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Disability and Rehabilitation Volume 44, 2022 - Issue 22
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Research Papers

Experiences of patients with facioscapulohumeral dystrophy with facial weakness: a qualitative study

Sümeyye Sezera Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The NetherlandsORCID Iconhttps://orcid.org/0000-0001-7386-334X
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Edith H. C. Cupb Department of Rehabilitation, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The NetherlandsORCID Iconhttps://orcid.org/0000-0003-3452-9650
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Lieve M. Roets-Merkenc Radboud Institute for Health Science, Radboud University Medical Center, Nijmegen, The NetherlandsORCID Iconhttps://orcid.org/0000-0002-7248-7968
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Anke Lanserd Patient Representative & Chairman FSHD Advocacy Group, Patient Organization for Muscular Disease Spierziekten Nederland, Baarn, The Netherlands
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Ietske Siemanne Department of Medical Psychology, Radboud University Medical Center, Nijmegen, The NetherlandsORCID Iconhttps://orcid.org/0000-0002-0246-4402
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Janneke G. Weikampf Department of Rehabilitation, Donders Centre for Neuroscience, Radboud University Medical Center, Nijmegen, The NetherlandsORCID Iconhttps://orcid.org/0000-0002-1003-0161
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Karlien Mula Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The NetherlandsORCID Iconhttps://orcid.org/0000-0001-8487-9478
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Baziel G. van Engelena Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The NetherlandsORCID Iconhttps://orcid.org/0000-0001-9867-9047
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Ton Satinkg Department of Occupational Therapy, HAN University of Applied Sciences, Nijmegen, The NetherlandsORCID Iconhttps://orcid.org/0000-0003-2316-7009
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Nicol C. Voermansa Department of Neurology, Donders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The NetherlandsCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0002-5837-7295
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Pages 6775-6782 | Received 27 Apr 2021, Accepted 23 Aug 2021, Published online: 16 Sep 2021

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W. A. van de Geest-Buit, N. B. Rasing, K. Mul, J. C. W. Deenen, S. C. C. Vincenten, I. Siemann, A. Lanser, J. T. Groothuis, B. G. van Engelen, J. A. E. Custers & N. C. Voermans. (2023) Facing facial weakness: psychosocial outcomes of facial weakness and reduced facial function in facioscapulohumeral muscular dystrophy. Disability and Rehabilitation 45:15, pages 2507-2516.
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Karlien Mul, Feri Wijayanto, Tom G. J. Loonen, Perry Groot, Sanne C. C. Vincenten, Simone Knuijt, Jan T. Groothuis, Thomas J. J. Maal, Tom Heskes, Nicol C. Voermans & Baziel G. M. van Engelen. (2023) Development and validation of the patient-reported “Facial Function Scale” for facioscapulohumeral muscular dystrophy. Disability and Rehabilitation 45:9, pages 1530-1535.
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