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Articles

Psychological support needs of patients with head and neck cancer and their caregivers: A qualitative study

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Pages 1288-1305 | Received 19 Dec 2014, Accepted 22 Apr 2015, Published online: 26 May 2015

References

  • Allison, P. J., Muller, K., Edgar, L., Nicolas, J. S., Feine, J. S., & Franco, E. L. (2012). Randomized controlled trial of the effectiveness of a coping strategies intervention for people with head and neck cancer. Unpublished Report for the Canadian Institutes of Health Research Award, MCT-75475, 1–18.
  • Bai, S., Ma, C., Liu, Y., Xue, W., Luo, M., & Ou, Z. (2004). Effects of cognitive behavior intervention and cinesiateics on the quality of life of patients with nasopharnygeal carcinoma after radiotherapy. Chinese Journal of Clinical Rehabilitation, 8, 6312–6313.
  • Bjordal, K., & Kaasa, S. (1995). Psychological distress in head and neck cancer patients 7–11 years after curative treatment. British Journal of Cancer, 71, 592–597.10.1038/bjc.1995.115
  • Björklund, M., Sarvimäki, A., & Berg, A. (2010). Living with head and neck cancer: A profile of captivity. Journal of Nursing and Healthcare of Chronic Illness, 2, 22–31.10.1111/jci.2010.2.issue-1
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101.10.1191/1478088706qp063oa
  • Cohen, S., & McKay, G. (1984). Social support, stress, and the buffering hypothesis: A theoretical analysis. In A. Baum, J. E. Singer, & S. E. Taylor (Eds.), Handbook of psychology and health (Vol. 4, pp. 253–267). Hillsdale, NJ: Erlbaum.
  • Denzin, N. K., & Lincoln, Y. S. (2011). The SAGE handbook of qualitative research. Thousand Oaks, CA: Sage.
  • de Leeuw, J. R., de Graeff, A., Ros, W. J., Blijham, G. H., Hordijk, G., & Winnubst, J. A. (2001). Prediction of depression 6 months to 3 years after treatment of head and neck cancer. Head & Neck, 23, 892–898.
  • Duffy, S. A., Ronis, D. L., Valenstein, M., Lambert, M. T., Fowler, K. E., Gregory, L., … Terrell, J. E. (2006). A tailored smoking, alcohol, and depression intervention for head and neck cancer patients. Cancer Epidemiology, Biomarkers & Prevention, 15, 2203–2208.
  • Fan, J., He, X., & Li, J. (2006). Effects of combined interventional treatment on quality of life in patients with nasopharyngeal carcinoma. Chinese Journal of Clinical Rehabilitation, 10, 16–18.
  • Funk, G. F., Karnell, L. H., & Christensen, A. J. (2012). Long-term health-related quality of life in survivors of head and neck cancer. Archives of Otolaryngology - Head & Neck Surgery, 138, 123–133.
  • Gilbert, S. M., Sanda, M. G., Dunn, R. L., Greenfield, T. K., Hembroff, L., Klein, E., & Wei, J. T. (2014). Satisfaction with information used to choose prostate cancer treatment. The Journal of Urology, 191, 1265–1271.10.1016/j.juro.2013.12.008
  • Griffiths, M. J., Humphris, G. M., Skirrow, P. M., & Rogers, S. N. (2008). A qualitative evaluation of patient experiences when diagnosed with oral cancer recurrence. Cancer Nursing, 31, E11–E17.10.1097/01.NCC.0000305750.50991.67
  • Haisfield-Wolfe, M. E., McGuire, D. B., Soeken, K., Geiger-Brown, J., & De Forge, B. R. (2009). Prevalence and correlates of depression among patients with head and neck cancer: A systematic review of implications for research. Oncology Nursing Forum, 36, E107–E125.
  • Hammerlid, E., Silander, E., Hörnestam, L., & Sullivan, M. (2001). Health-related quality of life three years after diagnosis of head and neck cancer – A longitudinal study. Head & Neck, 23, 113–125.
  • Hopwood, P., Keeling, F., Long, A., Pool, C., Evans, G., & Howell, A. (1998). Psychological support needs for women at high genetic risk of breast cancer: Some preliminary indicators. Psycho-Oncology, 7, 402–412.10.1002/(ISSN)1099-1611
  • Howren, M. B., Christensen, A. J., Karnell, L. H., & Funk, G. F. (2013). Psychological factors associated with head and neck cancer treatment and survivorship: Evidence and opportunities for behavioral medicine. Journal of Consulting and Clinical Psychology, 81, 299–317.10.1037/a0029940
  • Howren, M. B., Christensen, A. J., Karnell, L. H., Van Liew, J. R., & Funk, G. F. (2013). Influence of pretreatment social support on health-related quality of life in head and neck cancer survivors: Results from a prospective study. Head & Neck, 35, 779–787.
  • Humphris, G., & Ozakinci, G. (2008). The AFTER intervention: A structured psychological approach to reduce fears of recurrence in patients with head and neck cancer. British Journal of Health Psychology, 13, 223–230.10.1348/135910708X283751
  • Humphris, G., & Rogers, S. N. (2012). AFTER and beyond: Cancer recurrence fears and a test of an intervention in oral and oropharyngeal patients. Social Science and Dentistry, 2, 29–38.
  • Kagan, S. H., Clarke, S. P., & Happ, M. B. (2005). Head and neck cancer patient and family member interest in and use of E-mail to communicate with clinicians. Head and Neck, 27, 976–981.10.1002/(ISSN)1097-0347
  • Karnell, L. H., Christensen, A. J., Rosenthal, E. L., Magnuson, J. S., & Funk, G. F. (2007). Influence of social support on health-related quality of life outcomes in head and neck cancer. Head & Neck, 29, 143–146.
  • Katz, M. R., Irish, J. C., & Devins, G. (2004). Development and pilot testing of a psychoeducational intervention for oral cancer patients. Psycho-Oncology, 13, 642–653.10.1002/(ISSN)1099-1611
  • Lakey, B., & Cohen, S. (2000). Social support theory and measurement. In S. Cohen, L. G. Underwood, & B. H. Gottlieb (Eds.), Social support measurement and intervention: A guide for health and social scientists (pp. 29–52). New York, NY: Oxford University Press.
  • Lang, H., France, E., Williams, B., Humphris, G., & Wells, M. (2013). The psychological experience of living with head and neck cancer: A systematic review and meta-synthesis. Psycho-Oncology, 22, 2648–2663.10.1002/pon.v22.12
  • Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York, NY: Springer.
  • Lintz, K., Moynihan, C., Steginga, S., Norman, A., Eeles, R., Huddart, R., ... Watson, M. (2003). Prostate cancer patients' support and psychological care needs: Survey from a non-surgical oncology clinic. Psycho-Oncology, 12, 769–783.
  • List, M. A., & Bilir, S. P. (2004). Functional outcomes in head and neck cancer. Seminars in Radiation Oncology, 14, 178–189.10.1053/j.semradonc.2003.12.008
  • List, M. A., Lee Rutherford, J., Stracks, J., Haraf, D., Kies, M. S., & Vokes, E. E. (2002). An exploration of the pretreatment coping strategies of patients with carcinoma of the head and neck. Cancer, 95, 98–104.10.1002/(ISSN)1097-0142
  • Llewellyn, C. D., McGurk, M., & Weinman, J. (2006). How satisfied are head and neck cancer (HNC) patients with the information they receive pre-treatment? Results from the satisfaction with cancer information profile (SCIP). Oral Oncology, 42, 726–734.10.1016/j.oraloncology.2005.11.013
  • Longacre, M. L., Ridge, J. A., Burtness, B. A., Galloway, T. J., & Fang, C. Y. (2012). Psychological functioning of caregivers for head and neck cancer patients. Oral Oncology, 48, 18–25.10.1016/j.oraloncology.2011.11.012
  • Luckett, T., Britton, B., Clover, K., & Rankin, N. (2011). Evidence for interventions to improve psychological outcomes in people with head and neck cancer: A systematic review of the literature. Supportive Care in Cancer, 19, 871–881.10.1007/s00520-011-1119-7
  • Mah, M. A., & Johnston, C. (1993). Concerns of families in which one member has head and neck cancer. Cancer Nursing, 16, 382–387.
  • Mallinger, J. B., Griggs, J. J., & Shields, C. G. (2005). Patient-centered care and breast cancer survivors’ satisfaction with information. Patient Education and Counseling, 57, 342–349.10.1016/j.pec.2004.09.009
  • Mehanna, H. P., Paleri, V., West, C. M. L., & Nutting, C. (2010). Head and neck cancer – Part 1: Epidemiology, presentation, and prevention. BMJ, 341, c4684.10.1136/bmj.c4684
  • Mehnert, A. & Koch, U. (2008). Psychological comorbidity and health-related quality of life and its association with awareness, utilization, and need for psychosocial support in a cancer register-based sample of long-term breast cancer survivors. Journal of Psychosomatic Research, 64, 383–391.
  • Molassiotis, A., & Rogers, M. (2012). Symptom experience and regaining normality in the first year following a diagnosis of head and neck cancer: A qualitative longitudinal study. Palliative & Supportive Care, 10, 197–204.
  • Newell, R., Ziegler, L., Stafford, N., & Lewin, R. J. (2004). The information needs of head and neck cancer patients prior to surgery. Annals of The Royal College of Surgeons of England, 86, 407–410.10.1308/147870804722
  • Ostroff, J., Ross, S., Steinglass, P., Ronis-tobin, V., & Singh, B. (2004). Interest in and barriers to participation in multiple family groups among head and neck cancer survivors and their primary family caregivers. Family Process, 43, 195–208.10.1111/famp.2004.43.issue-2
  • Richardson, A., Lee, L., & Birchall, M. (2002). Learning from patients with cancer and their spouses: A focus group study. The Journal of Laryngology and Otology, 116, 1028–1035.
  • Röing, M., Hirsch, J., & Holmström, I. (2007). The uncanny mouth – A phenomenological approach to oral cancer. Patient Education and Counseling, 67, 301–306.10.1016/j.pec.2007.02.001
  • Sanson-Fisher, R., Girgis, A., Boyes, A., Bonevski, B., Burton, L., & Cook, P. (2000). The unmet supportive care needs of patients with cancer. Cancer, 88, 226–237.
  • Semple, C. J., Dunwoody, L., Sullivan, K., & Kernohan, W. G. (2006). Patients with head and neck cancer prefer individualized cognitive behavioural therapy. European Journal of Cancer Care, 15, 220–227.10.1111/ecc.2006.15.issue-3
  • Semple, C. J., & McCance, T. (2010). Experience of parents with head and neck cancer who are caring for young children. Journal of Advanced Nursing, 66, 1280–1290.10.1111/(ISSN)1365-2648
  • Semple, C. J., & McGowan, B. (2002). Need for appropriate written information for patients, with particular reference to head and neck cancer. Journal of Clinical Nursing, 11, 585–593.10.1046/j.1365-2702.2002.00641.x
  • Semple, C., Parahoo, K., Norman, A., McCaughan, E., Humphris, G., & Mills, M. (2013). Psychosocial interventions for patients with head and neck cancer. Cochrane Database of Systematic Reviews, 7. Article ID: CD009441.
  • Semple, C. J., Sullivan, K., Dunwoody, L., & Kernohan, W. G. (2004). Psychosocial interventions for patients with head and neck cancer: Past, present, and future. Cancer Nursing, 27, 434–441.
  • Ziegler, L., Newell, R., Stafford, N., & Lewin, R. (2004). A literature review of head and neck cancer patients information needs, experiences and views regarding decision-making. European Journal of Cancer Care, 13, 119–126.10.1111/ecc.2004.13.issue-2

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