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Open Peer Commentaries

Data Citizenship and Informed Consent

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Pages 38-39 | Published online: 20 Mar 2013

REFERENCES

  • Baily , M. A. 2006 . The ethics of using QI methods to improve health care quality and safety . Hastings Center Report , 36 ( 4 ) : S1 – 40 .
  • Dankar , F. K. 2012 . Estimating the re-identification risk of clinical data sets . BMC Medical Informatics and Decision Making , 66 ( 12 ) doi: 10.1186/1472-6947-12-66
  • Francis , L. P. 2008 . Privacy and confidentiality: The importance of context . Monist , 91 ( 1 ) : 52 – 67 .
  • Kaiser Family Foundation . 2012 . Black Americans and HIV/AIDS . Available at: http://www.kff.org/hivaids/6089.cfm
  • National Committee on Vital and Health Statistics . 2012 . Letter to the Secretary: A stewardship framework for the use of community health data . Available at: http://www.ncvhs.hhs.gov
  • Rothstein , M. A. 2010 . Is de-identification sufficient to protect health privacy in research? . American Journal of Bioethics , 10 ( 9 ) : 3 – 11 . doi: 10.1080/15265161.2010.494215
  • Rothstein , M. A. and Shoben , A. B. 2013 . Does consent bias research? . American Journal of Bioethics , 13 ( 4 ) : 27 – 37 .

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