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Editorial

Can Informed Consent Go Too Far? Balancing Consent and Public Benefit in Research

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Pages 1-2 | Published online: 20 Mar 2013

REFERENCES

  • California Institute of Regenerative Medicine . 2009, May 12 . CIRM Comments on Draft NIH Guidelines for Human Stem Cell Research
  • Dolgin , E. 2012 . NIH accused of being overly literal on stem cell approvals . Nature Medicine , 18 ( 3 ) : 325
  • Greely , H. T. 2010 . To the barricades! . American Journal of Bioethics , 10 ( 9 ) : 1 – 2 .
  • Institute of Medicine . 2009 . Beyond the HIPAA privacy rule: Enhancing privacy, improving health through research , Washington , DC : National Academies Press .
  • Medical Research Council . 2013 . UK Stem Cell Line Registry Available at: http://www.mrc.ac.uk/Newspublications/News/MRC003259 (accessed January 28, 2013)
  • Rothstein , M. A. 2010 . Is deidentification sufficient to protect health privacy in research? . American Journal of Bioethics , 10 ( 9 ) : 3 – 11 .
  • Rothstein , M. A. and Shoben , A. B. 2013 . Does consent bias research? . American Journal of Bioethics , 13 ( 4 ) : 27 – 37 .
  • Scott , C. T. , McCormick , J. B. and Owen-Smith , J. 2009 . And then there were two: Use of hESC lines . Nature Biotechnology , 27 ( 8 ) : 696 – 697 .
  • Sugarman , J. and Siegel , A. 2008 . How to determine whether existing human embryonic stem cell lines can be used ethically . Cell Stem Cell , 3 ( 3 ) : 238 – 239 .
  • U. S. Department of Health and Human Services . 2008 . Code of federal regulations 45CFR46.102 Revised October 16, 2008
  • U. S. Department of Health and Human Services . 2011, July 26 . Human subjects research protections: Enhancing protections for research subjects and reducing burden, delay, and ambiguity for investigators
  • Wadman , M. 2009 . Consent issue dogs stem-cell approval . Nature , 462 ( 7275 ) : 837

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