul Chapman.
   Google Scholar
• Flanagan, J. C. (1954). The critical incident technique. Psychological Bulletin, 51(4), 1–33. doi: 10.1037/h0061470
   Web of Science ®Google Scholar
• Gillott, A., and P. J. Standen (2007). Levels of anxiety and sources of stress in adults with autism. Journal of Intellectual Disabilities, 11(4), 359–70. doi: 10.1177/1744629507083585
   PubMedGoogle Scholar
• Grandin, T. (2009). How does visual thinking work in the mind of a person with autism? A personal account. Philosophical Transactions of the Royal Society B: Biological Sciences, 364(1522), 1437–42. doi: 10.1098/rstb.2008.0297
   PubMed Web of Science ®Google Scholar
• Hacking, I. (2009). How we have been learning to talk about autism: A role for stories. Metaphilosophy, 40(3–4), 499–516. doi: 10.1111/j.1467-9973.2009.01607.x
   Web of Science ®Google Scholar
• Humphrey, N., and S. Lewis (2008). ‘Make me normal’: The views and experiences of pupils on the autistic spectrum in mainstream secondary schools. Autism, 12(23), 24–45.
   Google Scholar
• Jones, R.S.P., A. Zahl, and J. C. Huws (2001). First-hand accounts of emotional experiences in autism: A qualitative analysis. Disability & Society, 16(3), 393–401. doi: 10.1080/09687590120045950
   Web of Science ®Google Scholar
• Lawson, W. (2001). Understanding and working with the spectrum of autism: An insider's view, London: Jessica Kingsley.
   Google Scholar
• Lawson, W. 2009. Learning styles: Single attention and associated cognition in autism (SAACA). PhD thesis, Deakin University, Burwood, Australia
   Google Scholar
• Lewis, A. (2009). Methodological issues in exploring the ideas of children with autism concerning self and spirituality religion. Disability and Health, 13(2), 64–76. doi: 10.1080/15228960802581446
   Google Scholar
• Madriaga, M. (2010). ‘I avoid pubs and the student union like the plague’: Students with Asperger syndrome and their negotiation of university spaces. Children's Geographies, 8(1), 39–50. doi: 10.1080/14733280903500166
   Web of Science ®Google Scholar
• Madriaga, M., and D. Goodley (2010). Moving beyond the minimum: Socially just pedagogies and Asperger's syndrome in UK higher education. International Journal of Inclusive Education, 14(2), 115–31. doi: 10.1080/13603110802504168
   Web of Science ®Google Scholar
• Medical Research Council (2001). Review of autism research: Epidemiology and causes, London: Medical Research Council.
   Google Scholar
• Ministry of Health and Education (2008). New Zealand autism spectrum disorder guideline, Wellington: Ministry of Health.
   Google Scholar
• Nind, M. (2008). Conducting qualitative research with people with learning, communication and other disabilities: Methodological challenges, Southampton: National Centre for Research Methods.
   Google Scholar
• Nind, M. (2011). Participatory data analysis: A step too far?. Qualitative Research, 11(4), 349–63. doi: 10.1177/1468794111404310
   Web of Science ®Google Scholar
• Parsons, S., K. Guldberg, A. MacLeod, G. Jones, A. Prunty, and T. Balfe (2008). International review of the literature of evidence of best practice provision in the education of persons with autistic spectrum disorders, County Meath: National Council of Special Education.
   Google Scholar
• Plaisted, Grant, K., and G. Davis (2009). Perception and apperception in autism: Rejecting the inverse assumption. Philosophical Transactions of the Royal Society B: Biological Sciences 364,1522 1393–8. doi: 10.1098/rstb.2009.0001
   Google Scholar
• Preece, D., and R. Jordan (2010). Obtaining the views of children and young people with autism spectrum disorders about their experience of daily life and social care support. British Journal of Learning Disabilities, 38(1), 10–20. doi: 10.1111/j.1468-3156.2009.00548.x
   Web of Science ®Google Scholar
• Sainsbury, C. (2000). Martian in the playground, London: Lucky Duck.
   Google Scholar
• Schluter, J., P. Seaton, and W. Chaboyer (2008). Critical incident technique: A user's guide for nurse researchers. Journal of Advanced Nursing, 61(1), 107–14. doi: 10.1111/j.1365-2648.2007.04490.x
   PubMed Web of Science ®Google Scholar
• Shakespeare, T. (2006). Disability rights and wrongs, London: Routledge.
   Google Scholar
• Sin, C. H., and J. Fong (2010). Commissioning research, promoting equality: Reflections on the disability rights commission's experiences of involving disabled children and young people. Children's Geographies, 8(1), 35–50. doi: 10.1080/14733280903500174
   Web of Science ®Google Scholar
• Sinclair, J. 1993. Don't mourn for us, Autism Network International: Our Voice newsletter. http://www.autreat.com/dont_mourn.html (accessed February 27)
   Google Scholar
• Smith, J. A. (2004). Reflecting on the development of interpretative phenomenological analysis and its contribution to qualitative research in psychology. Qualitative Research in Psychology, 1(1), 39–54.
   Web of Science ®Google Scholar
• Stone, E., and M. Priestley (1996). Parasites, pawns and partners: Disability research and the role of the non-disabled researcher. British Journal of Sociology, 47(4), 699–716. doi: 10.2307/591081
   PubMed Web of Science ®Google Scholar
• Tammet, D. (2006). Born on a blue day, London: Hodder & Stoughton.
   Google Scholar
• Walmsley, J. (2001). Normalisation, emancipatory research and inclusive research in learning disability. Disability & Society, 16(2), 187–205. doi: 10.1080/09687590120035807
   Web of Science ®Google Scholar