Citations (28)
Keep up to date with the latest research on this topic with citation updates for this article.
Read on this site (4)
Eun-Jung Shim, Donghee Jeong, Yeong Wook Song, Sun Hee Lee, Nam Joong Kim & Bong-Jin Hahm. (2020) A network analysis of the Brief Illness Perception Questionnaire in patients with rheumatic diseases and human immunodeficiency virus infection. Psychology & Health 35:7, pages 838-853.
Read now
Read now
Joanna C Robson, Jill Dawson, Peter F Cronholm, Nataliya Milman, Katherine S Kellom, Susan Ashdown, Ebony Easley, John T Farrar, Don Gebhart, Georgia Lanier, Carol A McAlear, Jacqueline Peck, Raashid A Luqmani, Judy A Shea, Gunnar Tomasson & Peter A Merkel. (2018) Health-related quality of life in ANCA-associated vasculitis and item generation for a disease-specific patient-reported outcome measure. Patient Related Outcome Measures 9, pages 17-34.
Read now
Read now
Catherine S. Hurt, Sophie Cleanthous & Stanton P. Newman. (2017) Further explorations of illness uncertainty: carers’ experiences of Parkinson’s disease. Psychology & Health 32:5, pages 549-566.
Read now
Read now
Patricia Solomon, Kelly O'Brien, Seanne Wilkins & Nicole Gervais. (2014) Aging with HIV and disability: The role of uncertainty. AIDS Care 26:2, pages 240-245.
Read now
Read now
Articles from other publishers (24)
Valentina Petrocchi, Erica Visintini, Ginevra De Marchi, Luca Quartuccio & Alvisa Palese. (2022)
Patient Experiences of Systemic Lupus Erythematosus: Findings From a Systematic Review,
Meta‐Summary
, and
Meta‐Synthesis
. Arthritis Care & Research 74:11, pages 1813-1821.
Crossref
Crossref
Zachary S. Wallace, Claire Cook, Lucy Finkelstein-Fox, Xiaoqing Fu, Flavia V. Castelino, Hyon K. Choi, Cory Perugino, John H. Stone, Elyse R. Park & Daniel L. Hall. (2022) The Association of Illness-related Uncertainty With Mental Health in Systemic Autoimmune Rheumatic Diseases. The Journal of Rheumatology 49:9, pages 1058-1066.
Crossref
Crossref
Heidi J Siddle, Lara S Chapman, Kulveer Mankia, Codruța Zăbălan, Marios Kouloumas, Karim Raza, Marie Falahee, Joel Kerry, Andreas Kerschbaumer, Daniel Aletaha, Paul Emery & Suzanne H Richards. (2022) Perceptions and experiences of individuals at-risk of rheumatoid arthritis (RA) knowing about their risk of developing RA and being offered preventive treatment: systematic review and thematic synthesis of qualitative studies. Annals of the Rheumatic Diseases 81:2, pages 159-168.
Crossref
Crossref
Kyle Vader, Soo Chan Carusone, Rachel Aubry, Puja Ahluwalia, Carolann Murray, Larry Baxter, Gregory Robinson, Francisco Ibáñez-Carrasco, Ann Stewart, Patricia Solomon & Kelly K. O’Brien. (2022) Examining the Utility of the HIV Disability Questionnaire (HDQ) in Clinical Practice: Perspectives of People Living with HIV and Healthcare Providers. Journal of the International Association of Providers of AIDS Care (JIAPAC) 21, pages 232595822210791.
Crossref
Crossref
Caroline Pearce, Stanton Newman & Kathleen Mulligan. (2021) Illness Uncertainty in Parents of Children with Juvenile Idiopathic Arthritis. ACR Open Rheumatology 3:4, pages 250-259.
Crossref
Crossref
Anna Antony, Kathryn Connelly, Thilinie De Silva, Laura Eades, William Tillett, Sally Ayoub & Eric Morand. (2020)
Perspectives of Patients With Rheumatic Diseases in the Early Phase of
COVID
‐19
. Arthritis Care & Research 72:9, pages 1189-1195.
Crossref
Crossref
CHRISTINE A. PESCHKEN. (2020) Possible Consequences of a Shortage of Hydroxychloroquine for Patients with Systemic Lupus Erythematosus amid the COVID-19 Pandemic. The Journal of Rheumatology 47:6, pages 787-790.
Crossref
Crossref
Jennifer L. Petrongolo, Nataliya Zelikovsky, Rachel M. Keegan, Susan L. Furth & Andrea Knight. (2019) Examining Uncertainty in Illness in Parents and Children With Chronic Kidney Disease and Systemic Lupus Erythematosus: A Mediational Model of Internalizing Symptoms and Health-Related Quality of Life. Journal of Clinical Psychology in Medical Settings 27:1, pages 31-40.
Crossref
Crossref
Divya N. V. Challa, Zoran Kvrgic, Cynthia S. Crowson, Eric L. Matteson, Thomas G. Mason, Clement J. MichetJrJr, Daniel E. Schaffer, Kerry A. Wright & John M. DavisIIIIII. (2019) Longitudinal Occurrence and Predictors of Patient‐Provider Discordance Between Global Assessments of Disease Activity in Rheumatoid Arthritis: A Case–Control Study. Arthritis Care & Research 72:1, pages 18-26.
Crossref
Crossref
Chloe Parton, Terri Katz & Jane M Ussher. (2017) ‘Normal’ and ‘failing’ mothers: Women’s constructions of maternal subjectivity while living with multiple sclerosis. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 23:5, pages 516-532.
Crossref
Crossref
Pamela Coombs Delis. (2019) Uncertainty and Quality of Life in Systemic Lupus Erythematosus: A Cross-sectional Study. Rehabilitation Nursing 44:1, pages 2-10.
Crossref
Crossref
Hans Haag, Tim Liang, J. Antonio Avina-Zubieta & Mary A. De Vera. (2018) How do patients with systemic autoimmune rheumatic disease perceive the use of their medications: a systematic review and thematic synthesis of qualitative research. BMC Rheumatology 2:1.
Crossref
Crossref
David J. Tunnicliffe, Davinder Singh-Grewal, Jonathan C. Craig, Shilpanjali Jesudason, Peter Tugwell, Ming-Wei Lin, Sean G. O'Neill, Daniel Sumpton & Allison Tong. (2018) Perspectives of Medical Specialists From Different Disciplines on the Management of Systemic Lupus Erythematosus: An Interview Study. Arthritis Care & Research 70:9, pages 1284-1293.
Crossref
Crossref
Patricia Moreland & Sheila Judge Santacroce. (2018) Illness Uncertainty and Posttraumatic Stress in Young Adults With Congenital Heart Disease. Journal of Cardiovascular Nursing 33:4, pages 356-362.
Crossref
Crossref
Janni Lisander Larsen, Elisabeth O.C. Hall, Søren Jacobsen & Regner Birkelund. (2018) Being in a standstill-of-life: women's experience of being diagnosed with systemic lupus erythematosus: a hermeneutic-phenomenological study. Scandinavian Journal of Caring Sciences 32:2, pages 654-662.
Crossref
Crossref
Janni Lisander Larsen, Elisabeth O. C. Hall, Søren Jacobsen & Regner Birkelund. (2018) The existential experience of everyday life with systemic lupus erythematosus. Journal of Advanced Nursing 74:5, pages 1170-1179.
Crossref
Crossref
Heather May Morgan, Vikki A. Entwistle, Alan Cribb, Simon Christmas, John Owens, Zoë C. Skea & Ian S. Watt. (2017) We need to talk about purpose: a critical interpretive synthesis of health and social care professionals’ approaches to self-management support for people with long-term conditions. Health Expectations 20:2, pages 243-259.
Crossref
Crossref
Sophie Cleanthous, David Alan Isenberg, Stanton Peter Newman & Stefan John Cano. (2016) Patient Uncertainty Questionnaire-Rheumatology (PUQ-R): development and validation of a new patient-reported outcome instrument for systemic lupus erythematosus (SLE) and rheumatoid arthritis (RA) in a mixed methods study. Health and Quality of Life Outcomes 14:1.
Crossref
Crossref
Kim W. Austin, Suzanne W. Ameringer, Angela R. Starkweather, Leslie J. Cloud, Jamie L. Sturgill & Ronald K. Elswick. (2016) Biobehavioral Framework of Symptom and Health Outcomes of Uncertainty and Psychological Stress in Parkinson Disease. Journal of Neuroscience Nursing 48:6, pages E2-E9.
Crossref
Crossref
Laila Twisttmann Bay & Hanne Aagaard. (2016) Tvivl og utryghed hos patienter med reumatologisk sygdom – oplevelsen af transitionen fra sengeafsnit til eget hjem. Nordisk sygeplejeforskning 6:2, pages 129-143.
Crossref
Crossref
C. Pollard, S. Hartz, S. Liu Leage, M.A Paget, J. Cook & A. Enstone. (2015) Elicitation of health state utilities associated with varying severities of flares in Systemic Lupus Erythematosus. Health and Quality of Life Outcomes 13:1.
Crossref
Crossref
Gabriella Dvorak, Babak Monshi, Markus Hof, Thomas Bernhart, Corinna Bruckmann & Klemens Rappersberger. (2015) Gender aspects in oral health-related quality of life of oral lichen planus patients. international journal of stomatology & occlusion medicine 8:2, pages 33-40.
Crossref
Crossref
Ad A. Kaptein, Joshua M. Smyth & Richard S. Panush. (2014) Wolf—living with SLE in a novel. Clinical Rheumatology 34:5, pages 887-890.
Crossref
Crossref
E J M Zirkzee, M E Ndosi, T P M Vliet Vlieland & J J L Meesters. (2014) Measuring educational needs among patients with systemic lupus erythematosus (SLE) using the Dutch version of the Educational Needs Assessment Tool (D-ENAT). Lupus 23:13, pages 1370-1376.
Crossref
Crossref