Perceptions of telemedicine for patient education among online support group patients with chronic or rare conditions

References

• Akyol, Z., & Garrison, D. R. (2008). The development of a Community of Inquiry over time in an online course: Understanding the progression and integration of social, cognitive, and teaching presence. Journal of Asynchronous Learning Networks, 12(3–4), 3–22.
   Google Scholar
• AlHilali, S. M., AlMuammar, A. M., AlKahtani, E., Khandekar, R., & AlJasser, A. A. (2016). Preferred method of education among patients in ophthalmic care in Saudi Arabia. Middle East African Journal of Ophthalmology, 23, 168–171. doi:10.4103/0974-9233.171780
   PubMed Web of Science ®Google Scholar
• Anderson, M. (2015, October 29). Technology device ownership: 2015. Retrieved from http://www.pewinternet.org/2015/10/29/technology-device-ownership-2015/.
   Google Scholar
• Arbaugh, J. B., Cleveland-Innes, M., Diaz, S. R., Garrison, D. R., Ice, P., Richardson, J. C., & Swan, K. P. (2008). Developing a Community of Inquiry instrument: Testing a measure of the Community of Inquiry framework using a multi-institutional sample. Internet and Higher Education, 11, 133–136. doi:10.1016/j.iheduc.2008.06.003
   Web of Science ®Google Scholar
• Banbury, A., Parkinson, L., Nancarrow, S., Dart, J., Gray, L., & Buckley, J. (2014). Multi-site videoconferencing for home-based education of older people with chronic conditions: The telehealth literacy project. Journal of Telemedicine and Telecare, 20, 353–359. doi:10.1177/1357633X14552369
   PubMed Web of Science ®Google Scholar
• Ben’s Friends. (2017). Retrieved from http://www.bensfriends.org/.
   Google Scholar
• Bombeke, K., Symons, L., Vermeire, E., Debaene, L., Schol, S., De Winter, B., & Van Royen, P. (2012). Patient-centeredness from education to practice: The “lived” impact of communication skills training. Medical Teacher, 34, 338–348. doi:10.3109/0142159X.2012.670320
   PubMed Web of Science ®Google Scholar
• GovTrack. (2002). H.R. 4013 (107th): Rare diseases act of 2002. Retrieved from https://www.govtrack.us/congress/bills/107/hr4013/text. doi: 10.1044/1059-0889(2002/er01)
   Google Scholar
• Casey, S. (2017, January 17). 2016 Neilson social media report. Retrieved from http://www.nielsen.com/us/en/insights/reports/2017/2016-nielsen-social-media- report.html.
   Google Scholar
• Chan, C. V., & Kaufman, D. R. (2011). A framework for characterizing eHealth literacy demands and barriers. Journal of Medical Internet Research, 13, 439–454. doi:10.2196/jmir.1750
   Web of Science ®Google Scholar
• Davis, S. W., & Oakley-Girvan, I. (2015). mHealth education applications along the cancer continuum. Journal of Cancer Education, 30, 388–394. doi:10.1007/s13187-014-0761-4
   PubMed Web of Science ®Google Scholar
• Eltorai, A. E., Sharma, P., Wang, J., & Daniels, A. H. (2015). ‘Most American academy of orthopaedic Surgeons’ online patient education material exceeds average patient reading level. Clinical Orthopaedics and Related Research, 10, 1181–1186. doi:10.1007/s11999-014-4071-2
   Web of Science ®Google Scholar
• Garrison, D. R., Anderson, T., & Archer, W. (2001). Critical thinking, cognitive presence, and computer conferencing in distance education. American Journal of Distance Education, 15, 7–23. doi:10.1080/08923640109527071
   Google Scholar
• Garrison, D. R., Anderson, T., & Archer, W. (2010). The first decade of the Community of Inquiry framework: A retrospective. Internet and Higher Education, 13, 5–9. doi:10.1016/j.iheduc.2009.10.003
   Web of Science ®Google Scholar
• Gee, P. M., Greenwood, D. A., Paterniti, D. A., Ward, D., & Miller, L. M. (2015). The eHealth enhanced chronic care model: A theory derivation approach. Journal of Medical Internet Research, 17, 86–103. doi:10.2196/jmir.4067
   Web of Science ®Google Scholar
• Golding, C. (2015). The Community of Inquiry: Blending philosophical and empirical research. Studies in Philosophy and Education, 34(2), 205–216. doi:10.1007/s11217-014-9420-9
   Web of Science ®Google Scholar
• Goodman, R. A., Posner, S. F., Huang, E. S., Parekh, A. K., & Koh, H. K. (2013). Defining and measuring chronic conditions: Imperatives for research, policy, program, and practice. Preventing Chronic Disease, 10, E66. doi:10.5888/pcd10.120239
   PubMed Web of Science ®Google Scholar
• Huang, G., Fang, C. H., Agarwal, N., Bhagat, N., Eloy, J. A., & Langer, P. D. (2015). Assessment of online patient education materials from major ophthalmologic associations. JAMA Ophthalmology, 133, 449–454. doi:10.1001/jamaophthalmol.2014.6104
   PubMed Web of Science ®Google Scholar
• Jardins, T. D., Drone, S. A., Hashisaka, S., Hazzard, J., Hunt, S. B., Massey, K., & Turske, S. (2015). Patient engagement and activation in three underserved beacon communities. Journal of Health Care for the Poor and Underserved, 26, 777–783. doi:10.1353/hpu.2015.0084
   PubMed Web of Science ®Google Scholar
• Jensen, O., Gabre, P., Sköld, U. M., Birkhed, D., & Povlsen, L. (2014). ‘I take for granted that patients know’: Oral health professionals’ strategies, considerations and methods when teaching patients how to use fluoride toothpaste. International Journal of Dental Hygiene, 12, 81–88. doi:10.1111/idh.12041
   PubMed Web of Science ®Google Scholar
• Kayser, L., Kushniruk, A., Osborne, R. H., Norgaard, O., & Turner, P. (2015). Enhancing the effectiveness of consumer-focused health information technology systems through eHealth literacy: A framework for understanding users’ needs. JMIR Human Factors, 2, e9. doi:10.2196/humanfactors.3696
   PubMedGoogle Scholar
• Léegaré, F., & Witteman, H. O. (2013). Shared decision making: Examining key elements and barriers to adoption into routine clinical practice. Health Affairs, 32, 276–284. doi:10.1377/hlthaff.2012.1078
   Web of Science ®Google Scholar
• Lua, P. L., & Neni, W. S. (2013). Health-related quality of life improvement via telemedicine for epilepsy: Printed versus SMS-based education intervention. Quality of Life Research, 22, 2123–2132. doi:10.1007/s11136-013-0352-6
   PubMed Web of Science ®Google Scholar
• Macias, W., Lewis, L. S., & Smith, T. L. (2005). Health-related message boards/chat rooms on the web: Discussion content and implications for pharmaceutical sponsorships. Journal of Health Communication, 10(3), 209–223. doi:10.1080/10810730590934235
   PubMed Web of Science ®Google Scholar
• Mohr, D. C., Schueller, S. M., Montague, E., Burns, M. N., & Rashidi, P. (2014). The behavioral intervention technology model: An integrated conceptual and technological framework for eHealth and mHealth interventions. Journal of Medical Internet Research, 16, e146. doi:10.2196/jmir.3077
   PubMed Web of Science ®Google Scholar
• Moore, A. D., Hamilton, J. B., Krusel, J. L., Moore, L. G., & Pierre-Louis, B. J. (2016). Patients provide recommendations for improving patient satisfaction. Military Medicine., 181, 356–363. doi:10.7205/MILMED-D-15-00258
   PubMed Web of Science ®Google Scholar
• National Archives. (2017a). Social media and digital engagement. Retrieved from http://www.archives.gov/social-media/.
   Google Scholar
• National Archives. (2017b). Social media statistics. Retrieved from https://www.archives.gov/social-media/reports.
   Google Scholar
• Nepal, S., Li, J., Jang-Jaccard, J., & Alem, L. (2014). A framework for telehealth program evaluation. Telemedicine and e-Health, 20, 393–404. doi:10.1089/tmj.2013.0093
   PubMed Web of Science ®Google Scholar
• Pew Research Center. (2017, January 12). Mobile fact sheet. Retrieved from http://www.pewinternet.org/fact-sheet/mobile/.
   Google Scholar
• Polishchuck, D. L., Hashem, J., & Sabharwal, S. (2012). Readability of online patient education materials on adult reconstruction web sites. Journal of Arthroplasty, 27, 716–719. doi:10.1016/j.arth.2011.08.020
   PubMed Web of Science ®Google Scholar
• Rodriguez de Bittner, M., & Zaghab, R. W. (2011). Improving the lives of patients with chronic diseases: Pharmacists as a solution. Journal of Health Care for the Poor and Underserved, 22, 429–436. doi:10.1353/hpu.2011.0044
   PubMed Web of Science ®Google Scholar
• Ross, A., Ohlsson, U., Blomberg, K., & Gustafsson, M. (2015). Evaluation of an intervention to individualise patient education at a nurse-led heart failure clinic: A mixed-method study. Journal of Clinical Nursing, 24, 1594–1602. doi:10.1111/jocn.12760
   PubMed Web of Science ®Google Scholar
• Rupert, D. J., Moultrie, R. R., Read, J. G., Amoozegar, J. B., Bornkessel, A. S., O’Donoghue, A. C., & Sullivan, H. W. (2014). Perceived healthcare provider reactions to patient and caregiver use of online health communities. Patient Education and Counseling, 96, 320–326. doi:10.1016/j.pec.2014.05.015
   PubMed Web of Science ®Google Scholar
• Sav, A., King, M. A., Kelly, F., McMillan, S. S., Kendall, E., Whitty, J. A., & Wheeler, A. J. (2015). Self-management of chronic conditions in a rural and remote context. Australian Journal of Primary Health, 21, 90–95. doi:10.1071/PY13084
   PubMed Web of Science ®Google Scholar
• Schweier, R., Romppel, M., Richter, C., & Grande, G. (2016). Dissemination strategies and adherence predictors for web-based interventions: How efficient are patient education sessions and email reminders? Health Education Research, 31, 384–394. doi:10.1093/her/cyw019
   PubMed Web of Science ®Google Scholar
• Scott, R. E., & Mars, M. (2013). Principles and framework for eHealth strategy development. Journal of Medical Internet Research, 15, e155. doi:10.2196/jmir.2250
   PubMed Web of Science ®Google Scholar
• Seo, J., Goodman, M. S., Politi, M., Blanchard, M., & Kaphingst, K. A. (2016). Effect of health literacy on decision-making preferences among medically underserved patients. Medical Decision Making, 36, 550–556. doi:10.1177/0272989X16632197
   PubMed Web of Science ®Google Scholar
• Shaha, M., Wüthrich, E., Stauffer, Y., Herczeg, F., Fattinger, K., Hirter, K., & Herrmann, L. (2015). Implementing evidence-based patient and family education on oral anticoagulation therapy: A community-based participatory project. Journal of Clinical Nursing, 24, 1534–1545. doi:10.1111/jocn.12743
   PubMed Web of Science ®Google Scholar
• Shea, S., Weinstock, R. S., Teresi, J. A., Palmas, W., Starren, J., & Cimino, J. J.; IDEATel Consortium. (2009). A randomized trial comparing telemedicine case management with usual care in older, ethnically diverse, medically underserved patients with diabetes mellitus: 5 Year results of the IDEATel study. Journal of the American Medical Informatics Association, 16, 446–456. doi:10.1197/jamia.M3157
   PubMed Web of Science ®Google Scholar
• Shipman, J. P., Lake, E. W., Van der Volgen, J., & Doman, D. (2016). Provider documentation of patient education: A lean investigation. Journal of the Medical Library Association, 104, 154–158. doi:10.3163/1536-5050.104.2.012
   PubMed Web of Science ®Google Scholar
• Sohn, S., Helms, T. M., Pelleter, J. T., Müller, A., Kröttinger, A., & Schöffski, O. (2012). Costs and benefits of personalized healthcare for patients with chronic heart failure in the care and education program “Telemedicine for the Heart”. Telemedicine and e-Health, 18, 198–204. doi:10.1089/tmj.2011.0134
   PubMed Web of Science ®Google Scholar
• Stellefson, M., Chaney, B., Ochipa, K., Chaney, D., Haider, Z., Hanik, B., & Bernhardt, J. M. (2014). YouTube as a source of chronic obstructive pulmonary disease patient education: A social media content analysis. Chronic Respiratory Disease, 11, 61–71. doi:10.1177/1479972314525058
   PubMed Web of Science ®Google Scholar
• Stribling, J. C., & Richardson, J. E. (2016). Placing wireless tablets in clinical settings for patient education. Journal of the Medical Library Association, 104, 159–164. doi:10.3163/1536-5050
   PubMed Web of Science ®Google Scholar
• Svavarsdóottir, M. H., Sigurðoardóottir, Á. K., & Steinsbekk, A. (2015). How to become an expert educator: A qualitative study on the view of health professionals with experience in patient education. BMC Medical Education, 15, 87. doi:10.1186/s12909-015-0370-x
   PubMed Web of Science ®Google Scholar
• Tamura-Lis, W. (2013). Teach-back for quality education and patient safety. Urologic Nursing, 33(6), 267–271, 298.
   PubMedGoogle Scholar
• Tehrani, A. B., Feldman, S. R., Camacho, F. R., & Balkrishnan, R. (2011). Patient satisfaction with outpatient medical care in the United States. Health Outcomes Research in Medicine, 2, el97–e202. doi:10.1016/j.ehrm.2011.09.001
   Google Scholar
• Torenholt, R., Varming, A., Engelund, G., Vestergaard, S., Møller, B. L., Pals, R. A., & Willaing, I. (2015). Simplicity, flexibility, and respect: Preferences related to patient education in hardly reached people with type 2 diabetes. Patient Preference and Adherence, 9, 1581–1586. doi:10.2147/PPA.S91408
   PubMed Web of Science ®Google Scholar
• University of Texas Medical Branch. (2014). UTMB handbook of operating procedures (Policy 9.3.4). Retrieved from https://www.utmb.edu/policies_and_procedures/IHOP/Clinical/Patient_Rights/IHOP%20%2009.03.04%20-%20Patient%20Family%20Education.pdf.
   Google Scholar
• van Gemert-Pijnen, J. E., Nijland, N., van Limburg, M., Ossebaard, H. C., Kelders, S. M., Eysenbach, G., & Seydel, E. R. (2011). A holistic framework to improve the uptake and impact of eHealth technologies. Journal of Medical Internet Research, 13, 43–61. doi:10.2196/jmir.1672
   Web of Science ®Google Scholar