Associations between Adult Primary Brain Tumor Survivors’ Behavioral Executive Functions, Health Related Quality of Life and their Caregivers’ Health Related Quality : A cross-sectional study

References

• Aaronson, N. K., Ahmedzai, S., Bergman, B., Bullinger, M., Cull, A., Duez, N. J., Filiberti, A., Flechtner, H., Fleishman, S. B., Haes, J. C. J. M. D., Kaasa, S., Klee, M., Osoba, D., Razavi, D., Rofe, P. B., Schraub, S., Sneeuw, K., Sullivan, M., & Takeda, F. (1993). The European organization for research and treatment of cancer QLQ-C30: A quality-of-life instrument for use in international clinical trials in oncology. JNCI: Journal of the National Cancer Institute, 85(5), 365–376. https://doi.org/10.1093/jnci/85.5.365
   PubMed Web of Science ®Google Scholar
• Abu-Hegazy, M., & El-Hadaad, H. A. (2016). Neurocognitive effects of primary brain tumors. Neurooncology—Newer Developments InTech, 241–265.
   Google Scholar
• Aoun, S. M., Deas, K., Howting, D., & Lee, G. (2015). Exploring the support needs of family caregivers of patients with brain cancer using the CSNAT: A comparative study with other cancer groups. Plos One, 10(12), e0145106. https://doi.org/10.1371/journal.pone.0145106
   PubMed Web of Science ®Google Scholar
• Boele, F. W., Douw, L., Reijneveld, J. C., Robben, R., Taphoorn, M. J., Aaronson, N. K., Heimans, J. J., & Klein, M. (2015). Health-related quality of life in stable, long-term survivors of low-grade glioma. Journal of Clinical Oncology, 33(9), 1023–1029. https://doi.org/10.1200/JCO.2014.56.9079
   PubMed Web of Science ®Google Scholar
• Boele, F. W., Heimans, J. J., Aaronson, N. K., Taphoorn, M. J., Postma, T. J., Reijneveld, J. C., & Klein, M. (2013). Health-related quality of life of significant others of patients with malignant CNS versus non-CNS tumors: A comparative study. Journal of Neuro-Oncology, 115(1), 87–94. https://doi.org/10.1007/s11060-013-1198-z
   PubMed Web of Science ®Google Scholar
• Boele, F. W., Hoeben, W., Hilverda, K., Lenting, J., Calis, A. L., Sizoo, E. M., Collette, E. H., Heimans, J. J., Taphoorn, M. J. B., Reijneveld, J. C., & Klein, M. (2013). Enhancing quality of life and mastery of informal caregivers of high-grade glioma patients: A randomized controlled trial. Journal of Neuro-Oncology, 111(3), 303–311. https://doi.org/10.1007/s11060-012-1012-3
   PubMed Web of Science ®Google Scholar
• Boele, F. W., Zant, M., Heine, E. C., Aaronson, N. K., Taphoorn, M. J., Reijneveld, J. C., Postma, T. J., Heimans, J. J., & Klein, M. (2014). The association between cognitive functioning and health-related quality of life in low-grade glioma patients. Neuro-Oncology Practice, 1(2), 40–46. https://doi.org/10.1093/nop/npu007
   PubMedGoogle Scholar
• Braun, S. E., Aslanzadeh, F. J., Thacker, L., & Loughan, A. R. (2021). Examining fear of cancer recurrence in primary brain tumor patients and their caregivers using the actor‐partner interdependence model. Psycho‐Oncology, 30(7), 1120–1128. https://doi.org/10.1002/pon.5659
   PubMed Web of Science ®Google Scholar
• Bunevicius, A. (2017). Reliability and validity of the SF-36 health survey questionnaire in patients with brain tumors: A cross-sectional study. Health and Quality of Life Outcomes, 15(1), 1–7. https://doi.org/10.1186/s12955-017-0665-1
   PubMedGoogle Scholar
• Cantisano, N., Menei, P., Roualdes, V., Seizeur, R., Allain, P., Le Gall, D., Roy, A., Dinomais, M., & Besnard, J. (2021). Patient-reported functional executive challenges and caregiver confirmation in adult brain tumor survivors. Journal of Cancer Survivorship, 15(5), 696–705. https://doi.org/10.1007/s11764-020-00961-0
   PubMed Web of Science ®Google Scholar
• Chen, M. L., Chu, L., & Chen, H. C. (2004). Impact of cancer patients’ quality of life on that of spouse caregivers. Supportive Care in Cancer, 12(7), 469–475. https://doi.org/10.1007/s00520-004-0636-z
   PubMed Web of Science ®Google Scholar
• Decadt, I., Laenen, A., Celus, J., Geyskens, S., Vansteenlandt, H., & Coolbrandt, A. (2021). Caregiver distress and quality of life in primary caregivers of oncology patients in active treatment and follow‐up. European Journal of Cancer Care, 30(3), e13399. https://doi.org/10.1111/ecc.13399
   PubMed Web of Science ®Google Scholar
• Gehrke, A. K., Baisley, M. C., Sonck, A. L., Wronski, S. L., & Feuerstein, M. (2013). Neurocognitive deficits following primary brain tumor treatment: Systematic review of a decade of comparative studies. Journal of Neuro-Oncology, 115(2), 135–142. https://doi.org/10.1007/s11060-013-1215-2
   PubMed Web of Science ®Google Scholar
• Given, B. A., Sherwood, P., & Given, C. W. (2011). Support for caregivers of cancer patients: Transition after active treatment. Cancer Epidemiology and Prevention Biomarkers, 20(10), 2015–2021. https://doi.org/10.1158/1055-9965.EPI-11-0611
   PubMed Web of Science ®Google Scholar
• Kim, Y., & Given, B. A. (2008). Quality of life of family caregivers of cancer survivors: Across the trajectory of the illness. Cancer, 112(S11), 2556–2568. https://doi.org/10.1002/cncr.23449
   PubMed Web of Science ®Google Scholar
• Leplège, A., Ecosse, E., Verdier, A., & Perneger, T. V. (1998). The French SF-36 health survey: Translation, cultural adaptation and preliminary psychometric evaluation. Journal of Clinical Epidemiology, 51(11), 1013–1023. https://doi.org/10.1016/S0895-4356(98)00093-6
   PubMed Web of Science ®Google Scholar
• Le Rhun, E., Delbeuck, X., Devos, P., Pasquier, F., & Dubois, F. (2009). Troubles cognitifs dans les gliomes de grade II et III de l’adulte: à propos d’une série de 15 patients. Neurochirurgie, 55(3), 303–308. https://doi.org/10.1016/j.neuchi.2008.08.111
   PubMedGoogle Scholar
• Loughan, A. R., Braun, S. E., & Lanoye, A. (2019). Executive dysfunction in neuro-oncology: Behavior rating inventory of executive function in adult primary brain tumor patients. Applied Neuropsychology: Adult, 27(5), 393–402. https://doi.org/10.1080/23279095.2018.1553175
   PubMed Web of Science ®Google Scholar
• Miyake, A., & Friedman, N. P. (2012). The nature and organization of individual differences in executive functions: Four general conclusions. Current Directions in Psychological Science, 21(1), 8–14. https://doi.org/10.1177/0963721411429458
   PubMed Web of Science ®Google Scholar
• Ownsworth, T., Goadby, E., & Chambers, S. K. (2015). Support after brain tumor means different things: Family caregivers’ experiences of support and relationship changes. Frontiers in Oncology, 5, 33. https://doi.org/10.3389/fonc.2015.00033
   PubMed Web of Science ®Google Scholar
• Pearce, N. J., Sanson‐fisher, R., & Campbell, H. S. (2008). Measuring quality of life in cancer survivors: A methodological review of existing scales. Psycho‐Oncology: Journal of the Psychological, Social and Behavioral Dimensions of Cancer, 17(7), 629–640. https://doi.org/10.1002/pon.1281
   PubMed Web of Science ®Google Scholar
• Petruzzi, A., Finocchiaro, C. Y., Lamperti, E., & Salmaggi, A. (2013). Living with a brain tumor. Supportive Care in Cancer, 21(4), 1105–1111. https://doi.org/10.1007/s00520-012-1632-3
   PubMed Web of Science ®Google Scholar
• Reblin, M., Small, B., Jim, H., Weimer, J., & Sherwood, P. (2018). Mediating burden and stress over time: Caregivers of patients with primary brain tumor. Psycho‐Oncology, 27(2), 607–612. https://doi.org/10.1002/pon.4527
   PubMed Web of Science ®Google Scholar
• Reijneveld, J. C., Taphoorn, M. J., Coens, C., Bromberg, J. E., Mason, W. P., Hoang-Xuan, K., Ryan, G., Hassel, M. B., Enting, R. H., Brandes, A. A., Wick, A., Chinot, O., Reni, M., Kantor, G., Thiessen, B., Klein, M., Verger, E., Borchers, C., Hau, P. … Baumert, B. G. (2016). Health-related quality of life in patients with high-risk low-grade glioma (EORTC 22033-26033): A randomised, open-label, phase 3 intergroup study. The Lancet Oncology, 17(11), 1533–1542. https://doi.org/10.1016/S1470-2045(16)30305-9
   PubMed Web of Science ®Google Scholar
• Roy, A., Besnard, J., Lancelot, C., & Le Gall, D. (2015). Adaptation et validation en français de l’Inventaire comportemental d’évaluation des fonctions executives-Version adulte. Hogrefe.
   Google Scholar
• Sherwood, P. R., Cwiklik, M., & Donovan, H. S. (2016). Neuro-oncology family caregiving: Review and directions for future research. CNS Oncology, 5(1), 41–48. https://doi.org/10.2217/cns.15.43
   PubMedGoogle Scholar
• Sherwood, P., Given, B., Given, C., Schiffman, R., Murman, D., & Lovely, M. (2004). Caregivers of persons with a brain tumor: A conceptual model. Nursing Inquiry, 11(1), 43–53. https://doi.org/10.1111/j.1440-1800.2004.00200.x
   PubMedGoogle Scholar
• Sherwood, P. R., Given, B. A., Given, C. W., Schiffman, R. F., Murman, D. L., Lovely, M., von Eye, A., Rogers, L. R., & Remer, S. (2006). Predictors of distress in caregivers of persons with a primary malignant brain tumor. Research in Nursing & Health, 29(2), 105–120. https://doi.org/10.1002/nur.20116
   PubMed Web of Science ®Google Scholar
• Stenberg, U., Ruland, C. M., & Miaskowski, C. (2010). Review of the literature on the effects of caring for a patient with cancer. Psycho‐Oncology, 19(10), 1013–1025. https://doi.org/10.1002/pon.1670
   PubMed Web of Science ®Google Scholar
• van der Linden, S. D., Gehring, K., De Baene, W., Emons, W., Rutten, G. M., & Sitskoorn, M. M. (2020). Assessment of executive functioning in patients with meningioma and low-grade glioma: A comparison of self-report, proxy-report, and test performance. Journal of the International Neuropsychological Society: JINS, 26(2), 187–196. https://doi.org/10.1017/S1355617719001164
   PubMed Web of Science ®Google Scholar
• Weitzner, M. A., Jacobsen, P. B., Wagner, H., Friedland, J., & Cox, C. (1999). The Caregiver Quality of Life Index–Cancer (CQOLC) scale: Development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Quality of Life Research, 8(1), 55–63. https://doi.org/10.1023/A:1026407010614
   PubMed Web of Science ®Google Scholar