847
Views
3
CrossRef citations to date
0
Altmetric
Articles

Integrated psychological care in pediatric hospital settings for children with complex chronic illness and their families: a systematic review

, , , , &
Pages 452-478 | Received 08 Sep 2021, Accepted 27 Apr 2022, Published online: 28 May 2022

References

  • Agency for Clinical Innovation. (2019). A guide to build co-design capability. NSW Government. https://aci.health.nsw.gov.au/__data/assets/pdf_file/0013/502240/Guide-Build-Codesign-Capability.pdf.
  • Anderson, L. M., Papadakis, J. L., Vesco, A. T., Shapiro, J. B., Feldman, M. A., Evans, M. A., & Weissberg-Benchell, J. (2020). Patient-reported and parent proxy-reported outcomes in pediatric medical specialty clinical settings: A systematic review of implementation. Journal of Pediatric Psychology, 45(3), 247–265. https://doi.org/10.1093/jpepsy/jsz082
  • Asarnow, J. R., Rozenman, M., Wiblin, J., & Zeltzer, L. (2015). Integrated medical-behavioral care compared with usual primary care for child and adolescent behavioral health: A meta-analysis. JAMA Pediatrics, 169(10), 929–937. https://doi.org/10.1001/jamapediatrics.2015.1141
  • Bate, P., & Robert, G. (2006). Experience-based design: From redesigning the system around the patient to co-designing services with the patient. Quality & Safety in Health Care, 15(5), 307–310. https://doi.org/10.1136/qshc.2005.016527
  • Baxter, S., Johnson, M., Chambers, D., Sutton, A., Goyder, E., & Booth, A. (2018). The effects of integrated care: A systematic review of UK and international evidence. BMC Health Services Research, 18(1), 350. https://doi.org/10.1186/s12913-018-3161-3
  • Bennett, S., Shafran, R., Coughtrey, A., Walker, S., & Heyman, I. (2015). Psychological interventions for mental health disorders in children with chronic physical illness: A systematic review. Archives of Disease in Childhood, 100(4), 308–316. https://doi.org/10.1136/archdischild-2014-307474
  • Bennett, S. D., Kerry, E., Fifield, K., Ching, B. C. F., Catanzano, M., Liang, H., Heyman, I., Coughtrey, A. E., Sanderson, C., Rojas, N., & Shafran, R. (2021). A drop-in centre for treating mental health problems in children with chronic illness: Outcomes for parents and their relationship with child outcomes. JCPP Advances, 1(4), e12046. https://doi.org/10.1002/jcv2.12046
  • Berg, A. T., Caplan, R., & Hesdorffer, D. C. (2011). Psychiatric and neurodevelopmental disorders in childhood-onset epilepsy. Epilepsy & Behavior, 20(3), 550–555. https://doi.org/10.1016/j.yebeh.2010.12.038
  • Berry, J. G., Hall, M., Hall, D. E., Kuo, D. Z., Cohen, E., Agrawal, R., Mandl, K. D., Clifton, H., & Neff, J. (2013). Inpatient growth and resource use in 28 children’s hospitals: A longitudinal, multi-institutional study. JAMA Pediatrics, 167(2), 170–177. https://doi.org/10.1001/jamapediatrics.2013.432
  • Blackman, J. A., Gurka, M. J., Gurka, K. K., & Oliver, M. N. (2011). Emotional, developmental and behavioural co-morbidities of children with chronic health conditions. Journal of Paediatrics and Child Health, 47(10), 742–747. https://doi.org/10.1111/j.1440-1754.2011.02044.x
  • Brosig, C., Yang, K., Hoffmann, R. G., Dasgupta, M., & Mussatto, K. (2014). The role of psychology in a pediatric outpatient cardiology setting: Preliminary results from a new clinical program. Journal of Clinical Psychology in Medical Settings, 21(4), 337–346. https://doi.org/10.1007/s10880-014-9404-5
  • Caccavale, L., J., Bernstein, R., Yarbro, J. L., Rushton, H., Gelfand, K. M., Schwimmer,., & B., A. (2020). Impact and Cost-Effectiveness of Integrated Psychology Services in a Pediatric Endocrinology Clinic. Journal of Clinical Psychology in Medical Settings, 27(3), 615–621. https://doi.org/10.1007/s10880-019-09645-z
  • Catanzano, M., Bennett, S. D., Kerry, E., Liang, H., Heyman, I., Coughtrey, A. E., Fifield, K., Taylor, C., Dalgleish, T., Xu, L., & Shafran, R. (2021a). Evaluation of a mental health drop-in centre offering brief transdiagnostic psychological assessment and treatment for children and adolescents with long-term physical conditions and their families: A single-arm, open, non-randomised trial. Evidence-Based Mental Health, 24(1), 25–32. https://doi.org/10.1136/ebmental-2020-300197
  • Catanzano, M., Bennett, S. D., Tibber, M. S., Coughtrey, A. E., Liang, H., Heyman, I., & Shafran, R, The Lucy Project Team. (2021b). A mental health drop-in centre offering brief transdiagnostic psychological assessment and treatment in a paediatric hospital setting: A one-year descriptive study. International Journal of Environmental Research and Public Health, 18(10), 5369. https://doi.org/10.3390/ijerph18105369
  • Cheung, S., Spaeth-Rublee, B., Shalev, D., Li, M., Docherty, M., Levenson, J., & Pincus, H. A. (2019). A model to improve behavioral health integration into serious illness care. Journal of Pain and Symptom Management, 58(3), 503–514. https://doi.org/10.1016/j.jpainsymman.2019.05.017
  • Chong, L. S. H., Fitzgerald, D. A., Craig, J. C., Manera, K. E., Hanson, C. S., Celermajer, D., Ayer, J., Kasparian, N. A., & Tong, A. (2018). Children’s experiences of congenital heart disease: A systematic review of qualitative studies. European Journal of Pediatrics, 177(3), 319–336. https://doi.org/10.1007/s00431-017-3081-y
  • Cole, J. C. M., Olkkola, M., Zarrin, H. E., Berger, K., & Moldenhauer, J. S. (2018). Universal postpartum mental health screening for parents of newborns with prenatally diagnosed birth defects. Journal of Obstetric, Gynecologic, and Neonatal Nursing: JOGNN, 47(1), 84–93. https://doi.org/10.1016/j.jogn.2017.04.131
  • Cousino, M. K., & Hazen, R. A. (2013). Parenting stress among caregivers of children with chronic illness: a systematic review. Journal of Pediatric Psychology, 38(8), 809–828. https://doi.org/10.1093/jpepsy/jst049
  • Cousino, M. K., Schumacher, K. R., Rea, K. E., Eder, S., Zamberlan, M., Jordan, J., & Fredericks, E. M. (2018). Psychosocial functioning in pediatric heart transplant recipients and their families. Pediatric Transplantation, 22(2), e13110. https://doi.org/10.1111/petr.13110
  • Defenderfer, E. K., Rybak, T. M., Davies, W. H., & Berlin, K. S. (2017). Predicting parent health-related quality of life: Evaluating conceptual models. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 26(6), 1405–1415. https://doi.org/10.1007/s11136-016-1491-3
  • Dodd, J. N., Hall, T. A., Guilliams, K., Guerriero, R. M., Wagner, A., Malone, S., Williams, C. N., Hartman, M. E., & Piantino, J. (2018). Optimizing neurocritical care follow-up through the integration of neuropsychology. Pediatric Neurology, 89, 58–62. https://doi.org/10.1016/j.pediatrneurol.2018.09.007
  • Feudtner, C., Christakis, D. A., & Connell, F. A. (2000). Pediatric deaths attributable to complex chronic conditions: A population-based study of Washington State, 1980–1997. Pediatrics, 106(1 Pt 2), 205–209. https://pediatrics.aappublications.org/content/pediatrics/106/Supplement_1/205.full.pdf
  • Friedberg, R. D., & Paternostro, J. K. (2019). The value of integrated pediatric behavioral health care. In R. D. Friedberg & J. K. Paternostro (Eds.), Handbook of cognitive behavioral therapy for pediatric medical conditions (pp. 11–20) Springer International Publishing. https://doi.org/10.1007/978-3-030-21683-2_2.
  • Gaynor, J. W., Stopp, C., Wypij, D., Andropoulos, D. B., Atallah, J., Atz, A. M., Beca, J., Donofrio, M. T., Duncan, K., Ghanayem, N. S., Goldberg, C. S., Hövels-Gürich, H., Ichida, F., Jacobs, J. P., Justo, R., Latal, B., Li, J. S., Mahle, W. T., McQuillen, P. S., … Newburger, J. W., for the International Cardiac Collaborative on Neurodevelopment (ICCON) Investigators. (2015). Neurodevelopmental outcomes after cardiac surgery in infancy. Pediatrics, 135(5), 816–825. https://doi.org/10.1542/peds.2014-3825
  • Grootenhuis, M. A., Koopman, H. M., Verrips, E. G. H., Vogels, A. G. C., & Last, B. F. (2007). Healthrelated quality of life problems of children aged 8–11 years with a chronic disease. Developmental Neurorehabilitation, 10(1), 27–33. https://doi.org/10.1080/13682820600691017
  • Guilfoyle, S. M., Follansbee-Junger, K., & Modi, A. C. (2013). Development and preliminary implementation of a psychosocial service into standard medical care for pediatric epilepsy. Clinical Practice in Pediatric Psychology, 1(3), 276–288. https://doi.org/10.1037/cpp0000031
  • Heckman, J. J., & Masterov, D. V. (2007). The productivity argument for investing in young children. Applied Economic Perspectives and Policy, 29(3), 446-493. https://doi.org/10.1111/j.1467-9353.2007.00359.x
  • Jones, C., & Reilly, C. (2016). Parental anxiety in childhood epilepsy: A systematic review. Epilepsia, 57(4), 529–537. https://doi.org/10.1111/epi.13326
  • Kasparian, N. A., Kan, J. M., Sood, E., Wray, J., Pincus, H. A., & Newburger, J. W. (2019). Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice. Early Human Development, 139, 104837. https://doi.org/10.1016/j.earlhumdev.2019.104837
  • Kasparian, N. A., Winlaw, D. S., & Sholler, G. F. (2016). “ Congenital heart health”: How psychological care can make a difference. Medical Journal of Australia, 205(3), 104–107. https://doi.org/10.5694/mja16.00392
  • Kazak, A. E. (2006). Pediatric Psychosocial Preventative Health Model (PPPHM): Research, practice, and collaboration in pediatric family systems medicine. Families, Systems, & Health, 24(4), 381–395. https://doi.org/10.1037/1091-7527.24.4.381
  • Kazak, A. E., Barakat, L. P., Hwang, W. T., Ditaranto, S., Biros, D., Beele, D., Kersun, L., Hocking, M. C., & Reilly, A. (2011). Association of psychosocial risk screening in pediatric cancer with psychosocial services provided. Psycho-oncology, 20(7), 715–723. https://doi.org/10.1002/pon.1972
  • Kendall, P. C., Makover, H., Swan, A., Carper, M. M., Mercado, R., Kagan, E., & Crawford, E. (2016). What steps to take? How to approach concerning anxiety in youth. Clinical Psychology: Science and Practice, 23(3), 211–229. https://doi.org/10.1111/cpsp.12156
  • Landsverk, J., Brown, C. H., Rolls Reutz, J., Palinkas, L., & Horwitz, S. M. (2011). Design elements in implementation research: A structured review of child welfare and child mental health studies. Administration and Policy in Mental Health, 38(1), 54–63. https://doi.org/10.1007/s10488-010-0315-y
  • Lawoko, S. (2007). Factors influencing satisfaction and well-being among parents of congenital heart disease children: Development of a conceptual model based on the literature review. Scandinavian Journal of Caring Sciences, 21(1), 106–117. https://doi.org/10.1111/j.1471-6712.2007.00444.x
  • Lloyd, J., Jellinek, M. S., Little, M., Murphy, J., & Pagano, M. (1995). Screening for psychosocial dysfunction in pediatric inpatients. Clinical Pediatrics, 34(1), 18–24. https://doi.org/10.1177/000992289503400104
  • Maddux, M. H., Bass, J. A., Geraghty-Sirridge, C., Carpenter, E., & Christenson, K. (2013). Assessing psychosocial functioning among youth with newly diagnosed inflammatory bowel disease (IBD): An interdisciplinary clinic approach. Clinical Practice in Pediatric Psychology, 1(4), 333–343. https://doi.org/10.1037/cpp0000037
  • Marusak, H. A., Iadipaolo, A. S., Harper, F. W., Elrahal, F., Taub, J. W., Goldberg, E., & Rabinak, C. A. (2018). Neurodevelopmental consequences of pediatric cancer and its treatment: Applying an early adversity framework to understanding cognitive, behavioral, and emotional outcomes. Neuropsychology Review, 28(2), 123–175. https://doi.org/10.1007/s11065-017-9365-1
  • Marino, B. S., Lipkin, P. H., Newburger, J. W., Peacock, G., Gerdes, M., Gaynor, J. W., Mussatto, K. A., Uzark, K., Goldberg, C. S., Johnson, W. H., Jr., Li, J., Smith, S. E., Bellinger, D. C., & Mahle, W. T. (2012). Neurodevelopmental outcomes in children with congenital heart disease: evaluation and management: a scientific statement from the American Heart Association. Circulation, 126(9), 1143-1172. https://doi.org/10.1161/CIR.0b013e318265ee8a
  • Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G., PRISMA Group. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. PLoS Medicine, 6(7), e1000097. https://doi.org/10.1371/journal.pmed.1000097
  • Morrissey-Kane, E., & Prinz, R. J. (1999). Engagement in child and adolescent treatment: The role of parental cognitions and attributions. Clinical Child and Family Psychology Review, 2(3), 183–198. https://doi.org/10.1023/A:1021807106455
  • Owens, P. L., Hoagwood, K., Horwitz, S. M., Leaf, P. J., Poduska, J. M., Kellam, S. G., & Ialongo, N. S. (2002). Barriers to children’s mental health services. Journal of the American Academy of Child and Adolescent Psychiatry, 41(6), 731–738. https://doi.org/10.1097/00004583-200206000-00013
  • Peek, C. J., the National Integration Academy Council. (2013). Lexicon for behavioral health and primary care integration: Concepts and definitions developed by expert consensus (AHRQ Publication No.13-IP001-EF). Retrieved from https://integrationacademy.ahrq.gov/sites/default/files/Lexicon.pdf
  • Piazza-Waggoner, C., Roddenberry, A., Yeomans-Maldonado, G., Noll, J., & Ernst, M. M. (2013). Inpatient pediatric psychology consultation-liaison program development: 5-year practice patterns and implications for trends in health care. Clinical Practice in Pediatric Psychology, 1(1), 28–41. https://doi.org/10.1037/cpp0000008
  • Pinquart, M. (2019). Featured article: Depressive symptoms in parents of children with chronic health conditions: a meta-analysis. Journal of Pediatric Psychology, 44(2), 139–149. https://doi.org/10.1093/jpepsy/jsy075
  • Pinquart, M., & Shen, Y. (2011). Depressive symptoms in children and adolescents with chronic physical illness: An updated meta-analysis. Journal of Pediatric Psychology, 36(4), 375–384. https://doi.org/10.1093/jpepsy/jsq104
  • Pinquart, M., & Shen, Y. (2011). Anxiety in children and adolescents with chronic physical illnesses: A meta-analysis. Acta Paediatrica (Oslo, Norway: 1992), 100(8), 1069–1076. https://doi.org/10.1111/j.1651-2227.2011.02223.x
  • Pluye, P., & Hong, Q. N. (2014). Combining the power of stories and the power of numbers: Mixed methods research and mixed studies reviews. Annual Review of Public Health, 35(1), 29–45. https://doi.org/10.1146/annurev-publhealth-032013-182440
  • Price, J., Kassam-Adams, N., Alderfer, M. A., Christofferson, J., & Kazak, A. E. (2016). Systematic review: A reevaluation and update of the integrative (trajectory) model of pediatric medical traumatic stress. Journal of Pediatric Psychology, 41(1), 86–97. https://doi.org/10.1093/jpepsy/jsv074
  • Proctor, E., Silmere, H., Raghavan, R., Hovmand, P., Aarons, G., Bunger, A., Griffey, R., & Hensley, M. (2011). Outcomes for implementation research: Conceptual distinctions, measurement challenges, and research agenda. Administration and Policy in Mental Health, 38(2), 65–76. https://doi.org/10.1007/s10488-010-0319-7
  • Quittner, A. L., Abbott, J., Georgiopoulos, A. M., Goldbeck, L., Smith, B., Hempstead, S. E., Marshall, B., Sabadosa, K. A., & Elborn, S, EPOS Trial Study Group. (2016). International committee on mental health in cystic fibrosis: Cystic fibrosis foundation and European cystic fibrosis society consensus statements for screening and treating depression and anxiety. Thorax, 71(1), 26–34. https://doi.org/10.1136/thoraxjnl-2015-207488
  • Ramanuj, P. P., Talley, R., Breslau, J., Wang, S. S., & Pincus, H. A. (2018). Integrating behavioral health and primary care services for people with serious mental illness: A qualitative systems analysis of integration in New York. Community Mental Health Journal, 54(8), 1116–1126. https://doi.org/10.1007/s10597-018-0251-y
  • Richardson, L. P., Ludman, E., McCauley, E., Lindenbaum, J., Larison, C., Zhou, C., Clarke, G., Brent, D., & Katon, W. (2014). Collaborative care for adolescents with depression in primary care: A randomized clinical trial. JAMA, 312(8), 809–816. https://doi.org/10.1001/jama.2014.9259
  • Sheldrick, R. C., Merchant, S., & Perrin, E. C. (2011). Identification of developmental-behavioral problems in primary care: A systematic review. Pediatrics, 128(2), 356–363. https://doi.org/10.1542/peds.2010-3261
  • Shen, S., Doyle-Thomas, K. A., Beesley, L., Karmali, A., Williams, L., Tanel, N., & McPherson, A. C. (2017). How and why should we engage parents as co-researchers in health research? A scoping review of current practices. Health Expectations: An International Journal of Public Participation in Health Care and Health Policy, 20(4), 543–554.
  • Steele, M. M., Lochrie, A. S., & Roberts, M. C. (2010). Physician identification and management of psychosocial problems in primary care. Journal of Clinical Psychology in Medical Settings, 17(2), 103–115. https://doi.org/10.1007/s10880-010-9188-1
  • Struemph, K. L., Barhight, L. R., Thacker, D., & Sood, E. (2016). Systematic psychosocial screening in a paediatric cardiology clinic: Clinical utility of the Pediatric Symptom Checklist 17. Cardiology in the Young, 26(6), 1130–1136. https://doi.org/10.1017/S1047951115001900
  • Wagner, J. L., & Smith, G. (2007). Psychological services in a pediatric epilepsy clinic: Referral patterns and feasibility. Epilepsy & Behavior: E&B, 10(1), 129–133. https://doi.org/10.1016/j.yebeh.2006.11.002
  • Wiener, L., Kazak, A. E., Noll, R. B., Patenaude, A. F., & Kupst, M. J. (2015). Standards for the psychosocial care of children with cancer and their families: An introduction to the special issue. Pediatric Blood & Cancer, 62(S5), S419–S424. https://doi.org/10.1002/pbc.25675
  • Willmeroth, T., Wesselborg, B., & Kuske, S. (2019). Implementation outcomes and indicators as a new challenge in health services research: A systematic scoping review. Inquiry: The. Inquiry: a Journal of Medical Care Organization, Provision and Financing, 56, 46958019861257. https://doi.org/10.1177/0046958019861257
  • Woolf-King, S. E., Anger, A., Arnold, E. A., Weiss, S. J., & Teitel, D. (2017). Mental health among parents of children with critical congenital heart defects: A systematic review. Journal of the American Heart Association, 6(2), e004862. https://doi.org/10.1161/JAHA.116.004862
  • Yalug, I., Tufan, A. E., Doksat, K., & Yaluğ, K. (2011). Post-traumatic stress disorder and post-traumatic stress symptoms in parents of children with cancer: A review. Neurology. Psychiatry and Brain Research, 17(1), 27–31. https://doi.org/10.1016/j.npbr.2011.02.007
  • Yawn, B. P., Olson, A. L., Bertram, S., Pace, W., Wollan, P., & Dietrich, A. J. (2012). Postpartum depression: Screening, diagnosis, and management programs 2000 through 2010. Depression Research and Treatment, 2012, 363964–363964. https://doi.org/10.1155/2012/363964

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.