Advanced search
Publication Cover
Disability, Handicap & Society Volume 7, 1992 - Issue 2
Journal homepage
1,091
Views
198
CrossRef citations to date
0
Altmetric
Original Articles

On the Road to Damascus: First Steps towards Changing the Relations of Disability Research Production

Gerry Zarb Thames Polytechnic, Bexley Road, London, SE9 2PQ, United Kingdom
Pages 125-138 | Published online: 23 Feb 2007

Citations (198)

Keep up to date with the latest research on this topic with citation updates for this article.

Subscribe to citation updates

Read on this site (73)

Damian Haslett, Miro Griffiths & Dave Lupton. (2024) Shifting power relations in disability sport and social activism research: an emancipatory approach. Qualitative Research in Sport, Exercise and Health 16:1, pages 35-52.
Read now
Roberta Sisto, Giulio Mario Cappelletti, Piervito Bianchi & Edgardo Sica. (2022) Sustainable and accessible tourism in natural areas: a participatory approach. Current Issues in Tourism 25:8, pages 1307-1324.
Read now
Anna Traianou & Martyn Hammersley. (2021) Is there a right not to be researched? Is there a right to do research? Some questions about informed consent and the principle of autonomy. International Journal of Social Research Methodology 24:4, pages 443-452.
Read now
Deborah Hersh, Mark Israel & Ciara Shiggins. (2021) The ethics of patient and public involvement across the research process: towards partnership with people with aphasia. Aphasiology 0:0, pages 1-26.
Read now
Lidija Lalicic & Jessika Weber-Sabil. (2021) Stakeholder engagement in sustainable tourism planning through serious gaming. Tourism Geographies 23:1-2, pages 185-205.
Read now
António Valentim & Joaquim Pires Valentim. (2020) What I think of school: perceptions of school by people with intellectual disabilities. Disability & Society 35:10, pages 1618-1640.
Read now
Yueh-Ching Chou, Zxy-Yann Jane Lu, Bo-Wei Chen & Chwen-Jen Lin. (2020) Awareness of Sexual Rights and Empowerment: Quantitative and Qualitative Evaluation of a Sexual Health Intervention for Adults with Intellectual Disability. The Journal of Sex Research 57:9, pages 1202-1216.
Read now
Patricia O’Brien. (2020) “No researching about us without us as decision makers.” Commentary on “Are individuals with intellectual and developmental disabilities included in research? A review of the literature” (Jones, Ben-David, & Hole, 2020). Research and Practice in Intellectual and Developmental Disabilities 7:2, pages 120-125.
Read now
Christine Peta, Tom Wengraf & Judith McKenzie. (2019) Facilitating the voice of disabled women: the biographic narrative interpretive method (BNIM) in action. Contemporary Social Science 14:3-4, pages 515-527.
Read now
Colin Cameron, Michele Moore, Ann Nutt & Eleni Chambers. (2019) Improving understanding of service-user involvement and identity: collaborative research traversing disability, activism and the academy. Disability & Society 34:7-8, pages 1312-1331.
Read now
A. Armstrong, M. Cansdale, A. R. Collis, B. E. Collis, S. Rice & J. Walmsley. (2019) What makes a good self-advocacy project? The added value of co-production. Disability & Society 34:7-8, pages 1289-1311.
Read now
Cathy Vaughan, Sarah Khaw, Georgia Katsikis, Jacinta Wheeler, Jasmine Ozge, Vasiliky Kasidis & Lila Moosad. (2019) ‘It is like being put through a blender’: inclusive research in practice in an Australian university. Disability & Society 34:7-8, pages 1224-1240.
Read now
Hanna Bertilsdotter Rosqvist, Marianthi Kourti, David Jackson-Perry, Charlotte Brownlow, Kirsty Fletcher, Daniel Bendelman & Lindsay O'Dell. (2019) Doing it differently: emancipatory autism studies within a neurodiverse academic space. Disability & Society 34:7-8, pages 1082-1101.
Read now
Monyrath Nuth. (2018) Learning from experience: towards inclusive educational research in Cambodia. International Journal of Inclusive Education 22:11, pages 1184-1196.
Read now
Jessica M. Kramer, I-Ting Hwang, Christine A. Helfrich, Preethy S. Samuel & Ann Carrellas. (2018) Evaluating the Social Validity of Project TEAM: A Problem-Solving Intervention to Teach Transition Age Youth with Developmental Disabilities to Resolve Environmental Barriers. International Journal of Disability, Development and Education 65:1, pages 57-75.
Read now
Shaquinta L. L. Richardson & Lorien S. Jordan. (2017) Qualitative inquiry of sibling relationships: reinforcement of disability devaluation through the exclusion of voices. Disability & Society 32:10, pages 1534-1554.
Read now
Sarah M. Hart, Janet S. Gaffney & Mary F. Hill. (2017) Critical reflections on emancipatory partnerships in transition research: discerning perspectives of New Zealand Students on the autism spectrum. Disability & Society 32:6, pages 831-852.
Read now
Nick Chown, Jackie Robinson, Luke Beardon, Jillian Downing, Liz Hughes, Julia Leatherland, Katrina Fox, Laura Hickman & Duncan MacGregor. (2017) Improving research about us, with us: a draft framework for inclusive autism research. Disability & Society 32:5, pages 720-734.
Read now
Jan Gelech, Michel Desjardins, Elise Matthews & Raissa Graumans. (2017) Why do working relationships not change? The need for a new approach to disability partnership research and social change. Disability & Society 32:2, pages 176-192.
Read now
David Henderson. (2017) Commentary on “Ongoing voices of isolation and marginalisation of people with intellectual disabilities supported in different kinds of programs: The ‘cocoon of impossibility’ ” (Johannes, Belden-Charles, & Serminj, 2017). Research and Practice in Intellectual and Developmental Disabilities 4:1, pages 54-60.
Read now
Ariella Meltzer & John Kramer. (2016) Siblinghood through disability studies perspectives: diversifying discourse and knowledge about siblings with and without disabilities. Disability & Society 31:1, pages 17-32.
Read now
Jane Seale, Melanie Nind, Liz Tilley & Rohhss Chapman. (2015) Negotiating a third space for participatory research with people with learning disabilities: an examination of boundaries and spatial practices. Innovation: The European Journal of Social Science Research 28:4, pages 483-497.
Read now
Kamilla Peuravaara. (2015) Reflections on collaborative research: to what extent and on whose terms?. Scandinavian Journal of Disability Research 17:3, pages 272-283.
Read now
Susan Woelders, Tineke Abma, Tamara Visser & Karen Schipper. (2015) The power of difference in inclusive research. Disability & Society 30:4, pages 528-542.
Read now
Michelle F. Morgan, Monica Cuskelly & Karen B. Moni. (2014) Unanticipated ethical issues in a participatory research project with individuals with intellectual disability. Disability & Society 29:8, pages 1305-1318.
Read now
Caroline E.M. Hodges, Lee-Ann Fenge & Wendy Cutts. (2014) Challenging perceptions of disability through performance poetry methods: the ‘Seen but Seldom Heard’ project. Disability & Society 29:7, pages 1090-1103.
Read now
Kate Povee, Brian J. Bishop & Lynne D. Roberts. (2014) The use of photovoice with people with intellectual disabilities: reflections, challenges and opportunities. Disability & Society 29:6, pages 893-907.
Read now
Peter Beresford. (2013) From ‘other’ to involved: user involvement in research: an emerging paradigm. Nordic Social Work Research 3:2, pages 139-148.
Read now
Marcus Ormerod & Rita Newton. (2013) Construction as a career choice for young disabled people: dispelling the myths. Construction Management and Economics 31:8, pages 928-938.
Read now
Susana Rojas, Teresa Susinos & Adelina Calvo. (2013) ‘Giving voice’ in research processes: an inclusive methodology for researching into social exclusion in Spain. International Journal of Inclusive Education 17:2, pages 156-173.
Read now
Laurence Hopkins. (2011) The path of least resistance: a voice‐relational analysis of disabled students’ experiences of discrimination in English universities. International Journal of Inclusive Education 15:7, pages 711-727.
Read now
Wendy Bryant, Adrian Tibbs & John Clark. (2011) Visualising a safe space: the perspective of people using mental health day services. Disability & Society 26:5, pages 611-628.
Read now
Jennifer Conder, Paul Milner & Brigit Mirfin-Veitch. (2011) Reflections on a participatory project: The rewards and challenges for the lead researchers. Journal of Intellectual & Developmental Disability 36:1, pages 39-48.
Read now
Mark Priestley, Lisa Waddington & Carlotta Bessozi. (2010) Towards an agenda for disability research in Europe: learning from disabled people’s organisations. Disability & Society 25:6, pages 731-746.
Read now
Mark Castrodale & ValorieA. Crooks. (2010) The production of disability research in human geography: an introspective examination. Disability & Society 25:1, pages 89-102.
Read now
Mårten Söder. (2009) Tensions, perspectives and themes in disability studies. Scandinavian Journal of Disability Research 11:2, pages 67-81.
Read now
Ruth Garbutt. (2009) Is there a place within academic journals for articles presented in an accessible format?. Disability & Society 24:3, pages 357-371.
Read now
Hisayo Katsui & Mari Koistinen. (2008) The participatory research approach in non‐Western countries: practical experiences from Central Asia and Zambia. Disability & Society 23:7, pages 747-757.
Read now
Paul Godin, Jacqueline Davies, Bob Heyman, Lisa Reynolds, Alan Simpson & Mike Floyd. (2007) Opening communicative space: A Habermasian understanding of a user-led participatory research project. The Journal of Forensic Psychiatry & Psychology 18:4, pages 452-469.
Read now
Alan Roulstone$suffix/text()$suffix/text() & Val Hudson. (2007) Carer participation in England, Wales and Northern Ireland: A challenge for interprofessional working. Journal of Interprofessional Care 21:3, pages 303-317.
Read now
Bernard M. O'Keefe, Natalie Bahry Kozak, Bernard M. O'Keefe, Natalie Bahry Kozak, Reinhard Schuller, Bernard M. O'Keefe, Natalie Bahry Kozak & Reinhard Schuller. (2007) Research priorities in augmentative and alternative communication as identified by people who use AAC and their facilitators. Augmentative and Alternative Communication 23:1, pages 89-96.
Read now
Joy Hammel, Robin Jones, Andrea Gossett & Elizabeth Morgan. (2006) Examining Barriers and Supports to Community Living and Participation After a Stroke from a Participatory Action Research Approach. Topics in Stroke Rehabilitation 13:3, pages 43-58.
Read now
Claire Tregaskis & Dan Goodley. (2005) Disability Research by Disabled and Non‐Disabled People: Towards a Relational Methodology of Research Production. International Journal of Social Research Methodology 8:5, pages 363-374.
Read now
Len Barton. (2005) Emancipatory research and disabled people: some observations and questions. Educational Review 57:3, pages 317-327.
Read now
Ardha Danieli & Carol Woodhams. (2005) Emancipatory Research Methodology and Disability: A Critique. International Journal of Social Research Methodology 8:4, pages 281-296.
Read now
Annabelle L. Grundy, Michelle K. McGinn & Dawn E. Pollon. (2005) Striving toward inclusive research practices: the evolution of the participant‐as‐transcriptionist method1 . Disability & Society 20:4, pages 453-468.
Read now
J. Law, K. Bunning, S. Byng, S. Farrelly & B. Heyman. (2005) Making sense in primary care: levelling the playing field for people with communication difficulties. Disability & Society 20:2, pages 169-184.
Read now
Dan Goodley & Rebecca Lawthom. (2005) Epistemological journeys in participatory action research: alliances between community psychology and disability studies. Disability & Society 20:2, pages 135-151.
Read now
Gary Thomas & Georgina Glenny. (2002) Thinking about inclusion. Whose reason? What evidence?. International Journal of Inclusive Education 6:4, pages 345-369.
Read now
Mike Fisher. (2002) The role of service users in problem formulation and technical aspects of social research. Social Work Education 21:3, pages 305-312.
Read now
Stephen Case. (2001) Learning to Partner, Disabling Conflict: Early indications of an improving relationship between parents and professionals with regard to service provision for children with learning disabilities. Disability & Society 16:6, pages 837-854.
Read now
Paul S. Duckett & Rebekah Pratt. (2001) The Researched Opinions on Research: Visually impaired people and visual impairment research. Disability & Society 16:6, pages 815-835.
Read now
Carole Truman & Pamela Raine. (2001) Involving users in evaluation: The social relations of user participation in health research. Critical Public Health 11:3, pages 215-229.
Read now
Gillian Proctor. (2001) Listening to Older Women with Dementia: Relationships, voices and power. Disability & Society 16:3, pages 361-376.
Read now
Jan Walmsley. (2001) Normalisation, Emancipatory Research and Inclusive Research in Learning Disability. Disability & Society 16:2, pages 187-205.
Read now
Brenda Smith & David O'Flynn. (2000) The use of qualitative strategies in participant and emancipatory research to evaluate disability service organizations. European Journal of Work and Organizational Psychology 9:4, pages 515-526.
Read now
Gillian Bricher. (2000) Disabled People, Health Professionals and the Social Model of Disability: Can there be a research relationship?. Disability & Society 15:5, pages 781-793.
Read now
Isabel Dyck. (2000) Disability, Geography and Ethics. Philosophy & Geography 3:1, pages 80-87.
Read now
Claire Tregaskis. (2000) Interviewing Non-disabled People About Their Disability-related Attitudes: Seeking methodologies. Disability & Society 15:2, pages 343-353.
Read now
John M. Davis. (2000) Disability Studies as Ethnographic Research and Text: Research strategies and roles for promoting social change?. Disability & Society 15:2, pages 191-206.
Read now
Jill C. Humphrey. (2000) Researching Disability Politics, Or, Some Problems with the Social Model in Practice. Disability & Society 15:1, pages 63-86.
Read now
Marie Knox, Magdalena Mok & Trevor R. Parmenter. (2000) Working with the Experts: Collaborative research with people with an intellectual disability. Disability & Society 15:1, pages 49-61.
Read now
KEVIN PATERSON & BILL HUGHES. (1999) Disability Studies and Phenomenology: The carnal politics of everyday life. Disability & Society 14:5, pages 597-610.
Read now
JACKIE RODGERS. (1999) Trying to Get it Right: Undertaking research involving people with learning difficulties. Disability & Society 14:4, pages 421-433.
Read now
DOROTHY ATKINSON & JAN WALMSLEY. (1999) Using Autobiographical Approaches with People with Learning Difficulties. Disability & Society 14:2, pages 203-216.
Read now
Kari Krogh & Peter Lindsay. (1999) Including people with disabilities in research: implications for the field of augmentative and alternative communication. Augmentative and Alternative Communication 15:4, pages 222-233.
Read now
McKay Moore Sohlberg, Ann Glang & Bonnie Todis. (1998) SCEMA: The future challenge. Aphasiology 12:12, pages 1088-1092.
Read now
Robin Means. (1996) From ‘special needs’ housing to independent living?. Housing Studies 11:2, pages 207-231.
Read now
Gerry Zarb. (1995) Modelling the social model of disability. Critical Public Health 6:2, pages 21-29.
Read now
Chris Whittaker. (1994) Canvas of Courage. Disability & Society 9:4, pages 568-571.
Read now
Genée Marks. (1994) “Armed Now with Hope …”: The Construction of the Subjectivity of Students within Integration. Disability & Society 9:1, pages 71-84.
Read now
Graham Vulliamy & Rosemary Webb. (1993) Special Educational Needs: From Disciplinary to Pedagogic Research. Disability, Handicap & Society 8:2, pages 187-202.
Read now
Caroline Pigeon, Anna Rita Galiano, Amandine Afonso-Jaco, Dannyelle Valente, Gérard Uzan, Mireille Prestini & Nicolas Baltenneck. A participatory research to design a survey providing a portrait of the life of people with visual impairments. Disability & Society 0:0, pages 1-17.
Read now

Articles from other publishers (125)

Kirsty Liddiard, Louise Atkinson, Katy Evans, Barry Gibson, Dan Goodley, Jamie Hale, Rod Lawson, Katherine Runswick-Cole, Ruth Spurr, Emma Vogelmann, Lucy Watts, Kate Weiner & Sally Whitney-Mitchell. (2024) “No-one’s contribution is more valid than another’s”: Committing to inclusive democratic methodologies. Research in Education.
Crossref
John A. Bourke, Peter Bragge, Jo River, K. Anne Sinnott Jerram, Mohit Arora & James W. Middleton. (2024) Shining a light on the road towards conducting principle-based co-production research in rehabilitation. Frontiers in Rehabilitation Sciences 5.
Crossref
Anjali J. Forber-Pratt. (2024) Advancing and Expecting Inclusive Research. Inclusion 12:1, pages 30-39.
Crossref
Laura Crawford. (2022) Emancipatory archival methods: Exploring the historical geographies of disability. Area 56:1.
Crossref
Rachael W. Wanjagua, Lieke van Heumen & Sarah Parker Harris. (2024) “Will I Be Celebrated at the End of This Training?” Inclusive Research in Kenya. Social Sciences 13:2, pages 95.
Crossref
Harriet Cooper, Fiona Poland, Swati Kale & Tom Shakespeare. (2023) Can a disability studies‐medical sociology rapprochement help re‐value the work disabled people do within their rehabilitation?. Sociology of Health & Illness 45:6, pages 1300-1316.
Crossref
Kayla R. Mehl. (2023) The medical model of “obesity” and the values behind the guise of health. Synthese 201:6.
Crossref
Benoît Eyraud & Iuliia Taran. (2021) From Substitute to Supported Decision-Making: Participatory Action Research on the Convention on the Rights of Persons With Disabilities. Journal of Disability Policy Studies 34:1, pages 39-48.
Crossref
Mona Nikidehaghani, Freda Hui-Truscott & Corinne Cortese. (2022) Researching vulnerable participants: The role of critical reflexivity in overcoming methodological challenges. International Journal of Market Research 65:2-3, pages 237-258.
Crossref
Justin D. Garwood & Kelly M. Carrero. (2022) Lifting the Voices of Black Students Labeled With Emotional Disturbance: Calling All Special Education Researchers. Behavioral Disorders 48:2, pages 121-133.
Crossref
Lorna Montgomery, Berni Kelly, Ursula Campbell, Gavin Davidson, Leanne Gibson, Louise Hughes, Jadzia Menham, Linda McKendry, Leslie-Anne Newton, Alex Parkinson, Ethan Redmond, Joseph Turnbull, Paul Webb & Lisamarie Wood. (2022) ‘Getting our voices heard in research: a review of peer researcher’s roles and experiences on a qualitative study of adult safeguarding policy. Research Involvement and Engagement 8:1.
Crossref
Patricia O’Brien, Edurne Garcia Iriarte, Roy Mc Conkey, Sarah Butler & Bruce O’Brien. (2022) Inclusive Research and Intellectual Disabilities: Moving Forward on a Road Less Well-Travelled. Social Sciences 11:10, pages 483.
Crossref
Danielle Rudd & Se Kwang Hwang. (2021) Participatory research in a pandemic: The impact of Covid-19 on co-designing research with autistic people. Qualitative Social Work 21:5, pages 869-879.
Crossref
Chrysant Lily Kusumowardoyo & Husna Yuni Wulansari. (2022) Towards meaningful participation in humanitarian studies: co-researching with persons with disabilities in Central Sulawesi. Disaster Prevention and Management: An International Journal 31:2, pages 158-165.
Crossref
Kirsty Liddiard, Sally Whitney-Mitchell, Katy Evans, Lucy WattsMBEMBE, Ruth Spurr, Emma Vogelmann, Katherine Runswick-Cole & Dan Goodley. 2022. Living Life to the Fullest: Disability, Youth and Voice. Living Life to the Fullest: Disability, Youth and Voice 147 163 .
Birgit Behrisch. 2022. Handbuch Disability Studies. Handbuch Disability Studies 109 124 .
Normand Boucher & Francis Charrier. 2021. De la prise de parole à l’émancipation des usagers. De la prise de parole à l’émancipation des usagers 149 167 .
Lisa Scott & Chloe Watfern. (2021) Becoming an artist and sharing my story. British Journal of Learning Disabilities 49:3, pages 287-292.
Crossref
Benoit Eyraud, Arnaud Béal, Nacerdine Bezghiche, Stef Bonnot-Briey, Chantal Bruno, Erick Cattez, Jean-Philippe Cobbaut, Sylvie Daniel, Guillaume François, Julien Grard, Gael Klein, Michel Lalemant, Céline Lefebvre, Valérie Lemard, Jacques Lequien, Céline Letailleur, Claudine Levray, Marc Losson, Ana Marques, Bernard Meile, Nicolas Ordener, Mouna Romdhani, Nicolas Saenen, Sébastien Saetta, Iuliia Taran & Florie Vuattoux. (2021) Une recherche citoyenne sur l’article 12 de la convention de l’ONU sur les droits des personnes handicapées. Alter 15:2, pages 165-176.
Crossref
Ariel E. Schwartz & Jessica M. Kramer. (2020) Inclusive approaches to developing content valid patient‐reported outcome measure response scales for youth with intellectual/developmental disabilities. British Journal of Learning Disabilities 49:1, pages 100-110.
Crossref
Andreas Bethmann, Birgit Behrisch & Sebastian von Peter. (2021) Förder- und Rahmenbedingungen für Partizipative Gesundheitsforschung aus ProjektsichtFunding conditions and framework conditions for participatory health research from a project’s perspective. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 64:2, pages 223-229.
Crossref
Katherine McDonald, Ariel Schwartz & Micah Fialka-Feldman. 2021. Belonging and Resilience in Individuals with Developmental Disabilities. Belonging and Resilience in Individuals with Developmental Disabilities 97 118 .
Stéphane Handfield. (2020) « Je comprends pas, signe à ma place » : autonomie relationnelle et consentement dans la recherche en déficience intellectuelle«I don’t understand. Sign for me»: relational autonomy and consent in research in intellectual disabilities. SociologieS.
Crossref
Niamh Flanagan. (2019) Considering a participatory approach to social work – Service user research. Qualitative Social Work 19:5-6, pages 1078-1094.
Crossref
Ariel E. Schwartz & Brendan Durkin. (2020) “Team is everything”: Reflections on trust, logistics and methodological choices in collaborative interviewing. British Journal of Learning Disabilities 48:2, pages 115-123.
Crossref
Dorota Chapko, Pino Frumiento, Nalini Edwards, Lizzie Emeh, Donald Kennedy, David McNicholas, Michaela Overton, Mark Snead, Robyn Steward, Jenny M. Sutton, Evie Jeffreys, Catherine Long, Jess Croll-Knight, Ben Connors, Sam Castell-Ward, David Coke, Bethany McPeake, William Renel, Chris McGinley, Anna Remington, Dora Whittuck, John Kieffer, Sarah Ewans, Mark Williams & Mick Grierson. (2020) "We have been magnified for years - Now you are under the microscope!": Co-researchers with Learning Disabilities Created an Online Survey to Challenge Public Understanding of Learning Disabilities. "We have been magnified for years - Now you are under the microscope!": Co-researchers with Learning Disabilities Created an Online Survey to Challenge Public Understanding of Learning Disabilities.
Heather J. Williamson, Lieke van Heumen & Ariel E. Schwartz. (2020) Photovoice with Individuals with Intellectual and/or Developmental Disabilities: Lessons Learned from Inclusive Research Efforts. Collaborations: A Journal of Community-Based Research and Practice 3:1.
Crossref
Ashley Shew. (2020) Ableism, Technoableism, and Future AI. IEEE Technology and Society Magazine 39:1, pages 40-85.
Crossref
Ariel E. Schwartz, Jessica M. Kramer, Ellen S. Cohn & Katherine E. McDonald. (2019) “That Felt Like Real Engagement”: Fostering and Maintaining Inclusive Research Collaborations With Individuals With Intellectual Disability. Qualitative Health Research 30:2, pages 236-249.
Crossref
Gertraud Kremsner & Michelle Proyer. (2019) Doing inclusive research: Möglichkeiten und Begrenzungen gemeinsamer ForschungspraxisDoing inclusive research: possibilities and limitations of joint research practice. Österreichische Zeitschrift für Soziologie 44:S3, pages 61-81.
Crossref
. 2019. Interactional Studies of Qualitative Research Interviews. Interactional Studies of Qualitative Research Interviews.
Carole Beighton, Christina Victor, Iain M Carey, Fay Hosking, Steve DeWilde, Derek G Cook, Paula Manners & Tess Harris. (2017) ‘I’m sure we made it a better study…’: Experiences of adults with intellectual disabilities and parent carers of patient and public involvement in a health research study. Journal of Intellectual Disabilities 23:1, pages 78-96.
Crossref
Kirsty Liddiard, Katherine Runswick‐Cole, Dan Goodley, Sally Whitney, Emma Vogelmann & Lucy Watts MBE. (2018) “I was Excited by the Idea of a Project that Focuses on those Unasked Questions” Co‐Producing Disability Research with Disabled Young People. Children & Society 33:2, pages 154-167.
Crossref
Sharlene Swartz & Anye Nyamnjoh. (2018) Research as freedom: Using a continuum of interactive, participatory and emancipatory methods for addressing youth marginality. HTS Teologiese Studies / Theological Studies 74:3.
Crossref
Jan Walmsley, Iva Strnadová & Kelley Johnson. (2017) The added value of inclusive research. Journal of Applied Research in Intellectual Disabilities 31:5, pages 751-759.
Crossref
Jen Slater, Embla Ágústsdóttir & Freyja Haraldsdóttir. (2018) Becoming intelligible woman: Gender, disability and resistance at the border zone of youth. Feminism & Psychology 28:3, pages 409-426.
Crossref
Erin E. Stack & Katherine McDonald. (2018) We Are “Both in Charge, the Academics and Self‐Advocates”: Empowerment in Community‐Based Participatory Research. Journal of Policy and Practice in Intellectual Disabilities 15:1, pages 80-89.
Crossref
Mark Anthony Castrodale. (2017) Mobilizing Dis/Ability Research: A Critical Discussion of Qualitative Go-Along Interviews in Practice. Qualitative Inquiry 24:1, pages 45-55.
Crossref
Alex McClimens, Janet Finlayson & Chris Darbyshire. (2016) ‘How families live …’ – the views and experiences of parent-carers who provide family placements to intellectual disability nursing students. Journal of Intellectual Disabilities 21:4, pages 401-414.
Crossref
Tanya N. Riches & Patricia M. O'Brien. (2017) Togetherness, teamwork and challenges: “Reflections on building an inclusive research network”. British Journal of Learning Disabilities 45:4, pages 274-281.
Crossref
Ronald J. Berger. (2016) Disability and Life History Research. International Review of Qualitative Research 9:4, pages 472-488.
Crossref
Ayse Kok. 2016. Cultural, Behavioral, and Social Considerations in Electronic Collaboration. Cultural, Behavioral, and Social Considerations in Electronic Collaboration 309 326 .
Rhoda Olkin. 2016. Handbook of Qualitative Health Research for Evidence-Based Practice. Handbook of Qualitative Health Research for Evidence-Based Practice 391 410 .
Agnès d’Arripe, Cédric Routier, Jean-Philippe Cobbaut, Mireille Tremblay & Lydie Lenne. (2015) Faire de la recherche « avec » les personnes déficientes intellectuelles : changement de paradigme ou utopie ?. Sciences & Actions Sociales N° 1:1, pages 73-91.
Crossref
Val Williams, Lisa Ponting & Kerrie Ford. (2015) A platform for change?. British Journal of Learning Disabilities 43:2, pages 106-113.
Crossref
Jackie A Martin. (2014) Research with adults with Asperger’s syndrome—participatory or emancipatory research?. Qualitative Social Work 14:2, pages 209-223.
Crossref
Ayse Kok. (2015) Integration of Web 2.0 Tools in to Non-formal Learning Practices: A Case Study of IBM. Procedia - Social and Behavioral Sciences 176, pages 357-370.
Crossref
Melissa Hannah Martean, Rudi Dallos, Jacqui Stedmon & Duncan Moss. (2013) Jo's Story: the journey of one woman's experience of having cancer and a ‘learning disability’. British Journal of Learning Disabilities 42:4, pages 282-291.
Crossref
Richard Bell. (2014) A multi-agency evaluation of the Leeds Dual Diagnosis care co-ordination protocol. Advances in Dual Diagnosis 7:4, pages 162-184.
Crossref
Ayse Kok. (2014) Integration of Web 2.0 Tools into Non-Formal Learning Practices. International Journal of Cyber Behavior, Psychology and Learning 4:4, pages 47-68.
Crossref
Martyn Hammersley. (2013) On the ethics of interviewing for discourse analysis. Qualitative Research 14:5, pages 529-541.
Crossref
Jacqueline H. Parkes, Michelle Pyer, Paula Wray & Jane Taylor. (2014) Partners in projects: Preparing for public involvement in health and social care research. Health Policy 117:3, pages 399-408.
Crossref
Kate Caldwell. (2013) Dyadic interviewing: a technique valuing interdependence in interviews with individuals with intellectual disabilities. Qualitative Research 14:4, pages 488-507.
Crossref
Francesco Grasso, Michel Desjardins, Delphine Labbé, Skye Barbic & Eva Kehayia. (2014) Opérationnaliser l’inclusion dans les projets innovants. L’expérience du « MALL » à l’aune de la classification internationale du fonctionnement. Alter 8:3, pages 158-169.
Crossref
Edurne García Iriarte, Patricia O'Brien & Darren Chadwick. (2014) Involving People With Intellectual Disabilities Within Research Teams: Lessons Learned from an I rish Experience . Journal of Policy and Practice in Intellectual Disabilities 11:2, pages 149-157.
Crossref
Ayse Kok. (2014) Integration of Web 2.0 Tools into Non-Formal Learning Practices. International Journal of Digital Literacy and Digital Competence 5:2, pages 12-31.
Crossref
A. Hollomotz. (2012) Sex offenders with intellectual disabilities and their academic observers: popular methodologies and research interests. Journal of Intellectual Disability Research 58:2, pages 189-197.
Crossref
Rohhss Chapman. (2013) An Exploration of the Self‐Advocacy Support Role Through Collaborative Research: ‘There Should Never be a Them and Us’. Journal of Applied Research in Intellectual Disabilities 27:1, pages 44-53.
Crossref
Christine Bigby, Patsie Frawley & Paul Ramcharan. (2013) A Collaborative Group Method of Inclusive Research. Journal of Applied Research in Intellectual Disabilities 27:1, pages 54-64.
Crossref
Patricia O'Brien, Roy McConkey & Edurne García‐Iriarte. (2013) Co‐researching with People who Have Intellectual Disabilities: Insights From a National Survey. Journal of Applied Research in Intellectual Disabilities 27:1, pages 65-75.
Crossref
Claire Edwards. (2013) The Anomalous Wellbeing of Disabled People: A Response. Topoi 32:2, pages 189-196.
Crossref
Andrea Hollomotz. (2012) Disability, Oppression and Violence: Towards a Sociological Explanation. Sociology 47:3, pages 477-493.
Crossref
Simoni Symeonidou & Karen Beauchamp-Pryor. 2013. Purpose, Process and Future Direction of Disability Research. Purpose, Process and Future Direction of Disability Research 121 126 .
Simona D’Alessio. 2013. Purpose, Process and Future Direction of Disability Research. Purpose, Process and Future Direction of Disability Research 89 106 .
Simoni Symeonidou. 2013. Purpose, Process and Future Direction of Disability Research. Purpose, Process and Future Direction of Disability Research 45 58 .
Zack Marshall, Stephanie Nixon, Denise Nepveux, Tess Vo, Ciann Wilson, Sarah Flicker, Alex McClelland & Devon Proudfoot. (2012) Navigating Risks and Professional Roles: Research with Lesbian, Gay, Bisexual, Trans, and Queer Young People with Intellectual Disabilities. Journal of Empirical Research on Human Research Ethics 7:4, pages 20-33.
Crossref
Julie Calveley (née Clark). (2012) Including adults with intellectual disabilities who lack capacity to consent in research. Nursing Ethics 19:4, pages 558-567.
Crossref
Barbara Schneider. (2012) Participatory Action Research, Mental Health Service User Research, and the Hearing (our) Voices Projects. International Journal of Qualitative Methods 11:2, pages 152-165.
Crossref
Vicky Turk, Geoffrey Leer, Sarah Burchell, Sukhjinder Khattram, Roslyn Corney & Gill Rowlands. (2011) Adults with Intellectual Disabilities and their Carers as Researchers and Participants in a RCT. Journal of Applied Research in Intellectual Disabilities 25:1, pages 1-10.
Crossref
Alex McClimens & Peter Allmark. (2011) A problem with inclusion in learning disability research. Nursing Ethics 18:5, pages 633-639.
Crossref
Melanie Nind. (2011) Participatory data analysis: a step too far?. Qualitative Research 11:4, pages 349-363.
Crossref
Mary Wickenden. (2009) Talking to Teenagers: Using Anthropological Methods to Explore Identity and the Lifeworlds of Young People Who Use AAC. Communication Disorders Quarterly 32:3, pages 151-163.
Crossref
Maria Paiewonsky. (2011) Hitting the Reset Button on Education. Career Development for Exceptional Individuals 34:1, pages 31-44.
Crossref
Val Williams. 2011. Disability and Discourse. Disability and Discourse 239 250 .
Lindsey Brown & Felicity K. Boardman. (2011) Accessing the field: Disability and the research process. Social Science & Medicine 72:1, pages 23-30.
Crossref
Mark Priestley, Lisa Waddington & Carlotta Bessozi. (2010) New priorities for disability research in Europe: Towards a user-led agenda. Alter 4:4, pages 239-255.
Crossref
Leanne Dowse. (2009) ‘It's like being in a zoo.’ Researching with people with intellectual disability. Journal of Research in Special Educational Needs 9:3, pages 141-153.
Crossref
E. Garcia‐Iriarte, J. C. Kramer, J. M. Kramer & J. Hammel. (2008) ‘Who Did What?’: A Participatory Action Research Project to Increase Group Capacity for Advocacy. Journal of Applied Research in Intellectual Disabilities 22:1, pages 10-22.
Crossref
Jane Seale, Mike Wald & E Draffan. (2008) Exploring the technology experiences of disabled learners in higher education: challenges for the use and development of participatory research methods. Journal of Assistive Technologies 2:3, pages 4-15.
Crossref
김진우. (2008) A Study on the Issues of Participation of People with Intellectual Disabilities in Research Process in Korea. Korean Journal of Social Welfare 60:3, pages 83-105.
Crossref
M. Boland, L. Daly & A. Staines. (2007) Methodological Issues in Inclusive Intellectual Disability Research: A Health Promotion Needs Assessment of People Attending Irish Disability Services. Journal of Applied Research in Intellectual Disabilities 21:3, pages 199-209.
Crossref
. 2008. Understanding Disability. Understanding Disability 219 235 .
Bob GatesMary Waight. (2016) Reflections on conducting focus groups with people with learning disabilities. Journal of Research in Nursing 12:2, pages 111-126.
Crossref
Katharina Heyer. (2007) A Disability Lens on Sociolegal Research: Reading Rights of Inclusion from a Disability Studies Perspective. Law & Social Inquiry 32:1, pages 261-293.
Crossref
L. Dominelli & M. Holloway. (2006) Ethics and Governance in Social Work Research in the UK. British Journal of Social Work 38:5, pages 1009-1024.
Crossref
Mark Redmond. (2016) Co-researching with Adults with Learning Disabilities. Qualitative Social Work 4:1, pages 75-86.
Crossref
Val Williams & Ken Simons. (2005) More researching together: the role of nondisabled researchers in working with People First members1. British Journal of Learning Disabilities 33:1, pages 6-14.
Crossref
Arthur J. Dalton & Keith R. McVilly. (2004) Ethics Guidelines for International, Multicenter Research Involving People with Intellectual Disabilities 1 , 2 , 3 , 4 . Journal of Policy and Practice in Intellectual Disabilities 1:2, pages 57-70.
Crossref
Fran Russell. (2004) Partnership with parents of disabled children in research?. Journal of Research in Special Educational Needs 4:2, pages 74-81.
Crossref
Jan Walmsley. (2004) Inclusive learning disability research: the (nondisabled) researcher's role. British Journal of Learning Disabilities 32:2, pages 65-71.
Crossref
Barbara Schneider, Hannah Scissons, Laurie Arney, George Benson, Jeff Derry, Ken Lucas, Michele Misurelli, Dana Nickerson & Mark Sunderland. (2016) Communication Between People With Schizophrenia and Their Medical Professionals: A Participatory Research Project. Qualitative Health Research 14:4, pages 562-577.
Crossref
Glen W White, Monika Suchowierska & Margaret Campbell. (2004) Developing and systematically implementing participatory action research11No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the author(s) or upon any organization with which the author(s) is/are associated.. Archives of Physical Medicine and Rehabilitation 85, pages 3-12.
Crossref
Jan Walmsley. (2004) Involving users with learning difficulties in health improvement: lessons from inclusive learning disability research. Nursing Inquiry 11:1, pages 54-64.
Crossref
Jonathan Perry. 2004. The International Handbook of Applied Research in Intellectual Disabilities. The International Handbook of Applied Research in Intellectual Disabilities 115 131 .
Paul Ramcharan, Gordon Grant & Margaret Flynn. 2004. The International Handbook of Applied Research in Intellectual Disabilities. The International Handbook of Applied Research in Intellectual Disabilities 83 111 .
Kay Stachura & Frances Garven. (2003) Comparison of Occupational Therapy and Physiotherapy Students' Attitudes towards People with Disabilities. Physiotherapy 89:11, pages 653-664.
Crossref
Dan Goodley, Derrick Armstrong, Kath Sutherland & Linda Laurie. (2003) Self-Advocacy, “Learning Difficulties,” and the Social Model of Disability. Mental Retardation 41:3, pages 149-160.
Crossref
Anne Burke, Jane McMillan, Lorraine Cummins, Agnes Thompson, Watson Forsyth, James McLellan, Linda Snow, Anne Fraser, Mary Fraser, Charity Fulton, Elizabeth McCrindle, Lorraine Gillies, Shelley LeFort, Gail Miller, John Whitehall, John Wilson, Janet Smith & David Wright. (2003) Setting up participatory research: a discussion of the initial stages. British Journal of Learning Disabilities 31:2, pages 65-69.
Crossref
Peter Blanck, Heather Ritchie, James Schmeling & David Klein. (2003) Technology for independence: a community‐based resource center. Behavioral Sciences & the Law 21:1, pages 51-62.
Crossref
Jackie Rodgers. (2001) Pain, shame, blood, and doctors. Women's Studies International Forum 24:5, pages 523-539.
Crossref
Wendy S. Seymour. (2016) In the flesh or online? Exploring qualitative research methodologies. Qualitative Research 1:2, pages 147-168.
Crossref
CAROL KAUFMAN-SCARBOROUGH. (2016) Sharing the Experience of Mobility-Disabled Consumers. Journal of Contemporary Ethnography 30:4, pages 430-464.
Crossref
Anne Louise Chappell, Dan Goodley & Rebecca Lawthom. (2002) Making connections: the relevance of the social model of disability for people with learning difficulties. British Journal of Learning Disabilities 29:2, pages 45-50.
Crossref
Alys M. Young & Jennifer Ackerman. (2016) Reflections on Validity and Epistemology in a Study of Working Relations between Deaf and Hearing Professionals. Qualitative Health Research 11:2, pages 179-189.
Crossref
Kevin Paterson. 2001. Exploring the Body. Exploring the Body 81 97 .
Bettina Matysiak. 2001. Exploring Theories and Expanding Methodologies: Where we are and where we need to go. Exploring Theories and Expanding Methodologies: Where we are and where we need to go 185 207 .
Susan Foster. 2001. Exploring Theories and Expanding Methodologies: Where we are and where we need to go. Exploring Theories and Expanding Methodologies: Where we are and where we need to go 101 123 .
Ross E. Gray, Margaret Fitch, Christine Davis & Catherine Phillips. (2001) Challenges of participatory research: reflections on a study with breast cancer self‐help groups. Health Expectations 3:4, pages 243-252.
Crossref
Malcolm Richardson. (2008) How we live: participatory research with six people with learning difficulties. Journal of Advanced Nursing 32:6, pages 1383-1395.
Crossref
Ruth Northway. (2001) Disability, nursing research and the importance of reflexivity. Journal of Advanced Nursing 32:2, pages 391-397.
Crossref
Ruth Northway. (2016) Ending Participatory Research?. Journal of Learning Disabilities 4:1, pages 27-36.
Crossref
Anne Louise Chappell. (2001) Emergence of participatory methodology in learning difficulty research: understanding the context. British Journal of Learning Disabilities 28:1, pages 38-43.
Crossref
A. McClimens. (2020) Participatory Research with People who have a Earning Difficulty: Journeys without a Map. Journal of Learning Disabilities for Nursing, Health, and Social Care 3:4, pages 219-228.
Crossref
Val Williams. (2009) Researching Together. British Journal of Learning Disabilities 27:2, pages 48-51.
Crossref
Chris Kiernan. (2009) Participation in Research by People with Learning Disability: Origins and Issues. British Journal of Learning Disabilities 27:2, pages 43-47.
Crossref
Clare Evans. (1999) Gaining Our Voice: The Developing Pattern of Good Practice in User Involvement. Journal of Integrated Care 7:2, pages 7-13.
Crossref
Kirsten Stalker, Jane Gilliard & Murna G. Downs. (1999) Eliciting user perspectives on what works. International Journal of Geriatric Psychiatry 14:2, pages 120-130.
Crossref
Linda Ward & Ken Simons. (2009) Practising Partnership: Involving People with Learning Difficulties in Research. British Journal of Learning Disabilities 26:4, pages 128-131.
Crossref
Ann P. Turnbull, Barbara J. Friesen & Carmen Ramirez. (2016) Participatory Action Research as a Model for Conducting Family Research. Journal of the Association for Persons with Severe Handicaps 23:3, pages 178-188.
Crossref
R. Northway. (2016) Engaging in participatory research: some personal reflections. Journal of Learning Disabilities for Nursing, Health, and Social Care 2:3, pages 144-149.
Crossref
Ruth Northway. (2008) Disability and oppression: some implications for nurses and nursing. Journal of Advanced Nursing 26:4, pages 736-743.
Crossref
Sally French & John Swain. (1997) Changing Disability Research: Participating and Emancipatory Research with Disabled People. Physiotherapy 83:1, pages 26-32.
Crossref
R Imrie. (2016) Transforming the Social Relations of Research Production in Urban Policy Evaluation. Environment and Planning A: Economy and Space 28:8, pages 1445-1464.
Crossref
Carol Thomas & Anne Parry. (1996) Research on Users’ Views about Stroke Services: Towards an Empowerment Research Paradigm or More of the Same?. Physiotherapy 82:1, pages 6-12.
Crossref
Donna M. Mertens. (2004) Identifying and respecting differences among participants in evaluation studies. New Directions for Program Evaluation 1995:66, pages 91-97.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.