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Original Articles

Involving users in evaluation: The social relations of user participation in health research

Pages 215-229 | Published online: 01 Jul 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (5)

Theresia Krieger, Miriam Floren, Frans Feron & Elisabeth Dorant. (2021) Optimising a complex stroke caregiver support programme in practice: a participatory action research study. Educational Action Research 29:1, pages 37-59.
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Alissa Merielle Greer, Bernadette Pauly, Alex Scott, Ruth Martin, Charlene Burmeister & Jane Buxton. (2019) Paying people who use illicit substances or ‘peers’ participating in community-based work: a narrative review of the literature. Drugs: Education, Prevention and Policy 26:6, pages 447-459.
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CarolineJ. Newell & Jane South. (2009) Participating in community research: exploring the experiences of lay researchers in Bradford. Community, Work & Family 12:1, pages 75-89.
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Eileen Fairhurst. (2005) Theorizing growing and being older: Connecting physical health, well-being and public health. Critical Public Health 15:1, pages 27-38.
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Lori E. Ross, Merrick Pilling, Jijian Voronka, Kendra-Ann Pitt, Elizabeth McLean, Carole King, Yogendra Shakya, Kinnon R. MacKinnon, Charmaine C. Williams, Carol Strike & Adrian Guta. ‘I will play this tokenistic game, I just want something useful for my community’: experiences of and resistance to harms of peer research. Critical Public Health 0:0, pages 1-12.
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Articles from other publishers (26)

Ikuko Natsukari, Mari Higuchi & Tai Tsujimoto. (2023) How do patients and families evaluate attitude of psychiatrists in Japan?: quantitative content analysis of open-ended items of patient responses from a large-scale questionnaire survey. BMC Psychiatry 23:1.
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Neil Kenny, Alison Doyle & Finbar Horgan. (2023) Transformative Inclusion: Differentiating Qualitative Research Methods to Support Participation for Individuals With Complex Communication or Cognitive Profiles. International Journal of Qualitative Methods 22, pages 160940692211469.
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David Lessard, Kim Engler, Isabelle Toupin, Jean‐Pierre Routy & Bertrand Lebouché. (2018) Evaluation of a project to engage patients in the development of a patient‐reported measure for HIV care (the I‐Score Study) . Health Expectations 22:2, pages 209-225.
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Lindy King, Tatjana Zlatanovic & David Gillham. (2018) Challenges and facilitators for health practitioners and academics engaging in collaborative research and publication: A systematic review / Herausforderungen und Förderfaktoren für gemeinsame Forschung und wissenschaftliche Publikation von Angehörigen verschiedener Gesundheitsberufe aus Praxis und Forschung: ein systematischer Review. International Journal of Health Professions 5:1, pages 121-145.
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Asha S George, Amnesty E LeFevre, Meike Schleiff, Arielle Mancuso, Emma Sacks & Eric Sarriot. (2018) Hubris, humility and humanity: expanding evidence approaches for improving and sustaining community health programmes. BMJ Global Health 3:3, pages e000811.
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Ditte Ejbye-Ernst & Nina Tejs J⊘rring. (2017) Doing It Collaboratively! Addressing the Dilemmas of Designing Quantitative Effect Studies on Narrative Family Therapy in a Local Clinical Context. Journal of Systemic Therapies 36:1, pages 48-66.
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Vivian Hill, Abigail Croydon, Scot Greathead, Lorcan Kenny, Rhiannon Yates & Elizabeth Pellicano. (2016) Research methods for children with multiple needs: Developing techniques to facilitate all children and young people to have ‘a voice’. Educational and Child Psychology 33:3, pages 26-43.
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Patricia Wilson, Elspeth Mathie, Julia Keenan, Elaine McNeilly, Claire Goodman, Amanda Howe, Fiona Poland, Sophie Staniszewska, Sally Kendall, Diane Munday, Marion Cowe & Stephen Peckham. (2015) ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study. Health Services and Delivery Research 3:38, pages 1-176.
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Else Tambuyzer & Chantal Van Audenhove. (2015) Is perceived patient involvement in mental health care associated with satisfaction and empowerment?. Health Expectations 18:4, pages 516-526.
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Heather Morgan, Pat Hoddinott, Gill Thomson, Nicola Crossland, Shelley Farrar, Deokhee Yi, Jenni Hislop, Victoria Hall Moran, Graeme MacLennan, Stephan U Dombrowski, Kieran Rothnie, Fiona Stewart, Linda Bauld, Anne Ludbrook, Fiona Dykes, Falko F Sniehotta, David Tappin & Marion Campbell. (2015) Benefits of Incentives for Breastfeeding and Smoking cessation in pregnancy (BIBS): a mixed-methods study to inform trial design. Health Technology Assessment 19:30, pages 1-522.
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H. Loughran & M. E. McCann. (2013) Employing Community Participative Research Methods to Advance Service User Collaboration in Social Work Research. British Journal of Social Work 45:2, pages 705-723.
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Jo Brett, Sophie Staniszewska, Carole Mockford, Sandra Herron-Marx, John Hughes, Colin Tysall & Rashida Suleman. (2014) A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities. The Patient - Patient-Centered Outcomes Research 7:4, pages 387-395.
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Jo Brett, Sophie Staniszewska, Carole Mockford, Sandra Herron-Marx, John Hughes, Colin Tysall & Rashida Suleman. (2014) Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expectations 17:5, pages 637-650.
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Kathleen Charlebois, Christine Loignon, Alexandrine Boudreault-Fournier, Sophie Dupéré & Cristina Grabovschi. (2014) L’implication des personnes vulnérables dans la recherche participative en soins primaires : une revue de la littérature. Global Health Promotion 21:3, pages 38-45.
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Kristina Staley. (2013) Lay REC members: patient or public?. Journal of Medical Ethics 39:12, pages 780-782.
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Gillian Hewitt, Alizon K. Draper & Suraiya Ismail. (2012) Using Participatory Approaches with Older People in a Residential Home in Guyana: Challenges and Tensions. Journal of Cross-Cultural Gerontology 28:1, pages 1-25.
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George Szmukler, Kristina Staley & Thomas Kabir. (2011) Service user involvement in research. Asia-Pacific Psychiatry 3:4, pages 180-186.
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Pamela Attree, Beverley French, Beth Milton, Susan Povall, Margaret Whitehead & Jennie Popay. (2011) The experience of community engagement for individuals: a rapid review of evidence. Health & Social Care in the Community 19:3, pages 250-260.
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Linda J. Smith. (2008) How ethical is ethical research? Recruiting marginalized, vulnerable groups into health services research. Journal of Advanced Nursing 62:2, pages 248-257.
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Carole Truman. 2008. The Sociology of Healthcare. The Sociology of Healthcare 107 119 .
David NM Wright, Jessica L Corner, Jane B Hopkinson & Claire L Foster. (2007) The case for user involvement in research: the research priorities of cancer patients. Breast Cancer Research 9:S2.
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Ann Rowe. (2006) The effect of involvement in participatory research on parent researchers in a Sure Start programme. Health and Social Care in the Community 14:6, pages 465-473.
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Edmund Rutta, Holly Williams, Andwele Mwansasu, Fredrick Mung'ong'o, Heather Burke, Ramadhani Gongo, Rwegasira Veneranda & Mohamed Qassim. (2005) Refugee perceptions of the quality of healthcare: findings from a participatory assessment in Ngara, Tanzania. Disasters 29:4, pages 291-309.
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Pamela Attree. (2004) 'It was like my little acorn, and it's going to grow into a big tree': a qualitative study of a community support project. Health and Social Care in the Community 12:2, pages 155-161.
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Tony Leiba. 2004. Interprofessional Post-qualifying Education for Nurses. Interprofessional Post-qualifying Education for Nurses 16 28 .
Carole Truman. (2017) Ethics and the Ruling Relations of Research Production. Sociological Research Online 8:1, pages 70-80.
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