The risk-benefit ratio of studying psychiatric symptoms via daily diary methods

References

• Biddle, L., J. Cooper, A. Owen-Smith, E. Klineberg, O. Bennewith, K. Hawton, N. Kapur, J. Donovan, and D. Gunnell. 2013. “Qualitative Interviewing with Vulnerable Populations: Individuals’ Experiences of Participating in Suicide and Self-harm Based Research.” Journal of Affective Disorders 145 (3): 356–362. doi:10.1016/j.jad.2012.08.024.
   PubMed Web of Science ®Google Scholar
• Blevins, C. A., F. W. Weathers, M. T. Davis, T. K. Witte, and J. L. Domino. 2015. “The Posttraumatic Stress Disorder Checklist for DSM‐5 (Pcl‐5):Development and Initial Psychometric Evaluation.” Journal of Traumatic Stress 28 (6): 489–498. doi:10.1002/jts.22059.
   PubMed Web of Science ®Google Scholar
• Bolger, N., A. Davis, and E. Rafaeli. 2003. “Diary Methods: Capturing Life as It Is Lived.” Annual Review of Psychology 54 (1): 579–616. doi:10.1146/annurev.psych.54.101601.145030.
   PubMed Web of Science ®Google Scholar
• Brent, D. A. 2009. “"The Treatment Of Adolescent Suicide Attempters Study (Tasa): Predictors Of Suicidal Events in an Open Treatment Trial.".” Journal Of The American Academy Of Child & Adolescent Psychiatry 48 (10): 987–996. doi: 10.1097/chi.0b013e3181b5dbe4.
   PubMed Web of Science ®Google Scholar
• de Beurs, D. P., R. Ghoncheh, A. S. Geraedts, and A. J. F. M. Kerkhof. 2016. “Psychological Distress because of Asking about Suicidal Thoughts: A Randomized Controlled Trial among Students.” Archives of Suicide Research 20 (2): 153–159. doi:10.1080/13811118.2015.1004475.
   PubMed Web of Science ®Google Scholar
• DePrince, A. P., and A. Chu. 2008. “Perceived Benefits in Trauma Research: Examining Methodological and Individual Difference Factors in Responses to Research Participation.” Journal Of Empirical Research on Human Research Ethics 3 (1): 35-47. doi: 10.1525/jer.2008.3.1.35.
   PubMed Web of Science ®Google Scholar
• Eisenberg, D., M. F. Downs, E. Golberstein, and K. Zivin. 2009. “Stigma and Help Seeking for Mental Health among College Students.” Medical Care Research and Review 66: 522–541. doi:10.1177/1077558709335173.
   PubMed Web of Science ®Google Scholar
• Festinger, L. 1962. A Theory of Cognitive Dissonance. Palo Alto: Stanford University Press.
   Google Scholar
• Fraser, L., M. Burnell, L. Currin Salter, E. Fourkala, J. Kalsi, A. Ryan, S. Gessler, Y. Gidron, A. Steptoe, and U. Menon. 2014. “Identifying Hopelessness in Population Research: a Validation Study Of Two Brief Measures Of Hopelessness.” Bmj Open 4 (5): e005093. doi: 10.1136/bmjopen-2014-005093.
   PubMed Web of Science ®Google Scholar
• Gibson, S., Z. V. R. Boden, O. Benson, and S. L. Brand. 2014. “The Impact of Participating in Suicide Research Online.” Suicide and Life-Threatening Behavior 44 (4): 372–383. doi:10.1111/sltb.12082.
   PubMed Web of Science ®Google Scholar
• Gratz, K. L. 2001. “Measurement of Deliberate Self-harm: Preliminary Data on the Deliberate Self-Harm Inventory.” Journal of Psychopathology and Behavioral Assessment 23 (4): 253–263. doi:10.1037/t04163-000.
   Web of Science ®Google Scholar
• Harris, K. M., and M. T. Goh. 2017. “Is Suicide Assessment Harmful to Participants? Findings from a Randomized Controlled Trial.” International Journal of Mental Health Nursing 26 (2): 181–190. doi:10.1111/inm.12223.
   PubMed Web of Science ®Google Scholar
• Hesse, C. A., C. Strauss, R. C. Shorey, G. L. Stuart, and T. L. Cornelius. 2018. “Examination of the Transient Changes in Affect Resulting from Participation in Research Addressing Intimate Partner Violence.” Journal of Interpersonal Violence: 088626051879517. Advance online publication. doi:10.1177/0886260518795172.
   Google Scholar
• Iltis, A. S., S. Misra, L. B. Dunn, G. K. Brown, A. Campbell, S. A. Earll, A. Glowinski, W. B. Hadley, R. Pies, and J. M. DuBois. 2013. “Addressing Risks to Advance Mental Health Research.” JAMA Psychiatry 70 (12): 1363–1371. doi:10.1001/jamapsychiatry.2013.2105.
   PubMed Web of Science ®Google Scholar
• Jacomb, P. A., A. F. Jorm, B. Rodgers, A. E. Korten, S. Henderson, and H. Christensen. 1999. “Emotional Response of Participants to a Mental Health Survey.” Social Psychiatry and Psychiatric Epidemiology 34 (2): 80–84. doi:10.1007/s001270050115.
   PubMed Web of Science ®Google Scholar
• Jorm, A. F., C. M. Kelly, and A. J. Morgan. 2007. “Participant Distress in Psychiatric Research: A Systematic Review.” Psychological Medicine 37 (7): 917–926. doi:10.1017/s0033291706009779.
   PubMed Web of Science ®Google Scholar
• Lakeman, R., and M. FitzGerald. 2009. “The Ethics of Suicide Research: The Views of Ethics Committee Members.” Crisis 30 (1): 13–19. doi:10.1027/0227-5910.30.1.13.
   PubMedGoogle Scholar
• Langhinrichsen-Rohling, J., C. Arata, N. O’Brien, and D. Bower. 2006. “Just How Upsetting are Self-Report Surveys Anyway?” Violence and Victims 21 (4): 425–444. doi:10.1891/0886-6708.21.4.425.
   PubMedGoogle Scholar
• Law, M. K., R. Michael Furr, E. M. Arnold, M. Mneimne, C. Jaquett, and W. Fleeson. 2015. “Does Assessing Suicidality Frequently and Repeatedly Cause Harm? A Randomized Control Study.” Psychological Assessment 27 (4): 1171–1181. doi:10.1037/pas0000118.
   PubMed Web of Science ®Google Scholar
• Lidz, C. W., and S. Garverich. 2013. “What The Anprm Missed: Additional Needs for Irb Reform.” The Journal Of Law, Medicine & Ethics 41 (2): 390–396. doi: 10.1111/jlme.12050.
   PubMed Web of Science ®Google Scholar
• Luebbert, R., R. C. Tait, J. T. Chibnall, and T. L. Deshields. 2008. “IRB Member Judgments of Decisional Capacity, Coercion, and Risk in Medical and Psychiatric Studies.” Journal of Empirical Research on Human Research Ethics 3 (1): 15–24. doi:10.1525/jer.2008.3.1.15.
   PubMed Web of Science ®Google Scholar
• Mathias, C. W., R. Michael Furr, A. H. Sheftall, N. Hill‐Kapturczak, P. Crum, and D. M. Dougherty. 2012. “What’s the Harm in Asking about Suicidal Ideation?” Suicide and Life-Threatening Behavior 42 (3): 341–351. doi:10.1111/j.1943-278x.2012.0095.x.
   PubMed Web of Science ®Google Scholar
• Metalsky, Gerald., and Thomas E. Joiner. "The Hopelessness Depression Symptom Questionnaire." Cognitive Therapy and Research 21, no. 3 (1997): 359–384
   Google Scholar
• Muehlenkamp, J. J., L. P. Swenson, K. L. Batejan, and S. M. Jarvi. 2015. “Emotional and Behavioral Effects of Participating in an Online Study of Nonsuicidal Self- Injury: An Experimental Analysis.” Clinical Psychological Science 3 (1): 26–37. doi:10.1177/2167702614531579.
   Web of Science ®Google Scholar
• Newman, E., T. Willard, R. Sinclair, and D. Kaloupek. 2001. “Empirically Supported Ethical Research Practice: The Costs and Benefits of Research from the Participants’ View.” Accountability in Research 8 (4): 309–329. doi:10.1080/08989620108573983.
   PubMedGoogle Scholar
• Oldham, J. M., S. Haimowitz, and S. J. Delano. 1999. “Protection of Persons with Mental Disorders from Research Risk: A Response to the Report of the National Bioethics Advisory Commission.” Archives of General Psychiatry 56 (8): 688–693. doi:10.1001/archpsyc.56.8.688.
   PubMed Web of Science ®Google Scholar
• Posner, K. 2011. “"The Columbia–suicide Severity Rating Scale: Initial Validity and Internal Consistency Findings from Three Multisite Studies with Adolescents and Adults.".” American Journal Of Psychiatry 168 (12): 1266–1277. doi: 10.1176/appi.ajp.2011.10111704.
   PubMed Web of Science ®Google Scholar
• Radloff, L. S. 1977. “The Ces-d Scale: a Self-report Depression Scale for Research in The General Population.” Applied Psychological Measurement 1 (3): 385-401. doi: 10.1177/014662167700100306.
   Web of Science ®Google Scholar
• Reynolds, S. K., N. Lindenboim, K. A. Comtois, A. Murray, and M. M. Linehan. 2006. “Risky Assessments: Participant Suicidality and Distress Associated with Research Assessments in a Treatment Study of Suicidal Behavior.” Suicide and Life- Threatening Behavior 36 (1): 19–34. doi:10.1521/suli.2006.36.1.19.
   PubMed Web of Science ®Google Scholar
• Rivlin, A., L. Marzano, K. Hawton, and S. Fazel. 2012. “Impact on Prisoners of Participating in Research Interviews Related to Near-lethal Suicide Attempts.” Journal of Affective Disorders 136 (1–2): 54–62. doi:10.1016/j.jad.2011.09.009.
   PubMed Web of Science ®Google Scholar
• Roth, A. M., J. Rossi, J. L. Goldshear, Q. Truong, R. F. Armenta, S. E. Lankenau, R. S. Garfein, and J. Simmons. 2017b. “Potential Risks of Ecological Momentary Assessment among Persons Who Inject Drugs.” Substance Use & Misuse 52 (7): 840–847. doi:10.1080/10826084.2016.1264969.
   PubMed Web of Science ®Google Scholar
• Roth, A. M., M. Felsher, M. Reed, J. L. Goldshear, Q. Truong, R. S. Garfein, and J. Simmons. 2017a. “Potential Benefits of Using Ecological Momentary Assessment to Study High-risk Polydrug Use.” mHealth 3 (10): 46–56. doi:10.21037/mhealth.2017.10.01.
   PubMedGoogle Scholar
• Saunders, J. B. 1993. “"Development Of The Alcohol Use Disorders Identification Test (Audit): Who Collaborative Project on Early Detection Of Persons with Harmful Alcohol Consumption#ii.".” Addiction 88 (6): 791–804.
   PubMed Web of Science ®Google Scholar
• Shiffman, S., A. A. Stone, and M. R. Hufford. 2008. “Ecological Momentary Assessment.” Annual Review of Clinical Psychology 4: 1–32. doi:10.1093/oxfordhb/9780199381708.013.1.
   PubMed Web of Science ®Google Scholar
• Smith, P., K. Cukrowicz, and E. Poindexter. 2010. “The Effect of Participating in Suicide Research: Does Participating in a Research Protocol on Suicide and Psychiatric Symptoms Increase Suicide Ideation and Attempts?” Suicide and Life-Threatening Behavior 40 (6): 535–543. doi:10.1521/suli.2010.40.6.535.
   PubMed Web of Science ®Google Scholar
• Stuart, G. L., T. M. Moore, S. E. Ramsey, and C. W. Kahler. 2004. “Hazardous Drinking and Relationship Violence Perpetration and Victimization in Women Arrested for Domestic Violence.” Journal of Studies on Alcohol 65 (1): 46–53. doi:10.15288/jsa.2004.65.46.
   PubMed Web of Science ®Google Scholar
• United States Department of Health and Human Services. 2009. “Protection of Human Subjects.” 45 CFR §46. http://www.hhs.gov/ohrp/humansubjects/guidance/45cfr46.html
   Google Scholar
• Whitlock, J., C. Pietrusza, and A. Purington. 2013. “Young Adult Respondent Experiences of Disclosing Self-injury, Suicide-related Behavior, and Psychological Distress in a Web-based Survey.” Archives of Suicide Research 17 (1): 20–32. doi:10.1080/13811118.2013.748405.
   PubMed Web of Science ®Google Scholar
• Yurek, L. A., J. Vasey, and D. Sullivan Havens. 2008. “The Use of Self-generated Identification Codes in Longitudinal Research.” Evaluation Review 32 (5): 435–452. doi:10.1177/0193841x08316676.
   PubMed Web of Science ®Google Scholar