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Accountability in Research
Ethics, Integrity and Policy
Volume 26, 2019 - Issue 7
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Enriching our understanding of vulnerability through the experiences and perspectives of individuals living with mental illness

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References

  • Aho, K., ed. 2018. Existential Medicine: Essays on Health and Illness. New York: Rowman & Littlefield.
  • Bracken-Roche, D., E. Bell, M. E. Macdonald, and E. Racine. 2017. “The Concept of ‘vulnerability’ in Research Ethics: An In-Depth Analysis of Policies and Guidelines.” Health Research Policy and Systems 15 (1): 8. doi:10.1186/s12961-016-0164-6.
  • Bracken-Roche, D., E. Bell, and E. Racine. 2016. “The ‘vulnerability’ of Psychiatric Research Participants: Why This Research Ethics Concept Needs to Be Revisited.” The Canadian Journal of Psychiatry 61 (6): 335–339. doi:10.1177/0706743716633422.
  • Cascio, M. A., and E. Racine. 2018. “Person-Oriented Research Ethics: Integrating Relational and Everyday Ethics in Research.” Accountability in Research 25 (3): 170–197. doi:10.1080/08989621.2018.1442218.
  • Cascio, M. A., and E. Racine, eds. 2019. Research Involving Participants with Cognitive Disabilities & Differences: Ethics, Autonomy, Inclusion, and Innovation. Oxford: Oxford University Press.
  • Dodds, S. 2008. “Inclusion and Exclusion in Women’s Access to Health and Medicine.” International Journal of Feminist Approaches to Bioethics 1 (2): 58–79. doi:10.3138/ijfab.1.2.58.
  • DuBois, J. M., L. Beskow, J. Campbell, K. Dugosh, D. Festinger, S. Hartz, R. James, and C. Lidz. 2012. “Restoring Balance: A Consensus Statement on the Protection of Vulnerable Research Participants.” American Journal of Public Health 102 (12): 2220–2225. doi:10.2105/AJPH.2012.300757.
  • Emanuel, E. J., and C. Grady. 2007. “Four Paradigms of Clinical Research and Research Oversight.” Cambridge Quarterly of Healthcare Ethics 16 (1): 82–96. doi:10.1017/S0963180107070090.
  • Fernandez, A. V. 2019. “Phenomenology and Dimensional Approaches to Psychiatric Research and Classification.” Philosophy, Psychiatry, & Psychology 26 (1): 65–75. doi:10.1353/ppp.2019.0004.
  • Fiester, A. M. 2015. “Weaponizing Principles: Clinical Ethics Consultations & the Plight of the Morally Vulnerable.” Bioethics 29 (5): 309–315. doi:10.1111/bioe.12115.
  • Frith, L. 2012. “Symbiotic Empirical Ethics: A Practical Methodology.” Bioethics 26 (4): 198–206. doi:10.1111/j.1467-8519.2010.01843.x.
  • Goldstein, S. E. 2017. “Reflexivity in Narrative Research: Accessing Meaning through the Participant-Researcher Relationship.” Qualitative Psychology 4 (2): 149. doi:10.1037/qup0000035.
  • Hurst, S. A. 2008. “Vulnerability in Research and Health Care; Describing the Elephant in the Room?” Bioethics 22 (4): 191–202. doi:10.1111/j.1467-8519.2008.00631.x.
  • Jackson, J. 2019. “Phenomenological Psychopathology and America’s Social Life-World.” In The Oxford Handbook of Phenomenological Psychopathology, edited by G. Stanghellini, A. Raballo, M. Broome, A. V. Fernandez, P. Fusar-Poli, and R. Rosfort. Oxford: Oxford University Press.
  • Kipnis, K. 2001. “Vulnerability in Research Subjects: A Bioethical Taxonomy.” In Vol 2. of Ethical and Policy Issues in Research Involving Human Participant, edited by The National Bioethics Advisory Commission. Bethesda. National Bioethics Advisory Commission. G1–G13.
  • Kipnis, K. 2003. “Seven Vulnerabilities in the Pediatric Research Subject.” Theoretical Medicine and Bioethics 24 (2): 107–120. doi:10.1023/A:1024646912928.
  • Lajoie, C. 2019. “Being at Home: A Feminist Phenomenology of Disorientation in Illness.” Hypatia 34 (3): 546–569. doi:10.1111/hypa.12476.
  • Lajoie, C., J. Poleksic, D. Bracken-Roche, M. A. MacDonald, and E. Racine. Under review. “The Concept of Vulnerability in Mental Health Research: A Mixed Methods Study on Researcher Perspectives.” Journal of Empirical Research on Human Research Ethics.
  • Levine, C., R. Faden, C. Grady, D. Hammerschmidt, L. Eckenwiler, and J. Sugarman. 2004. “The Limitations of ‘Vulnerability’ as a Protection for Human Research Participants.” The American Journal of Bioethics 4 (3): 44–49. doi:10.1080/15265160490497083.
  • Luna, F. 2009. “Elucidating the Concept of Vulnerability: Layers Not Labels.” International Journal of Feminist Approaches to Bioethics 2 (1): 121–139. doi:10.3138/ijfab.2.1.121.
  • Mackenzie, C., W. Rogers, and S. Dodds, eds. 2014. Vulnerability: New Essays in Ethics and Feminist Philosophy. Oxford: Oxford University Press.
  • Messas, G., M. Tamelini, M. Mancini, and G. Stanghellini. 2018. “New Perspectives in Phenomenological Psychopathology: Its Use in Psychiatric Treatment.” Frontiers in Psychiatry 9: 466. doi:10.3389/fpsyt.2018.00466.
  • Racine, E., and D. Bracken-Roche. 2019. “Enriching the Concept of Vulnerability in Research Ethics: An Integrative and Functional Account.” Bioethics 33 (1): 19–34. doi:10.1111/bioe.12471.
  • Racine, E., M. A. Cascio, and A. Bogossian. 2017. “Instrumentalist Analyses of the Functions of Health Ethics Concepts and Principles: Methodological Guideposts.” The American Journal of Bioethics 17 (12): 16–18.160. doi:10.1080/15265161.2017.1388869.
  • Racine, E., M. A. Cascio, M. Montreuil, and A. Bogossian. 2019. “Instrumentalist Analyses of the Functions of Ethics Concept-principles: A Proposal for Synergetic Empirical and Conceptual Enrichment.” Theoretical Medicine and Bioethics. 40 (4): 253–278. doi:10.1007/s11017-019-09502-y.
  • Rössler, W. 2016. “The Stigma of Mental Disorders: A Millennia-long History of Social Exclusion and Prejudices.” EMBO Reports 17 (9): 1250–1253. doi:10.15252/embr.201643041.
  • Ruof, M. C. 2004. “Vulnerability, Vulnerable Populations, and Policy.” Kennedy Institute of Ethics Journal 14 (4): 411–425. doi:10.1353/ken.2004.0044.
  • Schroeder, D., and E. Gefenas. 2009. “Vulnerability: Too Vague and Too Broad?” Cambridge Quarterly of Healthcare Ethics 18 (2): 113–121. doi:10.1017/S0963180109090203.
  • Smith, J. A., and M. Osborn. 2015. “Interpretative Phenomenological Analysis as a Useful Methodology for Research on the Lived Experience of Pain.” British Journal of Pain 9 (1): 41–42. doi:10.1177/2049463714541642.
  • Stanghellini, G., M. Broome, A. Fernandez, P. Fusar Poli, A. Raballo, and R. Rosfort, eds. 2019. The Oxford Handbook of Phenomenological Psychopathology. Oxford: Oxford University Press.
  • Ten Have, H. 2016. Vulnerability: Challenging Bioethics. London: Routledge.
  • Zeiler, K., and L. F. Käll, eds. 2014. Feminist Phenomenology and Medicine. Albany: State University of New York Press.

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