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Journal of Women & Aging Volume 26, 2014 - Issue 1
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Articles

The Psychological and Health Consequences of Caring for a Spouse With Dementia: A Critical Comparison of Husbands and Wives

Carrie Gibbons Research Department, St. Joseph's Care Group, Thunder Bay, Ontario, CanadaCorrespondence[email protected]
,
Joy Creese Department of Psychology, Lakehead University, Thunder Bay, Ontario, Canada
,
Mun Tran Extensive Services, St. Joseph's Care Group, Thunder Bay, Ontario, Canada
,
Kevin Brazil Department of Clinical Epidemiology & Biostatistics, McMaster University, Hamilton, Ontario, Canada
,
Lori Chambers Women's Studies, Lakehead University, Thunder Bay, Ontario, Canada
,
Bruce Weaver Human Sciences Division, Northern Ontario School of Medicine, Thunder Bay, Ontario, Canada
&
Michel Bédard Department of Health Sciences and Northern Ontario School of Medicine, Lakehead University, St. Joseph's Care Group, Thunder Bay, Ontario, Canada
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Pages 3-21 | Published online: 31 Jan 2014

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Delia Colombo, Emanuela Zagni, Paolo Maria Rossini, Luigi Di Cioccio, Daniela Gragnaniello, Emilio Luda Di Cortemiglia, Mahmood Attar, Lucia Simoni, Shalom Haggiag & Roberto Bernabei. (2023) Informal caregiver’s socio demographic profile for community-dwelling women and men with mild to moderate Alzheimer’s disease, compliance, and satisfaction to treatment: A post-hoc analysis of the AXEPT study. Health Care for Women International 44:12, pages 1622-1637.
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Xinyi Zhao, Quan Zhang, Ying Ji, Huiying Liu & Vivian W. Q. Lou. (2023) Influence of spousal caregiving and living arrangement on depression among husband caregivers in rural China. Aging & Mental Health 27:7, pages 1266-1273.
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Sarah B. Wackerbarth & Yelena N. Tarasenko. (2018) Does vigilance in decision-making matter for dementia family caregivers?. Aging & Mental Health 22:5, pages 692-699.
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Hye Jin Kim. (2018) Grandparents providing care for grandchildren and employment status of grandparents in South Korea. Journal of Women & Aging 30:1, pages 49-61.
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Rosie Erol, Dawn Brooker & Elizabeth Peel. (2016) The impact of dementia on women internationally: An integrative review. Health Care for Women International 37:12, pages 1320-1341.
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Lauren N. DeCaporale-Ryan, Ann M. Steffen, Samuel J. Marwit & Thomas M. Meuser. (2016) Dementia spousal caregivers and past transgressions: Measuring and understanding forgiveness experiences. Journal of Women & Aging 28:6, pages 510-520.
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Rita Phillips, Mark Durkin, Hilary Engward, Graham Cable & Maria Iancu. (2023) The impact of caring for family members with mental illnesses on the caregiver: a scoping review. Health Promotion International 38:3.
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Mark Lee, Ryan T. Demmer, Anna Kucharska-Newton, Beverly Gwen Windham, Priya Palta, Tetyana Shippee & Pamela L. Lutsey. (2023) Spousal Cognitive Status and Risk for Declining Cognitive Function and Dementia: The Atherosclerosis Risk in Communities Study. Journal of Aging and Health, pages 089826432311559.
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Shana D. Stites, Hannah Cao, Richard James, Kristin Harkins, Cameron Coykendall & Jason D. Flatt. (2023) A systematic review of measures of gender and biological sex: Exploring candidates for Alzheimer's disease and related dementias (AD/ADRD) research. Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring 15:1.
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Elin Nilsson & Anna Olaison. (2022) Persuasion in practice: Managing diverging stances in needs assessment meetings with older couples living with dementia. Qualitative Social Work 21:6, pages 1123-1146.
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Ragnhild Hedman, Pernilla Hillerås & Marie Tyrrell. (2022) Living in uncertainty while a spouse is undergoing a cognitive assessment: Voices of women care partners. Dementia 21:8, pages 2631-2646.
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Carlo Lai, Paola Aceto, Gaia Romana Pellicano, Giulia Servidei, Aldo Gambardella & Luigi Lombardo. (2021) Will I or my loved one die? Concordant awareness between terminal cancer patients and their caregivers is associated with lower patient anxiety and caregiver burden. European Journal of Cancer Care 31:6.
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Susanne Kristiansen, Malene Beck, Zarina Nahar Kabir & Hanne Konradsen. (2020) Providing dementia care using technological solutions: An exploration of caregivers' and dementia coordinators' experiences. Journal of Clinical Nursing 31:13-14, pages 1874-1883.
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Siera J. Reimnitz & Amy J. Rauer. (2022) Mutual enjoyment in older couples' conversations and its links to marital satisfaction. Personal Relationships 29:2, pages 332-349.
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Carla Gomes da Rocha, Béatrice Perrenoud & Anne-Sylvie Ramelet. (2022) Perceptions of Burden and Preparedness for Caregiving among the Family Caregivers of Hospitalised Older Adults: A Cross-Sectional Study. Geriatrics 7:1, pages 19.
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Kyungmi Lee, Maria Yefimova, Frank Puga & Carolyn E. Pickering. (2021) Gender Differences in Caregiver Burden Among Family Caregivers of Persons With Dementia. Journal of Gerontological Nursing 47:7, pages 33-42.
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Bekti Krisdyana, Diffah Hanim & Sugiarto Sugiarto. (2021) THE CORRELATION BETWEEN ENERGY, CARBOHYDRATE, FAT AND PROTEIN CONSUMPTION LEVEL WITH DEMENSIA IN ELDERLY. Media Gizi Indonesia 16:1, pages 72.
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Klara Lorenz-Dant & Mary Mittelman. 2021. Sex and Gender Differences in Alzheimer's Disease. Sex and Gender Differences in Alzheimer's Disease 393 419 .
Elizabeth G. Birkenhäger‐Gillesse, Wilco P. Achterberg, Sarah I.M. Janus, Boudewijn J. Kollen & Sytse U. Zuidema. (2020) Effects of caregiver dementia training in caregiver‐patient dyads: A randomized controlled study . International Journal of Geriatric Psychiatry 35:11, pages 1376-1384.
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Silvia Mejía-Arango, Mariana López-Ortega & Laura Barba-Ramírez. 2020. Caring for Latinxs with Dementia in a Globalized World. Caring for Latinxs with Dementia in a Globalized World 267 280 .
Dragana Lukić. (2019) Multiple ontologies of Alzheimer’s disease in Still Alice and A Song for Martin : A feminist visual studies of technoscience perspective . European Journal of Women's Studies 26:4, pages 375-389.
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Wendy Duggleby, Kathya Jovel Ruiz, Jenny Ploeg, Carrie McAiney, Shelley Peacock, Cheryl Nekolaichuk, Jayna Holroyd-Leduc, Sunita Ghosh, Kevin Brazil, Jennifer Swindle, Dorothy Forbes, Sandra Woodhead Lyons, Jasneet Parmar, Sharon Kaasalainen, Laura Cottrell & Jillian Paragg. (2018) Mixed-methods single-arm repeated measures study evaluating the feasibility of a web-based intervention to support family carers of persons with dementia in long-term care facilities. Pilot and Feasibility Studies 4:1.
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Corinne Reczek, Lauren Gebhardt-Kram, Alexandra Kissling & Debra Umberson. (2018) Healthcare Work in Marriage: How Gay, Lesbian, and Heterosexual Spouses Encourage and Coerce Medical Care. Journal of Health and Social Behavior 59:4, pages 554-568.
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Simon Coulombe, David A. Krzesni, Shaleen Jones & Michelle Hébert Boyd. (2018) Supporting Family Caregivers of People Living With Mental Health, Addiction, and Other Issues: Narrative Review of Canadian and International Intervention Studies. Journal of Psychosocial Rehabilitation and Mental Health 5:2, pages 183-197.
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Kristiina Juntunen, Anna‐Liisa Salminen, Timo Törmäkangas, Päivi Tillman, Kirsi Leinonen & Riku Nikander. (2018) Perceived burden among spouse, adult child, and parent caregivers. Journal of Advanced Nursing 74:10, pages 2340-2350.
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Margaret Pozzebon, Jacinta Douglas & David Ames. (2018) Facing the Challenges of Primary Progressive Aphasia: The Spousal Perspective. Journal of Speech, Language, and Hearing Research 61:9, pages 2292-2312.
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Kim Mooney-DoyleJanet A. DeatrickConnie M. UlrichSalimah H. MeghaniChris Feudtner. (2018) Parenting in Childhood Life-Threatening Illness: A Mixed-Methods Study. Journal of Palliative Medicine 21:2, pages 208-215.
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Nabila DahodwalaKrunal ShahYing HeSamuel S. WuPeter SchmidtFernando CubillosAllison W. Willis. (2018) Sex disparities in access to caregiving in Parkinson disease. Neurology 90:1.
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Ruth Bartlett, Trude Gjernes, Ann-Therese Lotherington & Aud Obstefelder. (2018) Gender, citizenship and dementia care: a scoping review of studies to inform policy and future research. Health & Social Care in the Community 26:1, pages 14-26.
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Pinar Borman, Yeşim Gökçe-Kutsal, Füsun Terzioğlu, Muyesser Okumuş, Esma Ceceli, Sevilay Karahan, Kazim Şenel, Kutay Ordu Gökkaya, Asuman Doğan, Nurten Eskiyurt, Rezan Günaydin, Sibel Eyigör, Nilay Şahin & Mehtap Şahin. (2017) A Multicenter Pilot Study of Burden Among Caregivers of Geriatric Rehabilitation Patients With Neuromusculoskeletal Diseases. Rehabilitation Nursing 42:4, pages 199-209.
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Hye-Young JangMyungsun Yi. (2017) Hermeneutic Phenomenological Study on Caring Experience of Spouses of Elderly People with Dementia at Home. Journal of Korean Academy of Nursing 47:3, pages 367.
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Wendy Duggleby, Allison Williams, Sunita Ghosh, Heather Moquin, Jenny Ploeg, Maureen Markle-Reid & Shelley Peacock. (2016) Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions. Health and Quality of Life Outcomes 14:1.
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Allison Williams, Bharati Sethi, Wendy Duggleby, Jenny Ploeg, Maureen Markle-Reid, Shelley Peacock & Sunita Ghosh. (2016) A Canadian qualitative study exploring the diversity of the experience of family caregivers of older adults with multiple chronic conditions using a social location perspective. International Journal for Equity in Health 15:1.
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Beate Schrank, Alexandra Ebert-Vogel, Michaela Amering, Eva K. Masel, Marie Neubauer, Herbert Watzke, Sonja Zehetmayer & Sophie Schur. (2016) Gender differences in caregiver burden and its determinants in family members of terminally ill cancer patients. Psycho-Oncology 25:7, pages 808-814.
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Margaret Pozzebon, Jacinta Douglas & David Ames. (2016) Spouses’ experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research. International Psychogeriatrics 28:4, pages 537-556.
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Marie-Luise Friedemann & Kathleen C. Buckwalter. (2014) Family Caregiver Role and Burden Related to Gender and Family Relationships. Journal of Family Nursing 20:3, pages 313-336.
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. (2014) 2014 Alzheimer's disease facts and figures. Alzheimer's & Dementia 10:2.
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