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Review Articles

The experience of patients with ABI and their families during the hospital stay: A systematic review of qualitative literature

Pages 151-173 | Received 04 Feb 2016, Accepted 15 Aug 2016, Published online: 05 Jan 2017

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Jeneva L. Ohan, Hayley M. Jackson, Robyn Bett, Glenda M. Farmer & Angelita Martini. (2024) Experiences and needs of children and adolescents affected by a parent’s acquired brain injury: a systematic review and thematic synthesis. Disability and Rehabilitation 46:6, pages 1034-1044.
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Sarah L. Carrier, Jennie Ponsford & Adam McKay. (2023) Family experiences of supporting a relative with agitation during early recovery after traumatic brain injury. Neuropsychological Rehabilitation 0:0, pages 1-25.
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Janelle Panday, Diana Velikonja, Sandra E. Moll & Jocelyn E. Harris. (2022) Experiences of inpatient rehabilitation from the perspective of persons with acquired brain injury. Disability and Rehabilitation 44:19, pages 5539-5548.
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Tolu O. Oyesanya, Callan Loflin, HyunBin You, Melissa Kandel, Karen Johnson, Timothy Strauman, Qing Yang, Jodi Hawes, Lindsey Byom, Rosa Gonzalez-Guarda, Courtney Van Houtven, Suresh Agarwal & Janet Prvu Bettger. (2022) Design, methods, and baseline characteristics of the Brain Injury Education, Training, and Therapy to Enhance Recovery (BETTER) feasibility study: a transitional care intervention for younger adult patients with traumatic brain injury and caregivers. Current Medical Research and Opinion 38:5, pages 697-710.
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Deirdre M. Twomey, Niamh Allen, Maria L. F. Agan, Aoife M. Hayes, Andrea Higgins, Simone Carton, Richard Roche, David Hevey, Jessica Bramham, Nuala Brady & Fiadhnait O’Keeffe. (2021) Self-reported outcomes and patterns of service engagement after an acquired brain injury: a long-term follow-up study. Brain Injury 35:14, pages 1649-1657.
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Giovanna Girardi, Maria Luisa Farnese, Federico Scarponi, Antonio De Tanti, Michelangelo Bartolo, Domenico Intiso, Rita Formisano & Gabriella Antonucci. (2021) User-centered practices in the eyes of informal caregivers of in-patients with severe acquired brain injury: needs, caring experience, and satisfaction. Brain Injury 35:11, pages 1402-1412.
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Barathi Bakthavatsalu, Catherine Walshe & Jane Simpson. (2021) A Systematic Review with Thematic Synthesis of the Experience of Hospitalization in People with Advanced Chronic Obstructive Pulmonary Disease. COPD: Journal of Chronic Obstructive Pulmonary Disease 18:5, pages 576-584.
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Tolu O. Oyesanya$suffix/text()$suffix/text(), Nicole Thompson$suffix/text()$suffix/text(), Karthik Arulselvam$suffix/text()$suffix/text() & Ronald T. Seel$suffix/text()$suffix/text(). (2021) Technology and TBI: Perspectives of persons with TBI and their family caregivers on technology solutions to address health, wellness, and safety concerns. Assistive Technology 33:4, pages 190-200.
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Tolu O. Oyesanya, Karthik Arulselvam, Nicole Thompson, Jenna Norelli & Ronald T. Seel. (2021) Health, wellness, and safety concerns of persons with moderate-to-severe traumatic brain injury and their family caregivers: a qualitative content analysis. Disability and Rehabilitation 43:5, pages 685-695.
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Lauren Christie, Cara Egan, Josephine Wyborn & Grahame K Simpson. (2021) Evaluating client experience of rehabilitation following acquired brain injury: a cross-sectional study. Brain Injury 35:2, pages 215-225.
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Laura E. Gonzalez-Lara, Sarah Munce, Jennifer Christian, Adrian M. Owen, Charles Weijer & Fiona Webster. (2021) The multiplicity of caregiving burden: a qualitative analysis of families with prolonged disorders of consciousness. Brain Injury 35:2, pages 200-208.
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Joan Leung, Sarah Fereday, Bridget Sticpewich & Joe Hanna. (2018) Extra practice outside therapy sessions to maximize training opportunity during inpatient rehabilitation after traumatic brain injury. Brain Injury 32:7, pages 915-925.
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Hanne Pallesen, Lone Blak Lund, Marianne Jensen & Helle Roenn-Smidt. (2018) The body participating: a qualitative study of early rehabilitation participation for patients with severe brain injury and low level of consciousness. European Journal of Physiotherapy 20:1, pages 2-11.
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Articles from other publishers (20)

Panagiota Lafiatoglou, Caroline Ellis‐Hill, Mary Gouva, Avraam Ploumis & Stefanos Mantzoukas. (2023) Older adults' lived experiences of physical rehabilitation for acquired brain injury and their perceptions of well‐being: A qualitative phenomenological study. Journal of Clinical Nursing 33:3, pages 1134-1149.
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Tolu O. Oyesanya, Stephanie O. Ibemere, HyunBin You, Maralis Mercado Emerson, Wei Pan, Anushka Palipana, Melissa Kandel, Darius Ingram, Mayra Soto, Anne Pioppo, Brittany Albert, Tamia Walker-Atwater, Jodi Hawes, Jordan Komisarow, Katherine Ramos, Lindsey Byom, Rosa Gonzalez-Guarda, Courtney H. Van Houtven, Suresh Agarwal & Janet Prvu Bettger. (2024) Efficacy of BETTER transitional care intervention for diverse patients with traumatic brain injury and their families: Study protocol of a randomized controlled trial. PLOS ONE 19:2, pages e0296083.
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Julia Lindlöf, Hannele Turunen, Tarja Välimäki, Justiina Huhtakangas, Sofie Verhaeghe & Kirsi Coco. (2023) Empowering Support for Family Members of Brain Injury Patients in the Acute Phase of Hospital Care: A Mixed-Methods Systematic Review. Journal of Family Nursing 30:1, pages 50-67.
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James Gamgee, Jessica Runacres, Alyson Norman & Priyanka Pradhan. (2023) The Secondary Impact of Mild Traumatic Brain Injury: An Interpretative Phenomenological Analysis of the Experiences of Family Members. The Family Journal 31:4, pages 634-648.
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Tolu O. Oyesanya, Callan Loflin, HyunBin You, John Myers, Melissa Kandel, Karen Johnson, Timothy Strauman, Jodi Hawes, Lindsey Byom, Rosa Gonzalez-Guarda, Courtney Van Houtven, Suresh Agarwal & Janet Prvu Bettger. (2023) The BETTER Traumatic Brain Injury Transitional Care Intervention: A Feasibility Study. Western Journal of Nursing Research 45:10, pages 902-912.
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Chang-Chiao Hung, Hsueh-Fen S. Kao, Sarah Y. Jimenez, Santo Imanuel Tonapa & Bih-O Lee. (2023) Effects of Case Management in Trauma Patients in Taiwan: A Randomized, Longitudinal Study. Journal of Trauma Nursing 30:4, pages 213-221.
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Barathi Bakthavatsalu, Catherine Walshe & Jane Simpson. (2022) The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study. Chronic Illness 19:2, pages 339-353.
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Rikke Guldager, Sara Nordentoft, Ingrid Poulsen, Lena Aadal & Mia Ingerslev Loft. (2023) Wants and needs for involvement experienced by relatives of patients with an acquired brain injury: a scoping review. JBI Evidence Synthesis 21:5, pages 886-912.
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Rosaria De Luca, Patrizia Pollicino, Carmela Rifici, Natale Mondo, Stefania Iorio, Angela Cassaniti, Donatella Ferrara, Angelo Caminiti, Fausto Famà, Mirjam Bonanno & Rocco Salvatore Calabrò. (2023) Psycho-Emotional Well-Being in Caregivers of People with Acquired Brain Injury: An Exploratory Study on the Human Immersion Model during the Omicron Wave. Clinics and Practice 13:2, pages 487-496.
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Elizabeth O’Shannessy, Sandra Reeder, Swarna Vishwanath, Sophie Hill, Andrew Perta, Laura Jolliffe, Jacqui Morarty, Peter Hunter & Natasha A. Lannin. (2022) Mixed methods study to understand the experiences of adults with acquired brain injury and their family members who receive specialised rehabilitation. Brain Impairment 24:1, pages 39-53.
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Martin Checklin & Delwyne Stephens. (2021) Pictures and a thousand words: the experiences of significant others whose loved ones have a severe brain injury who are being discharged home. Brain Impairment 23:3, pages 311-324.
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Rikke Guldager, Mia Ingerslev Loft, Sara Nordentoft, Lena Aadal & Ingrid Poulsen. (2022) Facilitators and barriers of relatives’ involvement in nursing care decisions and self-care of patients with acquired brain injury or malignant brain tumour: A scoping review protocol. PLOS ONE 17:8, pages e0273151.
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Panagiota Lafiatoglou, Caroline Ellis‐Hill, Mary Gouva, Avraam Ploumis & Stefanos Mantzoukas. (2021) A systematic review of the qualitative literature on older individuals’ experiences of care and well‐being during physical rehabilitation for acquired brain injury. Journal of Advanced Nursing 78:2, pages 377-394.
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Tolu O. Oyesanya, Gabrielle Harris Walker, Callan Loflin & Janet Prvu Bettger. (2021) Negotiating the transition from acute hospital care to home: perspectives of patients with traumatic brain injury, caregivers and healthcare providers. Journal of Integrated Care 29:4, pages 414-424.
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Tolu O Oyesanya, Callan Loflin, Gabrielle Harris & Janet Prvu Bettger. (2021) “Just tell me in a simple way”: A qualitative study on opportunities to improve the transition from acute hospital care to home from the perspectives of patients with traumatic brain injury, families, and providers. Clinical Rehabilitation 35:7, pages 1056-1072.
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Jane Karpa, Wanda Chernomas, Kerstin Roger & Tuula Heinonen. (2020) Families’ Experiences Living with Acquired Brain Injury: “Thinking Family”—A Nursing Pathway for Family-Centered Care. Nursing Research and Practice 2020, pages 1-10.
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Chloe Tulip, Zoe Fisher, Helen Bankhead, Lowri Wilkie, Julia Pridmore, Fergus Gracey, Jeremy Tree & Andrew H. Kemp. (2020) Building Wellbeing in People With Chronic Conditions: A Qualitative Evaluation of an 8-Week Positive Psychotherapy Intervention for People Living With an Acquired Brain Injury. Frontiers in Psychology 11.
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Elena Gillespie. (2019) A Qualitative Pilot Study of Spirituality in Long-term Recovery in Acquired Brain Injury. Journal of Pastoral Care & Counseling: Advancing theory and professional practice through scholarly and reflective publications 73:2, pages 96-105.
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Unn Sollid Manskow, Cathrine Arntzen, Elin Damsgård, Mary Braine, Solrun Sigurdardottir, Nada Andelic, Cecilie Røe & Audny Anke. (2018) Family members’ experience with in-hospital health care after severe traumatic brain injury: a national multicentre study. BMC Health Services Research 18:1.
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Tolu O. Oyesanya & Barbara Bowers. (2017) Managing Visitors During the Hospital Stay: The Experience of Family Caregivers of Patients With Traumatic Brain Injury. Journal of Family Nursing 23:2, pages 273-298.
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