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Original Research

Individualized lung function trends in alpha-1-antitrypsin deficiency: a need for patience in order to provide patient centered management?

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Pages 1745-1756 | Published online: 01 Aug 2016

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Timm Greulich, Anna Albert, Werner Cassel, Tobias Boeselt, Erika Peychev, Andreas Klemmer, Francini Ferreira, Christian Clarenbach, Maria L Torres-Duran, Alice M Turner & Marc Miravitlles. (2022) Opinions and Attitudes of Pulmonologists About Augmentation Therapy in Patients with Alpha-1 Antitrypsin Deficiency. A Survey of the EARCO Group. International Journal of Chronic Obstructive Pulmonary Disease 17, pages 53-64.
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James A Stockley, Robert A Stockley & Elizabeth Sapey. (2021) There is No Fast Track to Identify Fast Decliners in Alpha-1 Antitrypsin Deficiency by Spirometry: A Longitudinal Study of Repeated Measurements. International Journal of Chronic Obstructive Pulmonary Disease 16, pages 835-840.
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Farah Mobeen, Ross G. Edgar, Anita Pye, Robert A. Stockley & Alice M. Turner. (2021) Relationship between Depression and Anxiety, Health Status and Lung Function in Patients with Alpha-1 Antitrypsin Deficiency. COPD: Journal of Chronic Obstructive Pulmonary Disease 18:6, pages 621-629.
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Mark Quinn, Paul Ellis, Anita Pye & Alice M Turner. (2020) Obstacles to Early Diagnosis and Treatment of Alpha-1 Antitrypsin Deficiency: Current Perspectives. Therapeutics and Clinical Risk Management 16, pages 1243-1255.
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Kylie B R Belchamber, Eloise M Walker, Robert A Stockley & Elizabeth Sapey. (2020) Monocytes and Macrophages in Alpha-1 Antitrypsin Deficiency. International Journal of Chronic Obstructive Pulmonary Disease 15, pages 3183-3192.
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Cristina Esquinas, Sonia Serreri, Miriam Barrecheguren, Esther Rodriguez, Alexa Nuñez, Francisco Casas-Maldonado, Ignacio Blanco, Pietro Pirina, Beatriz Lara & Marc Miravitlles. (2018) Long-term evolution of lung function in individuals with alpha-1 antitrypsin deficiency from the Spanish registry (REDAAT). International Journal of Chronic Obstructive Pulmonary Disease 13, pages 1001-1007.
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Kenneth R Chapman, Joanna Chorostowska-Wynimko, A Rembert Koczulla, Ilaria Ferrarotti & Noel G McElvaney. (2018) Alpha 1 antitrypsin to treat lung disease in alpha 1 antitrypsin deficiency: recent developments and clinical implications. International Journal of Chronic Obstructive Pulmonary Disease 13, pages 419-432.
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Ross G Edgar, Mitesh Patel, Susan Bayliss, Diana Crossley, Elizabeth Sapey & Alice M Turner. (2017) Treatment of lung disease in alpha-1 antitrypsin deficiency: a systematic review. International Journal of Chronic Obstructive Pulmonary Disease 12, pages 1295-1308.
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Articles from other publishers (25)

Pei Yee Tiew, Oliver W. Meldrum & Sanjay H. Chotirmall. (2023) Applying Next-Generation Sequencing and Multi-Omics in Chronic Obstructive Pulmonary Disease. International Journal of Molecular Sciences 24:3, pages 2955.
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Robert A. STOCKLEY. (2023) Clinical aspect of AATD. Minerva Respiratory Medicine 62:1.
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Marc Miravitlles, Alice M. Turner, María Torres-Duran, Hanan Tanash, Carlota Rodríguez-García, José Luis López-Campos, Jan Chlumsky, Catarina Guimaraes, Juan Luis Rodríguez-Hermosa, Angelo Corsico, Cristina Martinez-González, José María Hernández-Pérez, Ana Bustamante, David G. Parr, Francisco Casas-Maldonado, Ana Hecimovic, Wim Janssens, Beatriz Lara, Miriam Barrecheguren, Cruz González, Jan Stolk, Cristina Esquinas & Christian F. Clarenbach. (2022) Clinical and functional characteristics of individuals with alpha-1 antitrypsin deficiency: EARCO international registry. Respiratory Research 23:1.
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Kuniaki Seyama, Masaru Suzuki, Sadatomo Tasaka, Toshihiro Nukiwa, Tadashi Sato, Satoshi Konno, Susan Sorrells, Junliang Chen, Maria Esperança Aragonés & Hitoshi Minamino. (2022) Long-term safety of Prolastin®-C, an alpha1-proteinase inhibitor, in Japanese patients with alpha1-antitrypsin deficiency. Respiratory Investigation 60:6, pages 831-839.
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J.-F. Mornex, M. Balduyck, M. Bouchecareilh, A. Cuvelier, R. Epaud, M. Kerjouan, O. Le Rouzic, C. Pison, L. Plantier, M.-C. Pujazon, M. Reynaud-Gaubert, A. Toutain, B. Trumbic, M.-C. Willemin, M. Zysman, O. Brun, M. Campana, F. Chabot, V. Chamouard, M. Dechomet, J. Fauve, B. Girerd, C. Gnakamene, S. Lefrançois, J.-N. Lombard, B. Maitre, C. Maynié-François, A. Moerman, A. Payancé, P. Reix, D. Revel, M.-P. Revel, M. Schuers, P. Terrioux, D. Theron, F. Willersinn, V. Cottin & H. Mal. (2022) Atteinte pulmonaire du déficit en alpha-1 antitrypsine. Recommandations pratiques pour le diagnostic et la prise en charge. Revue des Maladies Respiratoires 39:7, pages 633-656.
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Maria Prendecki & Katharine M. Lodge. (2022) Alpha-1 Antitrypsin Deficiency: Does Increased Neutrophil Adhesion Contribute to Lung Damage?. American Journal of Respiratory Cell and Molecular Biology 67:1, pages 6-7.
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Robert Andrew Stockley. 2022. Encyclopedia of Respiratory Medicine. Encyclopedia of Respiratory Medicine 675 685 .
Iris G.M. Schouten, Marise J. Kasteleyn, Roula Tsonaka, Robert Bals, Alice C. Turner, Ilaria Ferrarotti, Angelo G. Corsico, Beatriz Lara, Marc Miravitlles, Robert A. Stockley & Jan Stolk. (2021) Long-term effect of α 1 -antitrypsin augmentation therapy on the decline of FEV 1 in deficient patients: an analysis of the AIR database . ERJ Open Research 7:3, pages 00194-2021.
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Peter Lange, Engi Ahmed, Zakaria Mohamed Lahmar, Fernando J. Martinez & Arnaud Bourdin. (2021) Natural history and mechanisms of COPD . Respirology 26:4, pages 298-321.
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James Crapo, Abhya Gupta, David A Lynch, Jens Vogel-Claussen, Henrik Watz, Alice M Turner, Robert M Mroz, Wim Janssens, Andrea Ludwig-Sengpiel, Markus Beck, Bérengère Langellier, Carina Ittrich, Frank Risse & Claudia Diefenbach. (2021) FOOTPRINTS study protocol: rationale and methodology of a 3-year longitudinal observational study to phenotype patients with COPD. BMJ Open 11:3, pages e042526.
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Roxana Cortes-Lopez & Igor Barjaktarevic. (2020) Alpha-1 Antitrypsin Deficiency: a Rare Disease?. Current Allergy and Asthma Reports 20:9.
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José Luis López-Campos, Laura Carrasco Hernandez & Candelaria Caballero Eraso. (2020) Implications of a Change of Paradigm in Alpha1 Antitrypsin Deficiency Augmentation Therapy: From Biochemical to Clinical Efficacy. Journal of Clinical Medicine 9:8, pages 2526.
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Robert. A. Stockley. (2020) Alpha-1 Antitrypsin Deficiency: The Learning Goes On. American Journal of Respiratory and Critical Care Medicine 202:1, pages 6-7.
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Jack Dummer, Claudia C. Dobler, Mark Holmes, Daniel Chambers, Ian A. Yang, Lianne Parkin, Sheree Smith, Peter Wark, Anouk Dev, Sandra Hodge, Eli Dabscheck, Julian Gooi, Sameh Samuel, Steven Knowles & Anne E. Holland. (2020) Diagnosis and treatment of lung disease associated with alpha one‐antitrypsin deficiency: A position statement from the Thoracic Society of Australia and New Zealand*. Respirology 25:3, pages 321-335.
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Diana Crossley, Robert Stockley & Elizabeth Sapey. (2019) Alpha-1 Antitrypsin Deficiency and Accelerated Aging: A New Model for an Old Disease?. Drugs & Aging 36:9, pages 823-840.
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Hannah A. Blair. (2019) Human α1-proteinase inhibitor (Respreeza®) in α1-antitrypsin deficiency emphysema: a profile of its use in the EU. Drugs & Therapy Perspectives 35:8, pages 363-368.
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Robert A. Stockley, David M. G. Halpin, Bartolome R. Celli & Dave Singh. (2019) Chronic Obstructive Pulmonary Disease Biomarkers and Their Interpretation. American Journal of Respiratory and Critical Care Medicine 199:10, pages 1195-1204.
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Robert A. Stockley, Ross G. Edgar, Sian Starkey & Alice M. Turner. (2018) Health status decline in α-1 antitrypsin deficiency: a feasible outcome for disease modifying therapies?. Respiratory Research 19:1.
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Article Editorial. (2018) Diagnosis and treatment of pulmonarydisease in α1-antitrypsin deficiency: a statement of European Respiratory Society. Russian Pulmonology 28:3, pages 273-295.
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Emma V. Low, Siân M. Hughes, Safia Zaffarullah, Dimitris Kantas, Robert Andrew Stockley & Alice M. Turner. (2018) ICS Use May Modify FEV<sub>1</sub> Decline in α<sub>1</sub>-Antitrypsin Deficiency Patients with Relatively High Blood Eosinophils. Respiration 95:2, pages 114-121.
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Marc Miravitlles, Asger Dirksen, Ilaria Ferrarotti, Vladimir Koblizek, Peter Lange, Ravi Mahadeva, Noel G. McElvaney, David Parr, Eeva Piitulainen, Nicolas Roche, Jan Stolk, Gabriel Thabut, Alice Turner, Claus Vogelmeier & Robert A. Stockley. (2017) European Respiratory Society statement: diagnosis and treatment of pulmonary disease in α 1 -antitrypsin deficiency . European Respiratory Journal 50:5, pages 1700610.
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James A. Stockley, Asem M. Ismail, Siân M. Hughes, Ross Edgar, Robert A. Stockley & Elizabeth Sapey. (2017) Maximal mid-expiratory flow detects early lung disease in α 1 -antitrypsin deficiency . European Respiratory Journal 49:3, pages 1602055.
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Joan B. Soriano & Ravi Mahadeva. (2017) α 1 -Antitrypsin deficiency: count me in please! . European Respiratory Journal 49:1, pages 1601941.
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Robert Stockley. 2017. Alpha-1-antitrypsin Deficiency. Alpha-1-antitrypsin Deficiency 101 116 .
Kate McKeage & Katherine A. Lyseng-Williamson. (2016) Human α1-proteinase inhibitor (Respreeza®) in α1-antitrypsin deficiency emphysema: a guide to its use in the EU. Drugs & Therapy Perspectives 32:10, pages 422-427.
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