The concept of treatment beliefs in children and adolescents with chronic health conditions: a scoping review

References

• Alberts, J., Löwe, B., Glahn, M. A., Petrie, K., Laferton, J., Nestoriuc, Y., & Shedden-Mora, M. (2020). Development of the generic, multidimensional treatment expectation questionnaire (TEX-Q) through systematic literature review, expert surveys and qualitative interviews. BMJ Open, 10(8), e036169. https://doi.org/10.1136/bmjopen-2019-036169
   PubMed Web of Science ®Google Scholar
• Alsous, M., Alhalaiqa, F., Abu Farha, R., Abdel Jalil, M., McElnay, J., & Horne, R. (2017). Reliability and validity of arabic translation of medication adherence report scale (MARS) and beliefs about medication questionnaire (BMQ)-specific for use in children and their parents. PLoS ONE, 12(2), e0171863. https://doi.org/10.1371/journal.pone.0171863
   PubMed Web of Science ®Google Scholar
• Arda Sürücü, H., Baksi, A., & Samancioglu, S. (2017). Validity and reliability of the turkish version of insulin treatment appraisal scale for type 2 diabetes patients. International Journal of Caring Sciences, 10(3), 1187–1200.
   Google Scholar
• Arda Sürücü, H., Baran Durmaz, G., & Turan, E. (2018). Does type 1 diabetic adolescents’ fear of stigmatization predict a negative perception insulin treatment? Clinical Nursing Research, 1–17. https://doi.org/10.1177/1054773818815258
   Google Scholar
• Arksey, H., & O'Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. https://doi.org/10.1080/1364557032000119616
   Google Scholar
• Baaleman, D. F., Wegh, C. A. M., Hoogveld, M. T. A., Benninga, M. A., & Koppen, I. J. N. (2022). Transanal irrigation in children: Treatment success, quality of life, adherence, patient experience, and independence. Journal of Pediatric Gastroenterology & Nutrition, 75(2), 166–172. https://doi.org/10.1097/MPG.0000000000003515
   PubMed Web of Science ®Google Scholar
• Bailey, K., Easterbrook, B., Blinder, H., Hoogenes, J., & Morrison, K. (2019). Understanding paediatric patients’ attitudes toward obesity and expectations prior to entering a weight management program. Paediatrics & Child Health, 24(1), e26–e32. https://doi.org/10.1093/pch/pxy068
   PubMed Web of Science ®Google Scholar
• Ball, J., & Lohaus, A. (2010). Kindliche Krankheitskonzepte: Ein Überblick zur Forschungslage [Children’s conceptions about illness: An overview of the research situation]. Zeitschrift Für Gesundheitspsychologie, 18(1), 3–12. https://doi.org/10.1026/0943-8149/a000002
   Web of Science ®Google Scholar
• Barikani, A., Negarandeh, R., Moin, M., & Fazlollahi, M. R. (2021). The impact of motivational interview on self-efficacy, beliefs about medicines and medication adherence Among adolescents with asthma: A randomized controlled trial. Journal of Pediatric Nursing, 60, 116–122. https://doi.org/10.1016/j.pedn.2021.04.020
   PubMed Web of Science ®Google Scholar
• Baxley, G. B., Turner, P. F., & Greenwold, W. E. (1978). Hyperactive children's knowledge and attitudes concerning drug treatment. Journal of Pediatric Psychology, 3(4), 172–176. https://doi.org/10.1093/jpepsy/3.4.172
   Google Scholar
• Becker, M. H., & Maiman, L. A. (1975). Sociobehavioral determinants of compliance with health and medical care recommendations. Medical Care, 13(1), 10–24. https://doi.org/10.1097/00005650-197501000-00002
   PubMed Web of Science ®Google Scholar
• Berger, I., Dor, T., Nevo, Y., & Goldzweig, G. (2008). Attitudes toward attention-deficit hyperactivity disorder (ADHD) treatment: Parents’ and children's perspectives. Journal of Child Neurology, 23(9), 1036–1042. https://doi.org/10.1177/0883073808317726
   PubMed Web of Science ®Google Scholar
• Bond, G. G., Aiken, L. S., & Somerville, S. C. (1992). The health belief model and adolescents with insulin-dependent diabetes mellitus. Health Psychology, 11(3), 190–198. https://doi.org/10.1037/0278-6133.11.3.190
   PubMed Web of Science ®Google Scholar
• Brownlee-Duffeck, M., Peterson, L., Simonds, J. F., Goldstein, D., Kilo, C., & Hoette, S. (1987). The role of health beliefs in the regimen adherence and metabolic control of adolescents and adults with diabetes mellitus. Journal of Consulting and Clinical Psychology, 55(2), 139–144. https://doi.org/10.1037/0022-006X.55.2.139
   PubMed Web of Science ®Google Scholar
• Bucks, R. S., Hawkins, K., Skinner, T. C., Horn, S., Seddon, P., & Horne, R. (2009). Adherence to treatment in adolescents with cystic fibrosis: The role of illness perceptions and treatment beliefs. Journal of Pediatric Psychology, 34(8), 893–902. https://doi.org/10.1093/jpepsy/jsn135
   PubMed Web of Science ®Google Scholar
• Bundesärztekammer [BÄK], Kassenärztliche Bundesvereinigung [KBV], & Arbeitsgemeinschaft der Wissenschaftlichen Medizinischen Fachgesellschaften [AWMF]. (2020). Nationale VersorgungsLeitlinie Asthma – Langfassung. https://www.leitlinien.de/themen/asthma.
   Google Scholar
• Bush, P. J., & Iannotti, R. J. (1990). A children's health belief model. Medical Care, 28(1), 69–86. https://doi.org/10.1097/00005650-199001000-00008
   PubMed Web of Science ®Google Scholar
• Bussing, R., Koro-Ljungberg, M., Noguchi, K., Mason, D., Mayerson, G., & Garvan, C. W. (2012). Willingness to use ADHD treatments: A mixed methods study of perceptions by adolescents, parents, health professionals and teachers. Social Science & Medicine, 74(1), 92–100. https://doi.org/10.1016/j.socscimed.2011.10.009
   PubMed Web of Science ®Google Scholar
• Buston, K. M., & Wood, S. F. (2000). Non-compliance amongst adolescents with asthma: Listening to what they tell us about self-management. Family Practice, 17(2), 134–138. https://doi.org/10.1093/fampra/17.2.134
   PubMed Web of Science ®Google Scholar
• Cameron, L. D., & Leventhal, H. (2003). Self-regulation, health, and illness: An overview. In L. D. Cameron, & H. Leventhal (Eds.), The self-regulation of health and illness behaviour (pp. 1–13). Routledge.
   Google Scholar
• Ceppas Resende, O. L., Barbosa, M. T. S., Simoes, B. F. T., & Velasque, L. D. S. (2016). The representation of getting ill in adolescents with systemic lupus erythematosus. Revista Brasileira De Reumatologia, 56(5), 398–405.
   Google Scholar
• Champion, V. L. (1984). Instrument development for health belief model constructs. Advances in Nursing Science, 6(3), 73–85. https://doi.org/10.1097/00012272-198404000-00011
   PubMedGoogle Scholar
• Charach, A., Yeung, E., Volpe, T., Goodale, T., & dosReis, S. (2014). Exploring stimulant treatment in ADHD: Narratives of young adolescents and their parents. BMC Psychiatry, 14(1), 110. https://doi.org/10.1186/1471-244X-14-110
   PubMedGoogle Scholar
• Childerhose, J. E., Eneli, I., & Steele, K. E. (2018). Adolescent bariatric surgery: A qualitative exploratory study of US patient perspectives. Clinical Obesity, 8(5), 345–354. https://doi.org/10.1111/cob.12272
   PubMed Web of Science ®Google Scholar
• Citavi (Version 6) [Computer software]. Swiss Academic Software GmbH. https://www.citavi.com/de.
   Google Scholar
• Clark, J., Glasziou, P., Del Mar, C., Bannach-Brown, A., Stehlik, P., & Scott, A. M. (2020). A full systematic review was completed in 2 weeks using automation tools: A case study. Journal of Clinical Epidemiology, 121, 81–90. https://doi.org/10.1016/j.jclinepi.2020.01.008
   PubMed Web of Science ®Google Scholar
• Cooper, A. F., Jackson, G., Weinman, J., & Horne, R. (2005). A qualitative study investigating patients’ beliefs about cardiac rehabilitation. Clinical Rehabilitation, 19(1), 87–96. https://doi.org/10.1191/0269215505cr818oa
   PubMed Web of Science ®Google Scholar
• Cooper, A. F., Weinman, J., Hankins, M., Jackson, G., & Horne, R. (2007). Assessing patients’ beliefs about cardiac rehabilitation as a basis for predicting attendance after acute myocardial infarction. Heart, 93(1), 53–58. https://doi.org/10.1136/hrt.2005.081299
   PubMed Web of Science ®Google Scholar
• Cooper, P., & Shea, T. (1998). Pupils’ perceptions of AD/HD. Emotional and Behavioural Difficulties, 3(3), 36–48. https://doi.org/10.1080/1363275980030306
   Google Scholar
• DePaola, L. M., Roberts, M. C., Blaiss, M. S., Frick, P. J., & McNeal, R. E. (1997). Mothers’ and children's perceptions of asthma medication. Children's Health Care, 26(4), 265–283. https://doi.org/10.1207/s15326888chc2604_5
   Web of Science ®Google Scholar
• Deutsche Diabetes Gesellschaft [DDG] & Arbeitsgemeinschaft für Pädiatrische Diabetologie [AGPD]. (2015). S3-Leitlinie “Diagnostik, Therapie und Verlaufskontrolle des Diabetes mellitus im Kindes- und Jugendalter”. https://www.awmf.org/leitlinien/detail/ll/057-016.html.
   Google Scholar
• Deutsche Gesellschaft für Kinder- und Jugendpsychiatrie, Psychosomatik und Psychotherapie [DGKJP], Deutsche Gesellschaft für Psychiatrie und Psychotherapie, Psychosomatik und Nervenheilkunde [DGPPN], & Deutsche Gesellschaft für Sozialpädiatrie und Jugendmedizin [DGSPJ]. (2017). Langfassung der interdisziplinären evidenz- und konsensbasierten (S3) Leitlinie “Aufmerksamkeits-/Hyperaktivitätsstörung (ADHS) im Kindes-, Jugend- und Erwachsenenalter”. https://www.awmf.org/leitlinien/detail/ll/028-045.html.
   Google Scholar
• Deutsche Rentenversicherung Bund. (2009). Rahmenkonzept zur medizinischen Rehabilitation in der gesetzlichen Rentenversicherung [Framework concept of medical rehabilitation in the statutory pension insurance] (3rd ed.). Deutsche Rentenversicherung Bund.
   Google Scholar
• Deutsche Rentenversicherung Bund. (2019). Reha-Bericht 2019. Die medizinische und berufliche Rehabilitation der Rentenversicherung im Licht der Statistik [Rehab report 2019. The medical and occupational rehabilitation of the pension insurance in the light of statistics]. Deutsche Rentenversicherung Bund.
   Google Scholar
• Doyle, J., Colville, S., Brown, P., & Christie, D. (2018). How adolescents decide on bariatric surgery: An interpretative phenomenological analysis. Clinical Obesity, 8(2), 114–121. https://doi.org/10.1111/cob.12236
   PubMed Web of Science ®Google Scholar
• Eiser, C. (1989). Children's concepts of illness: Towards an alternative to the “stage” approach. Psychology & Health, 3(2), 93–101. https://doi.org/10.1080/08870448908400369
   Google Scholar
• Elm, E. v., Schreiber, G., & Haupt, C. C. (2019). Methodische Anleitung für Scoping Reviews (JBI-Methodologie) [Methodological Guidance for Scoping Reviews (JBI Methodology)]. Zeitschrift für Evidenz, Fortbildung und Qualitat im Gesundheitswesen, 143, 1–7. https://doi.org/10.1016/j.zefq.2019.05.004
   PubMedGoogle Scholar
• Emilsson, M., Berndtsson, I., Gustafsson, P. A., Horne, R., & Marteinsdottir, I. (2020). Reliability and validation of Swedish translation of beliefs about medication specific (BMQ-specific) and brief illness perception questionnaire (B-IPQ) for use in adolescents with attention-deficit hyperactivity disorder. Nordic Journal of Psychiatry, 74(2), 89–95. https://doi.org/10.1080/08039488.2019.1674376
   PubMed Web of Science ®Google Scholar
• Emilsson, M., Gustafsson, P., Öhnström, G., & Marteinsdottir, I. (2020). Impact of personality on adherence to and beliefs about ADHD medication, and perceptions of ADHD in adolescents. BMC Psychiatry, 20(139), 1–10. https://doi.org/10.1186/s12888-020-02543-x
   PubMedGoogle Scholar
• Emilsson, M., Gustafsson, P. A., Öhnström, G., & Marteinsdottir, I. (2017). Beliefs regarding medication and side effects influence treatment adherence in adolescents with attention deficit hyperactivity disorder. European Child & Adolescent Psychiatry, 26(5), 559–571. https://doi.org/10.1007/s00787-016-0919-1
   PubMed Web of Science ®Google Scholar
• Farin, E., Gustke, M., Widera, T., & Matthies, S. (2012). Ergebnisqualität in der Kinder-Jugend-Rehabilitation: Resultate eines Projekts zur Entwicklung eines Qualitätssicherungsverfahrens [Outcome quality in rehabilitation of children and adolescents: results of project aiming at the development of a quality assurance programme]. Das Gesundheitswesen, 74(6), 358–370. https://doi.org/10.1055/s-0031-1280756
   PubMedGoogle Scholar
• Félix, S., Ramalho, S., Ribeiro, E., Pinheiro, J., Lourdes, M. d., Gonçalves, S., & Conceição, E. (2022). Experiences of parent–adolescent dyads regarding a Facebook-based intervention to improve overweight/obesity treatment in adolescents: A qualitative study. Applied Psychology: Health and Well-Being, 14(1), 122–139. https://doi.org/10.1111/aphw.12294
   PubMed Web of Science ®Google Scholar
• Ferrin, M., Ruiz-Veguilla, M., Blanc-Betes, M., Abd, S. E., Lax-Pericall, T., Sinclair, M., & Taylor, E. (2012). Evaluation of attitudes towards treatment in adolescents with attention deficit hyperactivity disorder (ADHD). European Child & Adolescent Psychiatry, 21(7), 387–401. https://doi.org/10.1007/s00787-012-0277-6
   PubMed Web of Science ®Google Scholar
• Fiese, B. H., & Sameroff, A. J. (1989). Family context in pediatric psychology: A transactional perspective. Journal of Pediatric Psychology, 14(2), 293–314. https://doi.org/10.1093/jpepsy/14.2.293
   PubMed Web of Science ®Google Scholar
• Glasgow, R. E., McCaul, K. D., & Schafer, L. C. (1986). Barriers to regimen adherence among persons with insulin-dependent diabetes. Journal of Behavioral Medicine, 9(1), 65–77. https://doi.org/10.1007/BF00844645
   PubMed Web of Science ®Google Scholar
• Glattacker, M., Heyduck, K., & Meffert, C. (2009). Entwicklung eines Fragebogens zur Erfassung des subjektiven Behandlungskonzepts von Rehabilitanden [Development of a questionnaire to assess treatment representations in rehabilitation patients]. Die Rehabilitation, 48(6), 345–353. https://doi.org/10.1055/s-0029-1234052
   PubMedGoogle Scholar
• Göbel, K., Baumgarten, F., Kuntz, B., Hölling, H., & Schlack, R. (2018). ADHS bei Kindern und Jugendlichen in Deutschland – Querschnittergebnisse aus KiGGS Welle 2 und Trends [ADHD in children and adolescents in Germany- cross-sectional results from KiGGS wave 2 and trends]. Journal of Health Monitoring, 3(3), 46–53. https://doi.org/10.17886/RKI-GBE-2018-078
   Google Scholar
• Gray, S. E., & Rutter, D. R. (2007). Illness representations in young people with chronic fatigue syndrome. Psychology & Health, 22(2), 159–174. https://doi.org/10.1080/14768320600774595
   Web of Science ®Google Scholar
• Grey, M., Knafl, K., & McCorkle, R. (2006). A framework for the study of self- and family management of chronic conditions. Nursing Outlook, 54(5), 278–286. https://doi.org/10.1016/j.outlook.2006.06.004
   PubMed Web of Science ®Google Scholar
• Guariguata, L., & Jeyaseelan, S. (2019). Children and non-communicable diseases: Global burden report 2019. Toronto. NCD Child.
   Google Scholar
• Hagger, M. S., & Orbell, S. (2022). The common sense model of illness self-regulation: A conceptual review and proposed extended model. Health Psychology Review, 16(3), 347–377. https://doi.org/10.1080/17437199.2021.1878050
   PubMed Web of Science ®Google Scholar
• Hampl, S. E., Hassink, S. G., Skinner, A. C., Armstrong, S. C., Barlow, S. E., Bolling, C. F., Avila Edwards, K. C., Eneli, I., Hamre, R., Joseph, M. M., & Lunsford, D. (2023). Executive summary: Clinical practice guideline for the evaluation and treatment of children and adolescents With obesity. Pediatrics, 151, 2. https://doi.org/10.1542/peds.2022-060641
   Google Scholar
• Harpur, R. A., Thompson, M., Daley, D., Abikoff, H., & Sonuga-Barke, E. J. S. (2008). The attention-deficit/hyperactivity disorder medication-related attitudes of patients and their parents. Journal of Child and Adolescent Psychopharmacology, 18(5), 461–473. https://doi.org/10.1089/cap.2008.023
   PubMed Web of Science ®Google Scholar
• Harris, R., & Linn, M. W. (1985). Health beliefs, compliance, and control of diabetes mellitus. Southern Medical Journal, 78(2), 162–166. https://doi.org/10.1097/00007611-198502000-00011
   PubMed Web of Science ®Google Scholar
• Hébert, J., Polotskaia, A., Joober, R., & Grizenko, N. (2013). Adherence to psychostimulant medication in children with attention-deficit/hyperactivity disorder: The role of attitudes. Journal of the Canadian Academy of Child and Adolescent Psychiatry, 22(4), 317–323.
   PubMedGoogle Scholar
• Heyduck, K., Glattacker, M., & Meffert, C. (2011). Rehabilitation aus Patientensicht-Eine qualitative Analyse der subjektiven Behandlungskonzepte von Patienten in der stationären orthopädischen und psychosomatischen Rehabilitation [Rehabilitation from the patient perspective-a qualitative analysis of the treatment beliefs of patients in inpatient orthopedic and psychosomatic rehabilitation]. Die Rehabilitation, 50(4), 232–243. https://doi.org/10.1055/s-0030-1268000
   PubMedGoogle Scholar
• Heyduck-Weides, K., Bengel, J., Farin, E., & Glattacker, M. (2019). Measuring illness perceptions in the family context: Psychometric properties of the IPQ-R adapted for adolescent-caregiver dyads. Psychology & Health, 34(1), 1–23. https://doi.org/10.1080/08870446.2018.1494830
   PubMed Web of Science ®Google Scholar
• Horne, R. (1999). Patients’ beliefs about treatment: the hidden determinant of treatment outcome? Journal of Psychosomatic Research, 47(6), 491–495. https://doi.org/10.1016/S0022-3999(99)00058-6
   PubMed Web of Science ®Google Scholar
• Horne, R. (2003). Treatment perceptions and self-regulation. In L. D. Cameron, & H. Leventhal (Eds.), The self-regulation of health and illness behaviour (pp. 138–153). Routledge.
   Google Scholar
• Horne, R., Chapman, S. C. E., Parham, R., Freemantle, N., Forbes, A., & Cooper, V. (2013). Understanding patients’ adherence-related beliefs about medicines prescribed for long-term conditions: A meta-analytic review of the necessity-concerns framework. PLoS ONE, 8(12), e80633. https://doi.org/10.1371/journal.pone.0080633
   PubMed Web of Science ®Google Scholar
• Horne, R., Weinman, J., & Hankins, M. (1999). The beliefs about medicines questionnaire: The development and evaluation of a new method for assessing the cognitive representation of medication. Psychology & Health, 14(1), 1–24. https://doi.org/10.1080/08870449908407311
   Web of Science ®Google Scholar
• Hoß, K., & Maier, R. F. (2013). Medizinische Grundlagen [Medical basics]. In M. Pinquart (Ed.), Wenn Kinder und Jugendliche körperlich chronisch krank sind [When children and adolescents are physically chronically ill] (pp. 1–16). Springer-Verlag.
   Google Scholar
• Jodelet, D. (2001). Representac¸ões sociais: um domínio em expansão. In D. Jodelet (Ed.), As representac¸ões sociais (pp. 17–44). Eduerj.
   Google Scholar
• Jones, C. J., Llewellyn, C. D., Frew, A. J., Du Toit, G., Mukhopadhyay, S., & Smith, H. (2015). Factors associated with good adherence to self-care behaviours amongst adolescents with food allergy. Pediatric Allergy and Immunology, 26(2), 111–118. https://doi.org/10.1111/pai.12333
   PubMed Web of Science ®Google Scholar
• Jones, C. J., Smith, H. E., Frew, A. J., Du Toit, G., Mukhopadhyay, S., & Llewellyn, C. D. (2014). Explaining adherence to self-care behaviours amongst adolescents with food allergy: A comparison of the health belief model and the common sense self-regulation model. British Journal of Health Psychology, 19(1), 65–82. https://doi.org/10.1111/bjhp.12033
   PubMed Web of Science ®Google Scholar
• Jonsdottir, H., Friis, S., Horne, R., Pettersen, K. I., Reikvam, A., & Andreassen, O. A. (2009). Beliefs about medications: measurement and relationship to adherence in patients with severe mental disorders. Acta Psychiatrica Scandinavica, 119(1), 78–84. https://doi.org/10.1111/j.1600-0447.2008.01279.x
   PubMed Web of Science ®Google Scholar
• Jung, C. G. (1918). Studies in word-association: Experiments in the diagnosis of psychopathological conditions carried out at the psychiatric clinic of the university of Zurich, under the direction of C. G. Jung. University of Michigan.
   Google Scholar
• Kamtsiuris, P., Atzpodien, K., Ellert, U., Schlack, R., & Schlaud, M. (2007). Prävalenz von somatischen Erkrankungen bei Kindern und Jugendlichen in Deutschland [Prevalence of somatic diseases in German children and adolescents. Results of the German Health Interview and Examination Survey for Children and Adolescents (KiGGS)]. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz, 50(5), 686–700. https://doi.org/10.1007/s00103-007-0230-x
   PubMedGoogle Scholar
• Kanth, E., & Kusch, M. (2011). Stellenwert von Selbstmanagement-Interventionen bei Kindern mit besonderem Versorgungsbedarf [Role of self-management interventions in children with special care needs]. In C. von Hagen, & H. P. Schwarz (Eds.), Selbstmanagement bei chronischen Erkrankungen im Kindes- und Jugendalter [Self-management of chronic diseases in childhood and adolescence] (pp. 75–107). Kohlhammer.
   Google Scholar
• Klipker, K., Baumgarten, F., Göbel, K., Lampert, T., & Hölling, H. (2018). Psychische Auffälligkeiten bei Kindern und Jugendlichen in Deutschland – Querschnittergebnisse aus KiGGS Welle 2 und Trends [Mental disorders in children and adolescents in Germany - cross-sectional results from KiGGS wave 2 and trends]. Journal of Health Monitoring, 3(3), 37–45. https://doi.org/10.17886/RKI-GBE-2018-077
   Google Scholar
• Kosse, R. C., Bouvy, M. L., Philbert, D., Vries, T. W., & Koster, E. S. (2017). Attention-Deficit/Hyperactivity disorder medication Use in adolescents: The patient's perspective. Journal of Adolescent Health, 61(5), 619–625. https://doi.org/10.1016/j.jadohealth.2017.05.027
   PubMed Web of Science ®Google Scholar
• Kosse, R. C., Koster, E. S., Kaptein, A. A., Vries, T. W. d., & Bouvy, M. L. (2020). Asthma control and quality of life in adolescents: The role of illness perceptions, medication beliefs, and adherence. Journal of Asthma, 57(10), 1145–1154. https://doi.org/10.1080/02770903.2019.1635153
   PubMed Web of Science ®Google Scholar
• Koster, E. S., Philbert, D., Winters, N. A., & Bouvy, M. L. (2015). Adolescents’ inhaled corticosteroid adherence: The importance of treatment perceptions and medication knowledge. Journal of Asthma, 52(4), 431–436. https://doi.org/10.3109/02770903.2014.979366
   PubMed Web of Science ®Google Scholar
• Kourrouski, M. F. C., & Lima, R. A. G. (2009). Treatment adherence: The experience of adolescents with HIV/AIDS. Revista Latino-Americana De Enfermagem, 17(6), 947–952.
   PubMed Web of Science ®Google Scholar
• Laferton, J. A. C., Kube, T., Salzmann, S., Auer, C. J., & Shedden-Mora, M. C. (2017). Patients’ expectations regarding medical treatment: A critical review of concepts and their assessment. Frontiers in Psychology, 8, 233. https://doi.org/10.3389/fpsyg.2017.00233
   PubMed Web of Science ®Google Scholar
• Law, G. U., Tolgyesi, C. S., & Howard, R. A. (2014). Illness beliefs and self-management in children and young people with chronic illness: A systematic review. Health Psychology Review, 8(3), 362–380. https://doi.org/10.1080/17437199.2012.747123
   PubMed Web of Science ®Google Scholar
• Lefebvre, C., Glanville, J., Briscoe, S., Featherstone, R., Littlewood, A., Marshall, C., Metzendorf, M–I, Noel-Storr, A., Paynter, R., Rader, T., Thomas, J., & Wieland, L. S. (2022). Cochrane Handbook for Systematic Reviews of Interventions version 6.3 (updated February 2022): Chapter 4: Searching for and selecting studies. Cochrane. www.training.cochrane.org/handbook.
   Google Scholar
• Leventhal, H., Meyer, D., & Nerenz, D. (1980). The common sense representation of illness danger. In S. Rachman (Ed.), Contributions to medical psychology (2nd ed) (pp. 7–30). Pergamon.
   Google Scholar
• Li, M. K., Regina, A., Strom, M., Kim, M. S., Philipp-Muller, N., & Hamilton, J. K. (2021). It's a tool, not a cure”: The preoperative teen perspective on bariatric surgery. Surgery for Obesity and Related Diseases, 17(6), 1190–1197. https://doi.org/10.1016/j.soard.2021.02.004
   PubMed Web of Science ®Google Scholar
• Lohaus, A. (2013). Kindliche Krankheitskonzepte [Children’s conceptions about illness]. In M. Pinquart (Ed.), Wenn Kinder und Jugendliche körperlich chronisch krank sind [When children and adolescents are physically chronically ill] (pp. 17–32). Springer-Verlag.
   Google Scholar
• Lohaus, A., & Ball, J. (2006). Gesundheit und Krankheit aus Sicht von Kindern [Health and illness from the perspective of children] (2nd ed.). Hogrefe-Verlag.
   Google Scholar
• Maes, S., & Karoly, P. (2005). Self-Regulation assessment and intervention in physical health and illness: A review. Applied Psychology, 54(2), 267–299. https://doi.org/10.1111/j.1464-0597.2005.00210.x
   Web of Science ®Google Scholar
• McNeal, R. E., Roberts, M. C., & Barone, V. J. (2000). Mothers’ and children's perceptions of medication for children with attention-deficit hyperactivity disorder. Child Psychiatry and Human Development, 30(3), 173–187. https://doi.org/10.1023/A:1021347621455
   PubMed Web of Science ®Google Scholar
• McQuaid, E. L., Kopel, S. J., Seifer, R., Tackett, A., Farrow, M., Koinis-Mitchell, D., & Dunsiger, S. (2021). Patterns of asthma medication Use across the transition to high school. Journal of Pediatric Psychology, 46(5), 578–587. https://doi.org/10.1093/jpepsy/jsab001
   PubMed Web of Science ®Google Scholar
• Metzner, G., Höhn, C., Nau, A., Sehlbrede, M., Waldeck, E., & Glattacker, M. (2023). Treatment beliefs of children and adolescents with chronic diseases: Development of the rehabilitation treatment beliefs questionnaire for children and adolescents. Journal of Pediatric Psychology, 48(1), 5–13. https://doi.org/10.1093/jpepsy/jsac033
   PubMed Web of Science ®Google Scholar
• Metzner, G., Höhn, C., Waldeck, E., Stapel, M., & Glattacker, M. (2022). Rehabilitation-related treatment beliefs in adolescents: A qualitative study. Child: Care, Health and Development, 48(2), 239–249. https://doi.org/10.1111/cch.12922
   PubMed Web of Science ®Google Scholar
• Michaud, P. A., Suris, J. C., & Viner, R. (2007). The adolescent with a chronic condition: Epidemiology, developmental issues and health care provision. World Health Organization.
   Google Scholar
• Modi, A. C., Pai, A. L., Hommel, K. A., Hood, K. K., Cortina, S., Hilliard, M. E., Guilfoyle, S. M., Gray, W. N., & Drotar, D. (2012). Pediatric self-management: A framework for research, practice, and policy. Pediatrics, 129(2), e473–e485. https://doi.org/10.1542/peds.2011-1635
   PubMed Web of Science ®Google Scholar
• Moscovic, S. (1978). A representac¸ão social da psicanálise. Zahar.
   Google Scholar
• Müssener, U., Örn, M., Olbers, T., Löf, M., & Sjögren, L. (2022). Adolescents’ and professionals’ experiences of metabolic and bariatric surgery and requirements for preoperative and postoperative support through mHealth: A qualitative study. BMJ Open, 12(11), e064893. https://doi.org/10.1136/bmjopen-2022-064893
   PubMed Web of Science ®Google Scholar
• Naimi, D. R., Freedman, T. G., Ginsburg, K. R., Bogen, D., Rand, C. S., & Apter, A. J. (2009). Adolescents and asthma: Why bother with our meds? Journal of Allergy and Clinical Immunology, 123(6), 1335–1341. https://doi.org/10.1016/j.jaci.2009.02.022
   PubMed Web of Science ®Google Scholar
• Noeker, M. (2011). Motivations- und gesundheitspsychologische grundlagen [motivational and health psychological basics]. In C. von Hagen, & H. P. Schwarz (Eds.), Selbstmanagement bei chronischen erkrankungen im kindes- und jugendalter [self-management of chronic diseases in childhood and adolescence] (pp. 46–61). Kohlhammer.
   Google Scholar
• Ouzzani, M., Hammady, H., Fedorowicz, Z., & Elmagarmid, A. (2016). Rayyan-a web and mobile app for systematic reviews. Systematic Reviews, 5(1), 210. https://doi.org/10.1186/s13643-016-0384-4
   PubMedGoogle Scholar
• Papastefanou, C. (2011). Entwicklungspsychologische Grundlagen [Developmental psychological basics]. In C. von Hagen, & H. P. Schwarz (Eds.), Selbstmanagement bei chronischen Erkrankungen im Kindes- und Jugendalter [Self-management of chronic diseases in childhood and adolescence] (pp. 30–45). Kohlhammer.
   Google Scholar
• Park, M. J., Brindis, C. D., Vaughn, B., Barry, M., Guzman, L., & Berger, A. (2013). Adolescent health highlight: Chronic conditions. Child Trends and the National Adolescent and Young Adult Health Information Center at the University of California, San Francisco.
   Google Scholar
• Pelander, T., & Leino-Kilpi, H. (2004). Quality in pediatric nursing care: Children's expectations. Issues in Comprehensive Pediatric Nursing, 27(3), 139–151. https://doi.org/10.1080/01460860490497778
   PubMedGoogle Scholar
• Perrin, J. M., Anderson, L. E., & van Cleave, J. (2014). The rise in chronic conditions among infants, children, and youth can be met with continued health system innovations. Health Affairs (Project Hope), 33(12), 2099–2105. https://doi.org/10.1377/hlthaff.2014.0832
   PubMed Web of Science ®Google Scholar
• Peters, M. D. J., Godfrey, C. M., Khalil, H., McInerney, P., Parker, D., & Soares, C. B. (2015). Guidance for conducting systematic scoping reviews. International Journal of Evidence-Based Healthcare, 13(3), 141–146. https://doi.org/10.1097/XEB.0000000000000050
   PubMed Web of Science ®Google Scholar
• Piaget, J. (1975). Das Erwachen der Intelligenz beim Kinde [The awakening of intelligence in the child]. Klett.
   Google Scholar
• Rhodes, E. T., Boles, R. E., Chin, K., Christison, A., Testa, E. G., Guion, K., Hawkins, M. J., Petty, C. R., Sallinen Gaffka, B., Santos, M., Shaffer, L., Tucker, J., & Hampl, S. E. (2017). Expectations for treatment in pediatric weight management and relationship to attrition. Childhood Obesity, 13(2), 120–127. https://doi.org/10.1089/chi.2016.0215
   PubMed Web of Science ®Google Scholar
• Rosenstock, I. M. (1966). Why people use health services. The Milbank Memorial Fund Quarterly, 44(3), 94–127. https://doi.org/10.2307/3348967
   PubMedGoogle Scholar
• Ryan, P., & Sawin, K. J. (2009). The individual and family self-management theory: Background and perspectives on context, process, and outcomes. Nursing Outlook, 57(4), 217–225. https://doi.org/10.1016/j.outlook.2008.10.004
   PubMed Web of Science ®Google Scholar
• Sawyer, S. M., Azzopardi, P. S., Wickremarathne, D., & Patton, G. C. (2018). The age of adolescence. The Lancet Child & Adolescent Health, 2(3), 223–228. https://doi.org/10.1016/S2352-4642(18)30022-1
   PubMedGoogle Scholar
• Schienkiewitz, A., Brettschneider, A–K, Damerow, S., & Schaffrath Rosario, A. (2018). Übergewicht und Adipositas im Kindes- und Jugendalter in Deutschland – Querschnittergebnisse aus KiGGS Welle 2 und Trends [Overweight and obesity in childhood and adolescence in Germany - cross-sectional results from KiGGS wave 2 and trends]. Journal of Health Monitoring, 3(1), 16–23. https://doi.org/10.17886/RKI-GBE-2018-005
   Google Scholar
• Schmidt, S., & Thyen, U. (2008). Was sind chronisch kranke Kinder? How to define chronically ill children]. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz, 51(6), 585–591. https://doi.org/10.1007/s00103-008-0534-5
   PubMedGoogle Scholar
• Seiffge-Krenke, I. (2013). Stressbewältigung und Krankheitsmanagement bei chronischer Krankheit in Kindheit und Adoleszenz [Stress and illness management of chronic illness in childhood and adolescence]. In M. Pinquart (Ed.), Wenn Kinder und Jugendliche körperlich chronisch krank sind [When children and adolescents are physically chronically ill] (pp. 33–48). Springer-Verlag.
   Google Scholar
• Snoek, F. J., Skovlund, S. E., & Pouwer, F. (2007). Development and validation of the insulin treatment appraisal scale (ITAS) in patients with type 2 diabetes. Health and Quality of Life Outcomes, 5(1), 69. https://doi.org/10.1186/1477-7525-5-69
   PubMedGoogle Scholar
• Sonney, J., & Insel, K. C. (2016). Reformulating the common sense model of self-regulation: Toward Parent-child shared regulation. Nursing Science Quarterly, 29(2), 154–159. https://doi.org/10.1177/0894318416630091
   PubMed Web of Science ®Google Scholar
• Sonney, J., & Insel, K. C. (2019). Exploring the intersection of executive function and medication adherence in school-age children with asthma. Journal of Asthma, 56(2), 179–189. https://doi.org/10.1080/02770903.2018.1441870
   PubMed Web of Science ®Google Scholar
• Sonney, J., Insel, K. C., Segrin, C., Gerald, L. B., & Ki Moore, I. M. (2017). Association of asthma illness representations and reported controller medication adherence Among school-aged children and their parents. Journal of Pediatric Health Care, 31(6), 703–712. https://doi.org/10.1016/j.pedhc.2017.06.002
   PubMed Web of Science ®Google Scholar
• Stein, R. E., Bauman, L. J., Westbrook, L. E., Coupey, S. M., & Ireys, H. T. (1993). Framework for identifying children who have chronic conditions: The case for a new definition. The Journal of Pediatrics, 122(3), 342–347. https://doi.org/10.1016/S0022-3476(05)83414-6
   PubMed Web of Science ®Google Scholar
• Thamm, R., Poethko-Müller, C., Hüther, A., & Thamm, M. (2018). Allergische Erkrankungen bei Kindern und Jugendlichen in Deutschland – Querschnittergebnisse aus KiGGS Welle 2 und Trends [Allergic diseases in children and adolescents in Germany - cross-sectional results from KiGGS wave 2 and trends]. Journal of Health Monitoring, 3(3), 3–18. https://doi.org/10.17886/RKI-GBE-2018-075
   PubMedGoogle Scholar
• Tricco, A. C., Lillie, E., Zarin, W., O'Brien, K. K., Colquhoun, H., Levac, D., Moher, D., Peters, M. D., Horsley, T., Weeks, L., & Hempel, S. (2018). Prisma extension for scoping reviews (PRISMA-ScR): checklist and explanation. Annals of Internal Medicine, 169(7), 467–473. https://doi.org/10.7326/M18-0850
   PubMed Web of Science ®Google Scholar
• van Cleave, J., Gortmaker, S. L., & Perrin, J. M. (2010). Dynamics of obesity and chronic health conditions among children and youth. JAMA, 303(7), 623–630. https://doi.org/10.1001/jama.2010.104
   PubMed Web of Science ®Google Scholar
• van der Lee, J. H., Mokkink, L. B., Grootenhuis, M. A., Heymans, H. S., & Offringa, M. (2007). Definitions and measurement of chronic health conditions in childhood: A systematic review. JAMA, 297(24), 2741–2751. https://doi.org/10.1001/jama.297.24.2741
   PubMed Web of Science ®Google Scholar
• van Os, S. B., Troop, N. A., Sullivan, K. R., & Hart, D. P. (2017). Adherence to prophylaxis in adolescents and young adults with severe haemophilia: A quantitative study with patients. PLoS ONE, 12(1), e0169880. https://doi.org/10.1371/journal.pone.0169880
   PubMed Web of Science ®Google Scholar
• Walker, C., Papadopoulos, L., Lipton, M., & Hussein, M. (2006). The importance of children's illness beliefs: The children's illness perception questionnaire (CIPQ) as a reliable assessment tool for eczema and asthma. Psychology, Health & Medicine, 11(1), 100–107. https://doi.org/10.1080/13548500500155792
   PubMedGoogle Scholar
• Warschburger, P. (2000). Chronisch kranke Kinder und Jugendliche: Psychosoziale Belastung und Bewältigungsherausforderung [Chronically ill children and adolescents: Psychosocial stress and coping challenge]. Hogrefe-Verlag.
   Google Scholar
• White, B., Jamieson, L., Clifford, S., Shield, J. P. H., Christie, D., Smith, F., Wong, I. C. K., & Viner, R. M. (2015). Adolescent experiences of anti-obesity drugs. Clinical Obesity, 5(3), 116–126. https://doi.org/10.1111/cob.12101
   PubMedGoogle Scholar
• Wisting, L., Bang, L., Skrivarhaug, T., Dahl-Jorgensen, K., & Ro, O. (2015). Adolescents with type 1 diabetes – The impact of gender, Age, and health-related functioning on eating disorder psychopathology. PLoS ONE, 10(11), e0141386. https://doi.org/10.1371/journal.pone.0141386
   PubMed Web of Science ®Google Scholar
• Wisting, L., Bang, L., Skrivarhaug, T., Dahl-Jorgensen, K., & Ro, O. (2016). Psychological barriers to optimal insulin therapy: More concerns in adolescent females than males. BMJ Open Diabetes Research & Care, 4(1), e000203. https://doi.org/10.1136/bmjdrc-2016-000203
   PubMed Web of Science ®Google Scholar
• Yilmaz, O., Eroglu, N., Ozalp, D., & Yuksel, H. (2012). Beliefs about medications in asthmatic children presenting to emergency department and their parents. Journal of Asthma, 49(3), 282–287. https://doi.org/10.3109/02770903.2011.654021
   PubMed Web of Science ®Google Scholar
• Zelikovsky, N., Dobson, T., & Norman, J. (2011). Medication beliefs and perceived barriers in adolescent renal transplant patients and their parents. Pediatric Nephrology, 26(6), 953–959. https://doi.org/10.1007/s00467-011-1805-1
   PubMed Web of Science ®Google Scholar
• Zelikovsky, N., & Nelson, E. (2021). Illness perceptions and beliefs about medication: Impact on health-related quality of life in adolescent kidney transplant recipients. Pediatric Transplantation, 25(3), e13988. https://doi.org/10.1111/petr.13988
   PubMed Web of Science ®Google Scholar