The American Journal of Bioethics, Volume 9, Issue 6-7 (2009)

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The American Journal of Bioethics, Volume 9, Issue 6-7 (2009)

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Editorial

Editorial
A Pragmatic Consideration of Ethical Issues Relating to Personal Genomics
Andro R. Hsu, Joanna L. Mountain, Anne Wojcicki & Linda Avey
Pages: 1-2
Published online: 02 Jun 2009
CitationforA Pragmatic Consideration of Ethical Issues Relating to Personal Genomics | Full Text | References | PDF (42.2 KB)
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Target Article

Article
Social Networkers' Attitudes Toward Direct-to-Consumer Personal Genome Testing
Amy L. McGuire, Christina M. Diaz, Tao Wang & Susan G. Hilsenbeck
Pages: 3-10
Published online: 02 Jun 2009
AbstractforSocial Networkers' Attitudes Toward Direct-to-Consumer Personal Genome Testing | Full Text | References | PDF (81.4 KB)
  • 1109 Views
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Open Peer Commentaries

Article
Personal Genome Testing: Do You Know What You Are Buying?
Heidi C. Howard & Pascal Borry
Pages: 11-13
Published online: 02 Jun 2009
First Page PreviewforPersonal Genome Testing: Do You Know What You Are Buying? | Full Text | References | PDF (53.4 KB)
  • 454 Views
  • 28 CrossRef citations
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Article
Direct-to-Consumer Personal Genome Testing: The Problem Is Not Ignorance–It Is Market Failure
Christopher F. C. Jordens, Ian H. Kerridge & Gabrielle N. Samuel
Pages: 13-15
Published online: 02 Jun 2009
First Page PreviewforDirect-to-Consumer Personal Genome Testing: The Problem Is Not Ignorance–It Is Market Failure | Full Text | References | PDF (52.8 KB)
  • 265 Views
  • 9 CrossRef citations
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Article
Social Networking and Personal Genomics: Suggestions for Optimizing the Interaction
Dov Greenbaum & Mark Gerstein
Pages: 15-19
Published online: 02 Jun 2009
First Page PreviewforSocial Networking and Personal Genomics: Suggestions for Optimizing the Interaction | Full Text | References | PDF (67.4 KB)
  • 152 Views
  • 4 CrossRef citations
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Article
Genethics 2.0: Phenotypes, Genotypes, and the Challenge of Databases Generated by Personal Genome Testing
Karin Esposito & Kenneth Goodman
Pages: 19-21
Published online: 02 Jun 2009
First Page PreviewforGenethics 2.0: Phenotypes, Genotypes, and the Challenge of Databases Generated by Personal Genome Testing | Full Text | References | PDF (51.8 KB)
  • 118 Views
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Article
Are Social Networkers and Genome Testers One in the Same? The Limitations of Public Opinion Research for Guiding Clinical Practice
Michelle L. McGowan & Marcie A. Lambrix
Pages: 21-23
Published online: 02 Jun 2009
First Page PreviewforAre Social Networkers and Genome Testers One in the Same? The Limitations of Public Opinion Research for Guiding Clinical Practice | Full Text | References | PDF (51.8 KB)
  • 76 Views
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Article
How Attitudes Research Contributes to Overoptimistic Expectations of Personal Genome Testing
Eline Bunnik, A. Cecile J. W. Janssens & Maartje Schermer
Pages: 23-25
Published online: 02 Jun 2009
First Page PreviewforHow Attitudes Research Contributes to Overoptimistic Expectations of Personal Genome Testing | Full Text | References | PDF (53 KB)
  • 170 Views
  • 5 CrossRef citations
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Article
Apomediation and the Significance of Online Social Networking
Dan O'Connor
Pages: 25-27
Published online: 02 Jun 2009
First Page PreviewforApomediation and the Significance of Online Social Networking | Full Text | References | PDF (53.3 KB)
  • 231 Views
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Article
Personal Genomics as an Interactive Web Broadcast
Ainsley J. Newson
Pages: 27-29
Published online: 02 Jun 2009
First Page PreviewforPersonal Genomics as an Interactive Web Broadcast | Full Text | References | PDF (54.3 KB)
  • 56 Views
  • 1 CrossRef citations
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Article
We Are the Genes We've Been Waiting For: Rational Responses to the Gathering Storm of Personal Genomics
Misha Angrist
Pages: 30-31
Published online: 02 Jun 2009
CitationforWe Are the Genes We've Been Waiting For: Rational Responses to the Gathering Storm of Personal Genomics | Full Text | References | PDF (48.4 KB)
  • 178 Views
  • 5 CrossRef citations
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Article
Challenges in the Use of Direct-to-Consumer Personal Genome Testing in Children
Holly K. Tabor & Maureen Kelley
Pages: 32-34
Published online: 02 Jun 2009
First Page PreviewforChallenges in the Use of Direct-to-Consumer Personal Genome Testing in Children | Full Text | References | PDF (48.7 KB)
  • 227 Views
  • 6 CrossRef citations
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Target Article

Article
Research 2.0: Social Networking and Direct-To-Consumer (DTC) Genomics
Sandra Soo-Jin Lee & LaVera Crawley
Pages: 35-44
Published online: 02 Jun 2009
AbstractforResearch 2.0: Social Networking and Direct-To-Consumer (DTC) Genomics | Full Text | References | PDF (990.6 KB)
  • 1075 Views
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Open Peer Commentaries

Article
Direct-to-Consumer Genomics, Social Networking, and Confidentiality
David B. Resnik
Pages: 45-46
Published online: 02 Jun 2009
CitationforDirect-to-Consumer Genomics, Social Networking, and Confidentiality | Full Text | References | PDF (41.5 KB)
  • 157 Views
  • 6 CrossRef citations
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Article
Personal Genomics: Democratization, or Empowerment, or ‘Something’
Chris MacDonald & Nancy Walton
Pages: 46-48
Published online: 02 Jun 2009
First Page PreviewforPersonal Genomics: Democratization, or Empowerment, or ‘Something’ | Full Text | References | PDF (50 KB)
  • 157 Views
  • 4 CrossRef citations
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Article
Direct-To-Consumer Genetics and Health Policy: A Worst-Case Scenario?
Timothy Caulfield
Pages: 48-50
Published online: 02 Jun 2009
First Page PreviewforDirect-To-Consumer Genetics and Health Policy: A Worst-Case Scenario? | Full Text | References | PDF (52.4 KB)
  • 339 Views
  • 15 CrossRef citations
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Article
Networking Genetics, Populations, and Race
Lynette Reid
Pages: 50-52
Published online: 02 Jun 2009
First Page PreviewforNetworking Genetics, Populations, and Race | Full Text | References | PDF (50 KB)
  • 207 Views
  • 1 CrossRef citations
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Article
Genetic Privacy: Might There Be a Moral Duty to Share One's Genetic Information?
Heidi Malm
Pages: 52-54
Published online: 02 Jun 2009
First Page PreviewforGenetic Privacy: Might There Be a Moral Duty to Share One's Genetic Information? | Full Text | References | PDF (49.5 KB)
  • 218 Views
  • 4 CrossRef citations
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Article
Direct-to-Consumer Genome-Wide Scans: Astrologicogenomics or Simple Scams?
Wayne Hall & Coral Gartner
Pages: 54-56
Published online: 02 Jun 2009
First Page PreviewforDirect-to-Consumer Genome-Wide Scans: Astrologicogenomics or Simple Scams? | Full Text | References | PDF (49.5 KB)
  • 176 Views
  • 9 CrossRef citations
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Article
Direct-to-Consumer Genomics and Research Ethics: Should a More Robust Informed Consent Process Be Included?
Katherine Wasson
Pages: 56-58
Published online: 02 Jun 2009
First Page PreviewforDirect-to-Consumer Genomics and Research Ethics: Should a More Robust Informed Consent Process Be Included? | Full Text | References | PDF (46.7 KB)
  • 333 Views
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Target Article

Article
The Role of Empirical Research in Bioethics
Alexander A. Kon
Pages: 59-65
Published online: 02 Jun 2009
AbstractforThe Role of Empirical Research in Bioethics | Full Text | References | PDF (80.1 KB)
  • 1891 Views
  • 102 CrossRef citations
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Open Peer Commentaries

Article
Categorizing Empirical Research in Bioethics: Why Count the Ways?
Jeremy Sugarman, Nancy Kass & Ruth Faden
Pages: 66-67
Published online: 02 Jun 2009
CitationforCategorizing Empirical Research in Bioethics: Why Count the Ways? | Full Text | References | PDF (48.1 KB)
  • 218 Views
  • 12 CrossRef citations
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Article
Answering the ‘So What?’ Question for Empirical Research in Bioethics
Matthew K. Wynia
Pages: 68-69
Published online: 02 Jun 2009
CitationforAnswering the ‘So What?’ Question for Empirical Research in Bioethics | Full Text | References | PDF (48.6 KB)
  • 299 Views
  • 3 CrossRef citations
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Article
Kon's Reinvention of the Empirical Bioethics Wheel
S⊘ren Holm
Pages: 69-70
Published online: 02 Jun 2009
CitationforKon's Reinvention of the Empirical Bioethics Wheel | Full Text | References | PDF (47.9 KB)
  • 165 Views
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Article
What Counts as Empirical Research in Bioethics and Where Do We Find the Stuff?
James M. DuBois
Pages: 70-72
Published online: 02 Jun 2009
First Page PreviewforWhat Counts as Empirical Research in Bioethics and Where Do We Find the Stuff? | Full Text | References | PDF (54.5 KB)
  • 401 Views
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Article
What Empirical Research Can Do for Bioethics
Barry Hoffmaster & Cliff Hooker
Pages: 72-74
Published online: 02 Jun 2009
First Page PreviewforWhat Empirical Research Can Do for Bioethics | Full Text | References | PDF (54.4 KB)
  • 201 Views
  • 2 CrossRef citations
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Article
Empirical Bioethics: Present and Future Possibilities
Wayne Shelton
Pages: 74-75
Published online: 02 Jun 2009
CitationforEmpirical Bioethics: Present and Future Possibilities | Full Text | References | PDF (47.9 KB)
  • 164 Views
  • 1 CrossRef citations
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Article
Beware Dichotomies and Grand Abstractions: Attending to Particularity and Practice in Empirical Bioethics
Stacy M. Carter
Pages: 76-77
Published online: 02 Jun 2009
CitationforBeware Dichotomies and Grand Abstractions: Attending to Particularity and Practice in Empirical Bioethics | Full Text | References | PDF (47.8 KB)
  • 273 Views
  • 10 CrossRef citations
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Article
Conceptualizing Disease: Unifying the Divide Between Philosophical Inquiry and Empirical Research
Julie M. Aultman
Pages: 78-79
Published online: 02 Jun 2009
CitationforConceptualizing Disease: Unifying the Divide Between Philosophical Inquiry and Empirical Research | Full Text | References | PDF (47.8 KB)
  • 107 Views
  • 1 CrossRef citations
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Article
Psychology and Medical Decision-Making
Christopher Suhler & Patricia Churchland
Pages: 79-81
Published online: 02 Jun 2009
First Page PreviewforPsychology and Medical Decision-Making | Full Text | References | PDF (57.2 KB)
  • 217 Views
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Article
An Engine, Not a Pyramid
Armando Menéndez Viso & Antonio Casado da Rocha
Pages: 81-83
Published online: 02 Jun 2009
First Page PreviewforAn Engine, Not a Pyramid | Full Text | References | PDF (55.6 KB)
  • 70 Views
  • 2 CrossRef citations
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Article
How to Build a Theory About Empirical Bioethics: Acknowledging the Limitations of Empirical Research
Craig L. Fry
Pages: 83-85
Published online: 02 Jun 2009
First Page PreviewforHow to Build a Theory About Empirical Bioethics: Acknowledging the Limitations of Empirical Research | Full Text | References | PDF (54.2 KB)
  • 177 Views
  • 1 CrossRef citations
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Article
Evidence-Based Research Ethics
Michael Kalichman
Pages: 85-87
Published online: 02 Jun 2009
First Page PreviewforEvidence-Based Research Ethics | Full Text | References | PDF (60 KB)
  • 537 Views
  • 11 CrossRef citations
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Article
A View From the Borderlands of Philosophical Bioethics and Empirical Social Science Research: How the ‘Is’ Can Inform the ‘Ought’
Catherine Myser
Pages: 88-91
Published online: 02 Jun 2009
First Page PreviewforA View From the Borderlands of Philosophical Bioethics and Empirical Social Science Research: How the ‘Is’ Can Inform the ‘Ought’ | Full Text | References | PDF (70.8 KB)
  • 165 Views
  • 1 CrossRef citations
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Article
Empiricism, Values, and Bioethics
Kenneth Kirkwood
Pages: 91-92
Published online: 02 Jun 2009
CitationforEmpiricism, Values, and Bioethics | Full Text | References | PDF (50.1 KB)
  • 170 Views
  • 2 CrossRef citations
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Article
Methodology, Epistemology, and Empirical Bioethics Research: A Constructive/ist Commentary
Michael Dunn & Jonathan Ives
Pages: 93-95
Published online: 02 Jun 2009
First Page PreviewforMethodology, Epistemology, and Empirical Bioethics Research: A Constructive/ist Commentary | Full Text | References | PDF (54.3 KB)
  • 623 Views
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Article
Hurrah for Empirical Bioethics (Where Hermeneutically Clarified) or How Perception of Facts ‘Depends’ on Values
Dawson S. Schultz
Pages: 95-99
Published online: 02 Jun 2009
First Page PreviewforHurrah for Empirical Bioethics (Where Hermeneutically Clarified) or How Perception of Facts ‘Depends’ on Values | Full Text | References | PDF (68.8 KB)
  • 132 Views
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Article
Improving Care and Ethics: A Plea for Interactive Empirical Ethics
Guy Widdershoven, Bert Molewijk & Tineke Abma
Pages: 99-101
Published online: 02 Jun 2009
First Page PreviewforImproving Care and Ethics: A Plea for Interactive Empirical Ethics | Full Text | References | PDF (54.3 KB)
  • 909 Views
  • 19 CrossRef citations
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Article
Empirical Bioethics Research in the Developing World: When the ‘Is’ is Close to an ‘Ought’
Claudia I. Emerson, Ross E. G. Upshur & Abdallah S. Daar
Pages: 101-103
Published online: 02 Jun 2009
First Page PreviewforEmpirical Bioethics Research in the Developing World: When the ‘Is’ is Close to an ‘Ought’ | Full Text | References | PDF (50.9 KB)
  • 170 Views
  • 3 CrossRef citations
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Book Reviews

Book Review
Review of L. Jacoby and L. Siminoff, eds., Empirical Methods for Bioethics: A Primer
Andrea L. Kalfoglou
Pages: 104-105
Published online: 02 Jun 2009
CitationforReview of L. Jacoby and L. Siminoff, eds., Empirical Methods for Bioethics: A Primer | Full Text | References | PDF (44.9 KB)
  • 107 Views
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Book Review
Review of Katrina Karkazis, Fixing Sex: Intersex, Medical Authority, and Lived Experience
Elizabeth Reis
Pages: 105-106
Published online: 02 Jun 2009
CitationforReview of Katrina Karkazis, Fixing Sex: Intersex, Medical Authority, and Lived Experience | Full Text | References | PDF (45.2 KB)
  • 164 Views
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Open Peer Commentary

Article
Return of “Accurate” and “Actionable” Results: Yes!
Bartha Maria Knoppers & Claude Laberge
Pages: 107-109
Published online: 02 Jun 2009
First Page PreviewforReturn of “Accurate” and “Actionable” Results: Yes! | Full Text | References | PDF (46.6 KB)
  • 265 Views
  • 21 CrossRef citations
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Correspondence

Response to Open Peer Commentaries on “Research 2.0: Social Networking and Direct-to-Consumer Personal Genomics”
Sandra Soo-Jin Lee & LaVera Crawley
Pages: W1-W3
Published online: 02 Jun 2009
First Page PreviewforResponse to Open Peer Commentaries on “Research 2.0: Social Networking and Direct-to-Consumer Personal Genomics” | Full Text | References | PDF (42.8 KB)
  • 126 Views
  • 1 CrossRef citations
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It is Settled: The ‘Is’ Can (and Should) Inform the ‘Ought’!
Alexander A. Kon
Pages: W4-W6
Published online: 02 Jun 2009
First Page PreviewforIt is Settled: The ‘Is’ Can (and Should) Inform the ‘Ought’! | Full Text | References | PDF (40.8 KB)
  • 99 Views
  • 2 CrossRef citations
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Response to Open Peer Commentaries on “What is The Best Standard for the Standard of Care in Clinical Research?”
Rieke van der Graaf & Johannes JM van Delden
Pages: W7-W8
Published online: 02 Jun 2009
CitationforResponse to Open Peer Commentaries on “What is The Best Standard for the Standard of Care in Clinical Research?” | Full Text | References | PDF (41.2 KB)
  • 61 Views
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