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Articles

Service user involvement, authority and the ‘expert-by-experience’ in mental health

Pages 49-68 | Published online: 30 Apr 2013

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C. A. Dell, L. Williamson, H. McKenzie, M. Mela, D. Akca, M. Cruz, T. Ramsum, S. Sultana, N. Camacho Soto & A. H. M. Kamal. (2023) Conducting Patient Oriented Research (POR) in a Forensic Psychiatric Facility: A Case Study of Patient Involvement. International Journal of Forensic Mental Health 22:2, pages 159-173.
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Tanya Mackay, Nisba Ahmed, Humma Andleeb, Julie Billsborough, Richard Currie, Raj Hazzard, Fozia Haider, Naima Iqbal, Ffion Matthews, Andreja Mesarič, Jennie Parker, Vanessa Pinfold, Laura Richmond, Dan Robotham & Rose Thompson. (2022) The evolution of community peer support values: reflections from three UK mental health project teams. Advances in Mental Health 20:2, pages 157-169.
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Julian Brigstocke. (2022) Resisting with authority? Anarchist laughter and the violence of truth. Social & Cultural Geography 23:2, pages 173-191.
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Janika Lindström & Timo Toikko. (2022) Survival stories as access to society. People with history of a crime as experts by experience. Nordic Journal of Criminology 23:1, pages 3-22.
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Hannele Palukka, Arja Haapakorpi, Petra Auvinen & Jaana Parviainen. (2021) Outlining the role of experiential expertise in professional work in health care service co-production. International Journal of Qualitative Studies on Health and Well-being 16:1.
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Hilda Näslund, Stefan Sjöström & Urban Markström. (2020) Delivering experiential knowledge: repertoires of contention among Swedish mental health service user organisations. Nordic Social Work Research 10:4, pages 369-381.
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Hilda Näslund, Stefan Sjöström & Urban Markström. (2020) Service user entrepreneurs and claims to authority – a case study in the mental health area. European Journal of Social Work 23:4, pages 672-684.
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Julian Brigstocke. (2020) Experimental authority in the lecture theatre. Journal of Geography in Higher Education 44:3, pages 370-386.
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Elizabeth Such, Hannah Burton, Robert James Copeland, Richard Davies, Elizabeth Goyder, Ruth Jeanes, Sue Kesterton, Kelly Mackenzie & Jonathan Magee. (2020) Developing a theory-driven framework for a football intervention for men with severe, moderate or enduring mental health problems: a participatory realist synthesis. Journal of Mental Health 29:3, pages 277-288.
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Amy Tapsell, Kellie M. Martin, Lorna Moxham, Shawn Burns, Dana Perlman & Christopher Patterson. (2020) Expert by Experience Involvement in Mental Health Research: Developing a Wellbeing Brochure for People with Lived Experiences of Mental Illness. Issues in Mental Health Nursing 41:3, pages 194-200.
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Simon P. Clarke, Jenelle M. Clarke, Ruth Brown & Hugh Middleton. (2016) Hurting and healing in therapeutic environments: How can we understand the role of the relational context?. European Journal of Psychotherapy & Counselling 18:4, pages 384-400.
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Timo Toikko. (2016) Becoming an expert by experience: An analysis of service users’ learning process. Social Work in Mental Health 14:3, pages 292-312.
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Thomas Osborne. (2013) Authority, convention and political community. Journal of Political Power 6:1, pages 127-131.
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Naomi Millner. (2013) Routing the camp: experiential authority in a politics of irregular migration. Journal of Political Power 6:1, pages 87-105.
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Leila Dawney. (2013) The figure of authority: the affective biopolitics of the mother and the dying man. Journal of Political Power 6:1, pages 29-47.
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Julian Brigstocke. (2013) Immanent authority and the performance of community in late nineteenth century Montmartre. Journal of Political Power 6:1, pages 107-126.
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Claire Blencowe. (2013) Biopolitical authority, objectivity and the groundwork of modern citizenship. Journal of Political Power 6:1, pages 9-28.
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Articles from other publishers (62)

Erik Eriksson. (2023) A Market of Lived Experience—User Involvement and the Commodification of Personal Experiences of Mental Illness. International Journal of Environmental Research and Public Health 20:14, pages 6427.
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Veenu Gupta, Catrin Eames, Laura Golding, Beth Greenhill, Robert Qi, Stephanie Allan, Alison Bryant & Peter Fisher. (2023) Understanding the identity of lived experience researchers and providers: a conceptual framework and systematic narrative review. Research Involvement and Engagement 9:1.
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Celestin Okoroji, Tanya Mackay, Dan Robotham, Davino Beckford & Vanessa Pinfold. (2023) Epistemic injustice and mental health research: A pragmatic approach to working with lived experience expertise. Frontiers in Psychiatry 14.
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Arnaud Halloy, Emmanuelle Simon & Fabienne Hejoaka. (2022) Defining patient’s experiential knowledge: Who, what and how patients know. A narrative critical review. Sociology of Health & Illness 45:2, pages 405-422.
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Petri J.C.M. Embregts & Noud Frielink. 2023. 43 70 .
Sine Kirkegaard & Ditte Andersen. (2022) Peer workers as emotion managers: Tight and loose enactment of mutuality in mental health care. SSM - Qualitative Research in Health 2, pages 100200.
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Eva Krick. (2022) Participatory Governance Practices at the Democracy-Knowledge-Nexus. Minerva 60:4, pages 467-487.
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Eva Krick. (2021) Citizen experts in participatory governance: Democratic and epistemic assets of service user involvement, local knowledge and citizen science. Current Sociology 70:7, pages 994-1012.
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Hilda Näslund, Katarina Grim & Urban Markström. (2022) User-Focused Monitoring as a Strategy for Involvement and Mental Health Service Development: An Analysis of Swedish Monitoring Reports. Journal of Psychosocial Rehabilitation and Mental Health 9:3, pages 303-316.
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Brenda Happell, Aine O. Donovan, Terri Warner, Julie Sharrock & Sarah Gordon. (2022) Creating or taking opportunity: Strategies for implementing expert by experience positions in mental health academia. Journal of Psychiatric and Mental Health Nursing 29:4, pages 592-602.
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Lena Aadal, Tove Lise Nielsen, Anders Bonde Jensen, Merete Bjerrum, Claus Vinther Nielsen & Sanne Angel. (2022) What Does It Take for Research to Be Rehabilitation Research?. Frontiers in Rehabilitation Sciences 3.
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Shoshana Gander-Zaucker, Gemma L. Unwin & Michael Larkin. (2022) The Feasibility and Acceptability of an Experience-Based Co-Design Approach to Reducing Domestic Abuse. Societies 12:3, pages 93.
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Angela Woods, Akiko Hart & Helen Spandler. (2019) The Recovery Narrative: Politics and Possibilities of a Genre. Culture, Medicine, and Psychiatry 46:2, pages 221-247.
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Malene Lue Kessing & Nanna Mik‐Meyer. (2022) Negotiating mental illness across the lay‐professional divide: Role play in peer work consultations. Sociology of Health & Illness 44:4-5, pages 815-829.
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SADIE PARR. (2022) ‘Navigating’ the Value of Lived Experience in Support Work with Multiply Disadvantaged Adults. Journal of Social Policy, pages 1-18.
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Gail Davies, Richard Gorman, Renelle McGlacken & Sara Peres. (2021) The social aspects of genome editing: publics as stakeholders, populations and participants in animal research. Laboratory Animals 56:1, pages 88-96.
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Sine Kirkegaard. (2022) Experiential knowledge in mental health services: Analysing the enactment of expertise in peer support. Sociology of Health & Illness 44:2, pages 508-524.
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Hilda Näslund. (2020) Collective Deliberations and Hearts on Fire: Experiential Knowledge Among Entrepreneurs and Organisations in the Mental Health Service User Movement. VOLUNTAS: International Journal of Voluntary and Nonprofit Organizations 33:1, pages 201-212.
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Emily Owen, Alessandro Massazza, Bayard Roberts, Michelle Lokot & Daniela C. Fuhr. (2022) “Nothing about us, without us”? A qualitative study of service user involvement in the development of lay-delivered psychological interventions in contexts affected by humanitarian crises. Journal of Migration and Health 5, pages 100087.
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Diana Susan RoseDiana Susan Rose. 2022. Mad Knowledges and User-Led Research. Mad Knowledges and User-Led Research 207 247 .
Diana Susan RoseDiana Susan Rose. 2022. Mad Knowledges and User-Led Research. Mad Knowledges and User-Led Research 177 206 .
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Rose Stewart, Bethan Allcock, Sara Crowley, Chris Owen & Laura Cleverly. (2022) Developing opportunities for people with diabetes to engage in Improvement Champion activity: a practical guide for diabetes teams. Practical Diabetes 39:1, pages 30.
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Michelle Farr, Heather Brant, Rita Patel, Myles-Jay Linton, Nicholas Ambler, Sareeta Vyas, Hannah Wedge, Sue Watkins & Jeremy Horwood. (2021) Experiences of Patient-Led Chronic Pain Peer Support Groups After Pain Management Programs: A Qualitative Study. Pain Medicine 22:12, pages 2884-2895.
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Janika Lindström & Teemu Rantanen. (2021) Experts of the streets: The thoughts of experts by experience with a history of crime and substance abuse on working as a team with professionals. European Journal of Probation 13:3, pages 226-241.
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Julian Brigstocke, Patrick Bresnihan, Leila Dawney & Naomi Millner. (2021) Geographies of authority. Progress in Human Geography 45:6, pages 1356-1378.
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Olav Nyttingnes & Jorun Rugkåsa. (2021) The Introduction of Medication-Free Mental Health Services in Norway: An Analysis of the Framing and Impact of Arguments From Different Standpoints. Frontiers in Psychiatry 12.
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Taina Meriluoto. (2021) Struggles over Expertise. Democratic Theory 8:1, pages 1-22.
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Phoebe Friesen, Sapfo Lignou, Mark Sheehan & Ilina Singh. (2019) Measuring the impact of participatory research in psychiatry: How the search for epistemic justifications obscures ethical considerations. Health Expectations 24:S1, pages 54-61.
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Kris Deering, Jo Williams, Kay Stayner & Chris Pawson. (2020) Giving a voice to patient experiences through the insights of pragmatism. Nursing Philosophy 22:1.
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Alison Faulkner. 2021. Voices in the History of Madness. Voices in the History of Madness 333 357 .
Sisay Abayneh, Heidi Lempp & Charlotte Hanlon. (2020) Participatory action research to pilot a model of mental health service user involvement in an Ethiopian rural primary healthcare setting: study protocol. Research Involvement and Engagement 6:1.
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Chrysa Parkinson & Romain/Emma-Rose Bigé. (2020) L’expérience et ses autrices. Recherches en danse.
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Catherine Campbell. (2020) Social capital, social movements and global public health: Fighting for health-enabling contexts in marginalised settings. Social Science & Medicine 257, pages 112153.
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Chris Millard. (2019) Using personal experience in the academic medical humanities: a genealogy. Social Theory & Health 18:2, pages 184-198.
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Petra A. Honová, Dino Numerato & Lucie Kondrátová. (2019) Experience, Expertise, and Users' Participation: The Case of the Czech Mental Health Care Reform. Czech Sociological Review 55:5, pages 615-640.
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Karine Greenacre & Rebecca Paez. (2019) Developing specific involvement strategies within a psychologically informed planned environment: a service evaluation. The Journal of Mental Health Training, Education and Practice 14:4, pages 264-276.
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Aieyat B. Zalzala, Emily C. Gagen & Paul H. Lysaker. (2018) Recovery and Personhood in the Diagnostic Formulation and Treatment of Serious Mental Illness: A Commentary. Journal of Humanistic Psychology 59:3, pages 356-367.
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Alissa M. Greer, Ashraf Amlani, Charlene Burmeister, Alex Scott, Cheri Newman, Hugh Lampkin, Bernie Pauly & Jane A. Buxton. (2019) Peer engagement barriers and enablers: insights from people who use drugs in British Columbia, Canada. Canadian Journal of Public Health 110:2, pages 227-235.
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Taina Meriluoto. (2018) ‘The will to not be empowered (according to your rules)’: Resistance in Finnish participatory social policy. Critical Social Policy 39:1, pages 87-107.
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Christine Morley, Phillip Ablett & Selma Macfarlane. 2019. Engaging with Social Work. Engaging with Social Work.
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Cristian R. Montenegro. (2018) ‘Are you a radical now?’ Reflecting on the situation of social research(ers) in the context of service-user activism in mental health. Journal of Social and Political Psychology 6:2, pages 661-676.
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Cristian R. Montenegro. (2018) Beyond Participation: Politics, Incommensurability and the Emergence of Mental Health Service Users’ Activism in Chile. Culture, Medicine, and Psychiatry 42:3, pages 605-626.
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Gillian Balfour & Joane Martel. (2018) Critical Prison Research and University Research Ethics Boards: Homogenization of Inquiry and Policing of Carceral Knowledge. Oñati Socio-legal Series 8:2, pages 225-246.
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Claire Blencowe, Julian Brigstocke & Tehseen Noorani. (2015) Engines of alternative objectivity: Re-articulating the nature and value of participatory mental health organisations with the Hearing Voices Movement and Stepping Out Theatre Company. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 22:3, pages 205-222.
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Hilda Näslund, Urban Markström & Stefan Sjöström. (2017) Participatory Spaces of Mental Health Service User Organizations in the Post-deinstitutional Era: Mapping Roles and Challenges. VOLUNTAS: International Journal of Voluntary and Nonprofit Organizations 29:1, pages 190-200.
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