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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 18, 2017 - Issue 7-8
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Original Article

International Survey of ALS Experts about Critical Questions for Assessing Patients with ALS

Mamede De CarvalhoInstitute of Physiology, Instituto de Medicina Molecular, Faculty of Medicine, University of Lisbon, Lisbon, Portugal, ;Department of Neurosciences and Mental Health, Hospital de Santa Maria-CHLN, Lisbon, Portugal, Correspondence[email protected]
,
Adam RyczkowskiDepartment of Neuromuscular System Engineering, Nalecz Institute of Biocybernetics and Biomedical Engineering, Polish Academy of Sciences, Warsaw, Poland,
,
Peter AndersenInstitute of Pharmacology and Clinical Neuroscience, Umeå University, Umeå, Sweden,
,
Marta GromichoInstitute of Physiology, Instituto de Medicina Molecular, Faculty of Medicine, University of Lisbon, Lisbon, Portugal,
,
Julian GrosskreutzHans Berger Department of Neurology, Jena University Hospital, Jena, Germany,
,
Magdalena Kuźma-KozakiewiczDepartment of Neurology, Medical University of Warsaw, Warsaw, Poland, ;Neurodegenerative Disease Research Group, Medical University of Warsaw, Warsaw, Poland, and
,
Susanne PetriDepartment of Neurology, Hannover Medical School, Hannover, Germany
,
Maria PiotrkiewiczDepartment of Neuromuscular System Engineering, Nalecz Institute of Biocybernetics and Biomedical Engineering, Polish Academy of Sciences, Warsaw, Poland,
&
Gabriel Miltenberger MiltenyiInstitute of Physiology, Instituto de Medicina Molecular, Faculty of Medicine, University of Lisbon, Lisbon, Portugal,
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Pages 505-510 | Received 31 Dec 2016, Accepted 20 Jun 2017, Published online: 13 Jul 2017

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Ana Rita Henriques, Marta Gromicho, Julian Grosskreutz, Magdalena Kuzma-Kozakiewicz, Susanne Petri, Hilmi Uysal, Susana Pinto, Marília Antunes, Mamede De Carvalho & Ruy M. Ribeiro. (2023) Association of the practice of contact sports with the development of amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:5-6, pages 449-456.
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Marta Gromicho, Miguel Oliveira Santos, Susana Pinto, Michael Swash & Mamede De Carvalho. (2023) The flail-arm syndrome: the influence of phenotypic features. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:5-6, pages 383-388.
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Marta Gromicho, Magdalena Kuzma-Kozakiewicz, Katarzyna Szacka, Krzysztof Nieporecki, Peter M. Andersen, Julian Grosskreutz, Susanne Petri, Susana Pinto, Hilmi Uysal, Michael Swash & Mamede De Carvalho. (2021) Motor neuron disease beginning with frontotemporal dementia: clinical features and progression. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:7-8, pages 508-516.
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Hilmi Uysal, Parvin Taghiyeva, Mehtap Türkay, Fırat Köse & Mehmet Aktekin. (2021) Amyotrophic lateral sclerosis in Antalya, Turkey. A prospective study, 2016–2018. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:1-2, pages 101-107.
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HIlmi Uysal, Uğur Bilge, Nevruz İlhanli, Marta Gromicho, Julian Grosskreutz, Magdalena Kuzma-Kozakiewicz, Susana Pinto, Susanne Petri, Katarzyna Szacka, Krzysztof Nieporecki & Mamede De Carvalho. (2021) ALS and fertility: does ALS affect number of children patients have?. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:1-2, pages 94-100.
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. (2018) Theme 10 Disease stratification and phenotyping. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:sup1, pages 282-300.
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Articles from other publishers (10)

Timothy P Sheehy, Karol A Connors & Christine A Wools. (2023) Neck weakness in individuals with motor neurone disease: an insight into head support. International Journal of Therapy and Rehabilitation 30:7, pages 1-11.
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Catarina Falcão de Campos, Marta Gromicho, Hilmi Uysal, Julian Grosskreutz, Magdalena Kuzma-Kozakiewicz, Miguel Oliveira Santos, Susana Pinto, Susanne Petri, Michael Swash & Mamede de Carvalho. (2023) Trends in the diagnostic delay and pathway for amyotrophic lateral sclerosis patients across different countries. Frontiers in Neurology 13.
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Nora Hertel, Magdalena Kuzma-Kozakiewicz, Marta Gromicho, Julian Grosskreutz, Mamede de Carvalho, Hilmi Uysal, Reinhard Dengler, Susanne Petri & Sonja Körner. (2022) Analysis of routine blood parameters in patients with amyotrophic lateral sclerosis and evaluation of a possible correlation with disease progression—a multicenter study. Frontiers in Neurology 13.
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Catarina Falcão de Campos, Marta Gromicho, Hilmi Uysal, Julian Grosskreutz, Magdalena Kuzma-Kozakiewicz, Miguel Oliveira Santos, Susana Pinto, Susanne Petri, Michael Swash & Mamede de Carvalho. (2021) Delayed Diagnosis and Diagnostic Pathway of ALS Patients in Portugal: Where Can We Improve?. Frontiers in Neurology 12.
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Mamede deCarvalho, Marta Gromicho, Peter Andersen, Julian Grosskreutz, Magdalena Kuzma-Kozakiewicz, Susanne Petri, Hilmi Uysal & Susana Pinto. (2021) Peripheral neuropathy in ALS: phenotype association. Journal of Neurology, Neurosurgery & Psychiatry 92:10, pages 1133-1134.
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Mariana Pereira, Marta Gromicho, Ana Henriques, Ana Catarina Pronto-Laborinho, Julian Grosskreutz, Magdalena Kuźma-Kozakiewicz, Susanne Petri, Hilmi Uysal, Michael Swash & Mamede de Carvalho. (2021) Cardiovascular comorbidities in amyotrophic lateral sclerosis. Journal of the Neurological Sciences 421, pages 117292.
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Marta Gromicho, Ana Margarida Coutinho, Ana Catarina Pronto-Laborinho, Rita Raposeiro, Joana Tavares, Diana Antunes & Mamede de Carvalho. (2020) Targeted next-generation sequencing study in familial ALS-FTD Portuguese patients negative for C9orf72 HRE. Journal of Neurology 267:12, pages 3578-3592.
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Antonio Merico, Matteo De Marco, Giulia Berta, Riccardo Manca, Giovanni Giulietti, Marco Bozzali & Annalena Venneri. (2020) Right fronto-parietal white matter disruption contributes to speech impairments in amyotrophic lateral sclerosis. Brain Research Bulletin 158, pages 77-83.
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W. Huynh, L. E. Sharplin, J. Caga, E. Highton‐Williamson & M. C. Kiernan. (2019) Respiratory function and cognitive profile in amyotrophic lateral sclerosis. European Journal of Neurology 27:4, pages 685-691.
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Sonja Korner, Johanna Kammeyer, Antonia Zapf, Magdalena Kuzma-Kozakiewicz, Maria Piotrkiewicz, Bożenna Kuraszkiewicz, Hanna Goszczynska, Marta Gromicho, Julian Grosskreutz, Peter M. Andersen, Mamede de Carvalho & Susanne Petri. (2019) Influence of Environment and Lifestyle on Incidence and Progress of Amyotrophic Lateral Sclerosis in A German ALS Population. Aging and disease 10:2, pages 205.
Crossref

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