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Original Articles

Illness perceptions and coping explain well-being in patients with Huntington's disease

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Pages 431-446 | Received 08 Dec 2004, Accepted 31 Oct 2005, Published online: 01 Feb 2007

References

  • Barlow , J , Wright , C , Sheasby , J , Turner , A and Hainsworth , J . 2002 . Self-management approaches for people with chronic conditions: A review. . Patient Education and Counseling , 48 : 177 – 187 .
  • Baron , RM and Kenny , DA . 1986 . The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. . Journal of Personality and Social Psychology , 51 : 1173 – 1182 .
  • Bergner , M , Bobbitt , RA , Carter , WB and Gilson , BS . 1981 . The Sickness Impact Profile: Development and final revision of a health status measure. . Medical Care , 19 : 787 – 805 .
  • Brouwer-Dudokdewit , AC , Savenije , A , Zoeteweij , MW , Maat-Kievit , A and Tibben , A . 2002 . A hereditary disorder in the family and the family life cycle: Huntington disease as a paradigm. . Family Process , 41 : 677 – 692 .
  • Cameron , LD , Petrie , KJ , Ellis , CJ , Buick , D and Weinman , JA . 2005 . Trait negative affectivity and responses to a health education intervention for myocardial infarction patients. . Psychology & Health , 20 : 1 – 18 .
  • Carver , CS , Scheier , MF and Weintraub , JK . 1989 . Assessing coping strategies: A theoretically based approach. . Journal of Personality and Social Psychology , 56 : 267 – 283 .
  • Carver , CS , Scheier , MF and Pozo , C . 1992 . “ Conceptualizing the process of coping with health problems ” . In Hostility, coping, and health , Edited by: Friedman , HS . 167 – 188 . Washington, DC : American Psychological Association .
  • Chesney , MA , Chambers , DB , Taylor , JM , Johnson , LM and Folkman , S . 2003 . Coping effectiveness training for men living with HIV: Results from a randomised clinical trial testing a group-based intervention. . Psychosomatic Medicine , 65 : 1038 – 1046 .
  • Clark , NM . 2003 . Management of chronic disease by patients. . Annual Review of Public Health , 24 : 289 – 313 .
  • Culver , JL , Arena , PL , Wimberly , SR , Antoni , MH and Carver , CS . 2004 . Coping among African-American, Hispanic, and non-Hispanic white women recently treated for early stage breast cancer. . Psychology & Health , 19 : 157 – 166 .
  • De Ridder , DTD and Schreurs , K . 2001 . Developing interventions for chronically ill patients: Is coping a helpful concept? . Clinical Psychology Review , 21 : 205 – 240 .
  • Folstein , MF , Folstein , SE and McHugh , PR . 1975 . ‘Mini-Mental State’: A practical method for grading the cognitive state of patients for the clinician. . Journal of Psychiatric Research , 12 : 189 – 198 .
  • Hagger , MS and Orbell , S . 2003 . A meta-analytic review of the common-sense model of illness representations. . Psychology & Health , 18 : 141 – 184 .
  • Heijmans , M . 1999 . The role of patients’ illness representations in coping and functioning with Addison's disease. . British Journal of Health Psychology , 4 : 137 – 149 .
  • Helder , DI , Kaptein , AA , van Kempen , GMJ , van Houwelingen , JC and Roos , RAC . 2001 . The impact of Huntington's disease on quality of life. . Movement Disorders , 16 : 325 – 330 .
  • Helder , DI , Kaptein , AA , van Kempen , GMJ , Weinman , J , van Houwelingen , JC and Roos , RAC . 2002a . Living with Huntington's disease: Illness perceptions, coping mechanisms, and patients’ well-being. . British Journal of Health Psychology , 7 : 449 – 462 .
  • Helder , DI , Kaptein , AA , Kempen , GMJ , van Weinman , J , Houwelingen , JC and van Roos , RAC . 2002b . Living with Huntington's disease: Illness perceptions, coping mechanisms, and spouses’ quality of life. . International Journal of Behavioral Medicine , 9 : 37 – 52 .
  • Holland , KD and Holahan , CK . 2003 . The relation of social support and coping to positive adaptation to breast cancer. . Psychology & Health , 18 : 15 – 29 .
  • Holmbeck , GN . 1997 . Toward terminological, conceptual, and statistical clarity in the study of mediators and moderators: Examples from the child-clinical and paediatric psychology literatures . Journal of Consulting and Clinical Psychology , 65 : 599 – 610 .
  • Huntington Study Group . 1996 . Unified Huntington's Disease Rating Scale: Reliability and consistency . Movement Disorders , 11 : 136 – 142 .
  • Kaptein , AA , Scharloo , M , Helder , DI , Kleijn , W. Chr. , van Korlaar , IM and Woertman , M . 2003 . “ Representations of chronic illnesses ” . In The self-regulation of health and illness behaviour , Edited by: Cameron , LD and Leventhal , H . 97 – 118 . London, , UK : Routledge .
  • Kershaw , T , Northouse , L , Kritpracha , C , Schafenacker , A and Mood , D . 2004 . Coping strategies and quality of life in women with advanced breast cancer and their family caregivers. . Psychology & Health , 2004, 19 : 139 – 155 .
  • Leventhal , H , Brissette , I and Leventhal , EA . 2003 . “ The common-sense model of self-regulation of health and illness ” . In The self-regulation of health and illness behaviour , Edited by: Cameron , LD and Leventhal , H . 42 – 65 . London, , UK : Routledge .
  • Leventhal , H , Idler , EL and Leventhal , EA . 1999 . “ The impact of chronic illness on the self system ” . In Self, social identity, and physical health: Interdisciplinary explorations , Edited by: Contrada , RJ and Ashmore , R. D . 185 – 208 . New York, NY : Oxford University Press .
  • Maat-Kievit , A , Losekoot , M , Zwinderman , K , Vegter-van der Vlis , M , Belfroid , R Lopez , F . 2002 . Predictability of age at onset in Huntington's disease in the Dutch population . Medicine , 81 : 251 – 259 .
  • MacKinnon , DP , Lockwood , CM , Hoffman , JM , West , SG and Sheets , V . 2002 . A comparison of methods to test mediation and other intervening variable effects. . Psychological Methods , 7 : 83 – 104 .
  • Mahant , N , McCusker , EA , Byth , K and Graham , S . 2003 . Huntington's disease: Clinical correlates of disability and progression . Neurology , 61 : 1085 – 1092 . The Huntington Study Group
  • Moss-Morris , R , Weinman , J , Petrie , KJ , Horne , R , Cameron , LD and Buick , D . 2002 . The revised Illness Perception Questionnaire (IPQ-R). . Psychology & Health , 17 : 1 – 16 .
  • Moss-Morris , R , Petrie , K and Weinman , J . 1996 . Functioning in chronic fatigue syndrome: Do illness perceptions play a regulatory role? . British Journal of Health Psychology , 1 : 15 – 25 .
  • Murphy , H , Dickens , C , Creed , F and Bernstein , R . 1999 . Depression, illness perception and coping in rheumatoid arthritis. . Journal of Psychosomatic Research , 46 : 155 – 164 .
  • Newman , S , Steed , L and Mulligan , K . 2004 . Self-management interventions for chronic illness. . Lancet , 364 : 1523 – 1537 .
  • Petrie , KJ , Cameron , LD , Ellis , CJ , Buick , D and Weinman , J . 2002 . Changing illness perceptions after myocardial infarction: An early intervention randomized controlled trial . Psychosomatic Medicine , 64 : 580 – 586 .
  • Petrie , KJ , Weinman , J , Sharpe , N and Buckley , J . 1996 . Role of patients’ view of their illness in predicting return to work and functioning after myocardial infarction: Longitudinal study. . British Medical Journal , 312 : 1191 – 1194 .
  • Qin , ZH , Wang , Y , Sapp , E , Cuiffo , B , Wanker , E Hayden , MR . 2004 . Huntington bodies sequester vesicle-associated proteins by a polyproline-dependent interaction . Journal of Neuroscience , 24 : 269 – 281 .
  • Rodin , G and Voshart , K . 1987 . Depressive symptoms and functional impairment in the medically ill. . General Hospital Psychiatry , 9 : 251 – 258 .
  • Roos , RAC , Hermans , J , Vegter-van der Vlis , M , Van Ommen , GJB and Bruyn , GW . 1993 . Duration of illness in Huntington's disease is not related to age at onset. . Journal of Neurology Neurosurgery and Psychiatry , 56 : 98 – 100 .
  • Rutter , CL and Rutter , DR . 2002 . Illness representation, coping and outcome in irritable bowel syndrome (IBS). . British Journal of Health Psychology , 7 : 377 – 391 .
  • Scharloo , M , Kaptein , AA , Weinman , J , Bergman , W , Vermeer , BJ and Rooijmans , HGM . 2000a . Patients’ illness perceptions and coping as predictors of functional status in psoriasis: A 1-year follow-up. . British Journal of Dermatology , 142 : 899 – 907 .
  • Scharloo , M , Kaptein , AA , Weinman , J , Hazes , JM , Breedveld , FC and Rooijmans , HGM . 1999 . Predicting functional status in patients with rheumatoid arthritis. . Journal of Rheumatology , 26 : 1686 – 1693 .
  • Scharloo , M , Kaptein , AA , Weinman , J , Hazes , JM , Willems , LNA Bergman , W . 1998 . Illness perceptions, coping and functioning in patients with rheumatoid arthritis, chronic obstructive pulmonary disease and psoriasis . Journal of Psychosomatic Research , 44 : 573 – 585 .
  • Scharloo , M , Kaptein , AA , Weinman , JA , Willems , LNA and Rooijmans , HGM . 2000b . Physical and psychosocial correlates of functioning in patients with chronic obstructive pulmonary disease. . Journal of Asthma , 37 : 17 – 29 .
  • Schiaffino , KM , Shawaryn , MA and Blum , D . 1998 . Examining the impact of illness representations on psychological adjustment to chronic illnesses. . Health Psychology , 17 : 262 – 268 .
  • Siesling , S , Zwinderman , AH , Van Vught , JPP , Kieburtz , K and Roos , RAC . 1997 . A shortened version of the motor section of the Unified Huntington's Disease Rating Scale . Movement Disorders , 12 : 229 – 234 .
  • The Huntington's Disease Collaborative Research Group . 1993 . A novel gene containing a trinucleotide repeat that is expanded and unstable in Huntington's disease chromosomes . Cell , 72 : 971 – 983 .
  • Vaughan , R , Morrison , L and Miller , E . 2003 . The illness representations of multiple sclerosis and their relations to outcome. . British Journal of Health Psychology , 8 : 287 – 301 .
  • Weinman , J , Petrie , KJ , Moss-Morris , R and Horne , R . 1996 . The Illness Perception Questionnaire: A new method for assessing the cognitive representation of illness . Psychology & Health , 11 : 431 – 445 .
  • Witjes-Ané , M-NW , Vegter-van der Vlis , M , Van Vught , JPP , Lanser , JBK , Hermans , J Zwinderman , AH . 2003 . Cognitive and motor functioning in gene carriers for Huntington's disease: A baseline study . Journal of Neuropsychiatry and Clinical Neuroscience , 15 : 7 – 16 .
  • World Health Organization . 2003 . The World Health Report 2003: Shaping the future , Geneva, Switzerland : World Health Organization .
  • Yardley , L , Beech , S and Weinman , J . 2001 . Influence of beliefs about the consequences of dizziness on handicap in people with dizziness, and the effect of therapy on beliefs. . Journal of Psychosomatic Research , 50 : 1 – 6 .

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