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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 22, 2010 - Issue sup1: Expanding antiretroviral therapy provision in resource-constrained settings: social dynamics and policy challenges
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ART SPECIAL ARTICLES

“It is not an easy decision on HIV, especially in Zambia”: opting for silence, limited disclosure and implicit understanding to retain a wider identity

Virginia Anne Bond ZAMBART Project, School of Medicine, Ridgeway Campus, Lusaka, P.O. Box 30093, Zambia; Faculty of Public Health and Policy, LSHTM, Keppel Street, London, WC1E 7HT, UKCorrespondence[email protected]
Pages 6-13 | Received 07 Sep 2009, Published online: 02 Aug 2010

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Lario Viljoen, Hanlie Myburgh & Lindsey Reynolds. (2021) “It Stays Between Us”: Managing Comorbidities and Public/Private Dichotomies in HPTN071 (POPART) Trial Communities. Medical Anthropology 40:3, pages 280-293.
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David Etoori, Alison Wringe, Jenny Renju, Chodziwadziwa Whiteson Kabudula, Francesc Xavier Gomez-Olive & Georges Reniers. (2020) Challenges with tracing patients on antiretroviral therapy who are late for clinic appointments in rural South Africa and recommendations for future practice. Global Health Action 13:1.
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Constance R. S Mackworth-Young, Virginia Bond & Alison Wringe. (2020) Secrets and Silence: Agency of Young Women Managing HIV Disclosure. Medical Anthropology 39:8, pages 720-734.
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Zvisinei Moyo & Juliet Perumal. (2019) Perceptions of school principals and experiences of disclosure of teachers living with HIV. African Journal of AIDS Research 18:2, pages 148-157.
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Shona Horter, Sarah Bernays, Zanele Thabede, Velibanti Dlamini, Bernhard Kerschberger, Munyaradzi Pasipamire, Barbara Rusch & Alison Wringe. (2019) “I don’t want them to know”: how stigma creates dilemmas for engagement with Treat-all HIV care for people living with HIV in Eswatini. African Journal of AIDS Research 18:1, pages 27-37.
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Sydney A. Spangler, Lisa L. Abuogi, Eliud Akama, Elizabeth A. Bukusi, Anna Helova, Pamela Musoke, Wafula Z. Nalwa, Thomas A. Odeny, Maricianah Onono, Iris Wanga & Janet M. Turan. (2018) From ‘half-dead’ to being ‘free’: resistance to HIV stigma, self-disclosure and support for PMTCT/HIV care among couples living with HIV in Kenya. Culture, Health & Sexuality 20:5, pages 489-503.
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Rebecca A. Poku, Adobea Yaa Owusu, Patricia Dolan Mullen, Christine Markham & Sheryl A. McCurdy. (2017) Considerations for purposeful HIV status disclosure among women living with HIV in Ghana. AIDS Care 29:5, pages 541-544.
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Sonja Merten. (2016) Ambiguous care: siblings and the economies of HIV-related care in Zambia. AIDS Care 28:sup4, pages 41-50.
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Naomi Haynes. (2015) Change and Chisungu in Zambia's Time of AIDS. Ethnos 80:3, pages 364-384.
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Susan R. Hemer. (2015) Breaking Silences and Upholding Confidences: Responding to HIV in the Lihir Islands, Papua New Guinea. Medical Anthropology 34:2, pages 124-138.
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M.S. Winchester, J.W. McGrath, D. Kaawa-Mafigiri, F. Namutiibwa, G. Ssendegye, A. Nalwoga, E. Kyarikunda, J. Birungi, S. Kisakye, N. Ayebazibwe, E. Walakira & C.B. Rwabukwali. (2013) Early HIV disclosure and nondisclosure among men and women on antiretroviral treatment in Uganda. AIDS Care 25:10, pages 1253-1258.
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Articles from other publishers (25)

Rainier Masa, Mathias Zimba, Gilbert Zimba, Graham Zulu, Joseph Zulu & Don Operario. (2023) The Association of Emotional Support, HIV Stigma, and Home Environment With Disclosure Efficacy and Perceived Disclosure Outcomes in Young People Living With HIV in Zambia: A Cross-Sectional Study. Journal of the Association of Nurses in AIDS Care.
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Constance R. S. Mackworth-Young, Alison Wringe, Sue Clay, Mutale Chonta, Chipo Chiiya, Katongo Konayuma, Kirsty Sievwright, Madalitso Mbewe, Mwangala Mwale, Anne L. Stangl & Virginia Bond. (2020) Critical Reflections on Individual Collages as a Research Method With Young Women Living With HIV in Zambia. Emerging Adulthood 10:5, pages 1161-1172.
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Sanny Mulubale, Sue Clay, Corinne Squire, Virginia Bond, Kasoka Kasoka, Lucy Stackpool-Moore, Tessa Oraro-Lawrence, Mutale Chonta & Chipo Chiiya. (2022) Situating HIV Stigma in Health Facility Settings: A Qualitative Study of Experiences and Perceptions of Stigma in ‘Clinics’ among Healthcare Workers and Service Users in Zambia. Journal of the International Association of Providers of AIDS Care (JIAPAC) 21, pages 232595822211004.
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Lario Viljoen, Dillon Wademan, Graeme Hoddinott, Virginia Bond, Janet Seeley, Peter Bock, Sarah Fidler & Lindsey Reynolds. (2021) The act of telling: South African women’s narratives of HIV status disclosure to intimate partners in the HPTN 071 (PopART) HIV prevention trial. Women's Health 17, pages 174550652199820.
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Hanlie Myburgh, Esmé Calitz, Jean P. Railton, Christina Maluleke, Elizabeth Mashao, Patiswa Ketelo, Geoff Jobson, Cornelius J. Grobbelaar, Helen E. Struthers & Remco P.H. Peters. (2018) Breaking Down Barriers to Tell: A Mixed Methods Study of Health Worker Involvement in Disclosing to Children That They Are Living with HIV in Rural South Africa. Journal of the Association of Nurses in AIDS Care 29:6, pages 902-913.
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Constance RS Mackworth-Young, Virginia Bond, Alison Wringe, Katongo Konayuma, Sue Clay, Chipo Chiiya, Mutale Chonta, Kirsty Sievwright & Anne L Stangl. (2017) “ My mother told me that I should not ”: a qualitative study exploring the restrictions placed on adolescent girls living with HIV in Zambia . Journal of the International AIDS Society 20:4, pages e25035.
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Angela Odiachi. (2017) The Impact of Disclosure on Health and Related Outcomes in Human Immunodeficiency Virus-Infected Children: A Literature Review. Frontiers in Public Health 5.
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T. Charles Witzel, Wezzie Lora, Shelley Lees & Nicola Desmond. (2017) Uptake contexts and perceived impacts of HIV testing and counselling among adults in East and Southern Africa: A meta-ethnographic review. PLOS ONE 12:2, pages e0170588.
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Sarah Bernays, Janet Seeley, Tim Rhodes & Zivai Mupambireyi. 2015. Children, Health and Well‐being. Children, Health and Well‐being 98 111 .
Janet A. Parsons, Virginia A. Bond & Stephanie A. Nixon. (2015) ‘Are We Not Human?’ Stories of Stigma, Disability and HIV from Lusaka, Zambia and Their Implications for Access to Health Services. PLOS ONE 10:6, pages e0127392.
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Sarah Bernays, Janet Seeley, Tim Rhodes & Zivai Mupambireyi. (2014) What am I ‘living’ with? Growing up with HIV in Uganda and Zimbabwe . Sociology of Health & Illness 37:2, pages 270-283.
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Maricianah A Onono, Craig R Cohen, Mable Jerop, Elizabeth A Bukusi & Janet M Turan. (2014) HIV serostatus and disclosure: implications for infant feeding practice in rural south Nyanza, Kenya. BMC Public Health 14:1.
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Jan Ostermann, Bernard Njau, Derek S. Brown, Axel Mühlbacher & Nathan Thielman. (2014) Heterogeneous HIV Testing Preferences in an Urban Setting in Tanzania: Results from a Discrete Choice Experiment. PLoS ONE 9:3, pages e92100.
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Abigail M Hatcher, Nataly Woollett, Christina C Pallitto, Keneuoe Mokoatle, Heidi Stöckl, Catherine MacPhail, Sinead Delany-Moretlwe & Claudia García-Moreno. (2014) Bidirectional links between HIV and intimate partner violence in pregnancy: implications for prevention of mother-to-child transmission. Journal of the International AIDS Society 17:1, pages 19233.
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Marte Jürgensen, Ingvild F. Sandøy, Charles Michelo, Knut Fylkesnes, Sheila Mwangala & Astrid Blystad. (2013) The seven Cs of the high acceptability of home-based VCT: Results from a mixed methods approach in Zambia. Social Science & Medicine 97, pages 210-219.
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Janet M. Turan & Laura Nyblade. (2013) HIV-related Stigma as a Barrier to Achievement of Global PMTCT and Maternal Health Goals: A Review of the Evidence. AIDS and Behavior 17:7, pages 2528-2539.
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Kate Cockrill, Ushma D. Upadhyay, Janet Turan & Diana Greene Foster. (2013) The Stigma of Having an Abortion: Development of a Scale and Characteristics of Women Experiencing Abortion Stigma. Perspectives on Sexual and Reproductive Health 45:2, pages 79-88.
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Willis Omondi Odek. (2012) Formal Employment and Health-Related Quality of Life among People Living with HIV in South Africa. Applied Research in Quality of Life 8:2, pages 145-168.
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Paul Flowers & Mark DM Davis. (2012) Understanding the biopsychosocial aspects of HIV disclosure among HIV-positive gay men in Scotland. Journal of Health Psychology 18:5, pages 711-724.
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Marte Jürgensen, Ingvild Fossgard Sandøy, Charles Michelo & Knut Fylkesnes. (2013) Effects of home-based Voluntary Counselling and Testing on HIV-related stigma: Findings from a cluster-randomized trial in Zambia. Social Science & Medicine 81, pages 18-25.
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Marte Jürgensen, Mary Tuba, Knut Fylkesnes & Astrid Blystad. (2012) The burden of knowing: balancing benefits and barriers in HIV testing decisions. a qualitative study from Zambia. BMC Health Services Research 12:1.
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Anita Hardon, Eva Vernooij, Grace Bongololo-Mbera, Peter Cherutich, Alice Desclaux, David Kyaddondo, Odette Ky-Zerbo, Melissa Neuman, Rhoda Wanyenze & Carla Obermeyer. (2012) Women's views on consent, counseling and confidentiality in PMTCT: a mixed-methods study in four African countries. BMC Public Health 12:1.
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Joseph Rujumba, Stella Neema, Robert Byamugisha, Thorkild Tylleskär, James K Tumwine & Harald K Heggenhougen. (2012) “Telling my husband I have HIV is too heavy to come out of my mouth”: pregnant women's disclosure experiences and support needs following antenatal HIV testing in eastern Uganda. Journal of the International AIDS Society 15:2.
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Janet Seeley, Martin Mbonye, Nelly Ogunde, Isaiah Kalanzi, Brent Wolff & Alex Coutinho. (2011) HIV and identity: the experience of AIDS support group members who unexpectedly tested HIV negative in Uganda. Sociology of Health & Illness 34:3, pages 330-344.
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Marie Suzan-Monti, Jérôme Blanche, Paule Bilé, Sinata Koulla-Shiro, Mohammad Abu-Zaineh, Fabienne Marcellin, Sylvie Boyer, Maria Patrizia Carrieri & Bruno Spire. (2011) Individual and Structural Factors Associated With HIV Status Disclosure to Main Partner in Cameroon: ANRS 12-116 EVAL Survey, 2006–2007. JAIDS Journal of Acquired Immune Deficiency Syndromes 57:Supplement 1, pages S22-S26.
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