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Original Articles

LONG-TERM IMPACT OF SUDDEN INFANT DEATH: A 12- TO 15-YEAR FOLLOW-UP

Pages 635-661 | Published online: 11 Nov 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (13)

Erin R. Currie, Becky J. Christian, Pamela S. Hinds, Samuel J. Perna, Cheryl Robinson, Sara Day, Marie Bakitas & Karen Meneses. (2019) Life after loss: Parent bereavement and coping experiences after infant death in the neonatal intensive care unit. Death Studies 43:5, pages 333-342.
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Amy Waugh, Gundi Kiemle & Pauline Slade. (2018) What aspects of post-traumatic growth are experienced by bereaved parents? A systematic review. European Journal of Psychotraumatology 9:1.
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William Feigelman, Zohn Rosen, Thomas Joiner, Caroline Silva & Anna S. Mueller. (2017) Examining longer-term effects of parental death in adolescents and young adults: Evidence from the National Longitudinal Survey of Adolescent to Adult Health. Death Studies 41:3, pages 133-143.
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Julia Bogensperger & Brigitte Lueger-Schuster. (2014) Losing a child: finding meaning in bereavement. European Journal of Psychotraumatology 5:1.
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JackelynY. Boyden, Karen Kavanaugh, L. Michele Issel, Kamal Eldeirawi & KathleenL. Meert. (2014) Experiences of African American Parents Following Perinatal or Pediatric Death: A Literature Review. Death Studies 38:6, pages 374-380.
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Atle Dyregrov & Kari Dyregrov. (2013) Reflections on the special issue. Family Science 4:1, pages 95-97.
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Torkild Hovde Lyngstad. (2013) Bereavement and divorce: Does the death of a child affect parents’ marital stability?. Family Science 4:1, pages 79-86.
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Atle Dyregrov & Rolf Gjestad. (2011) Sexuality Following the Loss of a Child. Death Studies 35:4, pages 289-315.
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LaurenJ. Breen & Moira O'Connor. (2009) Acts of Resistance: Breaking the Silence of Grief Following Traffic Crash Fatalities. Death Studies 34:1, pages 30-53.
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Atle Dyregrov, Marianne Straume & Salli Sari. (2009) Long-term collective assistance for the bereaved following a disaster: A Scandinavian approach. Counselling and Psychotherapy Research 9:1, pages 33-41.
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Kari Dyregrov. (2005) Do professionals disempower bereaved people?. Bereavement Care 24:1, pages 7-10.
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LauraS. Smart. (2003) Old Losses: A Retrospective Study of Miscarriage and Infant Death 1926–1955. Journal of Women & Aging 15:1, pages 71-91.
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Articles from other publishers (58)

Gabrielle Helton, Leah Beight, Sue E. Morris, Joanne Wolfe & Jennifer M., Snaman. (2022) One Size Doesn't Fit All in Early Pediatric Oncology Bereavement Support. Journal of Pain and Symptom Management 63:3, pages 366-373.
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Sima Zadeh Bedoya, Haven Battles, Cynthia A. GerhardtLori Wiener. (2021) The end-of-life trajectory in childhood cancer: Bereaved parents’ perceptions of the availability, use, and helpfulness of support services. Journal of Psychosocial Oncology Research & Practice 3:2, pages e050.
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Anita Fjærestad & Pål Kristensen. (2020) Bereaved parents’ experiences of being informed about autopsy findings after the sudden and unexpected loss of an infant or small child. Scandinavian Journal of Forensic Science 26:1, pages 8-14.
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Dong Hun Lee, Minsoo Khang, Jiyoung Shin, Hwa Jung Lee & Jacqueline A. Brown. (2017) Life Experience of Bereaved Parents After the 2014 Sewol Ferry Disaster in South Korea. OMEGA - Journal of Death and Dying 80:4, pages 515-543.
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Richard D. Goldstein. 2020. Infant Safe Sleep. Infant Safe Sleep 219 244 .
Richard D. Goldstein, Carter R. Petty, Sue E. Morris, Melanie Human, Hein Odendaal, Amy Elliott, Deb Tobacco, Jyoti Angal, Lucy Brink, Hannah C. Kinney & Holly G. Prigerson. (2018) Pre-loss personal factors and prolonged grief disorder in bereaved mothers. Psychological Medicine 49:14, pages 2370-2378.
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Markita L. Suttle, Cynthia A. Gerhardt & Marci Z. Fults. (2017) Factors Related to Parent Attendance at a Follow-Up Meeting With an Intensivist After a Child’s Death in the Pediatric Intensive Care Unit. OMEGA - Journal of Death and Dying 79:4, pages 436-445.
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Sue Morris, Kalen Fletcher & Richard Goldstein. (2018) The Grief of Parents After the Death of a Young Child. Journal of Clinical Psychology in Medical Settings 26:3, pages 321-338.
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Joanna Garstang. (2019) Working with families after a sudden child death. Paediatrics and Child Health 29:1, pages 20-24.
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Anne-Sophie E. Darlington, David N. Korones & Sally A. Norton. (2017) Parental coping in the context of having a child who is facing death: A theoretical framework. Palliative and Supportive Care 16:4, pages 432-441.
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Tamara Vern-Gross. (2018) Comprehensive care for the child or adolescent diagnosed with a childhood malignancy requiring palliative radiation therapy: A review. Applied Radiation Oncology, pages 7-17.
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Richard D. Goldstein, Ruth I. Lederman, Wendy G. Lichtenthal, Sue E. MorrisMelanie Human, Amy J. Elliott, Deb Tobacco, Jyoti Angal, Hein Odendaal, Hannah C. KinneyHolly G. Prigerson. (2018) The Grief of Mothers After the Sudden Unexpected Death of Their Infants. Pediatrics 141:5.
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Tamara Vern-Gross & Karen Marcus. 2018. Pediatric Radiation Oncology. Pediatric Radiation Oncology 419 450 .
Atle Dyregrov & Kari Dyregrov. (2015) Parents’ Perception of Their Relationship Following the Loss of a Child. OMEGA - Journal of Death and Dying 76:1, pages 35-52.
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Markita L. Suttle, Tammara L. Jenkins & Robert F. Tamburro. (2017) End-of-Life and Bereavement Care in Pediatric Intensive Care Units. Pediatric Clinics of North America 64:5, pages 1167-1183.
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Liv R. Øvstedal, Dagfinn Moe, Atle Dyregrov & Kari Dyregrov. (2017) Young Road Fatalities. OMEGA - Journal of Death and Dying 75:1, pages 69-91.
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Renata Arrington-Sanders, Anthony Morgan, Jessica Oidtman, Ann Dao, Margaret Moon, J. Dennis Fortenberry & Mary A. Ott. (2016) Sexual Health Research With Young Black Men Who Have Sex With Men: Experiences of Benefits and Harms. Archives of Sexual Behavior 46:4, pages 937-946.
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Jennifer M. Snaman, Erica C. Kaye, Deena R. Levine, Brittany Cochran, Robin Wilcox, Charlene K. Sparrow, Nancy Noyes, Lisa Clark, Wendy Avery & Justin N. Baker. (2017) Empowering Bereaved Parents Through the Development of a Comprehensive Bereavement Program. Journal of Pain and Symptom Management 53:4, pages 767-775.
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Deborah Stiffler, Nicole Birch, Hailey Campbell & Deborah Cullen. (2017) A Synthesis of Coping Experiences After Infant Death. Holistic Nursing Practice 31:2, pages 118-125.
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Dorte M. Christiansen. (2017) Posttraumatic stress disorder in parents following infant death: A systematic review. Clinical Psychology Review 51, pages 60-74.
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Daiming XiuAndreas MaerckerStefanie WoynarBettina GeirhoferYuting YangXiaoming Jia. (2016) Features of Prolonged Grief Symptoms in Chinese and Swiss Bereaved Parents. Journal of Nervous & Mental Disease 204:9, pages 693-701.
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Jennifer M. Snaman, Erica C. Kaye, Carlos Torres, Deborah Gibson & Justin N. Baker. (2016) Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey. Pediatric Blood & Cancer 63:9, pages 1594-1602.
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Joanna Garstang, Frances Griffiths & Peter Sidebotham. (2016) Parental understanding and self-blame following sudden infant death: a mixed-methods study of bereaved parents' and professionals' experiences. BMJ Open 6:5, pages e011323.
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Penny F. Stastny, Thomas G. Keens & Abbey Alkon. (2016) Supporting SIDS Families: The Public Health Nurse SIDS Home Visit. Public Health Nursing 33:3, pages 242-248.
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Dorothy Patterson, Ann Begley & Ann Nolan. (2016) An evaluation of a teaching strategy: The use of literature when teaching pre-registration midwifery students on pregnancy and loss. Nurse Education Today 38, pages 42-47.
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Michele J. McIntosh & Janice M. Morse. (2015) Situating and Constructing Diversity in Semi-Structured Interviews. Global Qualitative Nursing Research 2, pages 233339361559767.
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Katja Raitio, Marja Kaunonen & Anna Liisa Aho. (2015) Evaluating a bereavement follow-up intervention for grieving mothers after the death of a child. Scandinavian Journal of Caring Sciences 29:3, pages 510-520.
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Atle Dyregrov & Rolf Gjestad. (2015) Therapeutic weekend gatherings for bereaved parents. Scandinavian Psychologist 2.
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Jacques Dayan, Gwenaëlle Andro, Michel Dugnat, N. Thessier, R. Milijkovitch & O. Rosenblum. 2015. Psychopathologie de la Périnatalité et de la Parentalité. Psychopathologie de la Périnatalité et de la Parentalité 363 388 .
Anneli Salakari, Marja Kaunonen & Anna Liisa Aho. (2014) Negative Changes in a Couple’s Relationship After a Child’s Death. Interpersona: An International Journal on Personal Relationships 8:2, pages 193-209.
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Joanna Garstang, Frances Griffiths & Peter Sidebotham. (2014) What do bereaved parents want from professionals after the sudden death of their child: a systematic review of the literature. BMC Pediatrics 14:1.
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Ivana M.M. van der Geest, Anne-Sophie E. Darlington, Isabelle C. Streng, Erna M.C. Michiels, Rob Pieters & Marry M. van den Heuvel-Eibrink. (2014) Parents' Experiences of Pediatric Palliative Care and the Impact on Long-Term Parental Grief. Journal of Pain and Symptom Management 47:6, pages 1043-1053.
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Barbara L. Jones, Nancy Contro & Kendra D. Koch. (2014) The Duty of the Physician to Care for the Family in Pediatric Palliative Care: Context, Communication, and Caring. Pediatrics 133:Supplement_1, pages S8-S15.
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Joann O’Leary & Jane Warland. (2013) Untold Stories of Infant Loss. Journal of Family Nursing 19:3, pages 324-347.
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K. Thieleman & J. Cacciatore. (2013) The DSM-5 and the Bereavement Exclusion: A Call for Critical Evaluation. Social Work 58:3, pages 277-280.
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Myeong Sook Yoon & choisooyeun. (2013) Bereavement Experiences of Family Members after the Death of Traffic Accident. Korean Journal of Family Social Work null:40, pages 5-31.
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Jason Fletcher, Marsha Mailick, Jieun Song & Barbara Wolfe. (2012) A Sibling Death in the Family: Common and Consequential. Demography 50:3, pages 803-826.
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Birgit WagnerBirgit Wagner. 2013. Komplizierte Trauer. Komplizierte Trauer 33 86 .
Birgit WagnerBirgit Wagner. 2013. Komplizierte Trauer. Komplizierte Trauer 33 86 .
Abby R. Rosenberg, K. Scott Baker, Karen Syrjala & Joanne Wolfe. (2011) Systematic review of psychosocial morbidities among bereaved parents of children with cancer. Pediatric Blood & Cancer 58:4, pages 503-512.
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Miyoko IMAMURA. (2012) Narratives of fathers' experiences of the stillbirth or neonatal death of their infants. Journal of Japan Academy of Midwifery 26:1, pages 49-60.
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Pernilla Avelin, Kerstin Erlandsson, Ingegerd Hildingsson & Ingela Rådestad. (2011) Swedish Parents’ Experiences of Parenthood and the Need for Support to Siblings When a Baby is Stillborn. Birth 38:2, pages 150-158.
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Ileana Ungureanu & Jonathan G. Sandberg. (2010) “Broken Together”: Spirituality and Religion as Coping Strategies for Couples Dealing with the Death of a Child: A Literature Review with Clinical Implications. Contemporary Family Therapy 32:3, pages 302-319.
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Kerstin ErlandssonPernilla Avelin, Karin Säflund, Regina Wredling & Ingela Rådestad. (2010) Siblings’ farewell to a stillborn sister or brother and parents’ support to their older children: a questionnaire study from the parents’ perspective. Journal of Child Health Care 14:2, pages 151-160.
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Melissa Henry & Brian J. Greenfield. (2009) Therapeutic Effects of Psychological Autopsies. Crisis 30:1, pages 20-24.
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Nancy J. Keesee, Joseph M. Currier & Robert A. Neimeyer. (2008) Predictors of grief following the death of one's child: the contribution of finding meaning. Journal of Clinical Psychology 64:10, pages 1145-1163.
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Annie M. Cantwell-Bartl & James Tibballs. (2019) Place, Age, and Mode of Death of Infants and Children with Hypoplastic Left Heart Syndrome: Implications for Medical Counselling, Psychological Counselling, and Palliative Care. Journal of Palliative Care 24:2, pages 76-84.
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Guenther Krueger. (2006) Meaning-making in the aftermath of sudden infant death syndrome. Nursing Inquiry 13:3, pages 163-171.
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Renate Pantke & Pauline Slade. (2006) Remembered parenting style and psychological well-being in young adults whose parents had experienced early child loss. Psychology and Psychotherapy: Theory, Research and Practice 79:1, pages 69-81.
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Emmanuelle Zech. 2006. Psychologie du deuil. Psychologie du deuil 237 271 .
Joann O'Leary & Clare Thorwick. (2006) Fathers’ Perspectives During Pregnancy, Postperinatal Loss. Journal of Obstetric, Gynecologic & Neonatal Nursing 35:1, pages 78-86.
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Rupert Conrad, Guntram Schilling & Reinhard Liedtke. (2005) Parental coping with sudden infant death after donor insemination: case report. Human Reproduction 20:4, pages 1053-1056.
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Ariella Lang, Céline Goulet & Rhonda Amsel. (2004) Explanatory model of health in bereaved parents post-fetal/infant death. International Journal of Nursing Studies 41:8, pages 869-880.
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Kari Dyregrov. (2004) Strategies of professional assistance after traumatic deaths: Empowerment or disempowerment?. Scandinavian Journal of Psychology 45:2, pages 181-189.
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Kari Dyregrov. (2016) Micro-Sociological Analysis of Social Support Following Traumatic Bereavement: Unhelpful and Avoidant Responses from the Community. OMEGA - Journal of Death and Dying 48:1, pages 23-44.
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Chantal VerdonB.Sc.Inf.B.Sc.Inf.. (2020) Les réactions de deuil des parents lors d’une perte périnatale. Frontières 16:2, pages 38-42.
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Kari Dyregrov. (2004) Bereaved parents’ experience of research participation. Social Science & Medicine 58:2, pages 391-400.
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Kari Dyregrov, Atle Dyregrov & Magne Raundalen. (2005) Refugee families' experience of research participation. Journal of Traumatic Stress 13:3, pages 413-426.
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