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Articles

Development and preliminary validation of the challenges of living with cystic fibrosis (CLCF) questionnaire: a 46-item measure of treatment burden for parent/carers of children with CF

Claire Glasscoea Institute of Translational Medicine, Department of Women’s & Children’s Health, University of Liverpool, Liverpool, UKCorrespondence[email protected]
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Holly F. Hopeb Division of Psychology & Mental Health, University of Manchester, Manchester, UKView further author information

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Gillian A. Lancasterc School of Medicine, Keele University, Keele, UKView further author information

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Gareth McCrayc School of Medicine, Keele University, Keele, UKView further author information

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Kiri Westd DMOPS (Movement Disorders), Liverpool University Hospitals NHS Foundation Trust (Aintree site), Liverpool, UKView further author information

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Latifa Patele Respiratory Unit, Alder Hey Children’s NHS Foundation Trust, Liverpool, UKView further author information

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Tulsi Patelf Evelina London Children’s Hospital, London, UKView further author information

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Jonathan Hillg School of Psychology & Clinical Language Sciences, University of Reading, Reading, UKView further author information

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Alexandra L. Quittnerh Children’s Research Institute, Miami Children’s Hospital, Miami, Florida, USAView further author information

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Kevin W. Southerna Institute of Translational Medicine, Department of Women’s & Children’s Health, University of Liverpool, Liverpool, UKView further author information