Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, Volume 19, Issue 3-4 (2018)

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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, Volume 19, Issue 3-4 (2018)

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Article
Ethics of clinical research in patients with ALS: is there a risk of exploitation?
Carmel Armon
Pages: 161-166
Published online: 04 Sep 2017
AbstractforEthics of clinical research in patients with ALS: is there a risk of exploitation? | Full Text | References | PDF (400.1 KB)
  • 417 Views
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Article
Discussing edaravone with the ALS patient: an ethical framework from a U.S. perspective
Crystal Jing Jing Yeo & Zachary Simmons
Pages: 167-172
Published online: 15 Jan 2018
AbstractforDiscussing edaravone with the ALS patient: an ethical framework from a U.S. perspective | Full Text | References | PDF (135.4 KB)
  • 637 Views
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Review Article
Decision-making among patients and their family in ALS care: a review
Geraldine Foley & Geralyn Hynes
Pages: 173-193
Published online: 11 Aug 2017
AbstractforDecision-making among patients and their family in ALS care: a review | Full Text | References | PDF (369.8 KB)
  • 1402 Views
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Article
Pre-diagnostic plasma urate and the risk of amyotrophic lateral sclerosis
Éilis J. O’Reilly, Kjetil Bjornevik, Michael A. Schwarzschild, Marjorie L. McCullough, Laurence N. Kolonel, Loic Le Marchand, Joann E. Manson & Alberto Ascherio
Pages: 194-200
Published online: 26 Dec 2017
AbstractforPre-diagnostic plasma urate and the risk of amyotrophic lateral sclerosis | Full Text | References | PDF (144 KB)
  • 243 Views
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Article
Hospital utilization for patients with amyotrophic lateral sclerosis in saskatoon, Canada
Adrianna Gunton, Gregory Hansen & Kerri Lynn Schellenberg
Pages: 201-205
Published online: 21 Nov 2017
AbstractforHospital utilization for patients with amyotrophic lateral sclerosis in saskatoon, Canada | Full Text | References | PDF (237.7 KB)
  • 317 Views
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Article
A retrospective investigation of the relationship between baseline covariates and rate of ALSFRS-R decline in ALS clinical trials
Iyas Daghlas, Teresa E. Lever & Emily Leary
Pages: 206-211
Published online: 20 Dec 2017
AbstractforA retrospective investigation of the relationship between baseline covariates and rate of ALSFRS-R decline in ALS clinical trials | Full Text | References | PDF (348.4 KB) | Supplemental
  • 564 Views
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Article
Usability of eyetracking computer systems and impact on psychological wellbeing in patients with advanced amyotrophic lateral sclerosis
Katharina Linse, Wolfgang Rüger, Markus Joos, Henning Schmitz-Peiffer, Alexander Storch & Andreas Hermann
Pages: 212-219
Published online: 01 Nov 2017
AbstractforUsability of eyetracking computer systems and impact on psychological wellbeing in patients with advanced amyotrophic lateral sclerosis | Full Text | References | PDF (866.1 KB)
  • 572 Views
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Article
Hydration measured by doubly labeled water in ALS and its effects on survival
Connor N. Scagnelli, Diantha B. Howard, Mark B. Bromberg, Edward J. Kasarskis, Dwight E. Matthews, Hiroshi M. Mitsumoto, Zachary Simmons, Rup Tandan & for the ALS Nutrition-NIPPV Study Group
Pages: 220-231
Published online: 15 Dec 2017
AbstractforHydration measured by doubly labeled water in ALS and its effects on survival | Full Text | References | PDF (676.7 KB)
  • 312 Views
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Article
Longitudinal structural changes in ALS: a three time-point imaging study of white and gray matter degeneration
Peter Bede & Orla Hardiman
Pages: 232-241
Published online: 07 Dec 2017
AbstractforLongitudinal structural changes in ALS: a three time-point imaging study of white and gray matter degeneration | Full Text | References | PDF (1.6 MB)
  • 723 Views
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Article
An open label study of a novel immunosuppression intervention for the treatment of amyotrophic lateral sclerosis
Christina N. Fournier, David Schoenfeld, James D. Berry, Merit E. Cudkowicz, James Chan, Colin Quinn, Robert H. Brown, Johnny S. Salameh, Malu G. Tansey, David R. Beers, Stanley H. Appel & Jonathan D. Glass
Pages: 242-249
Published online: 08 Jan 2018
AbstractforAn open label study of a novel immunosuppression intervention for the treatment of amyotrophic lateral sclerosis | Full Text | References | PDF (356.2 KB)
  • 809 Views
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Article
A randomized controlled trial of resistance and endurance exercise in amyotrophic lateral sclerosis
Lora L. Clawson, Merit Cudkowicz, Lisa Krivickas, Benjamin R. Brooks, Mohammed Sanjak, Peggy Allred, Nazem Atassi, Amy Swartz, Gabrielle Steinhorn, Alpa Uchil, Kristen M. Riley, Hong Yu, David A. Schoenfeld, Nicholas J. Maragakis & On behalf of the neals consortium
Pages: 250-258
Published online: 30 Nov 2017
AbstractforA randomized controlled trial of resistance and endurance exercise in amyotrophic lateral sclerosis | Full Text | References | PDF (554.2 KB) | Supplemental
  • 3730 Views
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Article
VITALITY-ALS, a phase III trial of tirasemtiv, a selective fast skeletal muscle troponin activator, as a potential treatment for patients with amyotrophic lateral sclerosis: study design and baseline characteristics
Jinsy A. Andrews, Merit E. Cudkowicz, Orla Hardiman, Lisa Meng, Amy Bian, Jacqueline Lee, Andrew A. Wolff, Fady I. Malik & Jeremy M. Shefner
Pages: 259-266
Published online: 06 Feb 2018
AbstractforVITALITY-ALS, a phase III trial of tirasemtiv, a selective fast skeletal muscle troponin activator, as a potential treatment for patients with amyotrophic lateral sclerosis: study design and baseline characteristics | Full Text | References | PDF (183.9 KB) | Supplemental
  • 2818 Views
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Open Access
Article
Amyotrophic lateral sclerosis and food intake
Elisabetta Pupillo, Elisa Bianchi, Adriano Chiò, Federico Casale, Chiara Zecca, Rosanna Tortelli, Ettore Beghi, For Slalom, Parals & and for Slap Groups
Pages: 267-274
Published online: 21 Dec 2017
AbstractforAmyotrophic lateral sclerosis and food intake | Full Text | References | PDF (250.1 KB) | Supplemental
  • 938 Views
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Article
Spatial analyses of ALS incidence in Denmark over three decades
Verónica M. Vieira, Johnni Hansen, Ole Gredal & Marc G. Weisskopf
Pages: 275-284
Published online: 31 Jan 2018
AbstractforSpatial analyses of ALS incidence in Denmark over three decades | Full Text | References | PDF (2.7 MB)
  • 287 Views
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Article
Motor neuron disease mortality rates in New Zealand 1992–2013
Maize C. Cao, Andrew Chancellor, Alison Charleston, Mike Dragunow & Emma L. Scotter
Pages: 285-293
Published online: 30 Jan 2018
AbstractforMotor neuron disease mortality rates in New Zealand 1992–2013 | Full Text | References | PDF (712.1 KB) | Supplemental
  • 643 Views
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Article
Longitudinal modeling to predict vital capacity in amyotrophic lateral sclerosis
Samad Jahandideh, Albert A. Taylor, Danielle Beaulieu, Mike Keymer, Lisa Meng, Amy Bian, Nazem Atassi, Jinsy Andrews & David L. Ennist
Pages: 294-302
Published online: 20 Dec 2017
AbstractforLongitudinal modeling to predict vital capacity in amyotrophic lateral sclerosis | Full Text | References | PDF (996.6 KB) | Supplemental
  • 457 Views
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Article
Assessing amyotrophic lateral sclerosis prevalence in Norway from 2009 to 2015 from compulsory nationwide health registers
Ola Nakken, Jonas Christoffer Lindstrøm, Ole-Bjørn Tysnes & Trygve Holmøy
Pages: 303-310
Published online: 22 Dec 2017
AbstractforAssessing amyotrophic lateral sclerosis prevalence in Norway from 2009 to 2015 from compulsory nationwide health registers | Full Text | References | PDF (540.9 KB) | Supplemental
  • 552 Views
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Report
Best practices protocol for the evaluation of bulbar dysfunction: summary recommendations from the NEALS bulbar subcommittee symposium
Gary L. Pattee, Emily K. Plowman, Benjamin R. Brooks, James D. Berry, Nazem Atassi, Jennifer L. Chapin, Kendrea Garand, Yana Yunusova, Courtney E. Mcilduff, Eufrosina Young, John M. Costello, Eric A. Macklin, Eduardo R. Locatelli, Vincenzo Silani, Daragh Heitzman, James Wymer, Stephen A. Goutman, Deborah F. Gelinas, Richard Smith, Bridget Perry, Paige Nalipinski, Kaila Stipancic, Meghan O'Brien, Stacey L. Sullivan, Jordan Green & CONTRIBUTING MEMBERS OF THE NEALS BULBAR SUBCOMMITTEE
Pages: 311-312
Published online: 05 Dec 2017
AbstractforBest practices protocol for the evaluation of bulbar dysfunction: summary recommendations from the NEALS bulbar subcommittee symposium | Full Text | References | PDF (106.1 KB)
  • 774 Views
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Letter
The use of a hand held ventilator to supplement NIV for patients with ALS/MND with respiratory insufficiency
David Oliver, Sandip Banerjee, Lisa Vincent-Smith, Jane Kindred & Katharine Martin
Pages: 313-314
Published online: 05 Oct 2017
CitationforThe use of a hand held ventilator to supplement NIV for patients with ALS/MND with respiratory insufficiency | Full Text | References | PDF (138.1 KB)
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Letter
Cost-effectiveness associated with amyotrophic lateral sclerosis: some questions and answers pending
Giuseppe Fiorentino & Antonio M. Esquinas
Pages: 315-316
Published online: 30 Nov 2017
CitationforCost-effectiveness associated with amyotrophic lateral sclerosis: some questions and answers pending | Full Text | References | PDF (207.8 KB)
  • 159 Views
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Article
ALSUntangled 42: Elysium health’s “basis”
Richard Bedlack & The ALSUntangled Group
Pages: 317-319
Published online: 18 Sep 2017
First Page PreviewforALSUntangled 42: Elysium health’s “basis” | Full Text | References | PDF (107.5 KB)
  • 7881 Views
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Free Access
Correction
Erratum
Page: (321)
Published online: 28 Feb 2018
CitationforErratum | Full Text | PDF (86.9 KB)
  • 34 Views
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Free Access

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