501
Views
6
CrossRef citations to date
0
Altmetric
Articles

Information giving and involvement in treatment decisions: Is more really better? Psychological effects and relation with adherence

, , &
Pages 954-971 | Received 05 Apr 2012, Accepted 14 Feb 2013, Published online: 28 Mar 2013

References

  • Anonymous . 1998 . Achieving long-term continuance of menopausal ERT/HRT: Consensus opinion of the North American Menopause Society . Menopause , 5 : 67 – 68 .
  • Armstrong , K. , Weber , B. , Ubel , P. A. , Peters , N. , Holmes , J. and Schwartz , J. S. 2005 . Individualized survival curives improve satisfaction with cancer risk mangement decisions in women with brca1/2 mutations . Journal of Clinical Oncology , 23 : 9319 – 9328 .
  • Barry , B. and Henderson , A. 1996 . Nature of decision maming in the terminally ill patient . Cancer Nursing , 19 : 384 – 391 .
  • Beaver , K. , Campbell , M. , Craven , O. , Jones , D. , Luker , K. A. and Susnerwala , S. S. 2009 . Colorectal cancer patients’ attitudes towards involvement in decision making . Health Expectations: An International Journal of Public Participation in Health Care & Health Policy , 12 : 27 – 37 .
  • Beisecker , A. E. and Beisecker , T. D. 1990 . Patients information-seeking behaviors when communications with doctors . Medical Care , 28 : 19 – 28 .
  • Bruera , E. , Willey , J. S. , Palmer , J. L. and Rosales , M. 2002 . Treatment decision for breast carcinoma: Patients preferences and physician perceptions . Cancer , 94 : 2076 – 2080 .
  • Butow , P. N. , Maclean , M. , Dunn , S. M. , Tattersall , M. H. N. and Boyer , M. J. 1997 . The dynamics of change: Cancer patients’ preference for information, involvement and support . Annals of Oncology , 8 : 857 – 863 .
  • Caldwell , L. M. 1991 . The influence of preference for information on preoperative stress and coping in surgical outpatients . Applied Nursing Research , 4 : 1 – 183 .
  • Chambers , C. V. , Markson , L. , Chambers , C. V. , Markson , L. , Diamond , J. J. , Lasch , L. and Berger , M. 1999 . Health beliefs and compliance with inhaled corticosteroids by asthmatic patients in primary care practices . Respiratory Medicine , 93 : 88 – 94 .
  • Degner , L. F. and Sloan , J. A. 1992 . Decision making during serious illness: What role do patients really want to play . Journal of Clinical Epidemiology , 45 : 941 – 950 .
  • Degner , L. F. , Sloan , J. A. and Venkatesh , P. 1997 . The control preferences scale . The Canadian Journal of Nursing Research , 29 : 21 – 43 .
  • Donovan , J. L. and Blake , D. R. 1992 . Patient non-compliance: Deviance or reasoned decision- making . Social Sciences and Medicine , 34 : 507 – 513 .
  • Edwards , A. and Elwyn , G. 2006 . Inside the black box of shared decision making: Distinguishing between the process of involvement and who makes the decision . Health Expectations: An International Journal of Public Participation in Health Care & Health Policy , 9 : 307 – 320 .
  • Entwistle , V. A. , Sowden , A. J. and Watt , I. S. 1998 . Evaluating Interventions to promote patients involvement in decision-making: By what criteria should effectiveness be judged? . Journal of Health Services Research Policy , 3 : 100 – 107 .
  • Evidence Based Medicine Working Group . 1992 . Evidence-based medicine: A new approach to teaching the practice of medicine . Journal of American Medical Association , 268 : 2420 – 2425 .
  • Fallowfield , L. J. , Hall , A. , Maguire , P. , Baum , M. and A’Hern , R. P. 1994 . Psychological effects of being offered choice of surgery for breast cancer . British Medical Journal , 309 : 448
  • Fallowfield , L. J. , Hall , A. , Maguire , P. and Baum , M. 1990 . Psychological outcomes of different treatment policies in women with early breast cancer outside a clinical trial . British Medical Journal , 301 : 575 – 580 .
  • Gibson , P. G. , Talbot , P. I. , Toneguzzi , R. C. and The Population Medicine Group 91C . 1995 . Self-management, autonomy, and quality of life in asthma . Chest , 107 : 1003 – 1008 .
  • Greenfield , S. S. , Kaplan , S. H. , Ware , J. E. , Yano , E. M. and Harrison , J. L. F. 1985 . Expanding patient involvement in care: Effects of patient outcomes . Annals of Internal Medicine , 102 : 520 – 528 .
  • Hinds , P. S. , Oakes , L. , Quargnenti , A. , Furman , W. , Bowman , L. , Gilger , E. , … and Drew , D. 2000 . An international feasibility study of parental decision making in paediatric oncology . Oncology Nursing Forum , 27 : 1233 – 1243 .
  • Hubbard , G. , Kidd , L. and Donaghy , E. 2008 . Preferences for involvement in treatment decision making of patients with cancer: A review of the literature . European Journal of Oncology Nursing , 12 : 299 – 318 .
  • Iredale , R. , Mundy , L. , Marsden , D. and Murray , A. 2011 . Patient involvement at the cancer genetics service for wales: Meeting the long-term information and support needs of people at risk of inherited cancer . Patient Education and Counseling , 84 : 280 – 281 .
  • Krones , T. , Keller , H. , Sönnichsen , A. , Sadowski , E. , Baum , E. , Wegscheider , K. , … and Banzboff , N. 2008 . Absolute cardiovascular disease risk and shared decision making in primary care: A randomized controlled trial . Annals of Family Medicine , 6 : 218 – 227 .
  • Lerman , C. E. , Brody , D. S. , Caputo , C. , Smith , D. G. and Lazaro , C. G. 1990 . Patients’ perceived involvement in care scale: Relationship to attitudes about illness and medical care . Journal of General Internal Medicine , 5 : 29 – 33 .
  • Ludman , E. , Katon , W. , Bush , T. , Rutter , C. , Lin , E. , Simon , G. , … and Walker , E. 2003 . Behavioural factors associated with symptom outcomes in a primary-care based depression prevention intervention trial . Psychological Medicine , 33 : 1060 – 1070 .
  • Martinez , L. S. , Schwartz , J. S. , Freres , D. , Fraze , T. and Hornik , R. C. 2009 . Patient-clinician information engagement increases treatment decision satisfaction among cancer patients through feeling of being informed . Patient Education and Counseling , 77 : 384 – 390 .
  • Mol , A. 2008 . The logic of care: Health and the problem of patient choice , London : Routledge .
  • Pilon , D. , Castilloux , A. M. and Lelorier , J. 2001 . Estrogen replacement therapy: Determinants of persistence with treatment . Obstetrics and Gynecology , 97 : 97 – 100 .
  • Robertson , M. J. , Moir , J. , Skelton , J. , Dowell , J. and Cowen , S. 2011 . When the business of sharing treatment decisions is not the same as shared decision making: A discourse analysis of decision sharing in general practice . Health , 15 : 78 – 95 .
  • Ryan , P. J. , Harrison , R. and Blake , G. M. 1992 . Compliance with hormone replacement therapy (HRT) after screening for post menopausal osteoporosis . British Journal of Obstetrics & Gynaecology , 99 : 325 – 3287 .
  • Sackett , D. L. , Rosenberg , W. M. C. , Gray , J. A. M. , Haynes , R. B. and Richardson , W. S. 1996 . Evidence based medicine: What it is and what it isn’t . British Medical Journal , 312 : 7023 – 7071 .
  • Singh , J. A. , Sloan , J. A. , Atherton , P. J. , Smith , T. , Hack , T. F. , Huschka , M. M. , … and Degner , L. F. 2010 . Preferred roles in treatment decision making among patients with cancer: A pooled analysis of studies using the control preferences scale . American Journal of Managed Care , 16 : 688 – 696 .
  • Sloan , J. A. , Doig , W. and Yeung , A. 1994 . A manual to carry out thurstone scaling and related analytic procedures , Manitoba : University of Manitoba .
  • Stiggelbout , A. M. and Kiebert , G .M. 1997 . A role for the sick role: Patient preferences regarding information and participation in clinical decisio-making . Canadian Medical Association Journal , 157 : 383 – 394 .
  • Sutherland , H. J. , Llewellyn-Thomas , H. A. , Lockwood , G. A. , Tritchler , D. L. and Till , J. E. 1989 . Cancer patients: Their desire for information and participation in treatment decisions . Journal of the Royal Society of Medicine , 82 : 260 – 263 .
  • von Korff , M. , Katon , W. , Rutter , C. , Ludman , E. , Simon , G. , Lin , E. and Bush , T. 2003 . Effect on disability outcomes of a depression relapse prevention program . Psychosomaticl Medicine , 65 : 938 – 943 .
  • Wilson , S. R. , Strub , P. , Buist , A. S. , Knowles , S. B. , Lavori , P. W. , Lapidus , J , … and The Better Outcomes of Asthma Treatment (BOAT) Study Group . 2010 . Shared treatment decision making improves adherence and outcomes in poorly controlled asthma . American Journal of Respiratory Critical Care Medicine , 181 : 566 – 577 .
  • Wroe , A. L. 2002 . Intentional and unintentional nonadherence: A study of decision making . Journal of Behavioral Medicine , 25 : 355 – 372 .
  • Wroe , A. L. and Thomas , M. G. 2003 . Intentional and unintentional nonadherence in patients prescribed HAART treatment regimens . Psychology, Health and Medicine , 8 : 455 – 465 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.