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Research Papers

Involving people with dementia in developing an interactive web tool for shared decision-making: experiences with a participatory design approach

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Pages 1410-1420 | Received 19 Jul 2016, Accepted 19 Feb 2017, Published online: 12 Mar 2017

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Read on this site (7)

Antonios Tsertsidis, Ella Kolkowska & Irene Rapado. (2023) Consumer direction in the field of digital technologies and people with dementia: a literature review. Disability and Rehabilitation: Assistive Technology 18:8, pages 1364-1376.
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Jacky Zheng, Meredith Gresham, Lyn Phillipson, Danika Hall, Yun-Hee Jeon, Henry Brodaty & Lee-Fay Low. (2023) Exploring the usability, user experience and usefulness of a supportive website for people with dementia and carers. Disability and Rehabilitation: Assistive Technology 0:0, pages 1-13.
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Liselore J. A. E. Snaphaan, Iris A. G. M. Geerts & Inge M. B. Bongers. (2022) Involving people with dementia in the development process of assistive technology: multi-stakeholder experiences of a user-driven living lab. Design for Health 6:1, pages 28-43.
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Kristine A. Theurer, Robyn I. Stone, Melinda J. Suto, Virpi Timonen, Susan G. Brown & W. Ben Mortenson. (2021) 'It makes life worthwhile!' Peer mentoring in long-term care—a feasibility study. Aging & Mental Health 25:10, pages 1887-1896.
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Ashlie Glassner. (2021) Fighting Stigma by Engaging Persons Living with Dementia in Research. Issues in Mental Health Nursing 42:6, pages 604-607.
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Articles from other publishers (29)

Virginie Blanchette, Sarah Maranda-Pelletier, Gabriel Bilodeau & Anik Giguere. (2024) Factors influencing the engagement of older adults with neurocognitive disorders in the design of decision aids: A qualitative descriptive study. Patient Education and Counseling 119, pages 108061.
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Jennifer Rhiannon Roberts, Catrin Hedd Jones & Gill Windle. (2023) Knowledge Is Power: Utilizing Human-Centered Design Principles with People Living with Dementia to Co-Design a Resource and Share Knowledge with Peers. International Journal of Environmental Research and Public Health 20:20, pages 6937.
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Ittay Mannheim, Dana Weiss, Yvonne van Zaalen & Eveline J.M. Wouters. (2023) An “ultimate partnership”: Older persons’ perspectives on age-stereotypes and intergenerational interaction in co-designing digital technologies. Archives of Gerontology and Geriatrics 113, pages 105050.
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Katey Warran, Frankie Greenwood, Rosalie Ashworth, Martin Robertson & Paula Brown. (2023) Challenges in co‐produced dementia research: A critical perspective and discussion to inform future directions. International Journal of Geriatric Psychiatry 38:9.
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Ittay Mannheim, Eveline J M Wouters, Hanna Köttl, Leonieke C van Boekel, Rens Brankaert & Yvonne van Zaalen. (2023) Ageism in the Discourse and Practice of Designing Digital Technology for Older Persons: A Scoping Review. The Gerontologist 63:7, pages 1188-1200.
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Rehab Alhasani, Nicole George, Dennis Radman, Claudine Auger & Sara Ahmed. (2023) Methodologies for Evaluating the Usability of Rehabilitation Technologies Aimed at Supporting Shared Decision-Making: Scoping Review. JMIR Rehabilitation and Assistive Technologies 10, pages e41359.
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Golnaz Ghaderi, Peter Milley, Rosemary Lysaght & Virginie Cobigo. (2023) Including people with intellectual and other cognitive disabilities in research and evaluation teams: A scoping review of the empirical knowledge base. Journal of Intellectual Disabilities.
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Sandra Suijkerbuijk, Myrte Thoolen, Henk Herman Nap, Mirella Minkman, Wijnand IJsselsteijn, Rens Brankaert & Yvonne de Kort. 2023. Dementia Lab 2022: The Residue of Design. Dementia Lab 2022: The Residue of Design 13 25 .
Mónica Spínola, Joana Câmara, Luís Ferreira, Ana Lúcia Faria & Sergi Bermúdez i Badia. (2022) Customizing a Cognitive Stimulation Program for Individuals with Dementia through a Participatory Design Approach. Applied Sciences 12:22, pages 11612.
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Donatella Ciarmoli & Fabrizio Stasolla. 2022. Analyzing Multidisciplinary Uses and Impact of Innovative Technologies. Analyzing Multidisciplinary Uses and Impact of Innovative Technologies 69 94 .
Antonia Kowe, Hentry Panjaitan, Olga A Klein, Marina Boccardi, Martina Roes, Sonja Teupen & Stefan Teipel. (2022) The impact of participatory dementia research on researchers: A systematic review. Dementia 21:3, pages 1012-1031.
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Fiona Cowdell, Judith Dyson, Michael Sykes, Rinita Dam & Rose Pendleton. (2020) How and how well have older people been engaged in healthcare intervention design, development or delivery using co‐methodologies: A scoping review with narrative summary. Health & Social Care in the Community 30:2, pages 776-798.
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Hanneke Kip, Julia Keizer, Marcia C da Silva, Nienke Beerlage-de Jong, Nadine Köhle & Saskia M Kelders. (2022) Methods for Human-Centered eHealth Development: Narrative Scoping Review. Journal of Medical Internet Research 24:1, pages e31858.
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Donatella Ciarmoli. 2022. Assistive Technologies for Assessment and Recovery of Neurological Impairments. Assistive Technologies for Assessment and Recovery of Neurological Impairments 173 195 .
Maria Haak, Synneve Ivanoff, Emmelie Barenfeld, Isak Berge & Qarin Lood. (2021) Research as an essentiality beyond one’s own competence: an interview study on frail older people's view of research. Research Involvement and Engagement 7:1.
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Annabel Jones, Philippa Morgan-Jones, Monica Busse, Victoria Shepherd & Fiona Wood. (2021) Conducting focus groups in neurodegenerative disease populations: ethical and methodological considerations. BMJ Open 11:1, pages e041869.
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S. Neves, A. Macdonald, M. Poole & K. Harrison Dening. 2021. Perspectives on Design and Digital Communication II. Perspectives on Design and Digital Communication II 193 216 .
S. Neves, A. Macdonald, E. McLellan, M. Poole, K. Harrison-Dening, S. Tucker, C. Bamford & L. Robinson. 2021. Advances in Design and Digital Communication. Advances in Design and Digital Communication 325 336 .
Harleen Kaur Rai, Aline Cavalcanti Barroso, Lauren Yates, Justine Schneider & Martin Orrell. (2020) Involvement of People With Dementia in the Development of Technology-Based Interventions: Narrative Synthesis Review and Best Practice Guidelines. Journal of Medical Internet Research 22:12, pages e17531.
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Laura-Mihaela Bogza, Cassandra Patry-Lebeau, Elina Farmanova, Holly O Witteman, Jacobi Elliott, Paul Stolee, Carol Hudon & Anik M C Giguere. (2020) User-Centered Design and Evaluation of a Web-Based Decision Aid for Older Adults Living With Mild Cognitive Impairment and Their Health Care Providers: Mixed Methods Study. Journal of Medical Internet Research 22:8, pages e17406.
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Lenora Smith & Vinny Argentina. (2020) The Usability of Physical Activity and Cognitive Training Applications in People With Mild Cognitive Impairment. Research in Gerontological Nursing 13:2, pages 64-72.
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Sandra Suijkerbuijk, Henk Herman Nap & Mirella Minkman. 2020. HCI and Design in the Context of Dementia. HCI and Design in the Context of Dementia 335 346 .
Gubing Wang, Chiara Marradi, Armagan Albayrak & Tischa J.M. van der Cammen. (2019) Co-designing with people with dementia: A scoping review of involving people with dementia in design research. Maturitas 127, pages 55-63.
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Sandra Suijkerbuijk, Henk Herman Nap, Lotte Cornelisse, Wijnand A. IJsselsteijn, Yvonne A.W. de Kort & Mirella M.N. Minkman. (2019) Active Involvement of People with Dementia: A Systematic Review of Studies Developing Supportive Technologies. Journal of Alzheimer's Disease 69:4, pages 1041-1065.
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Kate Allen Christensen, Karen-Margrethe Lund & Jette Thuesen. (2019) Evaluation of Person-Centredness in Rehabilitation for People Living with Dementia Is Needed: A Review of the Literature. Journal of Aging Research 2019, pages 1-9.
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Gabriel Bilodeau, Holly Witteman, France Légaré, Juliette Lafontaine-Bruneau, Philippe Voyer, Edeltraut Kröger, Marie-Claude Tremblay & Anik M C Giguere. (2019) Reducing complexity of patient decision aids for community-based older adults with dementia and their caregivers: multiple case study of Decision Boxes. BMJ Open 9:5, pages e027727.
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C. Melander, M. Olsson, S. Jayousi, A. Martinelli & L. Mucchi. 2019. Body Area Networks: Smart IoT and Big Data for Intelligent Health Management. Body Area Networks: Smart IoT and Big Data for Intelligent Health Management 301 314 .
Anik M. C. Giguere, Moulikatou Adouni Lawani, Émilie Fortier-Brochu, Pierre-Hugues Carmichael, France Légaré, Edeltraut Kröger, Holly O. Witteman, Philippe Voyer, Danielle Caron & Charo Rodríguez. (2018) Tailoring and evaluating an intervention to improve shared decision-making among seniors with dementia, their caregivers, and healthcare providers: study protocol for a randomized controlled trial. Trials 19:1.
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Viviana Perilli, Fabrizio Stasolla, Stefania Maselli & Isabel Morelli. (2018) Assistive Technology and Cognitive-Behavioral Programs for Promoting Adaptive Skills of Persons with Alzheimer Disease: A Selective Review. Journal of Neurological Research and Therapy 2:3, pages 14-29.
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