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Original Articles

Caring for relatives with chronic obstructive pulmonary disease: how does the disease severity impact on family carers?

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Pages 385-393 | Received 24 Apr 2013, Accepted 16 Aug 2013, Published online: 20 Sep 2013

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (9)

Anne-Marie Selzler, Dina Brooks, Alda Marques, Sara Souto-Miranda, Roger Goldstein & Joana Cruz. (2023) Assessing caregiving experience in COPD: content validity of the Zarit Burden Interview in Canadian and Portuguese caregivers. Disability and Rehabilitation 45:17, pages 2826-2836.
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Hyun-Hye Chu, Kyeong-Soo Lee, Kwan Ho Lee, Jin Hong Chung, Kyeong-Cheol Shin & Tae-Yoon Hwang. (2019) Association of physical and psychological health status between chronic obstructive pulmonary disease patients and their family caregivers. Health Care for Women International 40:10, pages 1019-1030.
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Hoda Badr, Alex D. Federman, Michael Wolf, Tracey A. Revenson & Juan P. Wisnivesky. (2017) Depression in individuals with chronic obstructive pulmonary disease and their informal caregivers. Aging & Mental Health 21:9, pages 975-982.
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Ella Mi, Emma Mi, Gail Ewing, Ravi Mahadeva, A Carole Gardener, Hanne Holt Butcher, Sara Booth & Morag Farquhar. (2017) Associations between the psychological health of patients and carers in advanced COPD. International Journal of Chronic Obstructive Pulmonary Disease 12, pages 2813-2821.
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Roberto Bernabeu-Mora, Gloria García-Guillamón, Joaquina Montilla-Herrador, Pilar Escolar-Reina, José Antonio García-Vidal & Francesc Medina-Mirapeix. (2016) Rates and predictors of depression status among caregivers of patients with COPD hospitalized for acute exacerbations: a prospective study. International Journal of Chronic Obstructive Pulmonary Disease 11, pages 3199-3205.
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Alda Marques, Raquel Gabriel, Cristina Jácome, Joana Cruz, Dina Brooks & Daniela Figueiredo. (2015) Development of a family-based pulmonary rehabilitation programme: an exploratory study. Disability and Rehabilitation 37:15, pages 1340-1346.
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Marc Miravitlles, Luz María Peña-Longobardo, Juan Oliva-Moreno & Álvaro Hidalgo-Vega. (2015) Caregivers’ burden in patients with COPD. International Journal of Chronic Obstructive Pulmonary Disease 10, pages 347-356.
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A’verria Sirkin Martin, Brian Distelberg, Barton W. Palmer & Dilip V. Jeste. (2015) Development of a new multidimensional individual and interpersonal resilience measure for older adults. Aging & Mental Health 19:1, pages 32-45.
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Nan Zhang, Zheng Tian, Xinyi Liu, Xi Yu & Lan Wang. (2023) Burden, coping and resilience among caregivers for patients with chronic obstructive pulmonary disease: An integrative review. Journal of Clinical Nursing.
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Anouk J.L. Muijsenberg, Sarah Houben-Wilke, Yuqin Zeng, Martijn A. Spruit & Daisy J.A. Janssen. (2023) Methods to assess adults’ learning styles and factors affecting learning in health education: A scoping review. Patient Education and Counseling 107, pages 107588.
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Helena Johansson, Carina Berterö, Lise-Lotte Jonasson & Katarina Berg. (2023) The experience of caregiver burden when being next of kin to a person with severe chronic obstructive pulmonary disease: A qualitative study. Chronic Respiratory Disease 20, pages 147997312311688.
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Nádia Hipólito, Sara Martins, Adriana Ruivo, Sofia Flora, Cândida G. Silva, Alda Marques, Dina Brooks & Joana Cruz. (2022) Construct validity and reliability of the Informal Caregiver Burden Assessment Questionnaire (QASCI) in caregivers of patients with COPD. Respiratory Medicine 205, pages 107027.
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Jean-Marie Grosbois, Sarah Gephine, Maeva Kyheng, Olivier Le Rouzic & Cécile Chenivesse. (2022) Improving the wellbeing of caregivers of patients with COPD using a home-based pulmonary rehabilitation programme. ERJ Open Research 8:4, pages 00255-2022.
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Seyyed Abolfazl Vagharseyyedin, Mahdi Arbabi, Hossein Rahimi & Sayyed Gholamreza Mortazavi Moghaddam. (2022) Effects of a Caregiver Educational Program on Interactions between Family Caregivers and Patients with Advanced COPD. Home Healthcare Now 40:2, pages 75-81.
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Eleanor C. Majellano, Vanessa L. Clark, Peter G. Gibson, Juliet M. Foster & Vanessa M. McDonald. (2021) The needs and well‐being of severe asthma and COPD carers: A cross‐sectional study . Respirology 27:2, pages 134-143.
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Conor Daly, Philip Ruane, Karl O’Reilly, Louise Longworth & Gabriela Vega-Hernandez. (2022) Caregiver burden in cystic fibrosis: a systematic literature review. Therapeutic Advances in Respiratory Disease 16, pages 175346662210864.
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Mahdi Arbabi, Hossein Rahimi, Nasim Mehrpooya, Seyyed Abolfazl Vagharseyyedin & Sayyed Gholamreza Mortazavi Moghaddam. (2021) The Effects of a Multidisciplinary Supportive Program on Caregiver Burden among the Family Caregivers of Patients with Advanced Chronic Obstructive Pulmonary Disease: A Randomized Controlled Field Trial. Journal of Advances in Medical and Biomedical Research 29:135, pages 206-214.
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Eleanor C. Majellano, Vanessa L. Clark, Juliet M. Foster, Peter G. Gibson & Vanessa M. McDonald. (2021) “It's like being on a roller coaster”: the burden of caring for people with severe asthma. ERJ Open Research 7:2, pages 00812-2020.
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Brian Allen & Loutfi S. Aboussouan. (2021) Diagnostic and therapeutic challenges of chronic obstructive pulmonary disease in the elderly. Current Opinion in Pulmonary Medicine 27:2, pages 113-119.
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Bing Liu, Pu Wang, Min Zhou, Yi Guo & Ranran Dai. (2021) Brief ICF Core Set for Obstructive Pulmonary Diseases: Validation from the Perspective of Chinese Respiratory Physicians. Journal of Shanghai Jiaotong University (Science) 26:1, pages 25-32.
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Matthias Villalobos & Michael Kreuter. 2021. Palliative Care in Lung Disease. Palliative Care in Lung Disease 27 41 .
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Suhani Patel, William D.-C. Man & Nicola J. Roberts. (2020) Informal carers and peer support in pulmonary rehabilitation: an underutilized resource?. Current Opinion in Supportive & Palliative Care 14:3, pages 213-218.
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Liz Forbat, Louise Anthias & Christine Anne Palmer. 2020. The Handbook of Systemic Family Therapy. The Handbook of Systemic Family Therapy 521 546 .
Liz Forbat, Louise Anthias & Christine Anne Palmer. 2020. The Handbook of Systemic Family Therapy. The Handbook of Systemic Family Therapy 521 546 .
Sonja J. Meiers, Sandra K. Eggenberger, Norma K. Krumwiede & Brant Deppa. (2020) Measuring Family Members’ Experiences of Integrating Chronic Illness Into Family Life: Preliminary Validity and Reliability of the Family Integration Experience Scale:Chronic Illness (FIES:CI). Journal of Family Nursing 26:2, pages 111-125.
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Hannele Siltanen & Virpi Jylhä. (2019) Supporting the supporter: a focus on families of patients with chronic obstructive pulmonary disease. JBI Database of Systematic Reviews and Implementation Reports 17:11, pages 2212-2213.
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Hannele Siltanen, Virpi Jylhä, Arja Holopainen & Eija Paavilainen. (2019) Family members’ experiences and expectations of self-management counseling while caring for a person with chronic obstructive pulmonary disease: a systematic review of qualitative evidence. JBI Database of Systematic Reviews and Implementation Reports 17:11, pages 2214-2247.
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Susann Strang, Josefin Fährn, Peter Strang, Agneta Ronstad & Louise Danielsson. (2019) Support to informal caregivers of patients with severe chronic obstructive pulmonary disease: a qualitative study of caregivers’ and professionals’ experiences in Swedish hospitals. BMJ Open 9:8, pages e028720.
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A Carole Gardener, Gail Ewing & Morag Farquhar. (2019) Enabling patients with advanced chronic obstructive pulmonary disease to identify and express their support needs to health care professionals: A qualitative study to develop a tool. Palliative Medicine 33:6, pages 663-675.
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Sara S McMillan, Michelle A King, Helen Stapleton, Adem Sav, Fiona Kelly & Amanda J Wheeler. (2019) A pharmacy carer support service: obtaining new insight into carers in the community. International Journal of Pharmacy Practice 27:1, pages 34-44.
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Arjun Bhadhuri, Hareth Al-Janabi, Sue Jowett & Kate Jolly. (2019) Incorporating Household Spillovers in Cost Utility Analysis: A Case Study Using Behavior Change in COPD. International Journal of Technology Assessment in Health Care 35:03, pages 212-220.
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Miriam Catherine Noonan, Jennifer Wingham & Rod S Taylor. (2018) ’Who Cares?' The experiences of caregivers of adults living with heart failure, chronic obstructive pulmonary disease and coronary artery disease: a mixed methods systematic review. BMJ Open 8:7, pages e020927.
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Morag Farquhar. (2017) Assessing carer needs in chronic obstructive pulmonary disease. Chronic Respiratory Disease 15:1, pages 26-35.
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Megan Gately & Keren Ladin. 2018. Chronic Illness Care. Chronic Illness Care 111 120 .
Alison Clare Gregory, Emma Williamson & Gene Feder. (2016) The Impact on Informal Supporters of Domestic Violence Survivors: A Systematic Literature Review. Trauma, Violence, & Abuse 18:5, pages 562-580.
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Joana Cruz, Alda Marques, Ana Machado, Sachi O'Hoski, Roger Goldstein & Dina Brooks. (2017) Informal caregiving in COPD: A systematic review of instruments and their measurement properties. Respiratory Medicine 128, pages 13-27.
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Sarah E. Harrington, Elizabeth Rogers & Megan Davis. (2017) Palliative care and chronic obstructive pulmonary disease. Current Opinion in Pulmonary Medicine 23:2, pages 154-160.
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Joana Cruz, Alda Marques & Daniela Figueiredo. (2017) Impacts of COPD on family carers and supportive interventions: a narrative review. Health & Social Care in the Community 25:1, pages 11-25.
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Daniela Figueiredo, Cristina Jácome, Raquel Gabriel & Alda Marques. (2015) Family care in chronic obstructive pulmonary disease: what happens when the carer is a man?. Scandinavian Journal of Caring Sciences 30:4, pages 721-730.
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Morag Farquhar. 2016. Palliative Care in Respiratory Disease. Palliative Care in Respiratory Disease 51 69 .
Songül Göriş, Züleyha Kılıç, Ferhan Elmalı, Nuri Tutar & Özlem Takcı. (2016) Care Burden and Social Support Levels of Caregivers of Patients with Chronic Obstructive Pulmonary Disease. Holistic Nursing Practice 30:4, pages 227-235.
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Crystal E. Brown, Nancy S. Jecker & J. Randall Curtis. (2016) Inadequate Palliative Care in Chronic Lung Disease. An Issue of Health Care Inequality. Annals of the American Thoracic Society 13:3, pages 311-316.
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Nienke Nakken, Martijn A. Spruit, Esther H.A. van den Bogaart, Monique van Vliet, Geeuwke J. de Vries, Frank L. Custers, Jan H. Vercoulen, Guus M. Asijee, Jean W. Muris, Lowie E.G.W. Vanfleteren, Frits M.E. Franssen, Emiel F.M. Wouters & Daisy J.A. Janssen. (2016) Health Status and Morbidities in Resident Relatives of Patients With COPD. Journal of the American Medical Directors Association 17:3, pages 276.e1-276.e8.
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Ana Margarida Pisco Almeida, Alda Marques, Hélder Caixinha, Daniela Figueiredo, Sílvio Dias, Paulo Lopes, Joana Cruz, Cristina Jácome & Raquel Gabriel. 2016. Encyclopedia of E-Health and Telemedicine. Encyclopedia of E-Health and Telemedicine 179 192 .
Lone Birgitte Skov Jensen, Kristian Larsen & Hanne Konradsen. (2015) Interaktioner i lungeambulatoriet – Et studie af samlevere og sundhedsprofessionelles forventninger til den ambulante samtale. Nordisk sygeplejeforskning 5:4, pages 437-452.
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Nicholas G. Wysham, Christopher E. Cox, Steven P. Wolf & Arif H. Kamal. (2015) Symptom Burden of Chronic Lung Disease Compared with Lung Cancer at Time of Referral for Palliative Care Consultation. Annals of the American Thoracic Society 12:9, pages 1294-1301.
Crossref
Nienke Nakken, Daisy J.A. Janssen, Esther H.A. van den Bogaart, Emiel F.M. Wouters, Frits M.E. Franssen, Jan H. Vercoulen & Martijn A. Spruit. (2015) Informal caregivers of patients with COPD: Home Sweet Home?. European Respiratory Review 24:137, pages 498-504.
Crossref
Nádia Hipólito, Sara Martins, Adriana Ruivo, Sofia Flora, Cândida G. Silva, Alda Marques, Dina Brooks & Joana Cruz. (2022) Construct Validity and Reliability of the Informal Caregiver Burden Assessment Questionnaire (QASCI) in Caregivers of Patients with COPD. SSRN Electronic Journal.
Crossref

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