The influence of the significant other on treatment adherence in chronic pain management: a qualitative analysis

References

• Aitken, D., Buchbinder, R., Jones, G., & Winzenberg, T. (2015). Interventions to improve adherence to exercise for chronic musculoskeletal pain in adults. Australian Family Physician, 44(1–2), 39–42.
   PubMedGoogle Scholar
• Ambrosio, L., Senosiain García, J. M., Riverol Fernández, M., Anaut Bravo, S., Díaz De Cerio Ayesa, S., Ursúa Sesma, M. E., Caparrós, N., & Portillo, M. C. (2015). Living with chronic illness in adults: A concept analysis. Journal of Clinical Nursing, 24(17–18), 2357–2367. https://doi.org/10.1111/jocn.12827
   PubMed Web of Science ®Google Scholar
• Andrews, P., Steultjens, M., & Riskowski, J. (2018). Chronic widespread pain prevalence in the general population: A systematic review. European Journal of Pain (London, England), 22(1), 5–18. https://doi.org/10.1002/ejp.1090
   PubMed Web of Science ®Google Scholar
• August, K. J., Rook, K. S., Franks, M. M., & Parris Stephens, M. A. (2013). Spouses’ involvement in their partners’ diabetes management: Associations with spouse stress and perceived marital quality. Journal of Family Psychology: JFP: Journal of the Division of Family Psychology of the American Psychological Association (Division 43), 27(5), 712–721. https://doi.org/10.1037/a0034181
   PubMed Web of Science ®Google Scholar
• Baron, C. E., Smith, T. W., Baucom, B. R., Uchino, B. N., Williams, P. G., Sundar, K. M., & Czajkowski, L. (2020). Relationship partner social behavior and continuous positive airway pressure adherence: The role of autonomy support. Health Psychology: Official Journal of the Division of Health Psychology, American Psychological Association, 39(4), 325–334.
   PubMed Web of Science ®Google Scholar
• Boutevillain, L., Dupeyron, A., Rouch, C., Richard, E., & Coudeyre, E. (2017). Facilitators and barriers to physical activity in people with chronic low back pain: A qualitative study. PloS One, 12(7), e0179826–16. https://doi.org/10.1371/journal.pone.0179826
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
   Google Scholar
• Brown, M. T., Bussell, J., Dutta, S., Davis, K., Strong, S., & Mathew, S. (2016). Medication adherence: Truth and consequences. The American Journal of the Medical Sciences, 351(4), 387–399. https://doi.org/10.1016/j.amjms.2016.01.010
   PubMed Web of Science ®Google Scholar
• Dahlhamer, J., Lucas, J., Zelaya, C., Nahin, R., Mackey, S., DeBar, L., Kerns, R., Von Korff, M., Porter, L., & Helmick, C. (2018). Prevalence of chronic pain and high-impact chronic pain among Adults - United States, 2016. MMWR. Morbidity and Mortality Weekly Report, 67(36), 1001–1006. https://doi.org/10.15585/mmwr.mm6736a2
   PubMed Web of Science ®Google Scholar
• De Souza, L., & Frank, A. (2011). Patients’ experiences of the impact of chronic back pain on family life and work. Disability and Rehabilitation, 33(4), 310–318. https://doi.org/10.3109/09638288.2010.490865
   PubMed Web of Science ®Google Scholar
• Delmar, C., Bøje, T., Dylmer, D., Forup, L., Jakobsen, C., Møller, M., Sønder, H., & Pedersen, B. D. (2006). Independence/dependence-a contradictory relationship? Life with a chronic illness. Scandinavian Journal of Caring Sciences, 20(3), 261–268. https://doi.org/10.1111/j.1471-6712.2006.00403.x
   PubMed Web of Science ®Google Scholar
• DiMatteo, M. (2004). Social support and patient adherence to medical treatment: A meta-analysis. Health Psychology: Official Journal of the Division of Health Psychology, American Psychological Association, 23(2), 207–218. https://doi.org/10.1037/0278-6133.23.2.207
   PubMed Web of Science ®Google Scholar
• Edlund, S. M., Wurm, M., Holländare, F., Linton, S. J., Fruzzetti, A. E., & Tillfors, M. (2017). Pain patients’ experiences of validation and invalidation from physicians before and after multimodal pain rehabilitation: Associations with pain, negative affectivity, and treatment outcome. Scandinavian Journal of Pain, 17(1), 77–86. https://doi.org/10.1016/j.sjpain.2017.07.007
   PubMedGoogle Scholar
• Escolar-Reina, P., Medina-Mirapeix, F., Gascón-Cánovas, J. J., Montilla-Herrador, J., Jimeno-Serrano, F. J., de Oliveira Sousa, S. L., del Baño-Aledo, M. E., & Lomas-Vega, R. (2010). How do care-provider and home exercise program characteristics affect patient adherence in chronic neck and back pain: A qualitative study. BMC Health Services Research, 10(1), 60–68. https://doi.org/10.1186/1472-6963-10-60
   PubMedGoogle Scholar
• Fishbain, D. A., Bruns, D., Disorbio, J. M., Lewis, J. E., & Gao, J. (2010). Variables associated with self-prediction of psychopharmacological treatment adherence in acute and chronic pain patients. Pain Practice: The Official Journal of World Institute of Pain, 10(6), 508–519. https://doi.org/10.1111/j.1533-2500.2010.00371.x
   PubMed Web of Science ®Google Scholar
• Franks, M. M., Sahin, Z. S., Seidel, A. J., Shields, C. G., Oates, S. K., & Boushey, C. J. (2012). Table for two: Diabetes distress and diet-related interactions of married patients with diabetes and their spouses. Families, Systems & Health: The Journal of Collaborative Family Healthcare, 30(2), 154–165. https://doi.org/10.1037/a0028614
   PubMed Web of Science ®Google Scholar
• Franks, M. M., Stephens, M. A. P., Rook, K. S., Franklin, B. A., Keteyian, S. J., & Artinian, N. T. (2006). Spouses’ provision of health-related support and control to patients participating in cardiac rehabilitation. Journal of Family Psychology: JFP: Journal of the Division of Family Psychology of the American Psychological Association (Division 43), 20(2), 311–318. https://doi.org/10.1037/0893-3200.20.2.311
   PubMed Web of Science ®Google Scholar
• Gallant, M. (2003). The influence of social support on chronic illness self-management: A review and directions for research. Health Education & Behavior: The Official Publication of the Society for Public Health Education, 30(2), 170–195. https://doi.org/10.1177/1090198102251030
   PubMed Web of Science ®Google Scholar
• Jordan, J. L., Holden, M. A., Mason, E. E., & Foster, N. E. (2010). Interventions to improve adherence to exercise for chronic musculoskeletal pain in adults. Cochrane Database of Systematic Reviews, 1(1), 39–42. https://doi.org/10.1002/14651858.CD005956.pub2
   Google Scholar
• Jungquist, C. R., O’Brien, C., Matteson-Rusby, S., Smith, M. T., Pigeon, W. R., Xia, Y., Lu, N., & Perlis, M. L. (2010). The efficacy of cognitive-behavioral therapy for insomnia in patients with chronic pain. Sleep Medicine, 11(3), 302–309. https://doi.org/10.1016/j.sleep.2009.05.018
   PubMed Web of Science ®Google Scholar
• Knight, B. G., & Sayegh, P. (2010). Cultural values and caregiving: The updated sociocultural stress and coping model. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 65B(1), 5–13. https://doi.org/10.1093/geronb/gbp096
   PubMed Web of Science ®Google Scholar
• Koball, H. L., Moiduddin, E., Henderson, J., Goesling, B., & Besculides, M. (2010). What do we know about the link between marriage and health? Journal of Family Issues, 31(8), 1019–1040. https://doi.org/10.1177/0192513X10365834
   Web of Science ®Google Scholar
• Leonard, M. T., & Cano, A. (2006). Pain affects spouses too: Personal experience with pain and catastrophizing as correlates of spouse distress. Pain, 126(1–3), 139–146. https://doi.org/10.1016/j.pain.2006.06.022
   PubMed Web of Science ®Google Scholar
• Margolis, J. M., Princic, N., Smith, D. M., Abraham, L., Cappelleri, J. C., Shah, S. N., & Park, P. W. (2019). Economic impact of adherence to pain treatment guidelines in chronic pain patients. Pain Medicine (Malden, Mass.), 20(10), 1907–1918. https://doi.org/10.1093/pm/pnz085
   PubMed Web of Science ®Google Scholar
• Markotic, F., Cerni Obrdalj, E., Zalihic, A., Pehar, R., Hadziosmanovic, Z., Pivic, G., Durasovic, S., Grgic, V., Banozic, A., Sapunar, D., & Puljak, L. (2013). Adherence to pharmacological treatment of chronic nonmalignant pain in individuals aged 65 and older. Pain Medicine (Malden, Mass.), 14(2), 247–256. https://doi.org/10.1111/pme.12035
   PubMed Web of Science ®Google Scholar
• Martire, L. M., Stephens, M. A. P., Mogle, J., Schulz, R., Brach, J., & Keefe, F. J. (2013). Daily spousal influence on physical activity in knee osteoarthritis. Annals of Behavioral Medicine: A Publication of the Society of Behavioral Medicine, 45(2), 213–223. https://doi.org/10.1007/s12160-012-9442-x
   PubMed Web of Science ®Google Scholar
• McPake, B., & Mahal, A. (2017). Addressing the needs of an aging population in the health system: The Australian case. Health Systems and Reform, 3(3), 236–247. https://doi.org/10.1080/23288604.2017.1358796
   PubMed Web of Science ®Google Scholar
• Miller, T. A., & DiMatteo, M. R. (2013). Importance of family/social support and impact on adherence to diabetic therapy. Diabetes, Metabolic Syndrome and Obesity: Targets and Therapy, 6(1), 421–426. https://doi.org/10.2147/DMSO.S36368
   PubMedGoogle Scholar
• Mittinty, M. M., Kindt, S., Mittinty, M. N., Bernardes, S., Cano, A., Verhofstadt, L., & Goubert, L. (2020). A dyadic perspective on coping and its effects on relationship quality and psychological distress in couples living with chronic pain: A longitudinal study. Pain Medicine (Malden, Mass.), 21(2), e102–e113. https://doi.org/10.1093/pm/pnz267
   PubMed Web of Science ®Google Scholar
• Newton-John, T. R., Ventura, A. D., Mosely, K., Browne, J. L., & Speight, J. (2017). ‘Are you sure you’re going to have another one of those?’: A qualitative analysis of the social control and social support models in type 2 diabetes. Journal of Health Psychology, 22(14), 1819–1829.
   PubMed Web of Science ®Google Scholar
• Nicolson, P. J. A., Bennell, K. L., Dobson, F. L., Van Ginckel, A., Holden, M. A., & Hinman, R. S. (2017). Interventions to increase adherence to therapeutic exercise in older adults with low back pain and/or hip/knee osteoarthritis: A systematic review and meta-analysis. British Journal of Sports Medicine, 51(10), 791–799. https://doi.org/10.1136/bjsports-2016-096458
   PubMed Web of Science ®Google Scholar
• Parnow, S. (2018). The impact of invalidating provider-patient experiences on treatment adherence in chronic pain patients [Doctoral dissertation]. Adler School of Professional Psychology.
   Google Scholar
• Pickard, L. (2015). A growing care gap? The supply of unpaid care for older people by their adult children in England to 2032. Ageing and Society, 35(1), 96–123. https://doi.org/10.1017/S0144686X13000512
   Web of Science ®Google Scholar
• Polonsky, W. H., & Henry, R. R. (2016). Poor medication adherence in type 2 diabetes: Recognizing the scope of the problem and its key contributors. Patient Preference and Adherence, 10(1), 1299–1307. https://doi.org/10.2147/PPA.S106821
   PubMedGoogle Scholar
• Ramke, S., Sharpe, L., & Newton‐John, T. (2016). Adjunctive cognitive behavioural treatment for chronic pain couples improves marital satisfaction but not pain management outcomes. European Journal of Pain (London, England), 20(10), 1667–1677. https://doi.org/10.1002/ejp.890
   PubMed Web of Science ®Google Scholar
• Remien, R. H., Stirratt, M. J., Dolezal, C., Dognin, J. S., Wagner, G. J., Carballo-Dieguez, A., El-Bassel, N., & Jung, T. M. (2005). Couple-focused support to improve HIV medication adherence: A randomized controlled trial. AIDS, 19(8), 807–814. https://doi.org/10.1097/01.aids.0000168975.44219.45
   PubMed Web of Science ®Google Scholar
• Robles, T. F., Slatcher, R. B., Trombello, J. M., & McGinn, M. M. (2014). Marital quality and health: A meta-analytic review. Psychological Bulletin, 140(1), 140–187. https://doi.org/10.1037/a0031859
   PubMed Web of Science ®Google Scholar
• Rook, K. S., August, K. J., Stephens, M. A. P., & Franks, M. M. (2011). When does spousal social control provoke negative reactions in the context of chronic illness? The pivotal role of patients’ expectations. Journal of Social and Personal Relationships, 28(6), 772–789. https://doi.org/10.1177/0265407510391335
   Web of Science ®Google Scholar
• Ross, C., Mirowsky, J., & Goldsteen, K. (1990). The impact of the family on health: The decade in review. Journal of Marriage and the Family, 52(4), 1059–1078. https://doi.org/10.2307/353319
   Web of Science ®Google Scholar
• Rosser, B. A., McCracken, L. M., Velleman, S. C., Boichat, C., & Eccleston, C. (2011). Concerns about medication and medication adherence in patients with chronic pain recruited from general practice. Pain, 152(5), 1201–1205. https://doi.org/10.1016/j.pain.2011.01.053
   PubMed Web of Science ®Google Scholar
• Sabaté, E. (2003). Adherence to long-term therapies: Evidence for action. World Health Organization. https://doi.org/10.1016/S1474-5151(03)00091-4
   Google Scholar
• Saunders, B., Kitzinger, J., & Kitzinger, C. (2015). Anonymising interview data: Challenges and compromise in practice. Qualitative Research: QR, 15(5), 616–632.
   PubMed Web of Science ®Google Scholar
• Slade, S. C., Molloy, E., & Keating, J. L. (2009). People with non-specific chronic low back pain who have participated in exercise programs have preferences about exercise: A qualitative study. Australian Journal of Physiotherapy, 55(2), 115–121. https://doi.org/10.1016/S0004-9514(09)70041-8
   PubMed Web of Science ®Google Scholar
• Stephens, M. A. P., Rook, K. S., Franks, M. M., Khan, C., & Iida, M. (2010). Spouses use of social control to improve diabetic patients’ dietary adherence. Families, Systems & Health: The Journal of Collaborative Family Healthcare, 28(3), 199–208. https://doi.org/10.1037/a0020513
   PubMed Web of Science ®Google Scholar
• Strom, J. L., & Egede, L. E. (2012). The impact of social support on outcomes in adult patients with type 2 diabetes: A systematic review. Current Diabetes Reports, 12(6), 769–781. https://doi.org/10.1007/s11892-012-0317-0
   PubMed Web of Science ®Google Scholar
• Stumbo, S., Wrubel, J., & Johnson, M. O. (2011). A qualitative study of HIV treatment adherence support from friends and family among same sex male couples. Psychology and Education, 2(4), 318–322. https://doi.org/10.4236/psych.2011.24050
   PubMedGoogle Scholar
• Tan, J. Y., Pollack, L., Rebchook, G., Peterson, J., Huebner, D., Eke, A., Johnson, W., & Kegeles, S. (2018). The role of the primary romantic relationship in HIV care engagement outcomes among young HIV-positive black men who have sex with men. AIDS and Behavior, 22(3), 774–790. https://doi.org/10.1007/s10461-016-1601-9
   PubMed Web of Science ®Google Scholar
• Thompson, E. L., Broadbent, J., Bertino, M. D., & Staiger, P. K. (2016). Do pain-related beliefs influence adherence to multidisciplinary rehabilitation?: A systematic review The Clinical Journal of Pain, 32(2), 164–178. https://doi.org/10.1097/AJP.0000000000000235
   PubMed Web of Science ®Google Scholar
• Timmerman, L., Stronks, D. L., Groeneweg, J. G., & Huygen, F. J. (2016). Prevalence and determinants of medication non-adherence in chronic pain patients: A systematic review. Acta Anaesthesiologica Scandinavica, 60(4), 416–431. https://doi.org/10.1111/aas.12697
   PubMed Web of Science ®Google Scholar
• Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
   PubMed Web of Science ®Google Scholar
• Treede, R.-D., Rief, W., Barke, A., Aziz, Q., Bennett, M. I., Benoliel, R., Cohen, M., Evers, S., Finnerup, N. B., First, M. B., Giamberardino, M. A., Kaasa, S., Kosek, E., Lavand’homme, P., Nicholas, M., Perrot, S., Scholz, J., Schug, S., Smith, B. H., … Wang, S.-J. (2015). A classification of chronic pain for ICD-11. Pain, 156(6), 1003–1007. https://doi.org/10.1097/j.pain.0000000000000160
   PubMed Web of Science ®Google Scholar
• Turk, D. C., Wilson, H. D., & Cahana, A. (2011). Treatment of chronic non-cancer pain. The Lancet, 377(9784), 2226–2235. https://doi.org/10.1016/S0140-6736(11)60402-9
   PubMed Web of Science ®Google Scholar
• Uysal, A., Ascigil, E., & Turunc, G. (2017). Spousal autonomy support, need satisfaction, and well-being in individuals with chronic pain: A longitudinal study. Journal of Behavioral Medicine, 40(2), 281–292.
   PubMed Web of Science ®Google Scholar
• West, C., Usher, K., Foster, K., & Stewart, L. (2012). Chronic pain and the family: The experience of the partners of people living with chronic pain. Journal of Clinical Nursing, 21(23–24), 3352–3360. https://doi.org/10.1111/j.1365-2702.2012.04215.x
   PubMed Web of Science ®Google Scholar