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ARTICLES

Barriers to Medical Research Participation as Perceived by Clinical Trial Investigators: Communicating with Rural and African American Communities

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Saloni Sapru, Simani M. Price, Lisa A. Hark, Lindsay A. Rhodes & Paula Anne Newman-Casey. (2023) Recruiting Populations at Higher Risk for Glaucoma and Other Eye Diseases Experiencing Eye Health Disparities. Ophthalmic Epidemiology 0:0, pages 1-9.
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Sungkyoung Lee, Namyeon Lee & Ciera Elaine Kirkpatrick. (2023) Effects of Communication Source and Racial Representation in Clinical Trial Recruitment Flyers. Health Communication 38:4, pages 790-802.
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Soroya Julian McFarlane, Aurora Occa, Wei Peng, Oluwatumininu Awonuga & Susan E. Morgan. (2022) Community-Based Participatory Research (CBPR) to Enhance Participation of Racial/Ethnic Minorities in Clinical Trials: A 10-Year Systematic Review. Health Communication 37:9, pages 1075-1092.
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Jennifer B. McCormick, Margaret Hopkins, Erik B. Lehman & Michael J. Green. (2022) Mining the Data: Exploring Rural Patients’ Attitudes about the Use of Their Personal Information in Research. AJOB Empirical Bioethics 13:2, pages 89-106.
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Eve T Shapiro, Jay T Schamel, Kimberly A Parker, Laura A Randall & Paula M Frew. (2017) The role of functional, social, and mobility dynamics in facilitating older African Americans participation in clinical research. Open Access Journal of Clinical Trials 9, pages 21-30.
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Katherine E. Ridley-Merriweather & Katharine J. Head. (2017) African American Women’s Perspectives on Donating Healthy Breast Tissue for Research: Implications for Recruitment. Health Communication 32:12, pages 1571-1580.
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Susan E. Morgan, Ashton Mouton, Aurora Occa & Jonell Potter. (2016) Clinical Trial and Research Study Recruiters’ Verbal Communication Behaviors. Journal of Health Communication 21:7, pages 765-772.
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Jingbo Meng, Margaret McLaughlin, Katrina Pariera & Sheila Murphy. (2016) A Comparison Between Caucasians and African Americans in Willingness to Participate in Cancer Clinical Trials: The Roles of Knowledge, Distrust, Information Sources, and Religiosity. Journal of Health Communication 21:6, pages 669-677.
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Daniela B. Friedman, Vance Kornegay, Andrea Tanner, Caroline D. Bergeron, Diana C. Sisson, Megan A. Weis & Lee L. Patterson. (2016) Partnering with the Public Library for Health Care Education: An Evaluation of Affordable Care Act Messages. Public Library Quarterly 35:1, pages 1-22.
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Sei-Hill Kim, Andrea Tanner, Daniela B. Friedman, Caroline Foster & Caroline Bergeron. (2015) Barriers to Clinical Trial Participation: Comparing Perceptions and Knowledge of African American and White South Carolinians. Journal of Health Communication 20:7, pages 816-826.
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Articles from other publishers (49)

Cynterria Henderson, Taylor Scott, Bee Schinder, Erricka Hager, Felicia Savage Friedman, Elizabeth Miller & Maya I Ragavan. (2022) Shifting the Paradigm From Participant Mistrust to Researcher & Institutional Trustworthiness: A Qualitative Study of Researchers’ Perspectives on Building Trustworthiness With Black Communities. Community Health Equity Research & Policy 44:2, pages 127-136.
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Leslie S. CraigDaniel F. SarpongErin M. PeacockShearon RobertsKatherine P. TheallLaKeisha WilliamsSara Al-DahirTerry C. DavisConnie L. ArnoldAllie WilliamsTynesia FieldsMichelle WilsonMarie Krousel-Wood. (2023) Using Community Feedback to Inform Strategies for Inclusive Participation in Research: Lessons Learned From the Louisiana Community Engagement Alliance (LA-CEAL). American Journal of Public Health, pages e1-e4.
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Haoran Li, Kamal Kant Sahu, Shruti Adidam Kumar, Nishita Tripathi, Nicolas Sayegh, Blake Nordblad, Beverly Chigarira, Sumati Gupta, Benjamin L. Maughan, Neeraj Agarwal & Umang Swami. (2023) Access to Care and Healthcare Quality Metrics for Patients with Advanced Genitourinary Cancers in Urban versus Rural Areas. Cancers 15:21, pages 5171.
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Leslie S. Craig, Daniel F. Sarpong, Erin M. Peacock, Katherine P. Theall, LaKeisha Williams, Sara Al-Dahir, Terry C. Davis, Connie L. Arnold, Allie Williams, Tynesia Fields, Michelle Wilson & Marie Krousel-Wood. (2023) Clinical trial participation among underserved communities: Insights from the Louisiana Community Engagement Alliance. The American Journal of the Medical Sciences 366:4, pages 254-262.
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Cynthia Hau, Jimmy T. Efird, Sarah M. Leatherman, Oleg V. Soloviev, Peter A. Glassman, Patricia A. Woods, Areef Ishani, William C. Cushman & Ryan E. Ferguson. (2023) A Centralized EHR-Based Model for the Recruitment of Rural and Lower Socioeconomic Participants in Pragmatic Trials. JAMA Network Open 6:9, pages e2332049.
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Yih‐Ing Hser, Larissa J. Mooney, Laura‐Mae Baldwin, Allison Ober, Lisa A. Marsch, Seth Sherman, Abigail Matthews, Sarah Clingan, Zhe Fei, Yuhui Zhu, Alex Dopp, Megan E. Curtis, Katie P. Osterhage, Emily G. Hichborn, Chunqing Lin, Megan Black, Stacy Calhoun, Caleb C. Holtzer, Noah Nesin, Denise Bouchard, Maja Ledgerwood, Margaret A. Gehring, Yanping Liu, Neul Ah Ha, Sean M. Murphy, Maria Hanano & Andrew J. Saxon. (2023) Care coordination between rural primary care and telemedicine to expand medication treatment for opioid use disorder: Results from a single‐arm, multisite feasibility study. The Journal of Rural Health 39:4, pages 780-788.
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B. Hensel, N. Askins, E. Ibarra, C. Aristizabal, I. Guzman, R. Barahona, B. Hazelton-Glenn, J. Lee, Z. Zhang, F. Odedina, D. J. Wilkie, M. C. Stern, L. Baezconde-Garbanati, S. Suther & F. Webb. (2023) Florida-California Cancer Health Equity Center (CaRE2) Community Scientist Research Advocacy Program. Journal of Cancer Education.
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Lorie Shora, Elizabeth Friberg, Lawrence T. Park, Regina DeGennaro, Ivora Hinton & Carlos A. ZarateJrJr. (2023) Assessing geographic disparities in mental health research participation. Contemporary Clinical Trials 131, pages 107244.
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Tariq Ziad Issa, Mark J. Lambrechts, Jose A. Canseco, Alan S. Hilibrand, Christopher K. Kepler, Alexander R. Vaccaro & Gregory D. Schroeder. (2023) Reporting demographics in randomized control trials in spine surgery - we must do better. The Spine Journal 23:5, pages 642-650.
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Matthew J. Leach, Sue Nichols, Sven Trenholm & Martin Jones. (2021) Health Literacy of Parents and Carers in a Regional Community: A Cross-Sectional Study. Community Health Equity Research & Policy 43:3, pages 275-282.
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Christine A. Pellegrini, Sara Wilcox, Katherine E. DeVivo & Scott Jamieson. (2023) Recruitment and Retention Strategies for Underrepresented Populations and Adults With Arthritis in Behavioral Interventions: A Scoping Review. Arthritis Care & Research.
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Joni C. Carroll, Cindy Jiang, Hailey Mook, Melissa A. Somma McGivney & Kim C. Coley. (2023) Patients’ opinions on participation in patient-centered outcomes research in community pharmacies: A qualitative study. Journal of the American Pharmacists Association 63:1, pages 182-187.
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Aly M. Fayed & Carola F. van Eck. 2023. Translational Sports Medicine. Translational Sports Medicine 389 394 .
Sisi Hu, Ciera E Kirkpatrick, Yoorim Hong, Namyeon Lee, Sungkyoung Lee & Amanda Hinnant. (2022) Improving rural White men’s attitudes toward clinical trial messaging and participation: effects of framing, exemplars and trust. Health Education Research 37:6, pages 476-494.
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Paul M. DardenIIII, Ann M. Davis, Jeannette Y. Lee, Milan Bimali, Alan E. Simon, Andrew M. Atz, Crystal S. Lim, Thao-Ly T. Phan, James R. Roberts, Russell J. McCulloh, Lee Pyles, Michelle Shaffer & Jessica N. Snowden. (2022) Active vs Traditional Methods of Recruiting Children for a Clinical Trial in Rural Primary Care Clinics. JAMA Network Open 5:11, pages e2244040.
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Janine M Rotsides, Lindsey E. Moses, Kelly M. Malloy, Chad Brenner, Shannon M. Fayson, David J. Brown & Matthew E. Spector. (2022) Disparities in access to translational research. Current Problems in Cancer 46:5, pages 100894.
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Pam Baker DeGuzman, David L. Vogel, Bethany Horton, Veronica Bernacchi, C. Allen Cupp, B. J. Ferrebee Ghamandi, Ivora D. Hinton, Christi Sheffield & Mark J. Jameson. (2021) Examination of a distress screening intervention for rural cancer survivors reveals low uptake of psychosocial referrals. Journal of Cancer Survivorship 16:3, pages 582-589.
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Ritchie Taylor, Gretchen Macy, Jooyeon Hwang, Vijay Golla, Charles Cann & Edrisa Sanyang. (2022) Using Collaborative Partnerships to Engage Firefighters in Rural Communities. International Journal of Environmental Research and Public Health 19:4, pages 2009.
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James R. Roberts, Sheva K. Chervinskiy, Russell McCulloh, Jessica Snowden, Paul M. Darden, Thao-Ly T. Phan, Erin Dawley, Victoria Reynolds, Crystal S. Lim, Lee Pyles, DeAnn Hubberd, Jaime Baldner, Lora Lawrence & Ann M. Davis. (2022) Conducting a pediatric randomized clinical trial during a pandemic: A shift to virtual procedures. Journal of Clinical and Translational Science 6:1.
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Taylor Howell, Shilpa Gummadi, Chau Bui, Jessica Santhakumar, Kristen Knight, Erik D. Roberson, Daniel Marson, Carol Chambless, Adam Gersteneker, Roy Martin, Richard Kennedy, Yue Zhang, John C. Morris, Krista L. Moulder, Connie Mayo, Maria Carroll, Yan Li, Ronald C. Petersen, Nikki H. Stricker, Rachel L. Nosheny, Scott Mackin & Michael W. Weiner. (2022) Development and implementation of an electronic Clinical Dementia Rating and Financial Capacity Instrument‐Short Form. Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring 14:1.
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Valeria Cardenas, Anna Rahman, Jenna Giulioni, Alexis Coulourides Kogan & Susan Enguidanos. (2021) Patient and physician perspectives on engaging in palliative and healthcare trials: a qualitative descriptive study. BMC Palliative Care 20:1.
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Katherine D. Mathews, Kristin M. Conway, Amber M. Gedlinske, Nicholas Johnson, Natalie Street, Russell J. Butterfield, Man Hung, Emma Ciafaloni & Paul A. Romitti. (2021) Characteristics of Clinical Trial Participants with Duchenne Muscular Dystrophy: Data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Children 8:10, pages 835.
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Stephenie Kennedy-Rea, Jay Mason, Courtney Hereford & Stacey Whanger. (2021) Engaging Community Perceptions of Research in Rural West Virginia. Collaborations: A Journal of Community-Based Research and Practice 4:1.
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Ann M. Davis, Paul M. Darden, Jessica Snowden, Alan E. Simon, Russell J. McCulloh, Milan Bimali & Jeannette Lee. (2021) Rationale and protocol for a cluster randomized, cross-over trial of recruitment methods of rural children in primary care clinics: A feasibility study of a pediatric weight control trial in the IDeA States Pediatric Clinical Trials Network. Contemporary Clinical Trials 107, pages 106476.
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M. Bryant Howren & John C. Higginbotham. (2021) Rural health in behavioral medicine: introduction to the special series. Journal of Behavioral Medicine 44:4, pages 437-439.
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Julia Jaekel, Elizabeth I Johnson, Lucia M Reyes, Kayla N Layton & Malinda N Harris. (2021) Conducting Research with Families of Infants Born with Neonatal Abstinence Syndrome: Recommendations from Rural Appalachia. Social Work Research 45:1, pages 63-68.
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Arunima Krishna & Teresa L. Thompson. (2019) Misinformation About Health: A Review of Health Communication and Misinformation Scholarship. American Behavioral Scientist 65:2, pages 316-332.
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Dima Dandachi, Rebecca Reece, Elizabeth W. Wang, Taylor Nelson, Christian Rojas‐Moreno & D. Matthew Shoemaker. (2020) Treating COVID‐19 in Rural America. The Journal of Rural Health 37:1, pages 205-206.
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Devon Noonan & Leigh Ann Simmons. (2020) Navigating Nonessential Research Trials During COVID‐19: The Push We Needed for Using Digital Technology to Increase Access for Rural Participants?. The Journal of Rural Health 37:1, pages 185-187.
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Adil E. Bharucha, Chung Il Wi, Sushmitha Grama Srinivasan, Hyuckjae Choi, Phillip H. Wheeler, Jennifer R. Stavlund, Daniel A. Keller, Kent R. Bailey & Young J. Juhn. (2021) Participation of rural patients in clinical trials at a multisite academic medical center. Journal of Clinical and Translational Science 5:1.
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Elizabeth Flood-Grady, Deaven Hough, Rachel E. Damiani, Nioud Mulugeta Gebru, David A. Fedele, Robert F. Leeman & Janice L. Krieger. (2020) Communication strategies for designing Facebook advertising campaigns to recruit rural participants to develop healthcare delivery interventions. Journal of Clinical and Translational Science 4:5, pages 398-407.
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Andrea C Villanti, Christie P Vallencourt, Julia C West, Catherine Peasley-Miklus, S Elisha LePine, Caitlin McCluskey, Elias Klemperer, Jeffrey S Priest, Alison Logan, Bill Patton, Nancy Erickson, Jennifer Hicks, Kathleen Horton, Shayla Livingston, Maria Roemhildt, Erin Singer, Megan Trutor & Rhonda Williams. (2020) Recruiting and Retaining Youth and Young Adults in the Policy and Communication Evaluation (PACE) Vermont Study: Randomized Controlled Trial of Participant Compensation. Journal of Medical Internet Research 22:7, pages e18446.
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Amber N. Hardeman & Marc J. Kahn. (2020) Technological Innovation in Healthcare: Disrupting Old Systems to Create More Value for African American Patients in Academic Medical Centers. Journal of the National Medical Association 112:3, pages 289-293.
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Jamey J. Lister, Jennifer D. Ellis & Miyoung Yoon. (2020) Opioid prescribing and opioid-overdose deaths in Michigan: Urban-rural comparisons and changes across 2013–2017. Addictive Behaviors Reports 11, pages 100234.
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Susan E. Morgan, Aurora Occa, Wei Peng & Soroya J. McFarlane. 2020. The Handbook of Applied Communication Research. The Handbook of Applied Communication Research 897 915 .
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Tamara G. J. Leech, Amy Irby-Shasanmi & Hadya Sow. (2019) Recruiting and Retaining Young Urban Black Men in a Study of Violence: Procedures Used and Lessons Learned. Field Methods 31:2, pages 131-149.
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Pearl A McElfish, L Joseph Su, Jeanette Y Lee, Gail Runnells, Ronda Henry-Tillman & Susan A Kadlubar. (2019) Mobile Mammography Screening as an Opportunity to Increase Access of Rural Women to Breast Cancer Research Studies. Breast Cancer: Basic and Clinical Research 13, pages 117822341987629.
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Erica E. Coates & James P. McHale. (2018) Triangular Interactions of Unmarried African American Mothers and Fathers with their 3-Month-Old Infants. Journal of Child and Family Studies 27:10, pages 3096-3106.
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Pearl A. McElfish, Christopher R. Long, James P. Selig, Brett Rowland, Rachel S. Purvis, Laura James, Angel Holland, Holly C. Felix & Marie-Rachelle Narcisse. (2018) Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas. Clinical and Translational Science 11:5, pages 487-497.
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Aurora Occa, Susan E. Morgan & JoNell E. Potter. (2017) Underrepresentation of Hispanics and Other Minorities in Clinical Trials: Recruiters’ Perspectives. Journal of Racial and Ethnic Health Disparities 5:2, pages 322-332.
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Laura SicesKatherine PawlowskiLaura FarfelDeirdre PhillipsYamini HoweDavid M. CochranRoula ChoueiriPeter W. ForbesStephanie J. BrewsterJean A. FrazierAnn NeumeyerCarolyn Bridgemohan. (2017) Feasibility of Conducting Autism Biomarker Research in the Clinical Setting. Journal of Developmental & Behavioral Pediatrics 38:7, pages 483-492.
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Andrea Tanner, Otis L. Owens, Diana Sisson, Vance Kornegay, Caroline D. Bergeron, Daniela B. Friedman, Megan Weis & Lee Patterson. (2016) Dodging the Debate and Dealing with the Facts: Using Research and the Public Library to Promote Understanding of the Affordable Care Act. The Library Quarterly 86:2, pages 172-192.
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Andrea Tanner, Caroline D. Bergeron, Yue Zheng, Daniela B. Friedman, Sei-Hill Kim & Caroline B. Foster. (2015) Communicating Effectively About Clinical Trials With African American Communities. Health Promotion Practice 17:2, pages 199-208.
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Daniela B. Friedman, Caroline Foster, Caroline D. Bergeron, Andrea Tanner & Sei-Hill Kim. (2015) A Qualitative Study of Recruitment Barriers, Motivators, and Community-Based Strategies for Increasing Clinical Trials Participation among Rural and Urban Populations. American Journal of Health Promotion 29:5, pages 332-338.
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