2,941
Views
0
CrossRef citations to date
0
Altmetric
SOCIOLOGY

Exploring the experiences of family caregivers with people with drug-resistant tuberculosis

ORCID Icon & | (Reviewing editor)
Article: 1906494 | Received 26 Mar 2019, Accepted 18 Mar 2021, Published online: 23 Apr 2021

References

  • Ahmed, S. I., Farooqui, M., & Hassali, M. A. (2018). Facilitators and barriers affecting adherence among people living with HIV/AIDS: A qualitative Perspective. Journal of Patience Experience, 1–16.
  • Burtscher, D., Van Den Bergh, R., Toktosunov, U., Angmo, N., Samieva, N., & Arechaga, E. P. (2016). “My Favourite Day is Sunday”: Community perceptions of (Drug Resistant) Tuberculosis care in Kara Suu District, Osh Province, Kyrgyzstan. Plos One, 11(3), 1–16. https://doi.org/10.1371/journal.pone.0152283
  • Chanda, D., & Gosnell, D. (2006). The impact of tuberculosis on Zambia and the Zambian nursing workforce. American Nurses Association, 11, 61–69.
  • Chimwaza, A. (2005). Caregivers experiences with care for HIV/AIDS patients in Malawi [ Unpublished master’s thesis]. University of Malawi.
  • Chinenye, N. M. (2018). Evaluation of knowledge, attitudes and practices of TB diagnosed patients in Rwanda towards TB infection. Case of TB diagnosed patients in Kigali Urban and rural health facilities. International Journal of Scientific and Research Publications, 5, 1–19.
  • Chingonzoh, R., Manesen, M. R., Madlavu, M. J., Sopiseka, N., Nokwe, M., & Emwerem, M. (2018). Risk factors for mortality among adults registered on the routine drug resistant tuberculosis-reporting database in the Eastern Cape Province, South Africa, 2011 to 2013. Plos One, 13(8), e0202469. https://doi.org/10.1371/journal.pone.0202469
  • Coovadia, H., Jewkes, R., Barron, P., Sanders, D., & McIntyre, D. (2009). The health and health system of South Africa: Historical roots of current public health challenges. Lancet, 374(9692), 817–834. https://doi.org/10.1016/S0140-6736(09)60951-X
  • Demmer, C. (2011). Experiences of families caring for an HIV-infected child in KwaZulu-Natal, South Africa: An exploratory study. AIDS Care, 23(7), 873–879. https://doi.org/10.1080/09540121.2010.542123
  • Du Toit, D. A., & Van Staden, S. J. (2007). Nursing sociology. Butterworth Publishers.
  • Fana, T., Mayekiso, T., & Gwandure, C. (2013). An assessment of community member’s knowledge of Drug Resistant Tuberculosis and HIV and AIDS in the Eastern Cape Province, South Africa. Africa Insights, 43, 59–73.
  • Fana, T. E. (2019). HIV and AIDS knowledge among the resident of informal settlements in Port Elizabeth, South Africa. International Journal of HIV/AIDS Prevention, Education and Behavioural Sciences, 4, 57–65.
  • Fana, T. E., Ijeoma, E., & Eyles, J. (2018). A qualitative descriptive, cross sectional study about knowledge levels of Drug Resistant Tuberculosis among residents of Port Elizabeth, Eastern Cape Province, South Africa. Journal of Health and Medical Sciences, 1(1), 27–41. https://doi.org/10.31014/aior.1994.01.01.5
  • Ilja, O., Susan, L., Courtney, A., Mark, Y., Saint-Cyr, M., Kerry, K., Josephine, D., & Macaulay, A. C. (2017). When one is sick and two need help: Caregivers’ perspectives on the negative consequences of caring. Patient Experience Journal, 4, 1–8.
  • Javed, H., Tahir, Z., Hashmi, H. J., & Jamil, Z. (2016). A cross-sectional study about knowledge and attitudes towards multidrug – Resistant and extensively drug – Resistant tuberculosis in a high burden drug resistant country. International Journal of Mycobacteriology, 5(1), 1–7. https://doi.org/10.1016/j.ijmyco.2015.09.001
  • Kanyerere, H., Harries, A. D., & Tayler-Smith, K. (2016). The rise and fall of tuberculosis in Malawi: Associations with HIV infection and antiretroviral therapy. Tropical Medicine and International Health, 21(1), 101–107. https://doi.org/10.1111/tmi.12630
  • Kohli, R., Purohit, V., & Karve, L. (2012). Caring for caregivers of people living with HIV in the Family: A response to the HIV pandemic from two urban slum communities in Pune, India. Plos One, 7(9), e44989. https://doi.org/10.1371/journal.pone.0044989
  • Lambert, S. D., Bowe, S. J., Livingston, P. M., Heckel, L., Cook, S., Kowal, P., & Orellana, L. (2017). Impact of informal caregiving on older adults’ physical and mental health in low-income and middle-income countries: A cross-sectional, secondary analysis based on the WHO’s study on global AGEing and adult health. BMJ Open, 7(11), e017236. https://doi.org/10.1136/bmjopen-2017-017236
  • Lindsey, E., Hirschfeld, M., Tlou, S., & Ncube, E. (2003). Home-based care in Botswana: Experiences of older women and young girls. Health Care Women International, 24(6), 486–501. https://doi.org/10.1080/07399330390199384
  • Livingston, G., Barber, J., Rapaport, P., Knapp, M., Griffin, M., King, D., Livingston, D., Mummery, C., Walker, Z., & Hoe, J. (2013). Clinical effectiveness of a manual based coping strategy programme (START) in promoting the mental health of carers of family members with dementia: Pragmatic randomised controlled trial. BMJ, 347(oct25 2), 62–76. https://doi.org/10.1136/bmj.f6276
  • Luba, T. R., Tang, S., Liu, Q., Gebremedhin, S. A., Kisasi, M. D., & Feng, Z. (2019). Knowledge, attitudes and associated factors towards TB in Lesotho: A population based study. BMC Infectious Diseases, 19(1), 90–96. https://doi.org/10.1186/s12879-019-3688-x
  • Ma, E., Ren, L., & Wang, W. (2019). Demographic and socioeconomic disparity in knowledge about tuberculosis in-inner Mongolia, China. Journal of Epidemiology, 25(4), 312.https://doi.org/10.2188/jea.JE20140033
  • Majumdar, B., & Mazaleni, N. (2010). The experiences of people living with HIV/AIDS and of their direct informal caregivers in a resource-poor setting. Journal of the International AIDS Society, 13(1), 1–9. https://doi.org/10.1186/1758-2652-13-20
  • Mashau, N., & Davhana-Maselesele, M. (2009). Experiences of HIV/AIDS home-based caregiver in Vhembe District, Limpopo Province. Curations, 32, 40–47.
  • Moller, V., & Erstad, I. (2007). Stigma associated with tuberculosis in time of HIV/AIDS: Narratives from the Eastern Cape, South Africa. South African Review of Sociology, 38(2), 103–109. https://doi.org/10.1080/21528586.2007.10419170
  • Mthembu, T. G., Brown, Z., Cupido, A., Razack, G., & Wasung, D. (2016). Family caregivers’ experiences regarding caring for the older adults with chronic diseases. South African Journal of Occupational Therapy, 46(1), 83–88. https://doi.org/10.17159/2310-3833/2016/v46n1a15
  • Ndjeka, N. (2014). Multi-Drug Resistant TB: Strategic overview on MDR-TB care in South Africa: National Department of Health: South Africa.
  • Pallando, E., & Mayers, P. (2009). Experiences of informal female caregivers providing care for people living with HIV in Dar es Salaam, Tanzania. Journal of the Association of Nurses and AIDS Care, 20(6), 481–493. https://doi.org/10.1016/j.jana.2009.05.002
  • Sagbakken, M., Frich, J. C., & Bjune, G. (2008). Barriers and enablers in the management of tuberculosis treatment in Addis Ababa, Ethiopia: A qualitative study. BMC Public Health, 6, 2–14.
  • Senthilingam, M., Pietersen, F., McNerney, R., Riele, J. T., Sedres, P., Wilson, R., & Dheda, K. (2015). Lifestyle, attitudes and needs of uncured XDR-TB patients living in the communities of South Africa: A qualitative study. Tropical Medicine and International Health, 20(9), 155–161. https://doi.org/10.1111/tmi.12532
  • Sharma, N., Chakrabarti, S., & Grover, S. (2016). Gender differences in caregiving among family – Caregivers of people with mental illnesses. World Journal of Psychiatry, 6(1), 7–17. https://doi.org/10.5498/wjp.v6.i1.7
  • South African Department of Health. (2009). National Tuberculosis Management Guidelines.
  • South African National Department of Health. (2011). Management of Drug-Resistant Tuberculosis: Policy Guidelines.
  • Sukumani, J. T., Lebese, R. T., Khoza, L. B., & Risenga, P. R. (2012). Experiences of family members caring for tuberculosis patients at home in Vhembe district of the Limpopo Province. Curations, 35, 1–9.
  • Tsililo, A. R., & Davhana - Maselesele, M. (2009). Family experiences of home caring for patients with HIV/AIDs in rural Limpopo Province, South Africa. Nursing Health Sciences, 11(2), 135–143. https://doi.org/10.1111/j.1442-2018.2009.00437.x
  • UNAIDS. (2018). Global HIV & AIDS statistics. http://www.unaids.org/en/resources/fact-sheet
  • Van Deventer, C., & Wright, A. (2017). The psychosocial impact of caregiving on the family caregivers of chronically ill AIDS and/or HIV patients in home-based care: A qualitative study in Zimbabwe. S African Journal of HIV and Medicine, 18(1), a718.
  • World Health Organisation. (2019). Tuberculosis report. http://www.who.int/mediacentre/factsheet/fs104/en