Coping and guilt in informal caregivers: a predictive model based on structural equations

References

• Brodaty, H. (2007). Meaning and measurement of caregiver outcomes. International Psychogeriatrics, 19, 363–381. https://doi.org/10.1017/S1041610207005182
   PubMed Web of Science ®Google Scholar
• Carver, C. S. (1997). You want to measure coping but your protocol’too long: Consider the brief cope. International Journal of Behavioral Medicine, 4, 92–100. https://doi.org/10.1207/s15327558ijbm0401_6
   PubMed Web of Science ®Google Scholar
• Carver, C. S., & Scheider, M. F. (1994). Situational coping and coping dispositions in a stressful transaction. Journal of Personality and Social Psychology, 66(1), 184–195. https://doi.org/10.1037/0022-3514.66.1.184
   PubMed Web of Science ®Google Scholar
• Carver, C. S., Scheier, M. F., & Weintraub, J. K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56(2), 267–283. https://doi.org/10.1037/0022-3514.56.2.267
   PubMed Web of Science ®Google Scholar
• Chen, C. K., Sabir, M., Zimmerman, S., Suitor, J., & Pillemer, K. (2007). The importance of family relationships with nursing facility staff for family caregiver burden and depression. The Journals of Gerontology, 62(5), 253–260. https://doi.org/10.1093/geronb/62.5.P253
   Google Scholar
• Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behaviour, 24, 385–396. https://doi.org/10.2307/2136404
   PubMed Web of Science ®Google Scholar
• Coolidge, F. L., Segal, D. L., Hook, J. N., & Stewart, S. (2000). Personality disorders and coping among anxious older adults. Journal of Anxiety Disorders, 14(2), 157–172. https://doi.org/10.1016/S0887-6185(99)00046-8
   PubMed Web of Science ®Google Scholar
• Del-pino-casado, R., Serrano-Ortega, N., López-Martínez, C., & Orgeta, V. (2019). Coping strategies and psychological distress in family carers of frail older people: A longitudinal study. Journal of Affective Disorders, 256, 517–523. https://doi.org/10.1016/j.jad.2019.06.038
   PubMed Web of Science ®Google Scholar
• Del‐pino‐casado, R., Frías‐Osuna, A., Palomino‐Moral, P. A., & Pancorbo‐Hidalgo, P. L. (2011). Coping and subjective burden in caregivers of older relatives: A quantitative systematic review. Journal of Advanced Nursing, 67(11), 2311–2322. https://doi.org/10.1111/j.1365-2648.2011.05725.x
   PubMed Web of Science ®Google Scholar
• Gallego-Alberto, L., Losada, A., Cabrera, I., Romero-Moreno, R., Pérez-Miguel, A., Pedroso-Chaparro, M. D. S., & Márquez-González, M. (2020). “I feel guilty”. Exploring guilt-related dynamics in family caregivers of people with dementia. Clinical Gerontologist, 1–10. https://doi.org/10.1080/07317115.2020.1769244
   Google Scholar
• Garity, J. (2006). Caring for a family member with Alzheimer's disease. Journal of Gerontological Nursing, 32, 39–48.
   PubMed Web of Science ®Google Scholar
• Gaugler, J. E., Zarit, S. H., & Pearlin, L. I. (1999). Caregiving and institutionization: Perceptions of family conflict and socioemotional support. International Journal of Aging and Human Development, 49(1), 1–25. https://doi.org/10.2190/91A8-XCE1-3NGX-X2M7
   PubMed Web of Science ®Google Scholar
• Gérain, P., & Zech, E. (2021). Do informal caregivers experience more burnout? A meta-analytic study. Psychology, Health & Medicine, 26, 145-161. https://doi.org/10.1080/13548506.2020.1803372
   Google Scholar
• Hawken, T., Turner-Cobb, J., & Barnett, J. (2018). Coping and adjustment in caregivers: A systematic review. Health Psychology Open, 5(2), 2055102918810659. https://doi.org/10.1177/2055102918810659
   Web of Science ®Google Scholar
• Held, P., Owens, G. P., Schumm, J. A., Chard, K. M., & Hansel, J. E. (2011). Disengagement coping as a mediator between trauma‐related guilt and PTSD severity. Journal of Traumatic Stress, 24(6), 708–715. https://doi.org/10.1002/jts.20689
   PubMed Web of Science ®Google Scholar
• Janzen, W. (2001). Long-term care for older adults: The role of the family. Journal of Gerontological Nursing, 27(2), 36–43. https://doi.org/10.3928/0098-9134-20010201-13
   PubMedGoogle Scholar
• Kneebone, I. I., & Martin, P. R. (2003). Coping and caregivers of people with dementia. British Journal of Health Psychology, 8(1), 1–17. https://doi.org/10.1348/135910703762879174
   PubMed Web of Science ®Google Scholar
• Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. Springer publishing company.
   Google Scholar
• Liu, Z., Heffernan, C., & Tan, J. (2020). Caregiver burden: A concept analysis. International Journal of Nursing Sciences, 7(4), 438–445. https://doi.org/10.1016/j.ijnss.2020.07.012
   PubMed Web of Science ®Google Scholar
• Lloyd, J., Muers, J., Patterson, T. G., & Marczak, M. (2019). Self-compassion, coping strategies, and caregiver burden in caregivers of people with dementia. Clinical Gerontologist, 42(1), 47–59. https://doi.org/10.1080/07317115.2018.1461162
   PubMed Web of Science ®Google Scholar
• Losada, A., Márquez-González, M., Penacoba, C., & Romero-Moreno, R. (2010). Development and validation of the Caregiver Guilt Questionnaire. International Psychogeriatrics, 22(4), 650–660. https://doi.org/10.1017/S1041610210000074
   PubMed Web of Science ®Google Scholar
• Losada, A., Márquez‐González, M., Vara‐García, C., Gallego‐Alberto, L., Romero‐Moreno, R., & Pillemer, K. (2018). Ambivalence and guilt feelings: Two relevant variables for understanding caregivers’ depressive symptomatology. Clinical Psychology & Psychotherapy, 25(1), 59–64. https://doi.org/10.1002/cpp.2116
   PubMed Web of Science ®Google Scholar
• Lu, N., Liu, J., Wang, F., & Lou, V. W. (2017). Caring for disabled older adults with musculoskeletal conditions: A transactional model of caregiver burden, coping strategies, and depressive symptoms. Archives of Gerontology and Geriatrics, 69, 1–7. https://doi.org/10.1016/j.archger.2016.11.001
   PubMed Web of Science ®Google Scholar
• Meyer, B. (2001). Coping with severe mental illness: Relations of the Brief COPE with symptoms, functioning, and well-being. Journal of Psychopathology and Behavioral Assessment, 23(4), 265–277. https://doi.org/10.1023/A:1012731520781
   Web of Science ®Google Scholar
• Moore, B. C., Biegel, D. E., & McMahon, T. J. (2011). Maladaptive coping as a mediator of family stress. Journal of Social Work Practice in the Addictions, 11(1), 17–39. https://doi.org/10.1080/1533256X.2011.544600
   PubMedGoogle Scholar
• Morán, C., Landero, R., & González, M. T. (2010). COPE-28: a psychometric analysis of the Spanish version of the Brief COPE. Universitas Psychologica, 9, 543–552.
   Web of Science ®Google Scholar
• Muscat, M., & Scerri, C. (2018). Coping with anxiety, depression, burden and quality of life in informal primary caregivers of community-dwelling individuals with dementia. Journal of Aging Research & Clinical Practice, 7, 128–135. http://dx.doi.org/10.14283/jarcp.2018.22
   Google Scholar
• Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594. https://doi.org/10.1093/geront/30.5.583
   PubMed Web of Science ®Google Scholar
• Pérez-Cruz, M., Parra-Anguita, L., López-Martínez, C., Moreno-Cámara, S., & Del-pino-casado, R. (2019). Coping and anxiety in caregivers of dependent older adult relatives. International Journal of Environmental Research and Public Health, 16(9), 1651. https://doi.org/10.3390/ijerph16091651
   PubMed Web of Science ®Google Scholar
• Pristavec, T. (2018). The burden and benefits of caregiving: A latent class analysis. The Gerontologist, 59(6), 1078–1091. https://doi.org/10.1093/geront/gny022
   Web of Science ®Google Scholar
• Prunty, M. M., & Foli, K. J. (2019). Guilt experienced by caregivers to individuals with dementia: A concept analysis. International Journal of Older People Nursing, 14(2), e12227. https://doi.org/10.1111/opn.12227
   PubMed Web of Science ®Google Scholar
• Remor, E. (2006). Psychometric properties of a European Spanish version of the Perceived Stress Scale (PSS). The Spanish Journal of Psychology, 9(1), 86–93. https://doi.org/10.1017/S1138741600006004
   PubMed Web of Science ®Google Scholar
• Roche, D. L., Croot, K., MacCann, C., Cramer, B., & Diehl-Schmid, J. (2015). The role of coping strategies in psychological outcomes for frontotemporal dementia caregivers. Journal of Geriatric Psychiatry and Neurology, 28(3), 218–228. https://doi.org/10.1177/0891988715588830
   PubMed Web of Science ®Google Scholar
• Rosa, E., Lussignoli, G., Sabbatini, F., Chiappa, A., Di Cesare, S., Lamanna, L., & Zanetti, O. (2010). Needs of caregivers of the patients with dementia. Archives of Gerontology and Geriatrics, 51(1), 54–58. https://doi.org/10.1016/j.archger.2009.07.008
   PubMed Web of Science ®Google Scholar
• Roth, S., & Cohen, L. J. (1986). Approach, avoidance, and coping with stress. American Psychologist, 41(7), 813–819. https://doi.org/10.1037/0003-066X.41.7.813
   PubMed Web of Science ®Google Scholar
• Salin, S., Kaunonen, M., & Astedt-Kurki, P. (2009). Informal caregivers of older family members: How they manage and what support they receive from respite care. Journal of Clinical Nursing, 18(4), 492–501. https://doi.org/10.1111/j.1365-2702.2008.02550.x
   PubMed Web of Science ®Google Scholar