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Endpoints

ALSFRS‐R

Pages 90-93 | Published online: 10 Jul 2009

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Jaap N.E. Bakers, Adriaan D. de Jongh, Tommy M. Bunte, Lindsay Kendall, Steve S. Han, Noam Epstein, Arseniy Lavrov, Anita Beelen, Johanna M.A. Visser-Meily, Leonard H. van den Berg & Ruben P. A. van Eijk. (2022) Using the ALSFRS-R in multicentre clinical trials for amyotrophic lateral sclerosis: potential limitations in current standard operating procedures. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:7-8, pages 500-507.
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Umberto Manera, Luca Solero, Christina Nicole Fournier, Antonio Canosa, Rosario Vasta, Alessandro Bombaci, Maurizio Grassano, Francesca Palumbo, Maria Claudia Torrieri, Paolina Salamone, Federico Casale, Giuseppe Fuda, Cristina Moglia, Andrea Calvo & Adriano Chiò. (2022) Validation of the Italian version of the Rasch-Built Overall Amyotrophic Lateral Sclerosis Disability Scale (ROADS) administered to patients and their caregivers. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:5-6, pages 424-429.
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Helia Mojtabavi, Shahriar Nafissi, Behrooz Mahmoodi-Bakhtiari, Davood Fathi & Farzad Fatehi. (2021) Persian adaptation of Edinburgh Cognitive and Behavioural Screen (ECAS). Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:5-6, pages 426-433.
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Umberto Manera, Sara Cabras, Margherita Daviddi, Rosario Vasta, Maria Claudia Torrieri, Francesca Palumbo, Alessandro Bombaci, Maurizio Grassano, Luca Solero, Laura Peotta, Barbara Iazzolino, Antonio Canosa, Andrea Calvo, Adriano Chiò & Cristina Moglia. (2021) Validation of the Italian version of self-administered ALSFRS-R scale. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:1-2, pages 151-153.
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Madison Gilmore, Lauren Elman, Suma Babu, Patricia Andres & Mary Kay Floeter. (2020) Measuring disease progression in primary lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:sup1, pages 59-66.
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. (2020) ALSUntangled 56: “ten red flags”-things to be wary of in alternative or off-label products. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 642-647.
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Susana Pinto, Marta Gromicho & Mamede de Carvalho. (2019) Assessing upper limb function with ALSFRS-R in amyotrophic lateral sclerosis patients. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:5-6, pages 445-448.
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Isaäc Bos, Klaske Wynia, Gea Drost, Josué Almansa & Jan B. M. Kuks. (2018) The extremity function index (EFI), a disability severity measure for neuromuscular diseases: psychometric evaluation. Disability and Rehabilitation 40:13, pages 1561-1568.
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Iyas Daghlas, Teresa E. Lever & Emily Leary. (2018) A retrospective investigation of the relationship between baseline covariates and rate of ALSFRS-R decline in ALS clinical trials. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:3-4, pages 206-211.
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H Blasco, F Patin, CR Andres, P Corcia & PH Gordon. (2016) Amyotrophic Lateral Sclerosis, 2016: existing therapies and the ongoing search for neuroprotection. Expert Opinion on Pharmacotherapy 17:12, pages 1669-1682.
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Lisa A. van der Kleij, Ashley R. Jones, I Nick Steen, Carolyn A. Young, Pamela J. Shaw, Christopher E. Shaw, P. Nigel Leigh, Martin R. Turner & Ammar Al-Chalabi. (2015) Regionality of disease progression predicts prognosis in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 16:7-8, pages 442-447.
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Martin McElhiney, Judith G. Rabkin, Raymond Goetz, Jonathan Katz, Robert G. Miller, Dallas A. Forshew, William David, Merit Cudkowicz, Jonathan D. Glass, Stanley Appel, Ericka Simpson & Hiroshi Mitsumoto. (2014) Seeking a measure of clinically meaningful change in ALS. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:5-6, pages 398-405.
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Matthew Gladman, Celina Dharamshi & Lorne Zinman. (2014) Economic burden of amyotrophic lateral sclerosis: A Canadian study of out-of-pocket expenses. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:5-6, pages 426-432.
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Hiroshi Mitsumoto, Pam Factor-Litvak, Howard Andrews, Raymond R. Goetz, Leslie Andrews, Judith G. Rabkin, Martin McElhiney, Jeri Nieves, Regina M. Santella, Jennifer Murphy, Jonathan Hupf, Jess Singleton, David Merle, Mary Kilty, Daragh Heitzman, Richard S. Bedlack, Robert G. Miller, Jonathan S. Katz, Dallas Forshew, Richard J. Barohn, Eric J. Sorenson, Bjorn Oskarsson, J. Americo M. Fernandes Filho, Edward J. Kasarskis, Catherine Lomen-Hoerth, Tahseen Mozaffar, Yvonne D. Rollins, Sharon P. Nations, Andrea J. Swenson, Jeremy M. Shefner, Jinsy A. Andrews & Boguslawa A. Koczon-Jaremko. (2014) ALS Multicenter Cohort Study of Oxidative Stress (ALS COSMOS): Study methodology, recruitment, and baseline demographic and disease characteristics. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:3-4, pages 192-203.
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Vânia Almeida, Mamede de Carvalho, Manuel Scotto, Susana Pinto, Anabela Pinto, Benjamim Ohana & Michael Swash. (2013) Primary lateral sclerosis: Predicting functional outcome. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 14:2, pages 141-145.
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Patricia Lillo, Sharon Savage, Eneida Mioshi, Matthew C. Kiernan & John R. Hodges. (2012) Amyotrophic lateral sclerosis and frontotemporal dementia: A behavioural and cognitive continuum. Amyotrophic Lateral Sclerosis 13:1, pages 102-109.
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Patricia Lillo, Eneida Mioshi, Margaret C. Zoing, Matthew C. Kiernan & John R. Hodges. (2011) How common are behavioural changes in amyotrophic lateral sclerosis?. Amyotrophic Lateral Sclerosis 12:1, pages 45-51.
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Shafqat Inam, Steve Vucic, Nina E. Brodaty, Margie C. Zoing & Matthew C. Kiernan. (2010) The 10-metre gait speed as a functional biomarker in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis 11:6, pages 558-561.
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Carmen Castrillo-Viguera, Daniela L. Grasso, Elizabeth Simpson, Jeremy Shefner & Merit E. Cudkowicz. (2010) Clinical significance in the change of decline in ALSFRS-R. Amyotrophic Lateral Sclerosis 11:1-2, pages 178-180.
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Lorne Zinman, Reza Sadeghi, Marek Gawel, Dan Patton & Alex Kiss. (2008) Are statin medications safe in patients with ALS?. Amyotrophic Lateral Sclerosis 9:4, pages 223-228.
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Hua Wang, Kylyana S. Larriviere, Kristen E. Keller, Kathleen A. Ware, Ted M. Burns, Mark A. Conaway, David Lacomis, Gary L. Pattee, Lawrence H. Phillips$suffix/text()$suffix/text(), Nina J. Solenski, Sasa A. Zivkovic & James P. Bennett$suffix/text()$suffix/text(). (2008) R(+) pramipexole as a mitochondrially focused neuroprotectant: Initial early phase studies in ALS. Amyotrophic Lateral Sclerosis 9:1, pages 50-58.
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J. Iłżecka. (2008) Decreased serum endoglin level in patients with amyotrophic lateral sclerosis: a preliminary report. Scandinavian Journal of Clinical and Laboratory Investigation 68:4, pages 348-351.
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Petra Kaufmann, Gilbero Levy, Jacquelina Montes, Richaro Buchsbaum, Alexandra I. Barsdorf, Vanessa Battista, Rachel Arbing, Paul H. Gordon, Hiroshi Mitsumoto, Brvce Levin, John L. P. Thompson, Petra Kaufmann, Gilbero Levy, Jacquelina Montes, Richaro Buchsbaum, Alexandra I. Barsdorf, Vanessa Battista, Rachel Arbing, Paul H. Gordon, Hiroshi Mitsumoto, Brvce Levin & John L. P. Thompson. (2007) Excellent inter‐rater, intra‐rater, and telephone‐administered reliability of the ALSFRS‐R in a multicenter clinical trial. Amyotrophic Lateral Sclerosis 8:1, pages 42-46.
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J. Iłżecka. (2007) Decreased cerebrospinal fluid cytochrome c levels in patients with amyotrophic lateral sclerosis. Scandinavian Journal of Clinical and Laboratory Investigation 67:3, pages 264-269.
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M. Muddasir Qureshi, Douglas Hayden, Leo Urbinelli, Kimberly Ferrante, Kristyn Newhall, Daniela Myers, Sarah Hilgenberg, Ryan Smart, Robert H. Brown & Merit E. Cudkowicz. (2006) Analysis of factors that modify susceptibility and rate of progression in amyotrophic lateral sclerosis (ALS). Amyotrophic Lateral Sclerosis 7:3, pages 173-182.
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