Publication Cover
Accountability in Research
Ethics, Integrity and Policy
Volume 7, 1999 - Issue 2-4
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Original Articles

Engaging the public in policy development: The national bioethics advisory commission report on research involving persons with mental disorders that may affect decisionmaking capacity

Pages 227-239 | Published online: 11 Jun 2008

References

  • Canada, Royal Commission on New Reproductive Technologies . 1993 . Proceed with Care: Final Report of the Royal Commission on New Reproductive Technologies , 2 Vols , Ottawa : Ministry of Government Services .
  • Charles , C. and DeMaio , S. 1993 . Lay participation in health care decision making: a conceptual framework . Journal of Health Politics, Policy and Law , 18 : 881 – 904 .
  • Executive Order (1995). 12975. 60 Fed. Reg. 52,063.
  • Ellenberg , D. 1981 . Participation is not enough. In Citizens and Health Care: Participation and Planning for Social Change , Edited by: Checckoway , B. New York : Pergammon .
  • Federal Advisory Committee Act (1998). 5 U.S.C. app.
  • French National Consultative Ethics Committee for Health and life Sciences . 1998 . Opinions, Recommendations, Reports 1984–1997 Paris
  • Jennings , B. 1993 . Health policy in a new key: setting democratic priorities . Journal of Social Issues , 49 : 169 – 84 .
  • National Bioethics Advisory Commission, Human Subjects Subcommittee (1996). Transcripts, December 16.
  • National Bioethics Advisory Commission . 1997 . Cloning Human Beings Rockville, Maryland
  • National Bioethics Advisory Commission . 1998 . Research Involving Persons with Mental Disorders that May Affect Decisionmaking Capacity. Rockville, Maryland
  • National Bioethics Advisory Commission . July 1 1998a . Draft Report on Research Involving Persons with Mental Disorders that May Affect Decisionmaking Capacity July 1 , 1998.
  • National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research . 1978 . Report on Research Involving Persons Institutionalized as Mentally Infirm , DHEW .
  • United Kingdom, The Human Genetics Advisory Commission, and The Human Fertilisation and Embryology Authority . 1998 . Cloning Issues in Reproductive, Science and Medicine London
  • Corresponding author: E‐mail: [email protected].

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