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The American Journal of Bioethics Volume 19, 2019 - Issue 4
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Open Peer Commentaries

Voluntary Informed Consent Is Not Risk Dependent

Sara A. S. DekkingMinistry of Health, Welfare, and Sports Correspondence[email protected]
,
Rieke van der GraafUniversity Medical Centre Utrecht
,
C. Michel ZwaanErasmus Medical Centre and ;Prinses Maxima Center for Pediatric Oncology
&
Johannes J. M. van DeldenUniversity Medical Centre Utrecht
Pages 33-35 | Published online: 17 Apr 2019

REFERENCES

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  • Dekking, S. A. S., R. van der Graaf, and J. J. M. van Delden. 2014. Strengths and weaknesses of guideline approaches to safeguard voluntary informed consent of patients within a dependent relationship. BMC Medicine 12(52). doi: 10.1186/1741-7015-12-52.
  • Dekking, S. A. S., R. van der Graaf, S. A. S. Dekking, et al. 2015. Balancing research interests and patient interests: A qualitative study into the intertwinement of care and research in paediatric oncology. Pediatric Blood & Cancer 62(5): 816–822. doi: 10.1002/pbc.25444.
  • Dekking, S. A. S., R. van der Graaf, M. C. de Vries, M. B. Bierings, J. J. M. van Delden, E. Kodish, and J. D. Lantos. 2015. Is a new protocol for acute lymphoblastic leukemia research or standard therapy? Pediatrics 136(3): 566–570. doi: 10.1542/peds.2014-2327.
  • Dekking, S. A. S., R. van der Graaf, and J. J. M. van Delden. 2016a. Voluntary informed consent in pediatric oncology research. Bioethics 30(6): 440–450. doi: 10.1111/bioe.12237.
  • Dekking, S. A. S., R. van der Graaf, A. Y. N. Schouten-van Meeteren, S. A. S. Dekking, R. van der Graaf, and J. J. M. van Delden. 2016b. A qualitative study into dependent relationships and voluntary informed consent for research in pediatric oncology. Pediatric Drugs 18(2): 145–156. doi: 10.1007/s40272-015-0158-9.
  • Levi, R. B., R. Marsick, D. Drotar, and E. D. Kodish. 2000. Diagnosis, disclosure, and informed consent: Learning from parents of children with cancer. Journal of Pediatric Hematology Oncology 22(1): 3–12. doi: 10.1097/00043426-200001000-00002.
  • Morain, S. R., S. Joffe, and E. A. Largent. 2019. When is it ethical for physician-investigators to seek consent from their own patients? American Journal of Bioethics 19(4): 11–18.
  • Nelson, R. M., T. Beauchamp, V. A. Miller, W. Reynolds, R. F. Ittenbach, and M. F. Luce. 2011. The concept of voluntary consent. The American Journal of Bioethics 11(8): 6–16. doi: 10.1080/15265161.2011.583318.
  • van der Graaf, R., S. A. S. Dekking, M. C. de Vries, C. M. Zwaan, and J. M. M. van Delden. 2018. Pediatric oncology as a learning health system: Ethical implications for best available treatment protocols. Learning Health Systems 2(2): e10052. doi: 10.1002/lrh2.10052.

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