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Original Articles

Measuring health-related stigma—A literature review

Pages 307-334 | Published online: 23 Jan 2007

References

  • Adetunji , J. and Meekers , D. 2001 . Consistency in condom use in the context of HIV/AIDS in Zimbabwe . Journal of Biosocial Science , 33 : 121 – 138 .
  • Anandaraj , H. 1995 . Measurement of dehabilitation in patients of leprosy—A scale . Indian Journal of Leprosy , 67 : 153 – 160 .
  • Angermeyer , M. C. and Matschinger , H. 1996 . The effect of personal experience with mental illness on the attitude towards individuals suffering from mental disorders . Social Psychiatry and Psychiatric Epidemiology , 31 : 321 – 326 .
  • Angermeyer , M. C. and Matschinger , H. 2003 . The stigma of mental illness: Effects of labelling on public attitudes towards people with mental disorder . Acta Psychiatrica Scandinavica , 108 : 304 – 309 .
  • Arole , S. , Premkumar , R. , Arole , R. , Maury , M. and Saunderson , P. 2002 . Social stigma: A comparative qualitative study of integrated and vertical care approaches to leprosy . Leprosy Review , 73 : 186 – 196 .
  • Austin , J. K. and Huberty , T. J. 1993 . Development of the Child Attitude Toward Illness Scale . Journal of Pediatric Psychology , 18 : 467 – 480 .
  • Austin , J. K. , MacLeod , J. , Dunn , D. W. , Shen , J. and Perkins , S. M. 2004 . Measuring stigma in children with epilepsy and their parents: Instrument development and testing . Epilepsy & Behavior , 5 : 472 – 482 .
  • Austin , J. K. , Shafer , P. O. and Deering , J. B. 2002 . Epilepsy familiarity, knowledge, and perceptions of stigma: Report from a survey of adolescents in the general population . Epilepsy & Behavior , 3 : 368 – 375 .
  • Awofeso , N. 1992 . Appraisal of the knowledge and attitude of Nigerian nurses toward leprosy . Leprosy Review , 63 : 169 – 172 .
  • Aziz , H. , Akhtar , S. W. and Hasan , K. Z. 1997 . Epilepsy in Pakistan: Stigma and psychosocial problems. A population-based epidemiologic study . Epilepsia , 38 : 1069 – 1073 .
  • Baker , G. A. , Brooks , J. , Buck , D. and Jacoby , A. 2000 . The stigma of epilepsy: A European perspective . Epilepsia , 41 : 98 – 104 .
  • Bangsberg , D. R. , Hecht , F. M. , Charlebois , E. D. , Zolopa , A. R. , Holodniy , M. Sheiner , L. 2000 . Adherence to protease inhibitors, HIV-1 viral load, and development of drug resistance in an indigent population . AIDS , 14 : 357 – 366 .
  • Bangsberg , D. R. , Moss , A. R. and Deeks , S. G. 2004 . Paradoxes of adherence and drug resistance to HIV antiretroviral therapy . Journal of Antimicrobial Chemotherapy , 53 : 696 – 699 .
  • Berger , B. E. , Ferrans , C. E. and Lashley , F. R. 2001 . Measuring stigma in people with HIV: Psychometric assessment of the HIV stigma scale . Research in Nursing & Health , 24 : 518 – 529 .
  • Blumenfield , M. , Smith , P. J. , Milazzo , J. , Seropian , S. and Wormser , G. P. 1987 . Survey of attitudes of nurses working with AIDS patients . General Hospital Psychiatry , 9 : 58 – 63 .
  • Booth , R. J. and Ashbridge , K. R. 1993 . A fresh look at the relationship between the Psyche and Immune system: Teleological coherence and harmony of purpose . The Journal of Mind-Body Health , 9 : 8 – 23 .
  • Briden , A. and Maguire , E. 2003 . An assessment of knowledge and attitudes towards amongst leprosy/Hansen's disease workers in Guyana . Leprosy Review , 74 : 154 – 162 .
  • Brieger , W. R. , Oshiname , F. O. and Ososanya , O. O. 1998 . Stigma associated with onchocercal skin disease among those affected near the Ofiki and Oyan Rivers in western Nigeria . Social Science & Medicine , 47 : 841 – 852 .
  • Carael , M. , Curran , L. , Gacad , E. , Gnaore , E. , Harding , R. Mandofia , B. M. 2000 . Protocol for the identification of discrimination against people living with HIV , Geneva : UNAIDS. .
  • Cardol , M. , de Haan , R. J. RN , de Jong , B. A. , van den Bos , G. A. M. and de Groot , I. J. M. 2001 . Psychometric properties of the impact on participation and autonomy questionnaire . Archives of Physical Medicine & Rehabilitation , 82 : 210 – 215 .
  • Cardol , M. , de Haan , R. J. , van den Bos , G. A. M. , de Jong , B. A. and de Groot , I. J. 1999 . The development of a handicap assessment questionnaire: The Impact on Participation and Autonomy (IPA) . Clinical Rehabilitation , 13 : 411 – 419 .
  • Chen , P. C. 1986 . Human behavioural research applied to the leprosy control programme of Sarawak, Malaysia . Southeast Asian Journal of Tropical Medicine and Public Health , 17 : 421 – 426 .
  • Cohen , J. and Struening , E. L. 1962 . Opinions about mental illness in the personnel of two large mental hospitals . Journal of Abnormal and Social Psychology , 64 : 349 – 360 .
  • Conrad , P. 1985 . The meaning of medications: Another look at compliance . Social Science & Medicine , 20 : 29 – 37 .
  • Corrigan , P. W. , Green , A. , Lundin , R. , Kubiak , M. A. and Penn , D. L. 2001a . Familiarity with and social distance from people who have serious mental illness . Psychiatric Services , 52 : 953 – 958 .
  • Corrigan , P. W. , River , L. P. , Lundin , R. K. , Penn , D. L. , Uphoff-Wasowski , K. Campion , J. 2001b . Three strategies for changing attributions about severe mental illness . Schizophrenia Bulletin , 27 : 187 – 195 .
  • Corrigan , P. W. , Rowan , D. , Green , A. , Lundin , R. , River , P. Uphoff-Wasowski , K. 2002 . Challenging two mental illness stigmas: Personal responsibility and dangerousness . Schizophrenia Bulletin , 28 : 293 – 309 .
  • Corrigan , P. W. , Watson , A. C. , Warpinski , A. C. and Gracia , G. 2004 . Stigmatizing attitudes about mental illness and allocation of resources to mental health services . Community Mental Health Journal , 40 : 297 – 307 .
  • Cramer , J. A. , Westbrook , L. E. , Devinsky , O. , Perrine , K. , Glassman , M. B. and Camfield , C. 1999 . Development of the Quality of Life in Epilepsy Inventory for Adolescents: The QOLIE-AD-48 . Epilepsia , 40 : 1114 – 1121 .
  • Croft , R. P. and Croft , R. A. 1999 . Knowledge, attitude and practice regarding leprosy and tuberculosis in Bangladesh . Leprosy Review , 70 : 34 – 42 .
  • de Stigter , D. H. , de Geus , L. and Heynders , M. L. 2000 . Leprosy: Between acceptance and segregation. Community behaviour towards persons affected by leprosy in eastern Nepal . Leprosy Review , 71 : 492 – 498 .
  • Dubbert , P. M. , Kemppainen , J. K. and White-Taylor , D. 1994 . Development of a measure of willingness to provide nursing care to AIDS patients . Nursing Administration Quarterly , 18 : 16 – 21 .
  • Frist , T. F. 1996 . “Don't treat me like I have leprosy!” , (First ed.) , London : TALMILEP. .
  • Froman , R. D. and Owen , S. V. 2001 . Measuring attitudes toward persons with AIDS: The AAS-G as an alternate form of the AAS . Scholarly Inquiry for Nursing Practice , 15 : 161 – 174 .
  • Froman , R. D. and Owen , S. V. 1997 . Further validation of the AIDS Attitude Scale . Research in Nursing & Health , 20 : 161 – 167 .
  • Froman , R. D. , Owen , S. V. and Daisy , C. 1992 . Development of a measure of attitudes toward persons with AIDS . Image Journal of Nursing Scholarship , 24 : 149 – 152 .
  • Gopal , P. K. 1998 . Social and economic integration , Tokyo : Sasakawa .
  • Gyapong , M. , Gyapong , J. O. , Adjei , S. , Vlassoff , C. and Weiss , M. 1996 . Filariasis in northern Ghana: Some cultural beliefs and practices and their implications for disease control . Social Science & Medicine , 43 : 235 – 242 .
  • Harrison , M. , Fusilier , M. R. and Worley , J. K. 1994 . Development of a measure of nurses' AIDS attitudes and conservative views . Psychological Reports , 74 : 1043 – 1048 .
  • Harwood , R. H. , Rogers , A. , Dickinson , E. and Ebrahim , S. 1994 . Measuring handicap: The London Handicap Scale, a new outcome measure for chronic disease . Quality in Health Care , 3 : 11 – 16 .
  • Heijnders , M. L. 2002 . Understanding adherence in leprosy. Understanding adherence in leprosy. Experiencing and making sense of leprosy and its treatment in its social context. A qualitative study conducted in the eastern Terai region of Nepal , London : Faculty of Health, South Bank University . 2002. Ph.D. thesis
  • Heimlich , T. E. , Westbrook , L. E. , Austin , J. K. , Cramer , J. A. and Devinsky , O. 2000 . Adolescents' attitudes toward epilepsy: Further validation of the Child Attitude Toward Illness Scale (CATIS) . Journal of Pediatric Psychology , 25 : 339 – 345 .
  • Hyman , M. D. 1971 . The stigma of stroke. Its effects on performance during and after rehabilitation . Geriatrics , 26 : 132 – 141 .
  • Jacoby , A. 1994 . Felt versus enacted stigma: A concept revisited. Evidence from a study of people with epilepsy in remission . Social Science & Medicine , 38 : 269 – 274 .
  • Jacoby , A. , Baker , G. A. , Smith , D. , Dewey , D. and Chadwick , D. 1993 . Measuring the impact of epilepsy: The development of a novel scale . Epilepy Research , 16 : 83 – 88 .
  • Jacoby , A. , Gorry , J. , Gamble , C. and Baker , G. A. 2004 . Public knowledge, private grief: A study of public attitudes to epilepsy in the United Kingdom and implications for stigma . Epilepsia , 45 : 1405 – 1415 .
  • Jaramillo , E. 1998 . Pulmonary tuberculosis and health-seeking behaviour: How to get a delayed diagnosis in Cali, Colombia . Tropical Medicine & International Health , 3 : 138 – 144 .
  • Johansson , E. , Long , N. H. , Diwan , V. K. and Winkvist , A. 2000 . Gender and tuberculosis control: Perspectives on health seeking behaviour among men and women in Vietnam . Health Policy , 52 : 33 – 51 .
  • Kaur , H. and Van Brakel , W. 2002 . Dehabilitation of leprosy-affected people—A study on leprosy-affected beggars . Leprosy Review , 73 : 346 – 355 .
  • Kuptniratsaikul , V. , Smerasuta , O. and Klomjaiyen , P. 2002 . The perceived handicap questionnaire: A self perceived handicap measurement in patients with spinal cord injury . Journal of the Medical Association of Thailand , 85 : 935 – 939 .
  • Link , B. G. and Phelan , J. C. 2001 . On stigma and its public health implications http://www.stigmaconference.nih.gov/FinalLinkPaper.html
  • Link , B. G. and Phelan , J. C. 2002 . “ The labelling theory of mental disorder (II): The consequences of labelling ” . In The Sociology of mental health , Edited by: Horwitz , A. V. and Scheid-Cook , T. 361 – 376 . Cambridge : Cambridge University Press .
  • Link , B. G. , Yang , L. H. , Phelan , J. C. and Collins , P. Y. 2004 . Measuring mental illness stigma . Schizophrenia Bulletin , 30 : 511 – 541 .
  • Lo , R. , Harwood , R. , Woo , J. , Yeung , F. and Ebrahim , S. 2001 . Cross-cultural validation of the London Handicap Scale in Hong Kong Chinese . Clinical Rehabilitation , 15 : 177 – 185 .
  • Long , N. H. , Johansson , E. , Diwan , V. K. and Winkvist , A. 2001 . Fear and social isolation as consequences of tuberculosis in VietNam: A gender analysis . Health Policy , 58 : 69 – 81 .
  • Moriya , T. M. , Gir , E. and Hayashida , M. 1994 . [A scale of attitudes towards AIDS: A psychometric analysis] . Revista Latino-americana de Enfermagem , 2 : 37 – 53 .
  • Mulford , C. L. and Lee , M. Y. 1996 . Reliability and validity of AIDS victim blaming scales . Psychological Reports , 79 : 191 – 201 .
  • Myint , T. , Thet , A. T. , Htoon , M. T. and Win , M. 1992 . A comparative KAP study of leprosy patients and members of the community in Hlaing and Laung-Lon townships . Indian Journal of Leprosy , 64 : 313 – 324 .
  • Neil , J. A. 2001 . The stigma scale: Measuring body image and the skin . Plastic Surgical Nursing , 21 : 79 – 82, 87 .
  • Ngamvithayapong , J. , Winkvist , A. and Diwan , V. 2000 . High AIDS awareness may cause tuberculosis patient delay: Results from an HIV epidemic area, Thailand . AIDS , 14 : 1413 – 1419 .
  • Nicholls , P. G. , Wiens , C. and Smith , W. C. 2003 . Delay in presentation in the context of local knowledge and attitude towards leprosy—The results of qualitative fieldwork in Paraguay . International Journal of Leprosy and Other Mycobacterial Diseases , 71 : 198 – 209 .
  • Noreau , L. , Desrosiers , J. , Robichaud , L. , Fougeyrollas , P. , Rochette , A. and Viscogliosi , C. 2004 . Measuring social participation: Reliability of the LIFE-H in older adults with disabilities . Disability and Rehabilitation , 26 : 346 – 352 .
  • Noreau , L. , Fougeyrollas , P. and Vincent , C. 2002 . The LIFE-H: Assessment of the quality of social participation . Technology and Disability , 14 : 113 – 118 .
  • Nyblade , L. , Pande , R. , Mathur , S. , MacQuarrie , K. , Kidd , R. Banteyerga , H. 2003 . Disentangling HIV and AIDS stigma in Ethiopia, Tanzania and Zambia , International Centre for Research on Women .
  • O'Hea , E. L. , Sytsma , S. E. , Copeland , A. and Brantley , P. J. 2001 . The Attitudes Toward Women with HIV/AIDS Scale (ATWAS): Development and validation . AIDS Education and Prevention , 13 : 120 – 130 .
  • Pan-African Study Group on Onchocercal Skin Disease . 1995 . The Importance of Onchocercal Skin Disease: Report of a Multi-Country Study (Rep. No. 1) , Geneva : UNDP/World Bank/WHO Special Programme for Research and Training in Tropical Diseases (TDR) .
  • Piot , P. 2001 . Stigma, bias present barriers in fight against AIDS pandemic . AIDS Policy Law , 16 : 5
  • Piot , P. and Coll Seck , A. M. 2001 . International response to the HIV/AIDS epidemic: Planning for success . Bulletin of the World Health Organisation , 79 : 1106 – 1112 .
  • Raguram , R. , Raghu , T. M. , Vounatsou , P. and Weiss , M. G. 2004 . Schizophrenia and the cultural epidemiology of stigma in Bangalore, India . Journal of Nervous and Mental Disease , 192 : 734 – 744 .
  • Raguram , R. , Weiss , M. G. , Channabasavanna , S. M. and Devins , G. M. 1996 . Stigma, depression, and somatization in South India . American Journal of Psychiatry , 153 : 1043 – 1049 .
  • Rahlenbeck , S. I. 2004 . Knowledge, attitude, and practice about AIDS and condom utilization among health workers in Rwanda . Journal of the Association of Nurses in AIDS Care , 15 : 56 – 61 .
  • Raju , M. S. and Kopparty , S. N. 1995 . Impact of knowledge of leprosy on the attitude towards leprosy patients: A community study . Indian Journal of Leprosy , 67 : 259 – 272 .
  • Ramu , G. , Dwivedi , M. P. and Iyer , C. G. S. 1975 . Social reaction to leprosy in a rural population in Chingleput District (Tamil Nadu) . Leprosy in India , 47 : 156 – 169 .
  • Ritsher , J. B. , Otilingam , P. G. and Grajales , M. 2003 . Internalized stigma of mental illness: Psychometric properties of a new measure . Psychiatry Research , 121 : 31 – 49 .
  • Rubel , A. J. and Garro , L. C. 1992 . Social and cultural factors in the successful control of tuberculosis . Public Health Reports , 107 : 626 – 636 .
  • Ryan , R. , Kempner , K. and Emlen , A. C. 1980 . The stigma of epilepsy as a self-concept . Epilepsia , 21 : 433 – 444 .
  • Schondel , C. , Shields , G. and Orel , N. 1992 . Development of an instrument to measure volunteer's motivation in working with people with AIDS . Social Work in Health Care , 17 : 53 – 71 .
  • Sharma , V. , Girdhani , M. and Rajput , Y. 2001 . Leprosy—Perception & practices of Bhils in Jhabua , New Delhi, , India : DANLEP .
  • Shrum , J. C. , Turner , N. H. and Bruce , K. E. 1989 . Development of an instrument to measure attitudes toward acquired immune deficiency syndrome . AIDS Education and Prevention , 1 : 222 – 230 .
  • Siyam'kela . 2003 . HIV/AIDS stigma indicators. A tool for measuring the progress of HIV/AIDS stigma mitigation , Cape Town : Policy Project, South Africa .
  • Stienstra , Y. , van der Graaf , W. T. , Asamoa , K. and van der Werf , T. S. 2002 . Beliefs and attitudes toward Buruli ulcer in Ghana . American Journal of Tropical Medicine and Hygiene , 67 : 207 – 213 .
  • Struening , E. L. and Cohen , J. 1963 . Factorial invariance and psychometric characteristics of five opinions about mental illness factors . Education and Psychological Measurement , 23 : 289 – 298 .
  • Sumartojo , E. 1993 . When tuberculosis treatment fails. A social behavioral account of patient adherence . American Review of Respiratory Disease , 147 : 1311 – 1320 .
  • Tate , D. , Forchheimer , M. , Maynard , F. and Dijkers , M. 1994 . Predicting depression and psychological distress in persons with spinal cord injury based on indicators of handicap . American Journal of Physical Medicine & Rehabilitation , 73 : 175 – 183 .
  • Taylor , S. M. and Dear , M. J. 1981 . Scaling community attitudes toward the mentally ill . Schizophrenia Bulletin , 7 : 225 – 240 .
  • Tedman , S. , Thornton , E. and Baker , G. 1995 . Development of a scale to measure core beliefs and perceived self efficacy in adults with epilepsy . Seizure , 4 : 221 – 231 .
  • Tekle-Haimanot , R. , Forsgren , L. , Gebre-Mariam , A. , Abebe , M. , Holmgren , G. Heijbel , J. 1992 . Attitudes of rural people in central Ethiopia towards leprosy and a brief comparison with observations on epilepsy . Leprosy Review , 63 : 157 – 168 .
  • UNAIDS . 2000 . Protocol for the identification of discrimination against people living with HIV , Geneva : UNAIDS .
  • Valencia , L. B. 1989 . Social science research on social dimensions of leprosy: Where are we going from here? . International Journal of Leprosy and Other Mycobacterial Diseases , 57 : 847 – 863 .
  • van Brakel , W. H. , Anderson , A. M. , Mutatkar , R. K. , Bakirtzief , Z. , Nicholls , P. G. Raju , M. S. 2006 . The Participation Scale—Measuring a key concept in public health . Disability and Rehabilitation , 28 ( 4 ) 193 – 203
  • van den Broek , J. , O'Donoghue , J. , Ishengoma , A. , Masao , H. and Mbega , M. 1998 . Evaluation of a sustained 7-year health education campaign on leprosy in Rufiji District, Tanzania . Leprosy Review , 69 : 57 – 74 .
  • Vlassoff , C. , Weiss , M. , Ovuga , E. B. , Eneanya , C. , Nwel , P. T. Babalola , S. S. 2000 . Gender and the stigma of onchocercal skin disease in Africa . Social Science & Medicine , 50 : 1353 – 1368 .
  • Wahl , L. M. and Nowak , M. A. 2000 . Adherence and drug resistance: Predictions for therapy outcome . Proceedings of the Royal Society of London B, Biological Science , 267 : 835 – 843 .
  • Walker , N. , Mellick , D. , Brooks , C. A. and Whiteneck , G. G. 2003 . Measuring participation across impairment groups using the Craig Handicap Assessment Reporting Technique . American Journal of Physical Medicine & Rehabilitation , 82 : 936 – 941 .
  • Weiner , B. , Perry , R. P. and Magnusson , J. 1988 . An attributional analysis of reactions to stigmas . Journal of Personality and Social Psychology , 55 : 738 – 748 .
  • Weiser , S. , Wolfe , W. , Bangsberg , D. , Thior , I. , Gilbert , P. Makhema , J. 2003 . Barriers to antiretroviral adherence for patients living with HIV infection and AIDS in Botswana . Journal of Acquired Immune Deficiency Syndromes , 34 : 281 – 288 .
  • Weiss , M. G. , Auer , C. , Somma , D. , Abouihia , A. , Jawahar , M. S. Karim , F. 2004 . Gender and tuberculosis: Cross-site analysis and implications of a multi-country study in Bangladesh, India, Malawi, and Colombia (Rep. No. 4)
  • Weiss , M. G. , Doongaji , D. R. , Siddhartha , S. , Wypij , D. , Pathare , S. Bhatawdekar , M. 1992 . The Explanatory Model Interview Catalogue (EMIC). Contribution to cross-cultural research methods from a study of leprosy and mental health . British Journal of Psychiatry , 160 : 819 – 830 .
  • Weiss , M. G. and Ramakrishna , J. 2001 . Stigma interventions and research for international health http://www.stigmaconference.nih.gov./FinalWeissPaper.htm
  • Westbrook , L. E. , Bauman , L. J. and Shinnar , S. 1992 . Applying stigma theory to epilepsy: A test of a conceptual model . Journal of Pediatric Psychology , 17 : 633 – 649 .
  • Whiteneck , G. G. , Charlifue , S. W. , Gerhart , K. A. , Overholser , J. D. and Richardson , G. N. 1992 . Quantifying handicap: A new measure of long-term rehabilitation outcomes . Archives of Physical Medicine & Rehabilitation , 73 : 519 – 526 .
  • WHO . 1980 . International Classification of Impairments, Disabilities and Handicaps , Geneva : World Health Organisation .
  • World Health Organisation . 2001 . International Classification of Functioning, Disability and Health (ICF) , Geneva : WHO .

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