The impact of motherhood on perceived stress, illness intrusiveness and fear of cancer recurrence in young breast cancer survivors over time

References

• Abidin, R. R. (1995). Parenting stress index: Professional manual (3rd ed.). New York, NY: Psychological Assessment Resources.
   Google Scholar
• Adams, E., McCann, L., Armes, J., Richardson, A., Stark, D., Watson, E., & Hubbard, G. (2011). The experiences, needs and concerns of younger women with breast cancer: A meta-ethnography. Psycho-Oncology, 20, 851–861. doi:10.1002/pon.1792
   PubMed Web of Science ®Google Scholar
• Alfano, C. M., & Rowland, J. H. (2006). Recovery issues in cancer survivorship: A new challenge for supportive care. The Cancer Journal, 12, 432–443. doi:10.1200/JCO.2006.09.2700
   PubMed Web of Science ®Google Scholar
• Ares, I., Collins, K. A., Lebel, S., & Bielajew, C. (in press). Motherhood and well-being in young breast cancer survivors.
   Google Scholar
• Avis, N. E., Crawford, S., & Manuel, J. (2004). Psychosocial problems among younger women with breast cancer. Psycho-Oncology, 13, 295–308. doi:10.1002/pon.744
   PubMed Web of Science ®Google Scholar
• Baker, F., Denniston, M., Smith, T., & West, M. M. (2005). Adult cancer survivors: How are they faring? Cancer, 104, 2565–2576. doi:10.1002/cncr.21488
   PubMed Web of Science ®Google Scholar
• Baucom, D. H., Porter, L. S., Kirby, J. S., Gremore, T. M., & Keefe, F. J. (2005). Psychosocial issues confronting young women with breast cancer. Breast Disease, 23, 103–113.
   PubMedGoogle Scholar
• Beatty, L., Lee, C., & Wade, T. D. (2009). A prospective examination of perceived stress as a mediator of the relationship between life-events and QOL following breast cancer. British Journal of Health Psychology, 14, 789–804. doi:10.1348/135910709x412459
   PubMed Web of Science ®Google Scholar
• Berry, J. O., & Jones, W. H. (1995). The parental stress scale: Initial psychometric evidence. Journal of Social and Personal Relationships, 12, 463–472. doi:10.1177/0265407595123009
   Web of Science ®Google Scholar
• Billhult, A., & Segesten, K. (2003). Strength of motherhood: Nonrecurrent breast cancer as experienced by mothers with dependent children. Scandinavian Journal of Caring Sciences, 17, 122–128. doi:10.1046/j.1471-6712.2003.00219.x
   PubMed Web of Science ®Google Scholar
• Birnbaum, M. H. (2004). Human research and data collection via the internet. Annual Review of Psychology, 55, 803–832. doi:10.1146/annurev.psych.55.090902.141601
   PubMed Web of Science ®Google Scholar
• Bloom, J. R., Stewart, S. L., Chang, S., & Banks, P. J. (2004). Then and now: Quality of life of young breast cancer survivors. Psycho-Oncology, 13, 147–160. doi:10.1002/pon.794
   PubMed Web of Science ®Google Scholar
• Bloom, J. R., Stewart, S. L., Oakley-Girvan, I., Banks, P. J., & Shema, S. (2012). Quality of life of younger breast cancer survivors: Persistence of problems and sense of well-being. Psycho-Oncology, 21, 655–665. doi:10.1002/pon.1965
   PubMed Web of Science ®Google Scholar
• Bowman, K. F., Deimling, G. T., Smerglia, V., Sage, P., & Kahana, B. (2003). Appraisal of the cancer experience by older long-term survivors. Psycho-Oncology, 12, 226–238. doi:10.1002/pon.630
   PubMed Web of Science ®Google Scholar
• Cimprich, B., Ronis, D. L., & Martinez-Ramos, G. (2002). Age at diagnosis and quality of life in breast cancer survivors. Cancer Practice, 10, 85–93. doi:10.1046/j.1523-5394.2002.102006.x
   PubMedGoogle Scholar
• Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24, 385–396. doi:10.2307/2136404
   PubMed Web of Science ®Google Scholar
• Cohen, M., & Pollack, S. (2005). Mothers with breast cancer and their adult daughters: The relationship between mothers’ reaction to breast cancer and their daughters’ emotional and neuroimmune status. Psychosomatic Medicine, 67, 64–71. doi:10.1097/01.psy.0000151746.36540.6e
   PubMed Web of Science ®Google Scholar
• Connell, S., Patterson, C., & Newman, B. (2006). Issues and concerns of young Australian women with breast cancer. Supportive Care in Cancer, 14, 419–426. doi:10.1007/s00520-005-0003-8
   PubMed Web of Science ®Google Scholar
• Devins, G. M., Bezjak, A., Mah, K., Loblaw, D. A., & Gotowiec, A. P. (2006). Context moderates illness-induced lifestyle disruptions across life domains: A test of the illness intrusiveness theoretical framework in six common cancers. Psycho-Oncology, 15, 221–233. doi:10.1002/pon.940
   PubMed Web of Science ®Google Scholar
• Devins, G. M., Binik, Y. M., Hutchinson, T. A., Hollomby, D. J., Barré, P. E., & Guttmann, R. D. (1983). The emotional impact of end-stage renal disease: Importance of patients’ perceptions of intrusiveness and control. The International Journal of Psychiatry in Medicine, 13, 327–343. doi:10.2190/5DCP-25BV-U1G9-9G7C
   PubMed Web of Science ®Google Scholar
• Devins, G. M., Dion, R., Pelletier, L. G., Shapiro, C. M., Abbey, S., Raiz, L. R., … Edworthy, S. M. (2001). Structure of lifestyle disruptions in chronic disease: A confirmatory factor analysis of the Illness Intrusiveness Ratings Scale. Medical Care, 39, 1097–1104.
   PubMed Web of Science ®Google Scholar
• Devins, G. M., Edworthy, S. M., Guthrie, N. G., & Martin, L. (1992). Illness intrusiveness in rheumatoid arthritis: Differential impact on depressive symptoms over the adult lifespan. The Journal of Rheumatology, 19, 709–715.
   PubMed Web of Science ®Google Scholar
• Edwards, B., & Clarke, V. (2004). The psychological impact of a cancer diagnosis on families: The influence of family functioning and patients’ illness characteristics on depression and anxiety. Psycho-Oncology, 13, 562–576. doi:10.1002/pon.773
   PubMed Web of Science ®Google Scholar
• Elmberger, E., Bolund, C., Magnusson, A., Lützén, K., & Andershed, B. (2008). Being a mother with cancer: Achieving a sense of balance in the transition process. Cancer Nursing, 31, 58–66. doi:10.1097/01.ncc.0000305677.90963.67
   PubMed Web of Science ®Google Scholar
• Fisher, C., & O’Connor, M. (2012). “Motherhood” in the context of living with breast cancer. Cancer Nursing, 35, 157–163. doi:10.1097/NCC.0b013e31821cadde
   PubMed Web of Science ®Google Scholar
• Fogel, J., Albert, S. M., Schnabel, F., Ditkoff, B. A., & Neugut, A. I. (2002a). Use of the internet by women with breast cancer. Journal of Medical Internet Research, 4, e9. doi:10.2196/jmir.4.2.e9
   PubMed Web of Science ®Google Scholar
• Fogel, J., Albert, S. M., Schnabel, F., Ditkoff, B. A., & Neugut, A. I. (2002b). Internet use and social support in women with breast cancer. Health Psychology, 21, 398–404. doi:10.1037//0278-6133.21.4.398
   PubMed Web of Science ®Google Scholar
• Gazendam-Donofrio, S. M., Hoekstra, H. J., van der Graaf, W. T., Pras, E., Visser, A., Huizinga, G. A., & Hoekstra-Weebers, J. E. (2008). Quality of life of parents with children living at home: When one parent has cancer. Supportive Care in Cancer, 16, 133–141. doi:10.1007/s00520-007-0299-7
   PubMed Web of Science ®Google Scholar
• Golden-Kreutz, D. M., Thornton, L. M., Wells-Di Gregorio, S., Frierson, G. M., Jim, H. S., Carpenter, K. M., … Andersen, B. L. (2005). Traumatic stress, perceived global stress, and life events: Prospectively predicting quality of life in breast cancer patients. Health Psychology, 24, 288–296. doi:10.1037/0278-6133.24.3.288
   PubMed Web of Science ®Google Scholar
• Gosling, S. D., Vazire, S., Srivastava, S., & John, O. P. (2004). Should we trust web-based studies? A comparative analysis of six preconceptions about internet questionnaires. American Psychologist, 59, 93–104. doi:10.1037/0003-066x.59.2.93
   PubMed Web of Science ®Google Scholar
• Grabiak, B. R., Bender, C. M., & Puskar, K. R. (2007). The impact of parental cancer on the adolescent: An analysis of the literature. Psycho-Oncology, 16, 127–137. doi:10.1002/pon.1083
   PubMed Web of Science ®Google Scholar
• Janz, N. K., Mujahid, M., Chung, L. K., Lantz, P. M., Hawley, S. T., Morrow, M., … Katz, S. J. (2007). Symptom experience and quality of life of women following breast cancer treatment. Journal of Women’s Health, 16, 1348–1361. doi:10.1089/jwh.2006.0255.
   PubMed Web of Science ®Google Scholar
• Knobf, M. T. (2011). Clinical update: Psychosocial responses in breast cancer survivors. Seminars in Oncology Nursing, 27, e1–e14. doi:10.1016/j.soncn.2011.05.001
   PubMedGoogle Scholar
• Koch, L., Jansen, L., Brenner, H., & Arndt, V. (2013). Fear of recurrence and disease progression in long-term (≥5 years) cancer survivors – A systematic review of quantitative studies. Psycho-Oncology, 22(1), 1–11. doi:10.1002/pon.3022
   PubMed Web of Science ®Google Scholar
• Krantz, J. H., & Dalal, R. (2000). Validity of web-based psychological research. In M. H. Birnbaum (Ed.), Psychological experiments on the internet (pp. 35–60). New York, NY: Academic Press.
   Google Scholar
• Kroenke, C. H., Rosner, B., Chen, W. Y., Kawachi, I., Colditz, G. A., & Holmes, M. D. (2004). Functional impact of breast cancer by age at diagnosis. Journal of Clinical Oncology, 22, 1849–1856. doi:10.1200/jco.2004.04.173
   PubMed Web of Science ®Google Scholar
• Lazarus, R. S., & Folkman, S. (1987). Transactional theory and research on emotions and coping. European Journal of Personality, 1, 141–169. doi:10.1002/per.2410010304
   Google Scholar
• Lewis, F. M. (2011). Therapy for parental cancer and dependent children. In M. Watson & D. W. Kissane (Eds.), Handbook of psychotherapy in cancer care (pp. 225–234). Chichester, WS: Wiley.
   Google Scholar
• Liu, Y., Pérez, M., Schootman, M., Aft, R. L., Gillanders, W. E., & Jeffe, D. B. (2011). Correlates of fear of cancer recurrence in women with ductal carcinoma in situ and early invasive breast cancer. Breast Cancer Research and Treatment, 130, 165–173. doi:10.1007/s10549-011-1551-x
   PubMed Web of Science ®Google Scholar
• Mah, K., Bezjak, A., Loblaw, D. A., Gotowiec, A., & Devins, G. M. (in press). Gender moderates the psychosocial impact of illness intrusiveness in cancer.
   Google Scholar
• Manne, S. L., Ostroff, J. S., Norton, T. R., Fox, K., Goldstein, L., & Grana, G. (2006). Cancer-related relationship communication in couples coping with early stage breast cancer. Psycho-Oncology, 15, 234–247. doi:10.1002/pon.941
   PubMed Web of Science ®Google Scholar
• Mehnert, A., Berg, P., Henrich, G., & Herschbach, P. (2009). Fear of cancer progression and cancer-related intrusive cognitions in breast cancer survivors. Psycho-Oncology, 18, 1273–1280. doi:10.1002/pon.1481
   PubMed Web of Science ®Google Scholar
• Melchior, H., Büscher, C., Thorenz, A., Grochocka, A., Koch, U., & Watzke, B. (2013). Self-efficacy and fear of cancer progression during the year following diagnosis of breast cancer. Psycho-Oncology, 22, 39–45. doi:10.1002/pon.2054
   PubMed Web of Science ®Google Scholar
• Mosher, C. E., & Danoff-Burg, S. (2005). A review of age differences in psychological adjustment to breast cancer. Journal of Psychosocial Oncology, 23, 101–114. doi:10.1300/J077v23n02_07
   PubMed Web of Science ®Google Scholar
• Northouse, L. L. (1994). Breast cancer in younger women: Effects on interpersonal and family relations. Journal of the National Cancer Institute Monograph, 16, 183–190.
   PubMedGoogle Scholar
• Northouse, L. L., Mellon, S., Harden, J., & Schafenacker, A. (2009). Long-term effects of cancer on the family. In S. Miller, D. J. Bowen, R. T. Croyle, & J. H. Rowland (Eds.), Handbook of cancer control and behavioral science (pp. 467–485). Washington, DC: American Psychological Association.
   Google Scholar
• Osborn, T. (2007). The psychosocial impact of parental cancer on children and adolescents: A systematic review. Psycho-Oncology, 16, 101–126. doi:10.1002/pon.1113
   PubMed Web of Science ®Google Scholar
• Pereira, J. L., Koski, S., Hanson, J., Bruera, E. D., & Mackey, J. R. (2000). Internet usage among women with breast cancer: An exploratory study. Clinical Breast Cancer, 1, 148–153. doi:10.3816/CBC.2000.n.013
   PubMedGoogle Scholar
• Pretzer, J. L., Beck, A. T., & Newman, C. E. (2002). Stress and stress management: A cognitive view. In R. L. Leahy & E. T. Dowd (Eds.), Clinical advances in cognitive psychotherapy: Theory and application (pp. 345–360). New York, NY: Springer.
   Google Scholar
• Rauch, P. K., & Muriel, A. C. (2004). The importance of parenting concerns among patients with cancer. Critical Reviews in Oncology/Hematology, 49, 37–42. doi:10.1016/S1040-8428(03)00095-7
   PubMed Web of Science ®Google Scholar
• Rauch, P. K., Muriel, A. C., & Cassem, N. H. (2002). Parents with cancer: Who’s looking after the children? Journal of Clinical Oncology, 20, 4399–4402.
   PubMed Web of Science ®Google Scholar
• Reips, U. D. (2002). Standards for internet-based experimenting. Experimental Psychology, 49, 243–256. doi:10.1026//1618-3169.49.4.243
   PubMed Web of Science ®Google Scholar
• Russell, K. S., & Rauch, P. K. (2012). Parenting with cancer I: Developmental perspective, communication, and coping. In G. P. Quinn & S. T. Vadaparampil (Eds.), Reproductive health and cancer in adolescents and young adults: Advances in experimental medicine and biology (pp. 131–140). New York, NY: Springer Science+Business Media.
   Google Scholar
• Satterlund, M. J., McCaul, K. D., & Sandgren, A. K. (2003). Information gathering over time by breast cancer patients. Journal of Medical Internet Research, 5, e15. doi:10.2196/jmir.5.3.e15
   PubMed Web of Science ®Google Scholar
• Schlegel, R. J., Manning, M. A., Molix, L. A., Talley, A. E., & Bettencourt, B. A. (2012). Predictors of depressive symptoms among breast cancer patients during the first year post diagnosis. Psychology & Health, 27, 277–293. doi:10.1080/08870446.2011.559232
   PubMed Web of Science ®Google Scholar
• Schmitt, F., Piha, J., Helenius, H., Baldus, C., Kienbacher, C., Steck, B., … Romer, G. (2008). Multinational study of cancer patients and their children: Factors associated with family functioning. Journal of Clinical Oncology, 26, 5877–5883. doi:10.1200/jco.2007.12.8132
   PubMed Web of Science ®Google Scholar
• Semple, C. J., & McCance, T. (2010). Parents’ experience of cancer who have young children: A literature review. Cancer Nursing, 33, 110–118. doi:10.1097/NCC.0b013e3181c024bb
   PubMed Web of Science ®Google Scholar
• Twenge, J. M. (2003). Parenthood and marital satisfaction: A meta-analytic review. Journal of Marriage and Family, 65, 574–583. doi:10.1111/j.1741-3737.2003.00574.x
   Web of Science ®Google Scholar
• Vickberg, S. M. (2003). The concerns about recurrence scale (CARS): A systematic measure of women’s fears about the possibility of breast cancer recurrence. Annals of Behavioral Medicine, 25, 16–24. doi:10.1207/S15324796ABM2501_03
   PubMed Web of Science ®Google Scholar
• Visser, A., Huizinga, G. A., van der Graaf, W. T., Hoekstra, H. J., & Hoekstra-Weebers, J. E. (2004). The impact of parental cancer on children and the family: A review of the literature. Cancer Treatment Reviews, 30, 683–694. doi:10.1016/j.ctrv.2004.06.001
   PubMed Web of Science ®Google Scholar
• Von Ah, D., & Kang, D. H. (2008). Correlates of mood disturbance in women with breast cancer: Patterns over time. Journal of Advanced Nursing, 61, 676–689. doi:10.1111/j.1365-2648.2007.04563.x
   PubMed Web of Science ®Google Scholar
• Walsh, S. R., Manuel, J. C., & Avis, N. E. (2005). The impact of breast cancer on younger women’s relationships with their partner and children. Families, Systems, & Health, 23, 80–93. doi:10.1037/1091-7527.23.1.80
   Google Scholar
• Weaver, K. E., Rowland, J. H., Alfano, C. M., & McNeel, T. S. (2010). Parental cancer and the family: A population-based estimate of the number of US cancer survivors residing with their minor children. Cancer, 116, 4395–4401. doi:10.1002/cncr.25368
   PubMed Web of Science ®Google Scholar