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Research Articles

Methodology for the development and calibration of the SCI-QOL item banks

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Read on this site (18)

Luis Ortiz Vasquez, Ingrid Lee, Jessica Bart, Christian R. Barton, Jennifer Chui, Oriana Tascione, Nina S. Kumar, Christopher M. Cirnigliaro, Alex T. Lombard, Steven C. Kirshblum, William A. Bauman & John P. Handrakis. (2023) Self-reported effects of warm seasonal temperatures in persons with spinal cord injury. The Journal of Spinal Cord Medicine 0:0, pages 1-9.
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Jessica Pruente, Allen W. Heinemann, Kathy Zebracki, Shubra Mukherjee & Deborah Gaebler-Spira. (2023) Adult outcomes for children who sustained firearm-related spinal cord injuries. The Journal of Spinal Cord Medicine 46:1, pages 68-74.
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Kristian P. Nitsch, Kelsey Stipp, Kristen Gracz, Linda Ehrlich-Jones, Ian D. Graham & Allen W. Heinemann. (2021) Integrating Spinal Cord Injury – Quality of Life instruments into rehabilitation: Implementation science to guide adoption of patient-reported outcome measures. The Journal of Spinal Cord Medicine 44:6, pages 940-948.
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Matthew L. Cohen, Pamela A. Kisala, Trevor A. Dyson-Hudson & David S. Tulsky. (2018) Measuring pain phenomena after spinal cord injury: Development and psychometric properties of the SCI-QOL Pain Interference and Pain Behavior assessment tools. The Journal of Spinal Cord Medicine 41:3, pages 267-280.
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David S. Tulsky & Pamela A. Kisala. (2015) The Spinal Cord Injury – Quality of Life (SCI-QOL) measurement system: Development, psychometrics, and item bank calibration. The Journal of Spinal Cord Medicine 38:3, pages 251-256.
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David S. Tulsky, Pamela A. Kisala, Denise G. Tate, Ann M. Spungen & Steven C. Kirshblum. (2015) Development and psychometric characteristics of the SCI-QOL Bladder Management Difficulties and Bowel Management Difficulties item banks and short forms and the SCI-QOL Bladder Complications scale. The Journal of Spinal Cord Medicine 38:3, pages 288-302.
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Pamela A. Kisala, David S. Tulsky, Claire Z. Kalpakjian, Allen W. Heinemann, Ryan T. Pohlig, Adam Carle & Seung W. Choi. (2015) Measuring anxiety after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Anxiety item bank and linkage with GAD-7. The Journal of Spinal Cord Medicine 38:3, pages 315-325.
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Allen W. Heinemann, Pamela A. Kisala, Elizabeth A. Hahn & David S. Tulsky. (2015) Development and psychometric characteristics of the SCI-QOL Ability to Participate and Satisfaction with Social Roles and Activities item banks and short forms. The Journal of Spinal Cord Medicine 38:3, pages 397-408.
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Hilary Bertisch, Claire Z. Kalpakjian, Pamela A. Kisala & David S. Tulsky. (2015) Measuring positive affect and well-being after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Positive Affect and Well-being bank and short form. The Journal of Spinal Cord Medicine 38:3, pages 356-365.
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David S. Tulsky, Pamela A. Kisala, David Victorson, Denise G. Tate, Allen W. Heinemann, Susan Charlifue, Steve C. Kirshblum, Denise Fyffe, Richard Gershon, Ann M. Spungen, Charles H. Bombardier, Trevor A. Dyson-Hudson, Dagmar Amtmann, Claire Z. Kalpakjian, Seung W. Choi, Alan M. Jette, Martin Forchheimer & David Cella. (2015) Overview of the Spinal Cord Injury – Quality of Life (SCI-QOL) measurement system. The Journal of Spinal Cord Medicine 38:3, pages 257-269.
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Pamela A. Kisala, David Victorson, Natalie Pace, Allen W. Heinemann, Seung W. Choi & David S. Tulsky. (2015) Measuring psychological trauma after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Psychological Trauma item bank and short form. The Journal of Spinal Cord Medicine 38:3, pages 326-334.
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David S. Tulsky, Pamela A. Kisala, Claire Z. Kalpakjian, Charles H. Bombardier, Ryan T. Pohlig, Allen W. Heinemann, Adam Carle & Seung W. Choi. (2015) Measuring depression after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Depression item bank and linkage with PHQ-9. The Journal of Spinal Cord Medicine 38:3, pages 335-346.
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Pamela A. Kisala, David S. Tulsky, Seung W. Choi & Steven C. Kirshblum. (2015) Development and psychometric characteristics of the SCI-QOL Pressure Ulcers scale and short form. The Journal of Spinal Cord Medicine 38:3, pages 303-314.
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David Victorson, David S. Tulsky, Pamela A. Kisala, Claire Z. Kalpakjian, Brian Weiland & Seung W. Choi. (2015) Measuring resilience after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Resilience item bank and short form. The Journal of Spinal Cord Medicine 38:3, pages 366-376.
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Claire Z. Kalpakjian, David S. Tulsky, Pamela A. Kisala & Charles H. Bombardier. (2015) Measuring grief and loss after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Grief and Loss item bank and short form. The Journal of Spinal Cord Medicine 38:3, pages 347-355.
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Claire Z. Kalpakjian, Denise G. Tate, Pamela A. Kisala & David S. Tulsky. (2015) Measuring self-esteem after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Self-esteem item bank and short form. The Journal of Spinal Cord Medicine 38:3, pages 377-385.
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Alan M. Jette, Mary D. Slavin, Pengsheng Ni, Pamela A. Kisala, David S. Tulsky, Allen W. Heinemann, Susie Charlifue, Denise G. Tate, Denise Fyffe, Leslie Morse, Ralph Marino, Ian Smith & Steve Williams. (2015) Development and initial evaluation of the SCI-FI/AT. The Journal of Spinal Cord Medicine 38:3, pages 409-418.
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Pamela A. Kisala, David S. Tulsky, Natalie Pace, David Victorson, Seung W. Choi & Allen W. Heinemann. (2015) Measuring stigma after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Stigma item bank and short form. The Journal of Spinal Cord Medicine 38:3, pages 386-396.
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Articles from other publishers (19)

David S. Tulsky, Pamela A. Kisala, Callie E. Tyner, Jerry Slotkin, Christina Kaufman, Christopher L. Dearth, Annamarie D. Horan, Simon G. Talbot, Jaimie T. Shores, Kodi Azari, Curtis CetruloJr,Jr,, Gerald Brandacher, Carisa M. Cooney, David Victorson, Mary Dooley, L. Scott Levin & CDR Scott M. Tintle. (2023) Identifying Health-Related Quality of Life Domains After Upper Extremity Transplantation. Archives of Physical Medicine and Rehabilitation 104:6, pages 878-891.
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Benjamin Ziegeler, Wendyl D’ Souza, Anita Vinton, Sarah Mulukutla, Cameron Shaw & Ross Carne. (2022) Neurological Health: Not Merely the Absence of Disease: Current Wellbeing Instruments Across the Spectrum of Neurology. American Journal of Lifestyle Medicine 17:2, pages 299-316.
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Callie E. Tyner, Jerry Slotkin, Pamela A. Kisala, L. Scott Levin, Scott M. Tintle & David S. Tulsky. (2023) Assessment of quality of life after upper extremity transplantation: Framework for patient-reported outcome scale domains. Frontiers in Psychology 13.
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Sarah D. Patrick, Gavin Sanders, Aaron J. Boulton & David S. Tulsky. (2022) Measurement invariance of physical, mental, and social health PROMIS measures across individuals with spinal cord injury and traumatic brain injury. Quality of Life Research 31:7, pages 2223-2233.
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Allen W. Heinemann, Kristian P. Nitsch, Kristen Gracz, Linda Ehrlich-Jones, Edeth Engel, Meghan Wilson, Colleen Zale & Ian D. Graham. (2022) Implementing Patient-Reported Outcome Measures in Inpatient Rehabilitation: Challenges and Solutions. Archives of Physical Medicine and Rehabilitation 103:5, pages S67-S77.
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Lauren F. Murphy, Claire Kalpakjian, Susan Charlifue, Allen W. Heinemann, Mary Slavin, Tanya Rohrbach, David S. Tulsky & Amanda L. Botticello. (2022) Greener on the other side? an analysis of the association between residential greenspace and psychological well-being among people living with spinal cord injury in the United States. Spinal Cord 60:2, pages 170-176.
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David S. Tulsky & Pamela A. Kisala. (2022) Overview of the Spinal Cord Injury-Functional Index (SCI-FI): Structure and Recent Advances. Archives of Physical Medicine and Rehabilitation 103:2, pages 185-190.
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Pamela A. Kisala, Aaron J. Boulton, Mary D. Slavin, Matthew L. Cohen, Tamra Keeney, Pengsheng Ni, Denise Tate, Allen W. Heinemann, Susan Charlifue, Denise C. Fyffe, Elizabeth R. Felix, Alan M. Jette & David S. Tulsky. (2022) Spinal Cord Injury–Functional Index/Capacity: Responsiveness to Change Over Time. Archives of Physical Medicine and Rehabilitation 103:2, pages 199-206.
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Callie E. Tyner, Pamela A. Kisala, Allen W. Heinemann, Denise Fyffe, Denise G. Tate, Mary D. Slavin, Alan M. Jette & David S. Tulsky. (2022) Validation of the Spinal Cord Injury–Functional Index for Use in Community-Dwelling Individuals With SCI. Archives of Physical Medicine and Rehabilitation 103:2, pages 191-198.
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Sebastian Salvador-De La Barrera, Ibone Gimenez-Jiménez, Manuel Astray-Lopaz, Antonio Rodríguez-Sotillo & M. Elena Ferreiro-Velasco. 2022. Diagnosis and Treatment of Spinal Cord Injury. Diagnosis and Treatment of Spinal Cord Injury 173 189 .
Odinachi Moghalu, John T. Stoffel, Sean Elliott, Blayne Welk, Sara Lenherr, Jennifer Herrick, Angela Presson & Jeremy Myers. (2021) Psychosocial aspects of health-related quality of life and the association with patient-reported bladder symptoms and satisfaction after spinal cord injury. Spinal Cord 59:9, pages 987-996.
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Caroline B. Terwee, Martine H.P. Crins, Leo D. Roorda, Karon F. Cook, David Cella, Niels Smits & Benjamin D. Schalet. (2021) International application of PROMIS computerized adaptive tests: US versus country-specific item parameters can be consequential for individual patient scores. Journal of Clinical Epidemiology 134, pages 1-13.
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Swati Mehta, Heather Hadjistavropoulos, Marcie Nugent, Eyal Karin, Nick Titov & Blake F. Dear. (2020) Guided internet-delivered cognitive-behaviour therapy for persons with spinal cord injury: a feasibility trial. Spinal Cord 58:5, pages 544-552.
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Samsuk Kim, Daniel Whibley, David A. Williams & Anna L. Kratz. (2020) Pain Acceptance in People With Chronic Pain and Spinal Cord Injury: Daily Fluctuation and Impacts on Physical and Psychosocial Functioning. The Journal of Pain 21:3-4, pages 455-466.
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Allen W. Heinemann, Pamela A. Kisala, Aaron J. Boulton, Mark Sherer, Angelle M. Sander, Nancy Chiaravalloti, Tamara Bushnik, Robin Hanks, Elliot Roth & David S. Tulsky. (2020) Development and Calibration of the TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction With Social Roles and Activities Item Banks and Short Forms. Archives of Physical Medicine and Rehabilitation 101:1, pages 20-32.
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Noelle E. Carlozzi, Stephen Schilling, Jenna Freedman, Claire Z. Kalpakjian & Anna L. Kratz. (2018) The reliability of end of day and ecological momentary assessments of pain and pain interference in individuals with spinal cord injury. Quality of Life Research 27:11, pages 3003-3012.
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Núria Duran Adroher, Birgit Prodinger, Carolina Saskia Fellinghauer & Alan Tennant. (2018) All metrics are equal, but some metrics are more equal than others: A systematic search and review on the use of the term ‘metric’. PLOS ONE 13:3, pages e0193861.
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San Keller, Manshu Yang, Marsha J. Treadwell & Kathryn L. Hassell. (2017) Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠. Health and Quality of Life Outcomes 15:1.
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A. L. Kratz, C. Z. Kalpakjian & R. A. Hanks. (2017) Are intensive data collection methods in pain research feasible in those with physical disability? A study in persons with chronic pain and spinal cord injury. Quality of Life Research 26:3, pages 587-600.
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