Citations (172)
Keep up to date with the latest research on this topic with citation updates for this article.
Read on this site (13)
Tammie M. Jones, Alaanah Bhanji, Sarah Osman, Xinsheng Cindy Cai, Steven Garfinkel & Ali A. Weinstein. (2023) Experiences of caregivers and individuals living with traumatic brain injury in accessing health information: a qualitative investigation. Brain Injury 37:4, pages 293-302.
Read now
Read now
Jasmine F. Ashhurst, Sicong Tu, Hannah C. Timmins & Matthew C. Kiernan. (2022) Progress, development, and challenges in amyotrophic lateral sclerosis clinical trials. Expert Review of Neurotherapeutics 22:11-12, pages 905-913.
Read now
Read now
Maria Larsen, Gro Eirin Holde & Jan-Are K. Johnsen. (2022) Challenging encounters in clinical dentistry: a qualitative study investigating online reviews of patient satisfaction with Norwegian dentists. Acta Odontologica Scandinavica 80:5, pages 328-337.
Read now
Read now
Maria Stauner & Jette Primdahl. (2022) A sanctuary from everyday life: rheumatology patients’ experiences of in-patient multidisciplinary rehabilitation – a qualitative study. Disability and Rehabilitation 44:10, pages 1872-1879.
Read now
Read now
L A Visser, M De Mul & W K Redekop. (2021) Innovative Medical Technology and the Treatment Decision-Making Process in Multiple Sclerosis: A Focus Group Study to Examine Patient Perspectives. Patient Preference and Adherence 15, pages 927-937.
Read now
Read now
Abdulhadi M Alqahtani, Saja H Almazrou, Randah M Alalweet, Ziyad S Almalki, Basmah F Alqahtani & Saleh AlGhamdi. (2021) Impact of COVID-19 on Public Knowledge and Attitudes Toward Participating in Clinical Trials in Saudi Arabia: A Cross-Sectional Study. International Journal of General Medicine 14, pages 3405-3413.
Read now
Read now
Marianne Wyder, Helena Roennfeldt, Steven Kisely, Carolyn Ehrlich, Geoffrey Lau, Gabrielle Vilic, David Crompton & Frances Dark. (2021) The questions we ask – differences between the peer and allied health workforces. Advances in Mental Health 19:2, pages 176-183.
Read now
Read now
Veronica Franchina, Celeste Cagnazzo, Alessandro Di Costanzo, Francesca Arizio, Angela Maria Elena Frazzetto, Stefania Gori, Rosita Cenna, Fabrizio Nicolis, Giuseppe Procopio, Vincenzo Adamo, Nicla La Verde & Oriana Nanni. (2021) Patient associations and clinical oncology research: how much does a patient’s voice really matter?. Expert Review of Pharmacoeconomics & Outcomes Research 21:3, pages 433-440.
Read now
Read now
Charlotte Handberg, Ole Mygind & Jan Sau Johansen. (2019) Lessons learnt on the meaning of involvement and co-creation in developing community-based rehabilitation. Disability and Rehabilitation 41:25, pages 3052-3060.
Read now
Read now
Elia Gabarron, Enrique Dorronzoro, Meghan Bradway, Octavio Rivera-Romero, Rolf Wynn & Eirik Årsand. (2018) Preferences and interests of diabetes social media users regarding a health-promotion intervention. Patient Preference and Adherence 12, pages 2499-2506.
Read now
Read now
Kristina F Simacek, Tanya Nelson, Mignon Miller-Baldi & Susan C Bolge. (2018) Patient engagement in type 2 diabetes mellitus research: what patients want. Patient Preference and Adherence 12, pages 595-606.
Read now
Read now
Jui-Hua Tsai, Ann O. Scheimann, Shawn E. McCandless, Theresa V. Strong & John F. P. Bridges. (2018) Caregiver priorities for endpoints to evaluate treatments for Prader-Willi syndrome: a best–worst scaling. Journal of Medical Economics 21:12, pages 1230-1237.
Read now
Read now
Angela Ballantyne & Andrew Moore. (2018) Data and tissue research without patient consent: A qualitative study of the views of research ethics committees in New Zealand. AJOB Empirical Bioethics 9:3, pages 143-153.
Read now
Read now
Articles from other publishers (159)
Véronique Gauthier, Marie-Eve Poitras, Mélissa Lavoie, Benjamin Gallais, Samar Muslemani, Michel Boivin, Marc Tremblay & Cynthia Gagnon. (2023) Becoming a research participant: Decision-making needs of individuals with neuromuscular diseases. Translational Science of Rare Diseases, pages 1-19.
Crossref
Crossref
Lucy Pointon, Robin Grant, Sharon Peoples, Sara Erridge, Paula Sherwood, Martin Klein & Florien Boele. (2023) Unmet needs and wish for support of family caregivers of primary brain tumor patients. Neuro-Oncology Practice 10:3, pages 271-280.
Crossref
Crossref
Deborah J Cook, Marilyn Swinton, Karla D Krewulak, Kirsten Fiest, Joanna Dionne, Sylvie Debigare, Gordon Guyatt, Shipra Taneja, Waleed Alhazzani, Karen E A Burns, John C Marshall, John Muscedere, Audrey Gouskos, Simon Finfer, Adam M Deane, John Myburgh, Bram Rochwerg, Ian Ball, Tina Mele, Daniel Niven, Shane English, Madeleine Verhovsek & Meredith Vanstone. (2023) What counts as patient-important upper gastrointestinal bleeding in the ICU? A mixed-methods study protocol of patient and family perspectives. BMJ Open 13:5, pages e070966.
Crossref
Crossref
Nicole Racine, Katelyn Greer, Gina Dimitropoulos, Delphine Collin-Vézina, J.L. Henderson & Sheri Madigan. (2023) Youth engagement in child maltreatment research: Gaps, barriers, and approaches. Child Abuse & Neglect 139, pages 106127.
Crossref
Crossref
Chi‐Fang Tseng, Debra L. Miller, Patricia Huerta, Morgan E. PettyJohn, Melissa M. Yzaguirre, J. C. Agundez & Andrea K. Wittenborn. (2023) Recruitment strategies in couple intervention studies: A systematic review of recruitment methods and sample characteristics in the United States from 2015 to 2020. Family Process.
Crossref
Crossref
Deirdre Ryan, Ebonie Rio, Grainne O’Donoghue & Cliona O’Sullivan. (2023) “I’ve got a spring in my step” participants experience of action observation therapy and eccentric exercises, a telehealth study for mid-portion Achilles Tendinopathy: a qualitative study. Journal of Foot and Ankle Research 16:1.
Crossref
Crossref
Sophie A. Reynolds, Louise O’Connor, Anna McGee, Anna Quinn Kilcoyne, Archie Connolly, David Mockler, Emer Guinan & Linda O’Neill. (2023) Recruitment rates and strategies in exercise trials in cancer survivorship: a systematic review. Journal of Cancer Survivorship.
Crossref
Crossref
Lois Ottenhoff, Everard G. B. Vijverberg, Leonie N. C. Visser, Merike Verijp, Niels D. Prins, Wiesje M. Van der Flier & Sietske A. M. Sikkes. (2023) Experiences of and recommendations on clinical trial design in Alzheimer’s disease from the participant’s point of view: a mixed-methods study in two clinical trial centers in the Netherlands. Alzheimer's Research & Therapy 15:1.
Crossref
Crossref
Christian Boisvert-Huneault, David Trigos Herraez, Andreas Pinter, Satomi Kobayashi, Stacie Bell, Kimberley Kallsen, Tristan Gloede, Nobutaka Yagi, Steven Brunette, Yakov Datsenko, Frank Baehner, Emmanuelle Clerisme-Beaty & Peter Van de Kerkhof. (2023) Understanding potential participation barriers to improve trial design and outcomes: clinical trial simulation in palmoplantar pustulosis as a case study. BMJ Open 13:4, pages e064159.
Crossref
Crossref
Angélica T De Nardi, Lucinéia O Pfeifer, Nórton L Oliveira, Cíntia E Botton, Lucas P Santos & Daniel Umpierre. (2022) Perspectives of older participants on the delivery of individual results: Study within a trial (SWAT) hosted by the HAEL Study. Research Methods in Medicine & Health Sciences 4:2, pages 61-70.
Crossref
Crossref
Jeanne-Marie Nollen, Anja H Brunsveld-Reinders, Wilco C Peul & Wouter R van Furth. (2023) Patient perspectives on indwelling urinary catheters and fluid balances after transsphenoidal pituitary surgery: a qualitative study. BMJ Open 13:3, pages e069598.
Crossref
Crossref
Stine Estrup, Emily Barot, Camilla Bekker Mortensen, Carl Thomas Anthon, Elena Crescioli, Maj‐Brit Nørregaard Kjær, Gitte Kingo Vesterlund, Camilla Rahbek Lysholm Bruun, Marie Oxenbøll Collet, Bodil Steen Rasmussen, Praleene Sivapalan, Lone Musaeus Poulsen, Morten Hylander Møller, Anders Perner & Anders Granholm. (2022) Patient and public involvement in contemporary large intensive care trials: A meta‐epidemiological study. Acta Anaesthesiologica Scandinavica 67:3, pages 256-263.
Crossref
Crossref
Stuart D. Faulkner, Fabian Somers, Mathieu Boudes, Begõna Nafria & Paul Robinson. (2023) Using Patient Perspectives to Inform Better Clinical Trial Design and Conduct: Current Trends and Future Directions. Pharmaceutical Medicine 37:2, pages 129-138.
Crossref
Crossref
Johannes Kögel & Georg Marckmann. (2023) First-of-its-kind Xenotransplantation: Bedarf an ethischer Reflexion in Wissenschaft und Gesellschaft. Ethik in der Medizin 35:1, pages 137-143.
Crossref
Crossref
B. Hughes, R. Martin‐Misener, M. Latimer, M. Smit, P. McGrath & M. Campbell‐Yeo. (2023) Parenting Pain Away: Development and usability testing of an educational website about infant procedural pain management. Paediatric and Neonatal Pain.
Crossref
Crossref
Blessings M. Kapumba, Deborah Nyirenda, Nicola Desmond & Janet Seeley. (2023) ‘Guidance should have been there 15 years ago’ research stakeholders’ perspectives on ancillary care in the global south: a case study of Malawi. BMC Medical Ethics 24:1.
Crossref
Crossref
Ciara Buckley, Shaun Treweek, Lynn Laidlaw & Frances Shiely. (2023) Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials. Trials 24:1.
Crossref
Crossref
Anne Marie Sowerbutts, Simon Lal, Loris Pironi, Debra Jones, Chloe French, Marianne Riis, Andrew Clamp, Jennifer McCracken, Leanne Williamson, Carolyn Wheatley, Bethany Johnson & Sorrel Burden. (2023) Patients, family members and healthcare professionals’ top ten research priorities for adults receiving home parenteral nutrition for malignant or benign disease. Clinical Nutrition ESPEN 53, pages 151-158.
Crossref
Crossref
Rachel Ngan Kee, Valerie Milne, Nicola Dalbeth & Rebecca Grainger. (2023) Patient participation in defining best-practice rheumatology service provision in Aotearoa New Zealand: a qualitative study with service consumers. BMC Rheumatology 7:1.
Crossref
Crossref
Vasileios P. Giannoudis, Paul Rodham, Antony Antypas, Niki Mofori, George Chloros & Peter V. Giannoudis. (2023) Patient perspective on the use of carbon fibre plates for extremity fracture fixation. European Journal of Orthopaedic Surgery & Traumatology 33:6, pages 2573-2577.
Crossref
Crossref
Will Hall. (2022) Authorship disputes and patient research participation: collaborating across backgrounds. Research Ethics 19:1, pages 90-101.
Crossref
Crossref
Toril Beate Røssvoll, Tove Aminda Hanssen, Jan H. Rosenvinge, Kristin Liabo & Gunn Pettersen. (2022) Patient and Public Involvement in Occupational Therapy Health Research: A Scoping Review. OTJR: Occupation, Participation and Health 43:1, pages 119-126.
Crossref
Crossref
Melanie J. Cozad, Lisa C. Lindley, Kaitlyn Crosby, Noor Alshareef, Ann Blair Kennedy, Gulzar Merchant, Pam Evans & Ronnie D. Horner. (2022) Patient Goals for Living with Rheumatoid Arthritis: A Qualitative Study. Clinical Nursing Research 32:1, pages 40-48.
Crossref
Crossref
Aya Basam, Lorane Gaborit, Amie Hilder, Kaviya Kalyanasundaram, Gordon Liu, Peter Pockney, Chris Varghese, Deborah Wright, Jennifer Vu & William Xu. (2022) Study management strategies to optimize student‐ and trainee‐led collaborative research. ANZ Journal of Surgery 93:1-2, pages 28-34.
Crossref
Crossref
Parag Sancheti, Siddharth Aiyer, Sahil Sanghavi, Alok Gupta & Ashok Shyam. (2023) What does a department need to get involved in clinical trials?. Injury.
Crossref
Crossref
Alice Wickersham & Johnny Downs. 2023. Shaping the Future of Child and Adolescent Mental Health. Shaping the Future of Child and Adolescent Mental Health
59
79
.
Raj Kumar Thapa & Jong Oh Kim. (2022) Nanomedicine-based commercial formulations: current developments and future prospects. Journal of Pharmaceutical Investigation 53:1, pages 19-33.
Crossref
Crossref
Bernhard Guetz & Sonja Bidmon. (2022) Awareness of and interaction with physician rating websites: A cross-sectional study in Austria. PLOS ONE 17:12, pages e0278510.
Crossref
Crossref
Jolanda van der Velden, Folkert W Asselbergs, Jeroen Bakkers, Sandor Batkai, Luc Bertrand, Connie R Bezzina, Ilze Bot, Bianca J J M Brundel, Lucie Carrier, Steven Chamuleau, Michele Ciccarelli, Dana Dawson, Sean M Davidson, Andreas Dendorfer, Dirk J Duncker, Thomas Eschenhagen, Larissa Fabritz, Ines Falcão-Pires, Péter Ferdinandy, Mauro Giacca, Henrique Girao, Can Gollmann-Tepeköylü, Mariann Gyongyosi, Tomasz J Guzik, Nazha Hamdani, Stephane Heymans, Andres Hilfiker, Denise Hilfiker-Kleiner, Alfons G Hoekstra, Jean-Sébastien Hulot, Diederik W D Kuster, Linda W van Laake, Sandrine Lecour, Tim Leiner, Wolfgang A Linke, Joost Lumens, Esther Lutgens, Rosalinda Madonna, Lars Maegdefessel, Manuel Mayr, Peter van der Meer, Robert Passier, Filippo Perbellini, Cinzia Perrino, Maurizio Pesce, Silvia Priori, Carol Ann Remme, Bodo Rosenhahn, Ulrich Schotten, Rainer Schulz, Karin R Sipido, Joost P G Sluijter, Frank van Steenbeek, Sabine Steffens, Cesare M Terracciano, Carlo Gabriele Tocchetti, Patricia Vlasman, Kak Khee Yeung, Serena Zacchigna, Dayenne Zwaagman & Thomas Thum. (2022) Animal models and animal-free innovations for cardiovascular research: current status and routes to be explored. Consensus document of the ESC Working Group on Myocardial Function and the ESC Working Group on Cellular Biology of the Heart. Cardiovascular Research 118:15, pages 3016-3051.
Crossref
Crossref
Melanie J Cozad, Marissa Crum, Hannah Tyson, Perry R Fleming, Jeanine Stratton, Ann Blair Kennedy, Lisa C Lindley & Ronnie D Horner. (2022) Mobile Health Apps for Patient-Centered Care: Review of United States Rheumatoid Arthritis Apps for Engagement and Activation. JMIR mHealth and uHealth 10:12, pages e39881.
Crossref
Crossref
Sarah Morgan, Alice Kongsted & Birgitte Nørgaard. (2022) User perspectives on systematic data collection regarding back pain managed in general practice – a qualitative study. BMC Musculoskeletal Disorders 23:1.
Crossref
Crossref
Frances Rapport, James Smith, Karen Hutchinson, Robyn Clay‐Williams, Kate Churruca, Mia Bierbaum & Jeffrey Braithwaite. (2021) Too much theory and not enough practice? The challenge of implementation science application in healthcare practice. Journal of Evaluation in Clinical Practice 28:6, pages 991-1002.
Crossref
Crossref
Laoise Renwick, Caitlin McWilliams, Olivia Schaff, Laura Russell, Susan Ramsdale & Rebecca Lauren Morris. (2022) Stakeholder identified research priorities for early intervention in psychosis. Health Expectations 25:6, pages 2960-2970.
Crossref
Crossref
Hardeep Singh, Michelle LA Nelson, Julia Martyniuk, Heather Colquhoun, Sarah Munce, Jill I Cameron, Kristina Marie Kokorelias, Oya Pakkal & Kerry Kuluski. (2022) Scoping review protocol of the use of codesign methods in stroke intervention development. BMJ Open 12:11, pages e065150.
Crossref
Crossref
Drucy Borowitz, Joan Finnegan Brooks, Enid Aliaj & Danielle Gallotto. (2022) Community Perspective on Pancreatic Enzyme Replacement Therapy in Cystic Fibrosis. Journal of Pediatric Gastroenterology & Nutrition 75:5, pages e94-e97.
Crossref
Crossref
Tegan Cruwys, Catherine Haslam, S.Alexander Haslam, Joanne A. Rathbone & Jessica L. Donaldson. (2022) Acceptability and Feasibility of an Intervention to Enhance Social Group Belonging: Evidence From Three Trials of Groups 4 Health. Behavior Therapy 53:6, pages 1233-1249.
Crossref
Crossref
Eleanor M. Perfetto, Elisabeth M. Oehrlein, T. Rosie Love, Silke Schoch, Annie Kennedy & Jennifer Bright. (2022) Patient-Centered Core Impact Sets: What They are and Why We Need Them. The Patient - Patient-Centered Outcomes Research 15:6, pages 619-627.
Crossref
Crossref
Mariah Janowski, Olivia Dahlgren, Kori-Ann Taylor, Isha Kaza, Ambreen Alam, Thomas J. Papadimos, Anna Ng Pellegrino & Stanislaw P. Stawicki. 2022. Contemporary Topics in Graduate Medical Education - Volume 2. Contemporary Topics in Graduate Medical Education - Volume 2.
S. Singhal, E. M. D. Smith, L. Roper & C. E. Pain. (2022) The importance of children and young person involvement in scoping the need for a paediatric glucocorticoid-associated patient reported outcome measure. BMC Rheumatology 6:1.
Crossref
Crossref
Chidiebere Nwolise, Agata Rembielak, Ray Fitzpatrick, Crispin Jenkinson, Jerry Marsden, Patricia Fairbrother, Charlotte M. Proby, Catherine A. Harwood & Rubeta N. Matin. (2022) Adjuvant radiotherapy in patients with high-risk cutaneous Squamous Cell Carcinoma After surgery (SCC-AFTER): patient and carer views regarding a proposed clinical trial. Clinical and Experimental Dermatology 47:10, pages 1875-1876.
Crossref
Crossref
Prashna Singh. (2022) Clinician’s Commentary on O’Hoski et al.. Physiotherapy Canada 74:3, pages 265-266.
Crossref
Crossref
Jan Geißler, Emily Isham, Gary Hickey, Clive Ballard, Anne Corbett & Cheryl Lubbert. (2022) Patient involvement in clinical trials. Communications Medicine 2:1.
Crossref
Crossref
Rebecca Dobra, Siân Bentley, Claire Edmondson, Maxine Ovens, Clare Saunders, Christopher Short, Gemma Wilson, Jane C. Davies & Andrew Bush. (2022) Going the Extra Mile: Why Clinical Research in Cystic Fibrosis Must Include Children. Children 9:7, pages 1080.
Crossref
Crossref
Mariana Amorim, Susana Silva, Helena Machado, Elisa Leão Teles, Maria João Baptista, Tiago Maia, Ngozi Nwebonyi & Cláudia de Freitas. (2022) Benefits and Risks of Sharing Genomic Data for Research: Comparing the Views of Rare Disease Patients, Informal Carers and Healthcare Professionals. International Journal of Environmental Research and Public Health 19:14, pages 8788.
Crossref
Crossref
Dawn C. Rose, Ellen Poliakoff, Rebecca Hadley, Ségolène M. R. Guérin, Michelle Phillips & William R. Young. (2022) Levelling the Playing Field: The Role of Workshops to Explore How People With Parkinson's Use Music for Mood and Movement Management as Part of a Patient and Public Involvement Strategy. Frontiers in Rehabilitation Sciences 3.
Crossref
Crossref
Omar Heyward, Stacey Emmonds, Gregory Roe, Sean Scantlebury, Keith Stokes & Ben Jones. (2022) Applied sports science and sports medicine in women’s rugby: systematic scoping review and Delphi study to establish future research priorities. BMJ Open Sport & Exercise Medicine 8:3, pages e001287.
Crossref
Crossref
Daniel I Rhon, Robert C Oh & Deydre S Teyhen. (2022) Challenges With Engaging Military Stakeholders for Clinical Research at the Point of Care in the U.S. Military Health System. Military Medicine 187:7-8, pages 209-214.
Crossref
Crossref
Kathy Boutis & Unni Narayanan. (2022) Torus fractures of the distal radius: time to focus on symptomatic management. The Lancet 400:10345, pages 4-5.
Crossref
Crossref
O. Husson, C. Drabbe, K. Schuster, P. van Kampen, C. Koops, M. Weidema, R. Davidson, M. Wartenberg, E. Artzner, O. Gonzato, N. Fernandez, B. Kasper, K. Pilgermann, R. Wilson, W.T.A. van der Graaf & G. van Oortmerssen. (2022) Setting the international research agenda for sarcoma together with patients and carers: first results of the Sarcoma Patient EuroNet (SPAEN) priority setting partnership. ESMO Open 7:3, pages 100509.
Crossref
Crossref
Marjan J. Meinders, Anne C. Donnelly, Margaret Sheehan & Bastiaan R. Bloem. (2022) Including People with Parkinson’s Disease in Clinical Study Design and Execution: A Call to Action. Journal of Parkinson's Disease 12:4, pages 1359-1363.
Crossref
Crossref
Sonja Beckmann, Oliver Mauthner, Liz Schick, Jessica Rochat, Christian Lovis, Annette Boehler, Isabelle Binet, Uyen Huynh-Do & Sabina De Geest. (2022) A National Survey Comparing Patients’ and Transplant Professionals’ Research Priorities in the Swiss Transplant Cohort Study. Transplant International 35.
Crossref
Crossref
Katherine A. Yeager, Jinbing Bai, Keerthi Gogineni, Jane Lowe Meisel, Jaime Kweon, Deborah W. Bruner & Drenna Waldrop-Valverde. (2020) Pilot Feasibility Study of a Video Intervention to Educate Patients with Breast Cancer About Clinical Trials. Journal of Cancer Education 37:2, pages 387-394.
Crossref
Crossref
S. K. B. Spohn, S. Adebahr, M. Huber, C. Jenkner, R. Wiehle, B. Nagavci, C. Schmucker, E. G. Carl, R. C. Chen, W. A. Weber, M. Mix, A. Rühle, T. Sprave, N. H. Nicolay, C. Gratzke, M. Benndorf, T. Wiegel, J. Weis, D. Baltas, A. L. Grosu & C. Zamboglou. (2022) Feasibility, pitfalls and results of a structured concept-development phase for a randomized controlled phase III trial on radiotherapy in primary prostate cancer patients. BMC Cancer 22:1.
Crossref
Crossref
Florent Schäfer, Laurent Quinquis, Maxime Klein, Joséphine Escutnaire, Frédéric Chavanel, Hélène Chevallier & Guy Fagherazzi. (2022) Attitudes and Expectations of Clinical Research Participants Toward Digital Health and Mobile Dietary Assessment Tools: Cross-Sectional Survey Study. Frontiers in Digital Health 4.
Crossref
Crossref
Sung‐Hoon Jung, Je‐Jung Lee, Ga‐Young Song, Ho Sup Lee, Seok Jin Kim, Sang Eun Yoon & Kihyun Kim. (2021) Clinical trial participation improves survival outcomes by increasing availability of new therapeutic agents in multiple myeloma. British Journal of Haematology 196:4, pages 1117-1120.
Crossref
Crossref
Theresia Krieger, Sandra Salm, Antje Dresen, Anna Arning, Kathrin Schwickerath, Andrea Göttel, Stefanie Houwaart, Holger Pfaff & Natalia Cecon. (2022) Optimizing Patient Information Material for a New Psycho-Oncological Care Program Using a Participatory Health Research Approach in Germany. International Journal of Environmental Research and Public Health 19:3, pages 1518.
Crossref
Crossref
Begoña de las Heras, Adam Daehnke, Kamal S Saini, Melissa Harris, Kenneth Morrison, Ariel Aguilo, Isagani Chico, Laura Vidal & Robin Marcus. (2022) Role of decentralized clinical trials in cancer drug development: Results from a survey of oncologists and patients. DIGITAL HEALTH 8, pages 205520762210999.
Crossref
Crossref
Gloria A Aguayo, Catherine Goetzinger, Renza Scibilia, Aurélie Fischer, Till Seuring, Viet-Thi Tran, Philippe Ravaud, Tamás Bereczky, Laetitia Huiart & Guy Fagherazzi. (2021) Methods to Generate Innovative Research Ideas and Improve Patient and Public Involvement in Modern Epidemiological Research: Review, Patient Viewpoint, and Guidelines for Implementation of a Digital Cohort Study. Journal of Medical Internet Research 23:12, pages e25743.
Crossref
Crossref
Kacey Ferguson, Jessica Pope Mitro, Alaanah Bhanji, Sejean Yang, Lynn Gerber, Cindy Cai, Steven Garfinkel & Ali A. Weinstein. (2021) Qualitative Investigation of Health Information Resources for Caregivers and Individuals Living With Spinal Cord Injury. Topics in Spinal Cord Injury Rehabilitation 27:4, pages 79-98.
Crossref
Crossref
Emily M. Godfrey, Erin K. Thayer, Laura Mentch, Traci M. Kazmerski, Georgia Brown, Molly Pam & Morhaf Al Achkar. (2021) Development and evaluation of a virtual patient-centered outcomes research training program for the cystic fibrosis community. Research Involvement and Engagement 7:1.
Crossref
Crossref
Fenella J. Gill, Catherine Pienaar & Tanya Jones. (2021) Using a 3 stage process to create a consumer research contact list in a paediatric health setting: the PARTICIPATE project. Research Involvement and Engagement 7:1.
Crossref
Crossref
Jane Taylor, Sjouke Dekker, Diny Jurg, Jon Skandsen, Maureen Grossman, Anne-Karien Marijnissen, Christoph Ladel, Ali Mobasheri, Jon Larkin, Harrie Weinans, Irene Kanter-Schlifke, Anne-Karien Marijnissen, Christoph Ladel, Ali Mobasheri, Jon Larkin & Harrie Weinans. (2021) Making the patient voice heard in a research consortium: experiences from an EU project (IMI-APPROACH). Research Involvement and Engagement 7:1.
Crossref
Crossref
Cecilie Mullerup Laustsen-Kiel, Elisabeth Lauritzen, Linnea Langhans & Tine Engberg Damsgaard. (2021) Study protocol for a 10-year prospective observational study, examining lymphoedema and patient-reported outcome after breast reconstruction. BMJ Open 11:12, pages e052676.
Crossref
Crossref
Stefano Benvenuti, Chiuhui Mary Wang & Simona Borroni. (2021) Perspectives, Expectations, and Concerns of European Patient Advocates on Advanced Therapy Medicinal Products. Frontiers in Medicine 8.
Crossref
Crossref
Lilja Thorgeirsdottir, Malin Andersson, Ove Karlsson, Sven-Egron Thörn, Jonatan Oras, Verena Sengpiel, Teresia Svanvik, Helen Elden, Karolina Linden, Katja Junus, Susanne Lager, Ida Enskär, Teelkien van Veen, Johan Wikström, Isabella Björkman-Burtscher, Anna Stigsdotter Neely, Anna-Karin Wikström & Lina Bergman. (2021) Study protocol: establishment of a multicentre pre-eclampsia database and biobank in Sweden: GO PROVE and UP MOST, a prospective cohort study. BMJ Open 11:11, pages e049559.
Crossref
Crossref
Courtney J. Lightfoot, Martin Howell & Alice C. Smith. (2021) How to assess quality of life in persons with chronic kidney disease. Current Opinion in Nephrology & Hypertension 30:6, pages 547-554.
Crossref
Crossref
R. Dobra, J.S. Elborn, S. Madge, L. Allen, M. Boeri, F. Kee, S. Goundry, T. Purcell, C. Saunders & J.C. Davies. (2021) Guiding the rational design of patient-centred drug trials in Cystic Fibrosis: A Delphi study. Journal of Cystic Fibrosis 20:6, pages 986-993.
Crossref
Crossref
Heather M Young, Sheridan Miyamoto, Stuart Henderson, Madan Dharmar, Margaret Hitchcock, Sarina Fazio & Yajarayma Tang-Feldman. (2020) Meaningful Engagement of Patient Advisors in Research: Towards Mutually Beneficial Relationships. Western Journal of Nursing Research 43:10, pages 905-914.
Crossref
Crossref
Emily Barot, Maj‐Brit Nørregaard Kjær, Marie Collet, Elena Crescioli, Bodil Steen Rasmussen, Stine Estrup, Camilla Bekker Mortensen, Gitte Kingo Vesterlund, Praleene Sivapalan, Carl Thomas Anthon, Camilla Rahbek Lysholm Bruun, Lone Musaeus Poulsen, Morten Hylander Møller, Anders Perner & Anders Granholm. (2021) Patient and public involvement in contemporary large intensive care trials: Protocol for a meta‐epidemiological study. Acta Anaesthesiologica Scandinavica 65:9, pages 1351-1354.
Crossref
Crossref
Katie Paddock, Kerry Woolfall, Lucy Frith, Megan Watkins, Carrol Gamble, Ingeborg Welters & Bridget Young. (2021) Strategies to enhance recruitment and consent to intensive care studies: a qualitative study with researchers and patient–public involvement contributors. BMJ Open 11:9, pages e048193.
Crossref
Crossref
K.N. Dainty, M.B. Seaton, K. Cowan, A. Laupacis, P. Dorian, M. Douma, J. Garner, J. Goldstein, D. Shire, D. Sinclair, C. Thurlow & C. Vaillancourt. (2021) Partnering with survivors & families to determine research priorities for adult out-of-hospital cardiac arrest: A James Lind Alliance Priority Setting Partnership. Resuscitation Plus 7, pages 100148.
Crossref
Crossref
Sidsel Høgh-Poulsen, Jane M. Bendix, Maria Mieskiewicz Larsen, Rie Adser Virkus, Anne Dsane Andersen, Tine Dalsgaard Clausen, Ellen Christine Leth Løkkegaard & Paul Bryde Axelsson. (2021) Pregnant womeńs views on the timing of prophylactic antibiotics during caesarean delivery: A qualitative semi-structured interview study. European Journal of Obstetrics & Gynecology and Reproductive Biology 264, pages 65-69.
Crossref
Crossref
Shuyan Liu, Sabine Müller, Raymond J. Dolan, Xudong Zhao, Jialin C. Zheng & Andreas Heinz. (2020) Opportunities, risks and challenges in global mental health and population neuroscience: a case of Sino-German cooperation. European Archives of Psychiatry and Clinical Neuroscience 271:6, pages 1027-1034.
Crossref
Crossref
Mandeep Ubhi, Shirish Dubey, Caroline Gordon, Tochukwu Adizie, Tom Sheeran, Kerry Allen, Rachel Jordan, Steven Sadhra, Jo Adams, Rashmika Daji, John A Reynolds & Kanta Kumar. (2021) Understanding the impact of systemic lupus erythematosus on work amongst South Asian people in the UK: An explorative qualitative study. Lupus 30:9, pages 1492-1501.
Crossref
Crossref
Ameeta Retzer, Melanie Calvert, Khaled Ahmed, Thomas Keeley, Jo Armes, Julia M. Brown, Lynn Calman, Anna Gavin, Adam W. Glaser, Diana M. Greenfield, Anne Lanceley, Rachel M. Taylor, Galina Velikova, Michael Brundage, Fabio Efficace, Rebecca Mercieca‐Bebber, Madeleine T. King & Derek Kyte. (2021) International perspectives on suboptimal patient‐reported outcome trial design and reporting in cancer clinical trials: A qualitative study. Cancer Medicine 10:16, pages 5475-5487.
Crossref
Crossref
Irisz Delestre-Levai, Stefano Aliberti, Marta Almagro, Chiara Carnini, James D. Chalmers, Sharath C. George, Soumya Shukla, Alan Timothy & Maria Carmela De Vuono. (2021) Patients’ perspectives on bronchiectasis: findings from a social media listening study. ERJ Open Research 7:3, pages 00096-2021.
Crossref
Crossref
Omar Heyward, Stacey Emmonds, Gregory Roe, Sean Scantlebury, Keith Stokes & Ben Jones. (2021) Applied sport science and medicine of women’s rugby codes: a systematic-scoping review and consensus on future research priorities protocol. BMJ Open Sport & Exercise Medicine 7:3, pages e001108.
Crossref
Crossref
Raff Calitri, Mary Carter, Chris Code, Ruth Lamont, Sarah Dean & Mark Tarrant. (2021) Challenges of Recruiting Patients Into Group-Based Stroke Rehabilitation Research: Reflections on Clinician Equipoise Within the Singing for People With Aphasia (SPA) Pilot Trial. Frontiers in Psychology 12.
Crossref
Crossref
Ana Diaz, Dianne Gove, Mia Nelson, Michael Smith, Claire Tochel, Christophe Bintener, Amanda Ly, Christin Bexelius, Anders Gustavsson, Jean Georges, John Gallacher & Cathie Sudlow. (2021) Conducting public involvement in dementia research: The contribution of the European Working Group of People with Dementia to the ROADMAP project. Health Expectations 24:3, pages 757-765.
Crossref
Crossref
Olga I. Zvonareva, Olga S. Kobyakova, Igor’ D. Pimenov, Maria Yu. Egorova, Vera Е. Yun, Dmitrij M. Loos, Andrej V. Sofronov, Stepan V. Zyrianov, Anastasiya A. Bronnikova, Denis S. Tyufilin & Evgenij S. Kulikov. (2021) Clinical trial through the eyes of patients: benefit or unjustified risk?. HEALTH CARE OF THE RUSSIAN FEDERATION 65:2, pages 118-124.
Crossref
Crossref
Nicole Gusset, Caroline Stalens, Eva Stumpe, Lori Klouvi, Alexandre Mejat, Marie-Christine Ouillade & Mencía de Lemus. (2021) Understanding European patient expectations towards current therapeutic development in spinal muscular atrophy. Neuromuscular Disorders 31:5, pages 419-430.
Crossref
Crossref
Nadia Harbeck, Andreas Schneeweiss, Peter Thuss-Patience, Kurt Miller, Claus Garbe, Frank Griesinger, Wilfried E.E. Eberhardt, Jens P. Klussmann, Barbara Wollenberg, Marc-Oliver Grimm, Thomas Zander & Diana Lüftner. (2021) Neoadjuvant and adjuvant end-points in health technology assessment in oncology. European Journal of Cancer 147, pages 40-50.
Crossref
Crossref
Angela Ju, Nicole Scholes-Robertson, David W Johnson, Yeoungjee Cho, Anita van Zwieten, Karine Manera, Martin Howell, Andrea K Viecelli, Shilpanjali Jesudason, Nicole Evangelidis, Kevan Polkinghorne, Talia Gutman, Kate Wyburn, Jonathan C Craig, Allison Tong, Angela Charalambous, Barrymore Beach, Bernard Larkin, Carol Beach, Cornish Clive, Danilo Dingle, Danny Thomas, David Blake, Deane Baker, Debbie Underwood, Dianne McLaren, Faye Demagante, Gaye Jennings, Helen Jeff, Irene Mewburn, Joy Wooldridge, Julianne Ellis, Kass Widders, Kay Young, Ken McLaren, Ken Yew, Melinda Ellis, Michelle Blake, Nicole Scholes-Robertson, Neil Scholes-Robertson, Paul Grant, Paul Kennedy, Pauline Walter, Pauline Yew, Raymond Jeff & William Wooldridge. (2021) Patient-led identification and prioritization of exercise interventions for fatigue on dialysis: a workshop report. Clinical Kidney Journal 14:3, pages 831-839.
Crossref
Crossref
Iona Pearson, Sue Blackwell, Rebecca Fish, Sarah Daniels, Malcolm West, Nanette Mutrie, P Kelly, Stephen Knight, Nicola S Fearnhead & Susan Moug. (2021) Defining standards in colorectal optimisation: a Delphi study protocol to achieve international consensus on key standards for colorectal surgery prehabilitation. BMJ Open 11:3, pages e047235.
Crossref
Crossref
Rebecca Anne Dobra, Marco Boeri, Stuart Elborn, Frank Kee, Susan Madge & Jane C Davies. (2021) Discrete choice experiment (DCE) to quantify the influence of trial features on the decision to participate in cystic fibrosis (CF) clinical trials. BMJ Open 11:3, pages e045803.
Crossref
Crossref
Jennifer J. Carr, Joyce Lalara, Gayangwa Lalara, Gwen Lalara, Bronwyn Daniels, Alan R. Clough, Anne Lowell & Ruth N. Barker. (2021) Staying Strong Toolbox: Co-design of a physical activity and lifestyle program for Aboriginal families with Machado-Joseph disease in the Top End of Australia. PLOS ONE 16:2, pages e0244311.
Crossref
Crossref
Tatiana Iakovleva, Elin Oftedal & John Bessant. (2021) Changing Role of Users—Innovating Responsibly in Digital Health. Sustainability 13:4, pages 1616.
Crossref
Crossref
Katherine Chinchilla, Cristiano Matos, Victoria Hall & Florence van Hunsel. (2020) Patient Organizations’ Barriers in Pharmacovigilance and Strategies to Stimulate Their Participation. Drug Safety 44:2, pages 181-191.
Crossref
Crossref
Kavita Dave, Rebecca Dobra, Sandra Scott, Clare Saunders, Jess Matthews, Nicholas J. Simmonds & Jane C. Davies. (2021) Entering the era of highly effective modulator therapies. Pediatric Pulmonology 56:S1.
Crossref
Crossref
Mette Midttun, Karsten Overgaard & Rune Skovgaard Rasmussen. (2021) Testosterone serum levels in elderly fall-prone men do not correlate with age or performance in the 30 seconds chair stand test. Journal of Gerontology and Geriatrics 69:2, pages 98-102.
Crossref
Crossref
J. Carlton, T. Peasgood, S. Khan, R. Barber, J. Bostock & A. D. Keetharuth. (2020) An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs). Journal of Patient-Reported Outcomes 4:1.
Crossref
Crossref
K. D. Coulman, A. Nicholson, A. Shaw, A. Daykin, L. E. Selman, R. Macefield, G. W. Shorter, H. Cramer, M. R. Sydes, C. Gamble, M. E. Pick, G. Taylor & J. A. Lane. (2020) Understanding and optimising patient and public involvement in trial oversight: an ethnographic study of eight clinical trials. Trials 21:1.
Crossref
Crossref
Christine Prodinger, Anja Diem, Katherina Ude-Schoder, Josefina Piñón-Hofbauer, Sophie Kitzmueller, Johann W. Bauer & Martin Laimer. (2020) Profiling trial burden and patients’ attitudes to improve clinical research in epidermolysis bullosa. Orphanet Journal of Rare Diseases 15:1.
Crossref
Crossref
Sally Lanar, Catherine Acquadro, James Seaton, Isabelle Savre & Benoit Arnould. (2020) To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases. Orphanet Journal of Rare Diseases 15:1.
Crossref
Crossref
Lucie Malloggi, Brice Leclère, Clément Le Glatin & Leïla Moret. (2020) Patient involvement in healthcare workers’ practices: how does it operate? A mixed-methods study in a French university hospital. BMC Health Services Research 20:1.
Crossref
Crossref
Stine Gundtoft Roikjær, Charlotte Paaske Simonÿ & Helle Ussing Timm. (2020) Qualitative study to explore what patients with heart failure find significant during integrated palliative care sessions in a Danish clinic. BMJ Open 10:12, pages e043955.
Crossref
Crossref
Shellie Jean Radford & Lizzie Smith. (2020) Nurse and patient perspectives on participating in research: experience of an inflammatory bowel disease fatigue study. Gastrointestinal Nursing 18:9, pages 14-18.
Crossref
Crossref
Alison Greene, Mary Elmer, Sean Ludlam, Kathyjo Shay, Sarah Bentley, Claire Trennery, Rebecca Grimes & Adam Gater. (2020) Evaluation of the Content Validity and Cross-Cultural Validity of the Study Participant Feedback Questionnaire (SPFQ). Therapeutic Innovation & Regulatory Science 54:6, pages 1522-1533.
Crossref
Crossref
Melissa J. Armstrong, Noheli Gamez, Slande Alliance, Tabassum Majid, Angela Taylor, Andrea M. Kurasz, Bhavana Patel & Glenn Smith. (2020) Research priorities of caregivers and individuals with dementia with Lewy bodies: An interview study. PLOS ONE 15:10, pages e0239279.
Crossref
Crossref
Francesca Ingegnoli, Tommaso Schioppo, Tania Ubiali, Valentina Bollati, Silvia Ostuzzi, Massimiliano Buoli & Roberto Caporali. (2020) Relevant non‐pharmacologic topics for clinical research in rheumatic musculoskeletal diseases: The patient perspective. International Journal of Rheumatic Diseases 23:10, pages 1305-1310.
Crossref
Crossref
Franziska Schmidt, Karin Ribi, Joerg Haslbeck, Corinne Urech, Karin Holm & Manuela Eicher. (2020) Adapting a peer-led self-management program for breast cancer survivors in Switzerland using a co-creative approach. Patient Education and Counseling 103:9, pages 1780-1789.
Crossref
Crossref
Jessica Catchpole. (2020) A participatory approach to determining outcome measures in people with depression. The Lancet Psychiatry 7:8, pages 650-652.
Crossref
Crossref
Gabriela Ilie, Ross Mason, David Bell, Greg Bailly, Ricardo A. Rendon, Robert Mann, Joseph G. Lawen, David Bowes, Derek Wilke, Nikhilesh Patil & Robert D. H. Rutledge. (2019) Development and Initial Evaluation of a Multifaceted Intervention to Improve Mental Health and Quality of Life Among Prostate Cancer Survivors. International Journal of Mental Health and Addiction 18:4, pages 1067-1080.
Crossref
Crossref
Mia T Minen, Kaitlyn Morio, Kathryn Berlin Schaubhut, Scott W Powers, Richard B Lipton & Elizabeth Seng. (2019) Focus group findings on the migraine patient experience during research studies and ideas for future investigations. Cephalalgia 40:7, pages 712-734.
Crossref
Crossref
Judith E den Ouden, Regina The, Britt J Myren, Dorry Boll, Willemien J van Driel, Roy I Lalisang, Roy FPM Kruitwagen & Anne M van Altena. (2020) Development of a decision aid for primary treatment of patients with advanced-stage ovarian cancer. International Journal of Gynecologic Cancer 30:6, pages 837-844.
Crossref
Crossref
Katrine Staats, Ellen Karine Grov, Bettina Husebø & Oscar Tranvåg. (2020) Framework for Patient and Informal Caregiver Participation in Research (PAICPAIR). Advances in Nursing Science 43:2, pages E58-E70.
Crossref
Crossref
Rebecca Ashkenazy. (2020) Building the case for developing a medical affairs patient-centric framework collaboratively. Drug Discovery Today 25:3, pages 475-479.
Crossref
Crossref
Ann-Mari Fagerdahl, Vibeke E. Knudsen, Ingrid Egerod & Annette E. Andersson. (2020) Patient experience of necrotising soft-tissue infection from diagnosis to six months after intensive care unit stay: A qualitative content analysis. Australian Critical Care 33:2, pages 187-192.
Crossref
Crossref
Antony J Porcino, Larissa Shamseer, An-Wen Chan, Richard L Kravitz, Aaron Orkin, Salima Punja, Philippe Ravaud, Christopher H Schmid & Sunita Vohra. (2020) SPIRIT extension and elaboration for n-of-1 trials: SPENT 2019 checklist. BMJ, pages m122.
Crossref
Crossref
Lynda Grine, Rosanne Janssens, Eline van Overbeeke, Danielle Derijcke, Mitchell Silva, Belinda Delys, Isabelle Dusart, Veerle Aertsen, Magali Mertens de Wilmars, Joanna Robaczewska & Hilde Stevens. (2020) Improving Patient Involvement in the Lifecycle of Medicines: Insights From the EUPATI BE Survey. Frontiers in Medicine 7.
Crossref
Crossref
Vera J. LiptonVera Lipton. 2020. Open Scientific Data - Why Choosing and Reusing the RIGHT DATA Matters. Open Scientific Data - Why Choosing and Reusing the RIGHT DATA Matters.
Vera J. Lipton. 2020. Open Scientific Data - Why Choosing and Reusing the RIGHT DATA Matters. Open Scientific Data - Why Choosing and Reusing the RIGHT DATA Matters.
Ania Anderst, Karena Conroy, Greg Fairbrother, Laila Hallam, Alan McPhail & Vicki Taylor. (2020) Engaging consumers in health research: a narrative review. Australian Health Review 44:5, pages 806.
Crossref
Crossref
Sofia Crisóstomo & Filipa Alves da Costa. 2020. Global Pharmaceutical Policy. Global Pharmaceutical Policy
261
291
.
Kim Madden & Mohit Bhandari. 2020. Personalized Hip and Knee Joint Replacement. Personalized Hip and Knee Joint Replacement
1
5
.
Adrian Curwen, Jane Fernandes, Rachael Howison, Paul Binfield, Frank Rohricht & Domenico Giacco. (2019) Exploring experiences of people participation activities in a British national health service trust: a service user-led research project. Research Involvement and Engagement 5:1.
Crossref
Crossref
J. Schiller, T. Kellner, J. Briest, K. Hoepner, A. Woyciechowski, A. Ostermann, C. Korallus, C. Sturm, T. Weiberlenn, L. Jiang, C. Egen, F. Beissner, M. Stiesch, M. Karst, C. Gutenbrunner & M. G. Fink. (2019) The best from East and West? Acupuncture and medical training therapy as monotherapies or in combination for adult patients with episodic and chronic tension-type headache: study protocol for a randomized controlled trial. Trials 20:1.
Crossref
Crossref
Anna Ambrosini, Ros Quinlivan, Valeria A. Sansone, Ingeborg Meijer, Guus Schrijvers, Aad Tibben, George Padberg, Maarten de Wit, Ellen Sterrenburg, Alexandre Mejat, Alexandra Breukel, Michal Rataj, Hanns Lochmüller & Raffaella Willmann. (2019) “Be an ambassador for change that you would like to see”: a call to action to all stakeholders for co-creation in healthcare and medical research to improve quality of life of people with a neuromuscular disease. Orphanet Journal of Rare Diseases 14:1.
Crossref
Crossref
Katharina Beier, Mark Schweda & Silke Schicktanz. (2019) Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research. BMC Medical Informatics and Decision Making 19:1.
Crossref
Crossref
Stefan Zeh, Eva Christalle, Pola Hahlweg, Martin Härter & Isabelle Scholl. (2019) Assessing the relevance and implementation of patient-centredness from the patients’ perspective in Germany: results of a Delphi study. BMJ Open 9:12, pages e031741.
Crossref
Crossref
Daphne T. Adelman, Dirk Van Genechten, Clémentine M. Megret, Xuan-Mai T. Truong Thanh, Philippa Hand & Wendy A. Martin. (2019) Co-Creation of a Lanreotide Autogel/Depot Syringe for the Treatment of Acromegaly and Neuroendocrine Tumours Through Collaborative Human Factor Studies. Advances in Therapy 36:12, pages 3409-3423.
Crossref
Crossref
Mariona Pons-Vigués, Enriqueta Pujol-Ribera, Anna Berenguera, Concepción Violán & Vinita Mahtani-Chugani. (2019) La participación ciudadana en la investigación desde la perspectiva de investigadores de atención primaria. Gaceta Sanitaria 33:6, pages 536-546.
Crossref
Crossref
Charlotte Kjær, Sandra Radzimanowski Fedders & Parisa Gazerani. (2019) A Tailored Information Strategy for Danish Health Professionals to Increase Patient Recruitment into Clinical Trials: a Questionnaire-Based Study. SN Comprehensive Clinical Medicine 1:10, pages 786-796.
Crossref
Crossref
Rijkent H. Drost, Wim J. A. G. Dictus, Berent J. Prakken & Niels Bovenschen. (2019) How a four-year-old boy connects healthcare, biomedical research and undergraduate education. Nature Biotechnology 37:9, pages 1092-1095.
Crossref
Crossref
Philippe Desmarais, Nathan Herrmann, Fahad Alam, Stephen Choi & Sinziana Avramescu. (2019) Future Directions for Geriatric Anesthesiology. Anesthesiology Clinics 37:3, pages 581-592.
Crossref
Crossref
Sarah C. Stallings, Alaina P. Boyer, Yvonne A. Joosten, Laurie L. Novak, Al Richmond, Yolanda C. Vaughn & Consuelo H. Wilkins. (2019) A taxonomy of impacts on clinical and translational research from community stakeholder engagement. Health Expectations 22:4, pages 731-742.
Crossref
Crossref
Volker Limmroth, Klaus Hechenbichler, Christian Müller & Markus Schürks. (2019) Assessment of Medication Adherence Using a Medical App Among Patients With Multiple Sclerosis Treated With Interferon Beta-1b: Pilot Digital Observational Study (PROmyBETAapp). Journal of Medical Internet Research 21:7, pages e14373.
Crossref
Crossref
N. O. Vasyukova, Yu. V. Lukina, N. P. Kutishenko, S. Yu. Martsevich & O. I. Zvonareva. (2019) Medication Adherence: does Patient Participation in Randomized Clinical Trials Affect on it?. Rational Pharmacotherapy in Cardiology 15:3, pages 386-392.
Crossref
Crossref
Daphne Guinn, Erin E Wilhelm, Grazyna Lieberman & Sean Khozin. (2019) Assessing function of electronic health records for real-world data generation. BMJ Evidence-Based Medicine 24:3, pages 95-98.
Crossref
Crossref
Chris Morton, Sara Muller, Milica Bucknall, Kate Gilbert, Christian D. Mallen & Samantha L. Hider. (2019) Examining management and research priorities in patients with polymyalgia rheumatica: a primary care questionnaire survey. Clinical Rheumatology 38:6, pages 1767-1772.
Crossref
Crossref
Laura M. DemberEduardo LacsonSteven M. BrunelliJesse Y. Hsu, Alfred K. CheungJohn T. DaugirdasTom GreeneCsaba P. Kovesdy, Dana C. MiskulinRavi I. ThadhaniWolfgang C. WinkelmayerSusan S. Ellenberg, Denise CifelliRosemary MadiganAmy YoungMichael AngelettiRebecca L. WingardChristina KahnAllen R. Nissenson, Franklin W. MadduxKevin C. Abbott & J. Richard Landis. (2019) The TiME Trial: A Fully Embedded, Cluster-Randomized, Pragmatic Trial of Hemodialysis Session Duration. Journal of the American Society of Nephrology 30:5, pages 890-903.
Crossref
Crossref
David Lessard, Kim Engler, Isabelle Toupin, Jean‐Pierre Routy & Bertrand Lebouché. (2018)
Evaluation of a project to engage patients in the development of a patient‐reported measure for
HIV
care (the I‐Score Study)
. Health Expectations 22:2, pages 209-225.
Crossref
Crossref
Mikkel Lindskov Sachs, Morten Colding-Jørgensen, Per Helboe, Sofia Kälvemark Sporrong, Sven Frøkjaer, Katarina Jelic & Susanne Kaae. (2019) Danish Physicians’ Views on the Appropriateness of the Involvement of Patients with Type 2 Diabetes in Regulatory Decision Making: A Qualitative Study. Pharmaceutical Medicine 33:2, pages 99-107.
Crossref
Crossref
Kathrine Hoffmann Pii, Lone Helle Schou, Karin Piil & Mary Jarden. (2019) Current trends in patient and public involvement in cancer research: A systematic review. Health Expectations 22:1, pages 3-20.
Crossref
Crossref
Jared James, Benjamin Lai & Terrence Witt. (2019) Patient Engagement Survey Regarding Future Double-Blinded, Randomized Controlled Trial of Tapering of Chronic Opioid Therapy. Journal of Primary Care & Community Health 10, pages 215013271989023.
Crossref
Crossref
Annie Janvier, Claude Julie Bourque, Sonia Dahan, Kate Robson & Keith James Barrington. (2019) Integrating Parents in Neonatal and Pediatric Research. Neonatology 115:4, pages 283-291.
Crossref
Crossref
James E. Andrews, J. David Johnson & Christina Eldredge. 2019. Clinical Research Informatics. Clinical Research Informatics
123
145
.
David J. Cote. 2019. Ethics of Innovation in Neurosurgery. Ethics of Innovation in Neurosurgery
93
103
.
Claire Kendall, Michael Fitzgerald, Rachel Seoyeon Kang, Sabrina T. Wong, Alan Katz, Martin Fortin, Emilie Dionne, Kerry Kuluski, Mary Ann O’Brien, Jenny Ploeg, Lois Crowe & Clare Liddy. (2018) “Still learning and evolving in our approaches”: patient and stakeholder engagement among Canadian community-based primary health care researchers. Research Involvement and Engagement 4:1.
Crossref
Crossref
Geneviève Rouleau, Jean-Christophe Bélisle-Pipon, Stanislav Birko, Philippe Karazivan, Nicolas Fernandez, Karine Bilodeau, Yi-Sheng Chao, Alexandra de Pokomandy, Véronique Foley, Bruno Gagnon, Samantha Gontijo Guerra, Cynthia Khanji, Catherine Lamoureux-Lamarche, Bertrand Lebouché, Carlotta Lunghi, Matthew Menear, Bruno D. Riverin & Claudie Rodrigue. (2018) Early career researchers’ perspectives and roles in patient-oriented research. Research Involvement and Engagement 4:1.
Crossref
Crossref
Eva Rames Nissen, Vibeke Bregnballe, Mimi Yung Mehlsen, Anne Kathrine Østerby Muldbjerg, Maja O’Connor & Kirsten Elisabeth Lomborg. (2018) Patient involvement in the development of a psychosocial cancer rehabilitation intervention: evaluation of a shared working group with patients and researchers. Research Involvement and Engagement 4:1.
Crossref
Crossref
Caroline Trillingsgaard Mejdahl, Liv Marit Valen Schougaard, Niels Henrik Hjollund, Erik Riiskjær & Kirsten Lomborg. (2018) Exploring organisational mechanisms in PRO-based follow-up in routine outpatient care - an interpretive description of the clinician perspective. BMC Health Services Research 18:1.
Crossref
Crossref
C.M.W. Gaasterland, M.C. Jansen-van der Weide, E. Vroom, K. Leeson-Beevers, M. Kaatee, R. Kaczmarek, B. Bartels, W.L. van der Pol, K.C.B. Roes & J.H. van der Lee. (2018) The POWER-tool: Recommendations for involving patient representatives in choosing relevant outcome measures during rare disease clinical trial design. Health Policy 122:12, pages 1287-1294.
Crossref
Crossref
Farah R. W. Kools, Sara Mirali, Stephanie Holst-Bernal, Sanne L. Nijhof, Giulio Cavalli & Michael A. Grandner. (2018) Publications Are Not the Finish Line: Focusing on Societal Rather Than Publication Impact. Frontiers in Medicine 5.
Crossref
Crossref
Patrick Cheong-Iao Pang, Shanton Chang, Karin Verspoor & Ornella Clavisi. (2018) The Use of Web-Based Technologies in Health Research Participation: Qualitative Study of Consumer and Researcher Experiences. Journal of Medical Internet Research 20:10, pages e12094.
Crossref
Crossref
Rosanne Janssens, Eline van Overbeeke, Lotte Verswijvel, Lissa Meeusen, Carolien Coenegrachts, Kim Pauwels, Marc Dooms, Hilde Stevens, Steven Simoens & Isabelle Huys. (2018) Patient Involvement in the Lifecycle of Medicines According to Belgian Stakeholders: The Gap Between Theory and Practice. Frontiers in Medicine 5.
Crossref
Crossref
Tim Clark, Richard H Wicentowski & Matthew R Sydes. (2018) Cross-sectional analysis of UK research studies in 2015: results from a scoping project with the UK Health Research Authority. BMJ Open 8:10, pages e022340.
Crossref
Crossref
Emmi Reijula, Arja Halkoaho, Anna-Maija Pietilä, Tuomas Selander, Kirsti Martikainen, Reetta Kälviäinen & Tapani Keränen. (2018) Comparable indicators of therapeutic misconception between epilepsy or Parkinson’s disease patients between those with clinical trial experience and trial non-participants. Seizure 60, pages 61-67.
Crossref
Crossref
Linda Aimée Hartford Kvæl, Jonas Debesay, Anne Langaas, Asta Bye & Astrid Bergland. (2018) A Concept Analysis of Patient Participation in Intermediate Care. Patient Education and Counseling 101:8, pages 1337-1350.
Crossref
Crossref
Pedro Inácio, João José Gomes, Marja Airaksinen & Afonso Cavaco. (2018) Exploring sociodemographic and economic factors that promote adverse drug reactions reporting by patients. Health Policy 122:3, pages 263-268.
Crossref
Crossref
P. Inácio, A. Cavaco, E. Allan & M. Airaksinen. (2018) Key pharmacovigilance stakeholders' experiences of direct patient reporting of adverse drug reactions and their prospects of future development in the European Union. Public Health 155, pages 119-128.
Crossref
Crossref
Charlotte Handberg, Kirsten Beedholm, Vibeke Bregnballe, Annette Nielsen Nellemann & Lene Seibaek. (2018) Reflections on patient involvement in research and clinical practice: A secondary analysis of women's perceptions and experiences of egg aspiration in fertility treatment. Nursing Inquiry 25:1, pages e12210.
Crossref
Crossref
Stephanie Howard Wilsher, Julii Brainard, Yoon Loke & Charlotte Salter. (2017) Patient and public involvement in health literacy interventions: a mapping review. Research Involvement and Engagement 3:1.
Crossref
Crossref
Anna Kearney, Paula Williamson, Bridget Young, Heather Bagley, Carrol Gamble, Simon Denegri, Delia Muir, Natalie A. Simon, Stephen Thomas, Jim T. Elliot, Helen Bulbeck, Joanna C. Crocker, Claire Planner, Claire Vale, Mike Clarke, Tim Sprosen & Kerry Woolfall. (2017) Priorities for methodological research on patient and public involvement in clinical trials: A modified Delphi process. Health Expectations 20:6, pages 1401-1410.
Crossref
Crossref
Amrutha Anand, Helen Jane Brandwood & Matt Jameson Evans. (2017) Improving Patient Involvement in the Drug Development Process: Case Study of Potential Applications from an Online Peer Support Network. Clinical Therapeutics 39:11, pages 2181-2188.
Crossref
Crossref
Hector Pardo-Hernandez & Pablo Alonso-Coello. (2017) Patient-important outcomes in decision-making: a point of no return. Journal of Clinical Epidemiology 88, pages 4-6.
Crossref
Crossref
Mikkel Lindskov Sachs, Sofia Kälvemark Sporrong, Morten Colding-Jørgensen, Sven Frokjaer, Per Helboe, Katarina Jelic & Susanne Kaae. (2017) Risk Perceptions in Diabetic Patients Who Have Experienced Adverse Events: Implications for Patient Involvement in Regulatory Decisions. Pharmaceutical Medicine 31:4, pages 245-255.
Crossref
Crossref
David J. CoteNaci BalakJannick BrennumDaniel T. HolsgroveNeil KitchenHerbert KolendaWouter A. MoojenKarl SchallerPierre A. RobeTiit Mathiesen & Marike L. Broekman. (2017) Ethical difficulties in the innovative surgical treatment of patients with recurrent glioblastoma multiforme. Journal of Neurosurgery 126:6, pages 2045-2050.
Crossref
Crossref
Lisa Duffett. (2017) Patient engagement: What partnering with patient in research is all about. Thrombosis Research 150, pages 113-120.
Crossref
Crossref