1,523
Views
49
CrossRef citations to date
0
Altmetric
Review

Support needs of patients with COPD: a systematic literature search and narrative review

, , &
Pages 1021-1035 | Published online: 26 Mar 2018

References

  • PinnockHKendallMMurraySLiving and dying with severe chronic obstructive pulmonary disease: multi-perspective longitudinal qualitative studyBr Med J2011342d14221262897
  • KardosPVogelmeierCWorthHA two-year evaluation of the ‘real life’ impact of COPD on patients in Germany: The DACCORD observational studyRespir Med2017124576428284322
  • OuelletteDRLavoieKLRecognition, diagnosis, and treatment of cognitive and psychiatric disorders in patients with COPDInt J Chron Obstruct Pulmon Dis20171263965028243081
  • SundhJEkstromMPersistent disabling breathlessness in chronic obstructive pulmonary diseaseInt J Chron Obstruct Pulmon Dis2016112805281227877034
  • National Palliative and End of Life Care PartnershipAmbitions for Palliative and End of Life Care: A national framework for local action 2015–2020 Available from: www.endoflifecareambitions.org.ukAccessed February 23, 2018
  • AdlingtonKWhiteJNHS EnglandOur Declaration: Person centred care for long term conditions Available from: http://www.england.nhs.uk/wp-content/uploads/2015/09/ltc-our-declaration.pdfAccessed February 23, 2018
  • SpathisABoothSEnd of life care in chronic obstructive pulmonary disease: in search of a good deathInt J COPD2008311129
  • GardinerCGottMPayneSExploring the care needs of patients with advanced COPD: an overview of the literatureRespir Med2010104215916519818590
  • HabrakenJMWillemsDLde KortSJBindelsPJHealth care needs in end-stage COPD: a structured literature reviewPatient Educ Couns200768212113017601696
  • DislerTGreenALuckettTExperience of advanced chronic obstructive pulmonary disease: metasynthesis of qualitative researchJ Pain Symptom Manage20144861182120024780181
  • MoherDLiberatiATetzlaffJAltmanDGPreferred reporting items for systematic reviews and meta-analyses: the PRISMA statementJ Clin Epidemiol200962101006101219631508
  • EwingGGrandeGNational Association for Hospice at Home. Development of a carer support needs assessment tool (CSNAT) for end-of-life care practice at home: a qualitative studyPalliat Med201327324425622450160
  • Dixon-WoodsMSuttonAShawRAppraising qualitative research for inclusion in systematic reviews: a quantitative and qualitative comparison of three methodsJ Health Serv Res Policy2007121424717244397
  • BoothSSilvesterSToddCBreathlessness in cancer and chronic obstructive pulmonary disease: using a qualitative approach to describe the experience of patients and carersPalliat Support Care20031433734416594223
  • EllisonLGaskLBakerlyNDRobertsJMeeting the mental health needs of people with chronic obstructive pulmonary disease: a qualitative studyChronic Illn20128430832022659349
  • GoreJMBrophyCJGreenstoneMAHow well do we care for patients with end stage chronic obstructive pulmonary disease (COPD)? A comparison of palliative care and quality of life in COPD and lung cancerThorax200055121000100611083884
  • GyselsMHHigginsonIJSelf-management for breathlessness in COPD: the role of pulmonary rehabilitationChron Respir Dis20096313314019643827
  • GyselsMHigginsonIJThe experience of breathlessness: the social course of chronic obstructive pulmonary diseaseJ Pain Symptom Manage201039355556320303029
  • MacPhersonAWalsheCO’DonnellVVyasAThe views of patients with severe chronic obstructive pulmonary disease on advance care planning: a qualitative studyPalliat Med201327326527222450158
  • PartridgeMRdal NegroRWOlivieriDUnderstanding patients with asthma and COPD: insights from a European studyPrim Care Respir J201120331532321660394
  • PhilipJGoldMBrandCDouglassJMillerBSundararajanVNegotiating hope with chronic obstructive pulmonary disease patients: a qualitative study of patients and healthcare professionalsIntern Med J201242781682222152049
  • RodgersSDyasJMolyneuxAWWardMJRevillSMEvaluation of the information needs of patients with chronic obstructive pulmonary disease following pulmonary rehabilitation: a focus group studyChron Respir Dis20074419520318029432
  • WortzKCadeAMenardJRA qualitative study of patients’ goals and expectations for self-management of COPDPrim Care Respir J201221438439123138844
  • OliverSMLiving with failing lungs: the doctor-patient relationshipFam Pract200118443043911477052
  • McDonaldVMHigginsIGibsonPGInsight into older peoples’ healthcare experiences with managing COPD, asthma, and asthma-COPD overlapJ Asthma201350549750423638867
  • WhitePWhiteSEdmondsPPalliative care or end-of-life care in advanced chronic obstructive pulmonary disease: a prospective community surveyBr J Gen Prac201161587e362e370
  • LindgrenSStorliSLWiklund-GustinLLiving in negotiation: patients’ experiences of being in the diagnostic process of COPDInt J COPD20149441451
  • SchroedlCJYountSESzmuilowiczEHutchisonPJRosenbergSRKalhanRA qualitative study of unmet healthcare needs in chronic obstructive pulmonary disease: a potential role for specialist palliative care?Ann Am Thorac Soc20141191433143825302521
  • SeamarkDABlakeSDSeamarkCJHalpinDMGLiving with severe chronic obstructive pulmonary disease (COPD): perceptions of patients and their carers. An interpretative phenomenological analysisPalliat Med200418761962515540670
  • HassonFSpenceAWaldronMI can not get a breath: experiences of living with advanced chronic obstructive pulmonary diseaseInt J Palliat Nurs2008141152653119060802
  • NguyenMChamber-EvansJJoubertADrouinIOuelletIExploring the advance care planning needs of moderately to severely ill people with COPDInt J Palliat Nurs201319838939623970295
  • JonesIKirbyAOrmistonPThe needs of patients dying of chronic obstructive pulmonary disease in the communityFam Pract200421331031315128695
  • LoweyENortonAQuinnRQuillELiving with advanced heart failure or COPD: experiences and goals of individuals nearing the end of lifeRes Nurs Health201336434935923754626
  • Gruffydd-JonesKLangley-JohnsonCDyerCBadlanKWardSWhat are the needs of patients following discharge from hospital after an acute exacerbation of chronic obstructive pulmonary disease (COPD)?Primary Care Respir J200716636336818038104
  • CicuttoLBrooksDHendersonKSelf-care issues from the perspective of individuals with Chronic Obstructive Pulmonary DiseasePatient Educ Couns200455216817615530751
  • EkKSahlberg-BlomEAndershedBTernestedtBMStruggling to retain living space: patients’ stories about living with advanced chronic obstructive pulmonary diseaseJ Adv Nurs20116771480149021375574
  • JacksonKOelkeNDBesnerJHarrisonAPatient journey: implications for improving and integrating care for older adults with chronic obstructive pulmonary diseaseCan J Aging201231222323322647664
  • GullickJStaintonMSmoking in chronic obstructive pulmonary disease: a need of the taken-for-granted bodyJ Smok Cessat200611712
  • NykvistMLarssonELyckhageED‘It’s about me’ – a narrative analysis of female smokers with chronic obstructive pulmonary disease (COPD) and their relationship to smokingScand J Caring Sci201428237338023952747
  • HayleCCoventryPAGommSCaressA-LUnderstanding the experience of patients with chronic obstructive pulmonary disease who access specialist palliative care: a qualitative studyPalliat Med201327986186823681494
  • YohannesAMWillgossTGBaldwinRCConnollyMJDepression and anxiety in chronic heart failure and chronic obstructive pulmonary disease: prevalence, relevance, clinical implications and management principlesInt J Geriatr Psychiatry2010251209122120033905
  • GuthrieSJHillKMMuersMFLiving with severe COPD. A qualitative exploration of the experience of patients in LeedsRespir Med200195319620411266237
  • OdencrantsSEhnforsMGrobeSJLiving with chronic obstructive pulmonary disease: part I. Struggling with meal-related situations: experiences among persons with COPDScand J Caring Sci200519323023916101851
  • WilsonDMRossCGoodridgeDDavisPLandrevilleARoebuckKThe care needs of community-dwelling seniors suffering from advanced chronic obstructive pulmonary diseaseCan J Aging200827434735819416796
  • SkilbeckLMMottLPageHSmithDHjelmeland-AhmedzaiSClarkDPalliative care in chronic obstructive airways disease: a needs assessmentPalliat Med1998122452549743823
  • SpenceAHassonFWaldronMActive carers: living with chronic obstructive pulmonary diseaseInt J Palliat Nurs200814836837219023952
  • BradshawJTaxonomy of social needMcLachlanGProblems and progress in medical care: essays on current research7th seriesLondonOxford University Press19727182
  • MurraySAKendallMGrantEBoydKBarclaySSheikhAPatterns of social, psychological, and spiritual decline toward the end of life in lung cancer and heart failureJ Pain Symptom Manage200734439340217616334
  • RyanTIngletonCGardinerCParkerCGottMNobleBSymptom burden, palliative care need and predictors of physical and psychological discomfort in two UK hospitalsBMC Palliat Care20131211123442926
  • PuchalskiCMSpirituality in the cancer trajectoryAnn Oncol2012233495522628416
  • KendallMBuckinghamSFergusonSExploring the concept of need in people with very severe chronic obstructive pulmonary disease: a qualitative studyBMJ Support Palliat Care Epub2015826
  • NHS England [webpage on the Internet]House of Care – A Framework for Long Term Condition Care Available from: https://www.england.nhs.uk/ourwork/ltc-op-eolc/ltc-eolc/house-of-care/Accessed October 16, 2017
  • FarquharMMooreCGardenerCEnabling patient-centred care in advanced COPD: identifying care and support needs (Marie Curie 2015 abstract)BMJ Support Palliat Care201551114
  • GardenerACEwingGFarquharMTowards person-centred care: development of a patient support needs tool for patients with advanced chronic obstructive pulmonary disease (COPD) in primary care (BTS Winter 2016 abstract)Thorax201671A208A209