Health outcomes of sensory hypersensitivities in myalgic encephalomyelitis/chronic fatigue syndrome and multiple sclerosis

References

• Aazh, H., Moore, B. C. J., Lammaing, K., & Cropley, M. (2016). Tinnitus and hyperacusis therapy in a UK national health service audiology department: Patients’ evaluations of the effectiveness of treatments. International Journal of Audiology, 55(9), 514–522. https://doi.org/10.1080/14992027.2016.1178400
   PubMed Web of Science ®Google Scholar
• Baguley, D. M. (2003). Hyperacusis. Journal of the Royal Society of Medicine, 96(12), 582–585. https://doi.org/10.1177/014107680309601203
   PubMed Web of Science ®Google Scholar
• Bjornevik, K., Cortese, M., Healy, B. C., Kuhle, J., Mina, M. J., Leng, Y., Elledge, S. J., Niebuhr, D. W., Scher, A. I., Munger, K. L., & Ascherio, A. (2022). Longitudinal analysis reveals high prevalence of epstein-barr virus associated with multiple sclerosis. Science, 375(6578), 296–301. https://doi.org/10.1126/science.abj8222
   PubMed Web of Science ®Google Scholar
• Brown, A. A., & Jason, L. A. (2014). Validating a measure of myalgic encephalomyelitis/chronic fatigue syndrome symptomatology. Fatigue: Biomedicine, Health & Behavior, 2(3), 132–152. https://doi.org/10.1080/21641846.2014.928014
   PubMedGoogle Scholar
• Brurberg, K. G., Fønhus, M. S., Larun, L., Flottorp, S., & Malterud, K. (2014). Case definitions for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): A systematic review. BMJ Open, 4(2), e003973. https://doi.org/10.1136/bmjopen-2013-003973
   PubMed Web of Science ®Google Scholar
• Cairns, R., & Hotopf, M. (2005). A systematic review describing the prognosis of chronic fatigue syndrome. Occupational Medicine (London), 55(1), 20–31. https://doi.org/10.1093/occmed/kqi013
   PubMed Web of Science ®Google Scholar
• Carruthers, B. M., Jain, A. K., De Meirleir, K. L., Peterson, D. L., Klimas, N. G., Lerner, A. M., Bested, A. C., Flor-Henry, P., Joshi, P., Peter Powles, A. C., Sherkey, J. A., & van de Sande, M. I. (2003). Myalgic encephalomyelitis/chronic fatigue syndrome. Journal of Chronic Fatigue Syndrome, 11(1), 7–115. https://doi.org/10.1300/J092v11n01_02
   Google Scholar
• Carruthers, B. M., van de Sande, M. I., De Meirleir, K. L., Klimas, N. G., Broderick, G., Mitchell, T., Staines, D., Powles, A. C., Speight, N., Vallings, R., Bateman, L., Baumgarten-Austrheim, B., Bell, D. S., Carlo-Stella, N., Chia, J., Darragh, A., Jo, D., Lewis, D., Light, A. R. … Stevens, S. (2011). Myalgic encephalomyelitis: International consensus criteria. Journal of Internal Medicine, 270(4), 327–338. https://doi.org/10.1111/j.1365-2796.2011.02428.x
   PubMed Web of Science ®Google Scholar
• Conroy, K. E., Islam, M. F., & Jason, L. A. Evaluating case diagnostic criteria for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): Toward an empirical case definition. (2022). Disability and Rehabilitation, 45(5), 840–847. Advance online publication. https://doi.org/10.1080/09638288.2022.2043462
   PubMed Web of Science ®Google Scholar
• Cortez, M. M., Digre, K., Uddin, D., Hung, M., Blitzer, A., Bounsanga, J., Voss, M. W., & Katz, B. J. (2019). Validation of a photophobia symptom impact scale. Cephalalgia, 39(11), 1445–1454. https://doi.org/10.1177/0333102419845641
   PubMed Web of Science ®Google Scholar
• De Becker, P., MCGregor, N., & De Meirleir, K. (2001). A definition-based analysis of symptoms in a large cohort of patients with chronic fatigue syndrome. Journal of Internal Medicine, 250(3), 234–240. https://doi.org/10.1046/j.1365-2796.2001.00890.x
   PubMed Web of Science ®Google Scholar
• Digre, K. B., & Brennan, K. C. (2012). Shedding light on photophobia. Journal of Neuro-Ophthalmology, 32(1), 68–81. https://doi.org/10.1097/WNO.0b013e3182474548
   PubMed Web of Science ®Google Scholar
• Fackrell, K., Potgieter, I., Shekhawat, G. S., Baguley, D. M., Sereda, M., & Hoare, D. J. (2017). Clinical interventions for hyperacusis in adults: A scoping review to assess the current position and determine priorities for research. BioMed Research International, 2017, 2723715. https://doi.org/10.1155/2017/2723715
   PubMed Web of Science ®Google Scholar
• Fukuda, K., Straus, S. E., Hickie, I., Sharpe, M. C., Dobbins, J. G., & Komaroff, A. (1994). The chronic fatigue syndrome: A comprehensive approach to its definition and study. International chronic fatigue syndrome study group. Annals of Internal Medicine, 121(12), 953–959. https://doi.org/10.7326/0003-4819-121-12-199412150-00009
   PubMed Web of Science ®Google Scholar
• Goldenberg, M. M. (2012). Multiple sclerosis review. Pharmacy and Therapeutics, 37(3), 175–184.
   Google Scholar
• Han, J. J., Jang, J. H., Ridder, D., Vanneste, S., Koo, J. W., & Song, J. J. (2018). Increased parietal circuit-breaker activity in delta frequency band and abnormal delta/theta band connectivity in salience network in hyperacusis subjects. Plos One, 13(1), e0191858. https://doi.org/10.1371/journal.pone.0191858
   PubMed Web of Science ®Google Scholar
• Harris, P. A., Taylor, R., Thielke, R., Payne, J., Gonzalez, N., & Conde, J. G. (2009). Research electronic data capture (REDCap) – a metadata-driven methodology and workflow process for providing translational research informatics support. Journal of Biomedical Informatics, 42(2), 377–381. https://doi.org/10.1016/j.jbi.2008.08.010
   PubMed Web of Science ®Google Scholar
• Hutchinson, C. V., Maltby, J., Badham, S. P., & Jason, L. A. (2014). Vision-related symptoms as a clinical feature of chronic fatigue syndrome/myalgic encephalomyelitis? Evidence from the DePaul symptom questionnaire. The British Journal of Ophthalmology, 98(1), 144–145. https://doi.org/10.1136/bjophthalmol-2013-304439
   PubMed Web of Science ®Google Scholar
• IBM Corp. (2012). SPSS statistics for windows (version 26.0) [computer software]. IBM. Institute of medicine. (2015) Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. National Academies Press (US).
   Google Scholar
• Institute of Medicine. (2015). Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. The National Academies Press. https://doi.org/10.17226/19012
   Google Scholar
• Jason, L. A., & Mirin, A. A. (2021). Updating the national academy of medicine ME/CFS prevalence and economic impact figures to account for population growth and inflation. Fatigue: Biomedicine, Health & Behavior, 9(1), 9–13. https://doi.org/10.1080/21641846.2021.1878716
   Google Scholar
• Jason, L. A., Ohanian, D., Brown, A., Sunnquist, M., McManimen, S., Klebek, L., Fox, P., & Sorenson, M. (2017). Differentiating multiple sclerosis from myalgic encephalomyelitis and chronic fatigue syndrome. Insights in Biomedicine, 2(2), 11. https://doi.org/10.21767/2572-5610.10027
   PubMedGoogle Scholar
• Jason, L. A., So, S., Brown, A. A., Sunnquist, M., & Evans, M. (2015). Test-retest reliability of the DePaul symptom questionnaire. Fatigue: Biomedicine, Health & Behavior, 3(1), 16–32. https://doi.org/10.1080/21641846.2014.978110
   PubMed Web of Science ®Google Scholar
• Jason, L. A., & Sunnquist, M. (2018). The development of the depaul symptom questionnaire: Original, expanded, brief, and pediatric versions. Frontiers in Pediatrics, 6, 330. https://doi.org/10.3389/fped.2018.00330
   PubMed Web of Science ®Google Scholar
• Main, A., Dowson, A., & Gross, M. (1997). Photophobia and phonophobia in migraineurs between attacks. Headache, 37(8), 492–495. https://doi.org/10.1046/j.1526-4610.1997.3708492.x
   PubMed Web of Science ®Google Scholar
• McHorney, C. A., Ware, J. E., Jr., & Raczek, A. E. (1993). The MOS 36-item short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Medical Care, 31(3), 247–263. https://doi.org/10.1097/00005650-199303000-00006
   PubMed Web of Science ®Google Scholar
• Menon, V., & Uddin, L. Q. (2010). Saliency, switching, attention and control: A network model of insula function. Brain Structure & Function, 214(5–6), 655–667. https://doi.org/10.1007/s00429-010-0262-0
   PubMed Web of Science ®Google Scholar
• O’neal, A. J., & Hanson, M. R. (2021). The enterovirus theory of disease etiology in myalgic encephalomyelitis/chronic fatigue syndrome: A critical review. Frontiers in Medicine, 8, 688486. https://doi.org/10.3389/fmed.2021.688486
   PubMed Web of Science ®Google Scholar
• Shikova, E., Reshkova, V., Kumanova, А., Raleva, S., Alexandrova, D., Capo, N., & Murovska, M. (2020). Cytomegalovirus, epstein-barr virus, and human herpesvirus-6 infections in patients with myalgic еncephalomyelitis/chronic fatigue syndrome. Journal of Medical Virology, 92(12), 3682–3688. https://doi.org/10.1002/JMV.25744
   PubMed Web of Science ®Google Scholar
• Strand, E. B., Lillestøl, K., Jason, L. A., Tveito, K., Diep, L. M., Valla, S. S., Sunnquist, M., Helland, I. B., Herder, I., & Dammen, T. (2016). Comparing the DePaul symptom questionnaire with physician assessments: A preliminary study. Fatigue: Biomedicine, Health & Behavior, 4(1), 52–62. https://doi.org/10.1080/21641846.2015.1126026
   Web of Science ®Google Scholar
• Ware, J. E., Jr., & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care, 30(6), 473–483. https://doi.org/10.1097/00005650-199206000-00002
   PubMed Web of Science ®Google Scholar
• Wilbarger, J. L., & Cook, D. B. (2011). Multisensory hypersensitivity in women with fibromyalgia: Implications for well being and intervention. Archives of Physical Medicine and Rehabilitation, 92(4), 653–656. https://doi.org/10.1016/j.apmr.2010.10.029
   PubMed Web of Science ®Google Scholar
• Wong, T. L., & Weitzer, D. J. (2021). Long COVID and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)—a systemic review and comparison of clinical presentation and symptomatology. Medicina, 57(5), 418. https://doi.org/10.3390/medicina57050418
   PubMedGoogle Scholar
• Wortinger, L. A., Endestad, T., Melinder, A. M., Øie, M. G., Sevenius, A., & Bruun Wyller, V. (2016). Aberrant resting-state functional connectivity in the salience network of adolescent chronic fatigue syndrome. PLOS One, 11(7), e0159351. https://doi.org/10.1371/journal.pone.0159351
   PubMed Web of Science ®Google Scholar