‘Not that I want to be thought of as a hero’: Narrative analysis of performative masculinities and the experience of informal cancer caring

References

• Aczel, R. (1998). Hearing voices in narrative texts. New Literary History, 29, 467–500.10.1353/nlh.1998.0023
   Google Scholar
• Allen, S. M. (1994). Gender differences in spousal caregiving and unmet need for care. Journal of Gerontology, 49, s187–s195.10.1093/geronj/49.4.S187
   PubMedGoogle Scholar
• Allen, S. M., Goldscheider, F., & Ciambrone, D. A. (1999). Gender roles, marital intimacy, and nomination of spouse as primary caregiver. The Gerontologist, 39, 150–158.10.1093/geront/39.2.150
   PubMed Web of Science ®Google Scholar
• Andersson, K. (2008). Constructing young masculinity: A case study of heroic discourse on violence. Discourse & Society, 19, 139–162.
   Web of Science ®Google Scholar
• Badr, H., Taylor, C., & Carmack, L. (2006). Social constraints and spousal communication in lung cancer. Psycho-Oncology, 15, 673–683.10.1002/(ISSN)1099-1611
   PubMed Web of Science ®Google Scholar
• Badr, H., & Taylor, C. L. (2006). Social constraints and spousal communication in lung cancer. Psycho-Oncology, 15, 673–683.10.1002/(ISSN)1099-1611
   PubMed Web of Science ®Google Scholar
• Bakhtin, M. M. (1981). The dialogic imagination: Four essays. (C. Emerson & M. Holquist, Trans.). Austin: University of Texas Press.
   Google Scholar
• Bryman, A. (1988). Quantity and quality in social research. London: Unwin Hyman.10.4324/9780203410028
   Google Scholar
• Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4, 167–182.
   PubMedGoogle Scholar
• Butler, J. (1993). Bodies that matter: On the discursive limits of sex. New York, NY: Routledge.
   Google Scholar
• Calasanti, T., & King, N. (2007). Taking ‘women’s work’ ‘like a man’: Husband’s experiences of care work. The Gerontologist, 47, 516–527.10.1093/geront/47.4.516
   PubMed Web of Science ®Google Scholar
• Carr, J. G., Gilroy, F. D., & Sherman, M. F. (1996). Silencing the self and depression among women. Psychology of Women Quarterly, 20, 375–392.10.1111/pwqu.1996.20.issue-3
   Web of Science ®Google Scholar
• Coffey, A., & Atkinson, P. (1996). Meanings and metaphors. In A. Coffey & P. Atkinson (Eds.), Making sense of qualitative data: Complementary research strategies (pp. 83–107). London: Sage.
   Google Scholar
• Connell, R. W. (1987). Gender and power: Society, the person, and sexual politics. Stanford, CA: Stanford University Press.
   Google Scholar
• Crossley, M. L. (2007). Childbirth, complications and the illusion of ‘choice’: A case study. Feminism & Psychology, 17, 543–563.
   Web of Science ®Google Scholar
• Cross, S., & Bagilhole, B. (2002). Girls’ jobs for the boys? Men, masculinity and non-traditional occupations. Gender, Work & Organization, 9, 204–226.
   Google Scholar
• Demetriou, D. Z. (2001). Connell’s concept of hegemonic masculinity: A critique. Theory and Society, 30, 337–361.10.1023/A:1017596718715
   Web of Science ®Google Scholar
• Doucet, A. (2004). “It’s almost like I have a job, but I don’t get paid”: Fathers at home reconfiguring work, care, and masculinity. Fathering: A Journal of Theory, Research, and Practice about Men as Fathers, 2, 277–303.10.3149/fth.0203.277
   Google Scholar
• Filiault, S. M., Drummond, M. J. N., & Smith, J. A. (2008). Gay men and prostate cancer: Voicing the concerns of a hidden population. Journal of Men’s Health, 5, 327–332.10.1016/j.jomh.2008.08.005
   Web of Science ®Google Scholar
• Frank, A. (1995). The wounded storyteller: Body, illness and ethics. Chicago, IL: University of Chicago Press.10.7208/chicago/9780226260037.001.0001
   Google Scholar
• Germino, B. B., Fife, B. L., & Funk, S. G. (1995). Cancer and the partner relationship: What is its meaning? Seminars in Oncology Nursing, 11, 43–50.10.1016/S0749-2081(95)80042-5
   PubMedGoogle Scholar
• Gilbert, E., Ussher, J. M., & Perz, J. (2010). Re-negotiating sexuality and intimacy post-cancer: The experiences of carers in a couple relationship with a person with cancer. Archives of Sexual Behavior, 39, 998–1009.10.1007/s10508-008-9416-z
   PubMed Web of Science ®Google Scholar
• Gray, R. E., Fergus, K. D., & Fitch, M. I. (2005). Two black men with prostate cancer: A narrative approach. British Journal of Health Psychology, 10, 71–84.10.1348/135910704X14429
   PubMed Web of Science ®Google Scholar
• Hagedoorn, M., Sanderman, R., Bolks, H. N., & Tuinstra, J., & Coyne, J. C. (2008). Distress in couples coping with cancer: A meta-analysis and critical review of role and gender effects. Psychological Bulletin, 134(1), 1–30.10.1037/0033-2909.134.1.1
   PubMed Web of Science ®Google Scholar
• Hodges, L. J., Humphris, G. M., & Macfarlane, G. (2005). A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. Social Science and Medicine, 60(1), 1–12.10.1016/j.socscimed.2004.04.018
   PubMed Web of Science ®Google Scholar
• Hughes, M. K. (2000). Sexuality and the cancer survivor: A silent coexistence. Cancer Nursing, 23, 477–482.10.1097/00002820-200012000-00011
   PubMed Web of Science ®Google Scholar
• Hyden, L. C. (1997). Illness and narrative. Sociology of Health & Illness, 19, 48–69.
   Web of Science ®Google Scholar
• Kayser, K., Watson, L. E., & Andrade, J. T. (2007). Cancer as a “we disease”: Examining the process of coping from a relational perspective. Families, Systems and Health, 25, 404–418.10.1037/1091-7527.25.4.404
   Google Scholar
• Kimmel, M. S., Hearn, J., & Connell, R. W. (2005). Introduction. In R. W. Connell, J. Hearn, & M. S. Kimmel (Eds.), Handbook of studies on men and masculinities (pp. 1–12). Thousand Oaks, CA: Sage.
   Google Scholar
• Langellier, K. M. (2001). ‘You’re marked’. Breast cancer, tattoo, and the narrative performace of identity. In J. Brockmeier & D. Carbaugh (Eds.), Narrative and identity. Studies in autobiography, self and culture (pp. 145–184). Amsterdam: John Benjamins Publishing Company.
   Google Scholar
• Lethborg, C. E., Kissane, D., & Burns, W. I. (2003). ‘It’s not the easy part’: The experience of significant others of women with early stage breast cancer, at treatment completion. Social Work in Health Care, 37, 63–85.10.1300/J010v37n01_04
   PubMed Web of Science ®Google Scholar
• Lincoln, Y., & Guba, E. (1985). Naturalistic inquiry. Thousand Oaks, CA: Sage.
   Google Scholar
• Manne, S. L., & Ostroff, J., Rini, C., Fox, K., Goldstein, L., & Grana, G. (2004). The interpersonal process model of intimacy: The role of self-disclosure, partner disclosure, and partner responsiveness in interactions between breast cancer patients and their partners. Journal of Family Psychology, 18, 589–599.10.1037/0893-3200.18.4.589
   PubMed Web of Science ®Google Scholar
• Manne, S. L., & Ostroff, J., Winkel, G., Grana, G., & Fox, K. (2005). Partner unsupportive responses, avoidant coping, and distress among women with early stage breast cancer: Patient and partner perspectives. Health Psychology, 24, 635–641.10.1037/0278-6133.24.6.635
   PubMed Web of Science ®Google Scholar
• Maughan, K., Heyman, B., & Matthews, M. (2002). In the shadow of risk. How men cope with a partner’s gynaecological cancer. International Journal of Cancer Studies, 39, 27–34.
   Web of Science ®Google Scholar
• McGarry, J., & Arthur, A. (2001). Informal caring in late life: A qualitative study of the experiences of older carers. Journal of Advanced Nursing, 33, 182–189.10.1046/j.1365-2648.2001.01651.x
   PubMed Web of Science ®Google Scholar
• Migliaccio, T. A. (2002). Abused husbands: A narrative analysis. Journal of Family Issues, 23, 26–52.10.1177/0192513X02023001002
   Web of Science ®Google Scholar
• Milne, A., & Hatzidimitriadou, E. (2003). “Isn’t he wonderful?” Exploring the contribution and conceptualization of older husbands as carers. Ageing International, 28, 389–407.10.1007/s12126-003-1011-y
   Google Scholar
• Mishler, E. G. (1986). Research interviewing: Context and narrative. Cambridge, MA: Harvard University Press.
   Google Scholar
• Murray, M. (1999). The storied nature of health and illness. In M. Murray & K. Chamberlain (Eds.), Qualitative health psychology: Theories and methods (pp. 47–63). London: Sage.
   Google Scholar
• Navaie-Waliser, M., Spriggs, A., & Feldman, P. (2002). Informal cargivining: Differential experiences by gender. Medical Care, 40, 1249–1259.10.1097/00005650-200212000-00012
   PubMed Web of Science ®Google Scholar
• Persson, E., Severinsson, E., & Hellstrom, A. L. (1998). Spouses’ perceptions of and reactions to living with a partner who has undergone surgery for rectal cancer resulting in a stoma. Cancer Nursing, 27, 85–90.
   Web of Science ®Google Scholar
• Perz, J., Ussher, J. M., Butow, P., & Wain, G. (2011). Gender differences in cancer carer psychological distress: An analysis of moderators and mediators. European Journal of Cancer Care, 20, 610–619.10.1111/ecc.2011.20.issue-5
   PubMed Web of Science ®Google Scholar
• Radley, A., & Chamberlain, K. (2001). Health psychology and the study of the case: From method to analytic concern. Social Science and Medicine, 53, 321–332.10.1016/S0277-9536(00)00320-8
   PubMed Web of Science ®Google Scholar
• Radley, A., & Chamberlain, K. (2012). The study of the case: Conceptualising case study research. Journal of Community & Applied Social Psychology, 22, 390–399.
   Web of Science ®Google Scholar
• Ribeiro, O., & Paul, C. (2008). Older male carers and the positive aspects of care. Ageing & Society, 28, 165–183.
   Web of Science ®Google Scholar
• Riceour, P. (1991). Narrative identity. Philosophy Today, 35, 73–81.
   Web of Science ®Google Scholar
• Riessman, C. K. (1990). Strategic uses of narrative in the presentation of self and illness: A research note. Social Science and Medicine, 30, 1195–1200.10.1016/0277-9536(90)90259-U
   PubMed Web of Science ®Google Scholar
• Riessman, C. K. (2002). Doing justice: Positioning the interpreter in narrative work. In W. Patterson (Ed.), Strategic narrative. New perspectives on the power of personal and cultural stories (pp. 195–216). Lanham, MD: Lexington Books.
   Google Scholar
• Riessman, C. K. (2003). Performing identities in illness narrative: Masculinity and multiple sclerosis. Qualitative Research, 3, 5–33.10.1177/1468794103003001766
   Google Scholar
• Riessman, C. K. (2008). Narrative methods for the human sciences. Los Angeles, CA: Sage.
   Google Scholar
• Rubin, H. J. (2005). Qualitative interviewing: The art of hearing data. Thousand Oaks, CA: Sage.
   Google Scholar
• Russell, R. (2001). In sickness and in health: A qualitative study of eldery men who care for wives with dementia. Journal of Aging Studies, 15, 351–367.10.1016/S0890-4065(01)00028-7
   Web of Science ®Google Scholar
• Segal, L. (1993). Changing men: Masculinities in context. Theory and Society, 22, 625–641.10.1007/BF00993539
   Web of Science ®Google Scholar
• Segal, L. (1999). Why Feminism? Cambridge: Polity Press.
   Google Scholar
• Seymour-Smith, S., & Wetherell, M. (2006). ‘What he hasn’t told you…’: Investigating the micro-politics of gendered support in heterosexual couples’ co-constructed accounts of illness. Feminism & Psychology, 16, 105–127.
   Web of Science ®Google Scholar
• Silverman, D. (1993). Interpreting qualitative data: Methods for analysing talk, text and interaction. London: Sage.
   Google Scholar
• Thomas, C., Morris, S. M., & Harman, J. C. (2002). Companions through cancer: The care given by informal carers in cancer contexts. Social Science and Medicine, 54, 529–544.10.1016/S0277-9536(01)00048-X
   PubMed Web of Science ®Google Scholar
• Ussher, J. M., & Perz, J. (2010). Gender differences in self-silencing and psychological distress in informal cancer carers. Psychology of Women Quarterly, 34, 228–242.10.1111/(ISSN)1471-6402
   Web of Science ®Google Scholar
• Ussher, J. M., Perz, J., & May, E. (2014). Pathology or source of power? The construction and experience of premenstrual syndrome within two contrasting cases. Feminism & Psychology. Published on-line ahead of print. doi:10.1177/0959353514539650
   Web of Science ®Google Scholar
• Ussher, J. M., & Sandoval, M. (2008). Gender differences in the construction and experience of cancer care: The consequences of the gendered positioning of carers. Psychology & Health, 23, 945–963.
   PubMed Web of Science ®Google Scholar
• Ussher, J. M., Sandoval, M., Perz, J., Wong, W. K. T., & Butow, P. (2013). The gendered construction and experience of difficulties and rewards in cancer care. Qualitative Health Research, 23, 900–915.10.1177/1049732313484197
   PubMed Web of Science ®Google Scholar
• Ussher, J. M., Wong, W. K., & Perz, J. (2011). A qualitative analysis of changes in relationship dynamics and roles between people with cancer and their primary informal carer. Health: An Interdisciplinary Journal, 15, 650–667.
   Google Scholar
• Watts, S., O’Hara, L., & Trigg, R. (2009). Living with type 1 diabetes: A by-person qualitative exploration. Psychology & Health, 25, 491–506.
   Web of Science ®Google Scholar
• Wetherell, M., & Edley, N. (1999). Negotiating hegemonic masculinity: Imaginary positions and pscyho-discursive practices. Feminism & Psychology, 9, 335–356.
   Web of Science ®Google Scholar
• Williams, G. H. (1984). The genesis of chronic illness: Narrative reconstruction. Sociology of Health & Illness, 6, 175–200.
   PubMed Web of Science ®Google Scholar
• Yin, R. K. (1999). Enhacing the qulity of case studies in health services research. Health Services Research, 34, 1209–1224.
   PubMed Web of Science ®Google Scholar
• Yin, R. K. (2003). Case study research: Design and methods (3rd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Zahlis, E. H., & Shands, M. E. (1993). The impact of breast cancer on the partner 18 months after diagnosis. Seminars in Oncology Nursing, 9, 83–87.10.1016/S0749-2081(05)80103-2
   PubMedGoogle Scholar
• Zunkel, G. (2002). Relational coping processes: Couples’ response to a diagnosis of early stage breast cancer. Journal of Psychosocial Oncology, 20, 39–55.
   PubMed Web of Science ®Google Scholar