“Discrimination is harder to live with than the disease”: an interview study of the perceptions and experiences of sexual and reproductive health and rights among women living with HIV in Sweden

References

• UNAIDS. 2021. UNAIDS Global AIDS update – confronting inequalities – lessons for pandemic responses from 40 years of AIDS: UNAIDS; 2021.
   Google Scholar
• Carlander C, Mattsson L. InfCareHIV Årsrapport 2021. Stockholm: InfCareHIV; 2022. Available from: https://infcarehiv.se/media/66/download.
   Google Scholar
• UNAIDS. Undetectable = Untransmittable. Public Health and HIV viral load suppression: UNAIDS; 2018. Available from: https://www.unaids.org/sites/default/files/media_asset/undetectable-untransmittable_en.pdf.
   Google Scholar
• Eriksen J, Albert J, Axelsson M, et al. Contagiousness in treated HIV-1 infection. Infect Dis. 2021;53(1):1–8. doi:10.1080/23744235.2020.1831696
   PubMed Web of Science ®Google Scholar
• UNAIDS. Handbook on HIV and human rights for national human rights institutions. Geneva: Office of the United Nations High Commissioner for Human Rights and Joint United Nations Programme on HIV/AIDS; 2007.
   Google Scholar
• Carlsson-Lalloo E, Rusner M, Mellgren Å, et al. Sexuality and reproduction in HIV-positive women: a meta-synthesis. AIDS Patient Care STDS. 2016;30(2):56–69. doi:10.1089/apc.2015.0260
   PubMed Web of Science ®Google Scholar
• Huertas-Zurriaga A, Palmieri PA, Edwards JE, et al. Motherhood and decision-making among women living with HIV in developed countries: a systematic review with qualitative research synthesis. Reprod Health. 2021;18(1):148. doi:10.1186/s12978-021-01197-6
   PubMed Web of Science ®Google Scholar
• Gilleece Y, Tariq S, Bamford A, et al. British HIV Association guidelines for the management of HIV in pregnancy and postpartum 2018. HIV Med 2019;20(S3):S2–S85. doi:10.1111/hiv.12720
   PubMedGoogle Scholar
• The Panel on Treatment of HIV During Pregnancy and Prevention of Perinatal Transmission (the Panel). Recommendations for the Use of Antiretroviral Drugs During Pregnancy and Interventions to Reduce Perinatal HIV Transmission in the United States 2023. Available from: https://clinicalinfo.hiv.gov/en/guidelines/perinatal.
   Google Scholar
• Etowa J, MacDonald S, Hannan J, et al. Sociocultural factors influencing infant-feeding choices among African immigrant women living with HIV: a synthesis of the literature. J Am Assoc Nurse Pract. 2018;30(4):208–235. doi:10.1097/JXX.0000000000000014
   PubMed Web of Science ®Google Scholar
• Moseholm E, Weis N. Women living with HIV in high-income settings and breastfeeding. J Intern Med 2020;287(1):19–31. doi:10.1111/joim.12986
   PubMed Web of Science ®Google Scholar
• Rydström LL, Ygge BM, Tingberg B, et al. Experiences of young adults growing up with innate or early acquired HIV infection - a qualitative study. J Adv Nurs. 2013;69(6):1357–1365. doi:10.1111/j.1365-2648.2012.06127.x
   PubMed Web of Science ®Google Scholar
• Ljungcrantz D. Skrubbsår: Berättelser om ur hiv föreställs och erfars i samtida Sverige: Makadam förlag; 2017.
   Google Scholar
• Norwald K, Holmström C, Plantin L. HIV and sexuality: perceptions and experiences of sexuality among women who live with HIV in Sweden. J Aids Clin Res Sex Transm Dis. 2017;4(2). doi:10.24966/ACRS-7370/100012
   Google Scholar
• Schönnesson LN, Zeluf G, Garcia-Huidobro D, et al. Sexual (Dis)satisfaction and Its contributors among people living with HIV infection in Sweden. Arch Sex Behav. 2018;47(7):2007–2026. doi:10.1007/s10508-017-1106-2
   PubMed Web of Science ®Google Scholar
• Carlsson-Lalloo E, Berg M, Mellgren Å, et al. Sexuality and childbearing as it is experienced by women living with HIV in Sweden: a lifeworld phenomenological study. Int J Qual Stud Health Well-Being. 2018;13(1):1487760. doi:10.1080/17482631.2018.1487760
   PubMed Web of Science ®Google Scholar
• Starrs AM, Ezeh AC, Barker G, et al. Accelerate progress – sexual and reproductive health and rights for all: report of the Guttmacher – Lancet Commission. Lancet. 2018;391(10140):2642–2692. doi:10.1016/S0140-6736(18)30293-9
   PubMed Web of Science ®Google Scholar
• Swedish Government Offices. Swedish Communicable Disease Act (Smittskyddslag [2004:168]).2004; SFS 2004:168. Available from: https://www.riksdagen.se/sv/dokument-lagar/dokument/svensk-forfattningssamling/smittskyddslag-2004168_sfs-2004-168.
   Google Scholar
• Charmaz K. Constructing grounded theory. 2nd ed. Thousand Oaks (CA): Sage; 2014.
   Google Scholar
• Braun V, Clarke V. One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qual Res Psychol. 2021;18(3):328–352. doi:10.1080/14780887.2020.1769238
   Web of Science ®Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101. doi:10.1191/1478088706qp063oa
   Google Scholar
• Loutfy MR, Sherr L, Sonnenberg-Schwan U, et al. Caring for women living with HIV: gaps in the evidence. J Int AIDS Soc. 2013;16(1):18509. doi:10.7448/IAS.16.1.18509
   PubMedGoogle Scholar
• Narasimhan M, Payne C, Caldas S, et al. Ageing and healthy sexuality among women living with HIV. Reprod Health Matters. 2016;24(48):43–51. doi:10.1016/j.rhm.2016.11.001
   PubMed Web of Science ®Google Scholar
• Robinson S, Gardner S, Loutfy M, et al. Sexual behaviors among women living with HIV in Ontario, Canada. AIDS Care. 2017;29(5):587–592. doi:10.1080/09540121.2016.1226477
   PubMed Web of Science ®Google Scholar
• Toorabally N, Mercer CH, Mitchell KR, et al. Association of HIV status with sexual function in women aged 45–60 in England: results from two national surveys. AIDS Care. 2020;32(3):286–295. doi:10.1080/09540121.2019.1653436
   PubMed Web of Science ®Google Scholar
• Wessman M, Thorsteinsson K, Storgaard M, et al. HIV disclosure and stigma among women living with HIV in Denmark. Elsevier. 2017: 140–144.
   Google Scholar
• Alvarez-del Arco D, Rodríguez S, Pérez-Elías M, et al. Prevalence of human papillomavirus infection among women from Quilombo communities in northeastern Brazil. BMC Womens Health. 2018;18(1):1–12. doi:10.1186/s12905-017-0483-y
   PubMedGoogle Scholar
• Peltzer JN, Domian EW, Teel CS. Infected lives. West J Nurs Res. 2016;38(2):216–230. doi:10.1177/0193945914552167
   PubMed Web of Science ®Google Scholar
• UNAIDS. Hiv criminalization. Geneva: UNAIDS; 2021 [cited 2022 15 November]. Available from: https://www.unaids.org/sites/default/files/media_asset/01-hiv-human-rights-factsheet-criminalization_en.pdf.
   Google Scholar
• Moseholm E, Aho I, Mellgren Å, et al. The experience of pregnancy among women living with HIV in Nordic countries: a qualitative narrative enquiry. Women’s Health. 2022;18:17455065211068688. doi:10.1177/17455065211068688
   Google Scholar
• Weinberg GA, Nachman S. Breastfeeding by women living with HIV in the United States: are the risks truly manageable? J Pediatric Infect Dis Soc. 2022;11(3):92–93. doi:10.1093/jpids/piab129
   Google Scholar
• Yusuf HE, Knott-Grasso MA, Anderson J, et al. Experience and outcomes of breastfed infants of women living with HIV in the United States: findings from a single-center breastfeeding support initiative. J Pediatric Infect Dis Soc. 2022;11(1):24–27. doi:10.1093/jpids/piab116
   PubMed Web of Science ®Google Scholar
• Etowa J, Etowa E, Nare H, et al. Social determinants of breastfeeding preferences among black mothers living with HIV in two north American cities. Int J Environ Res Public Health. 2020;17(18):6893. doi:10.3390/ijerph17186893
   PubMed Web of Science ®Google Scholar
• Ferguson L, Jardell W, Gruskin S. Leaving no one behind: human rights and gender as critical frameworks for U = U. Health Hum Rights. 2022;24(2):1–11.
   PubMed Web of Science ®Google Scholar
• Nkulu-Kalengayi FK, Ouma AA, Hurtig A-K. ‘HIV ended up in second place'-Prioritizing social integration in the shadow of social exclusion: an interview study with migrants living with HIV in Sweden. Int J Equity Health. 2022;21(1):1–13. doi:10.1186/s12939-022-01783-5
   PubMed Web of Science ®Google Scholar