426
Views
13
CrossRef citations to date
0
Altmetric
Articles

Living with the BRCA1 and BRCA2 genetic mutation: Learning how to adapt to a virtual chronic illness

, , , , , & show all
Pages 103-114 | Received 03 Dec 2012, Accepted 21 Feb 2013, Published online: 23 Apr 2013

References

  • American Cancer Society, Inc. (2011). Breast Cancer. Retrieved from http://www.cancer.org/acs/groups/cid/documents/webcontent/003090-pdf.pdf
  • Beran, T.M., Stanton, A.L., Kwan, L., Seldon, J., Bower, J.E., Vodermaier, A., & Ganz, P.A. (2008). The trajectory of psychological impact in BRCA1/2 genetic testing: Does time heal?Annals of Behavioral Medicine,36, 107–116. doi:10.1007/s12160-008-9060-9.
  • Cohen, F., & Lazarus, R.S. (1979). Coping with the stress of illness. In: C. G.Stone, F.Cohen & N. E.Adler (Eds.), Health psychology: A handbook (pp. 217–254). San Francisco, CA: Jossey-Bass.
  • Corr, C.A., Nabe, C.M., & Corr, D.M. (2003). Death and dying, life and living. Belmont, CA: Wadsworth.
  • Croyle, R.T., Smith, K.R., Botkin, J.R., Baty, B., & Nash, J. (1997). Psychological responses to BRCA1 mutation testing: Preliminary findings. Health Psychology,1997, 63–72. doi:10.1037/0278-6133.16.1.63.
  • Di Prospero, L.S., Seminsky, M., Honeyford, J., Doan, B., Franssen, E., Meschino, W.,… Chart, P. (2001). Psychosocial issues following a positive result of genetic testing for BRCA1 and BRCA2 mutations: Findings from a focus group and a needs assessment survey. Canadian Medical Association Journal, 164, 1005–1009. Retrieved from http://www.canadianmedicaljournal.ca/content/164/7/1005.full
  • DiMillo, J. (2011). The experiences of women possessing a genetic predisposition to developing breast cancer: Learning to live with uncertainty (master’s thesis). Retrieved from ProQuest Dissertations and theses (MR69021).
  • DiMillo, J., Samson, A., Lowry, S., Corsini, L., Verma, S., & Tomiak, E. (2013). Living with the BRCA genetic mutation: An uncertain conclusion to an unending process. Psychology, Health, & Medicine, 18, 125–134. doi: 10.1080/13548506.2012.687827
  • Dorval, M., Patenaude, A.F., Schneider, K.A., Kieffer, S.A., DiGianni, L., Kalkbrenner, K.J., Bromberg, J.I., … Garber, J.E. (2000). Anticipated versus actual emotional reactions to disclosure of results of genetic tests for cancer susceptibility: Findings from p53 and BRCA1 testing programs. Journal of Clinical Oncology, 18, 2135–2142. Retrieved from http://jco.ascopubs.org/content/18/10/2135.long
  • Esplen, M.J., Stuckless, N., Hunter, J., Liede, A., Metcalfe, K., Glendon, G., … Irwin, E. (2009). The BRCA self-concept scale: A new instrument to measure self-concept in BRCA1/2 mutation carriers. Psycho-Oncology,18, 1216–1229. doi:10.1002/pon.1498.
  • Glaser, B.G., & Strauss, A.L. (1967). The discovery of grounded theory: Strategies for qualitative research. New Brunswick, NJ: Aldine Transaction.
  • Lerman, C., Seay, J., Balshem, A., & Audrain, J. (1995). Interest in genetic testing among first-degree relatives of breast cancer patients. American Journal of Medical Genetics,57, 385–392. doi:10.1002/ajmg.1320570304.
  • Liao, M.N., Chen, M.F., Chen, S.C., & Chen, P.L. (2008). Uncertainty and anxiety during the diagnostic period for women with suspected breast cancer. Cancer Nursing,31, 274–283. doi:10.1097/01.NCC.0000305744.64452.fe.
  • Lincoln, E.G., & Guba, Y.S. (1989). Fourth generation evaluation. Newbury Park, CA: Sage.
  • Moos, R.H., & Tsu, D.V. (1977). Coping with physical illness. New York, NY: Plenum Medical Company.
  • Rennie, D. (1998). Grounded theory methodology: The pressing need for a coherent logic of justification. Theory & Psychology,8, 101–119. doi:10.1177/0959354398081006.
  • Samson, A. (2006). L’apport de la carrière au modèle théorique des tâches d’adaptation à la maladie chronique: une application au cas des personnes qui vivent avec le VIH [Career as an adaptive task: The case of persons living with HIV]. Canadian Journal of Counselling, 40, 4–16. Retrieved from http://cjc-rcc.ucalgary.ca/cjc/index.php/rcc/article/view/285
  • Samson, A., & Siam, H. (2008). Adapting to major chronic illness: A proposal for a comprehensive task-model approach. Patient Education and Counseling,70, 426–429. doi:10.1016/j.pec.2007.10.018.
  • Sandelowski, M. (1986). The problem of rigor in qualitative research. Advances in Nursing Science,8, 27–37. doi:10.1002/nur.4770090203.
  • Strauss, A., & Corbin, J. (1998). Basics of qualitative research. London: Sage.
  • van Oostrom, I., Meijers-Heijboer, H., Lodder, L.N., Duivenvoorden, H.J., van Gool, A.R., Seynaeve, C., … Tibben, A. (2003). Long-term psychological impact of carrying a BRAC1 mutation and prophylactic surgery: A 5-year follow-up study. Journal of Clinical Oncology,21, 3867–3874. doi:10.1200/JCO.2003.10.100.
  • Warren, M. (2010). Uncertainty, lack of control and emotional functioning in women with metastatic breast cancer: A review and secondary analysis of the literature using the critical appraisal technique. European Journal of Cancer Care,19, 564–574. doi:10.1111/j.1365-2354.2010.01215.x.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.