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Yskert von Kodolitsch, Anthony Demolder, Evaldas Girdauskas, Harald Kaemmerer, Katharina Kornhuber, Laura Muino Mosquera, Shaine Morris, Enid Neptune, Reed Pyeritz, Svend Rand-Hendriksen, Alexander Rahman, Nina Riise, Leema Robert, Ingmar Staufenbiel, Katalin Szöcs, Thy Thy Vanem, Stephan J. Linke, Marina Vogler, Anji Yetman & Julie De Backer. (2019) Features of Marfan syndrome not listed in the Ghent nosology – the dark side of the disease. Expert Review of Cardiovascular Therapy 17:12, pages 883-915.
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Yskert von Kodolitsch, Meike Rybczynski, Marina Vogler, Thomas S Mir, Helke Schüler, Kerstin Kutsche, Georg Rosenberger, Christian Detter, Alexander M Bernhardt, Axel Larena-Avellaneda, Tilo Kölbel, E Sebastian Debus, Malte Schroeder, Stephan J Linke, Bettina Fuisting, Barbara Napp, Anna Lena Kammal, Klaus Püschel, Peter Bannas, Boris A Hoffmann, Nele Gessler, Eva Vahle-Hinz, Bärbel Kahl-Nieke, Götz Thomalla, Christina Weiler-Normann, Gunda Ohm, Stefan Neumann, Dieter Benninghoven, Stefan Blankenberg & Reed E Pyeritz. (2016) The role of the multidisciplinary health care team in the management of patients with Marfan syndrome. Journal of Multidisciplinary Healthcare 9, pages 587-614.
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Yskert von Kodolitsch, Julie De Backer, Helke Schüler, Peter Bannas, Cyrus Behzadi, Alexander M Bernhardt, Mathias Hillebrand, Bettina Fuisting, Sara Sheikhzadeh, Meike Rybczynski, Tilo Kölbel, Klaus Püschel, Stefan Blankenberg & Peter N Robinson. (2015) Perspectives on the revised Ghent criteria for the diagnosis of Marfan syndrome. The Application of Clinical Genetics 8, pages 137-155.
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Marlies Colman, Delfien Syx, Inge De Wandele, Lies Rombaut, Deborah Wille, Zoë Malfait, Mira Meeus, Anne-Marie Malfait, Jessica Van Oosterwijck & Fransiska Malfait. (2023) Sensory Profiling in Classical Ehlers-Danlos Syndrome: A Case-Control Study Revealing Pain Characteristics, Somatosensory Changes, and Impaired Pain Modulation. The Journal of Pain.
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Gry Velvin, Heidi Johansen, Amy Østertun-Geirdal & Trine Bathen. (2023) Fatigue in patients with syndromic heritable thoracic aortic disease: a systematic review of the literature and a qualitative study of patients’ experiences and perceptions. Orphanet Journal of Rare Diseases 18:1.
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Brad T. Tinkle, Ronald V. Lacro & Leah W. Burke. (2023) Health Supervision for Children and Adolescents With Marfan Syndrome. Pediatrics 151:4.
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Hope E. Baylow, Mitra Esfandiarei & Ileana Ratiu. (2022) Swallowing and quality of life in individuals with Marfan syndrome: a cross-sectional study. Quality of Life Research 31:12, pages 3365-3375.
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Mitzi M. van Andel, Kim Graaumans, Maarten Groenink, Aeilko H. Zwinderman, Roland R. J. van Kimmenade, Arthur J. H. A. Scholte, Maarten P. van den Berg, Michael G. Dickinson, Hans Knoop, Jos A. Bosch, Barbara J. M. Mulder, Vivian de Waard & Floor Bennebroek Evertsz'. (2022)
A cross‐sectional study on fatigue, anxiety, and symptoms of depression and their relation with medical status in adult patients with
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Hope E. Baylow, Mitra Esfandiarei & Ileana Ratiu. (2022) Voice Symptoms and Quality of Life in Individuals With Marfan Syndrome: A Cross-Sectional Study. Journal of Voice.
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Lily Pollock, Ashley Ridout, James Teh, Colin Nnadi, Dionisios Stavroulias, Alex Pitcher, Edward Blair, Paul Wordsworth & Tonia L. Vincent. (2021) The Musculoskeletal Manifestations of Marfan Syndrome: Diagnosis, Impact, and Management. Current Rheumatology Reports 23:11.
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Laura Birke Hansen, Yskert von Kodolitsch, Friedrich Schroeder & Dieter Benninghoven. (2020) Body Image in Patients with Marfan Syndrome. Journal of Clinical Medicine 9:4, pages 1015.
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Jill C. Handisides, Danielle Hollenbeck-Pringle, Karen Uzark, Felicia L. Trachtenberg, Victoria L. Pemberton, Teresa W. Atz, Timothy J. Bradley, Elizabeth Cappella, Sylvia De Nobele, Georgeann Keh-Teng Groh, Michelle S. Hamstra, Rosalind Korsin, Jami C. Levine, Bergen Lindauer, Aimee Liou, Meghan K. Mac Neal, Larry W. Markham, Tonia Morrison, Kathleen A. Mussatto, Aaron K. Olson, Mary Ella M. Pierpont, Reed E. Pyeritz, Elizabeth A. Radojewski, Mary J. Roman, Mingfen Xu, Ronald V. Lacro, Gail Pearson, Mario Stylianou, Lynn Mahony, Lynn Sleeper, Sharon Tennstedt, Steven Colan, Gloria Klein, Lin Guey, Lisa Wruck, Thomas Travison, Shan Chen, Eric Gerstenberger, Tanya Olesker, David F. Teitel, Jane Newburger, Martha King, Carolyn Dunbar-Masterson, Andrea Posa, Quincy Nang, Cara Hass, Daphne Hsu, Wyman Lai, William Hellenbrand, Beth Printz, Richard Devereux, Greysi Sherwood, Victoria Vetter, Stephen Paridon, Marie Gleason, Nicole Mirarchi, Sandra DiLullo, Agbenu Ejembi, Ruth Morgan, D. Woodrow Benson, William Border, James Cnota, Haleh Heydarian, Jeanne James, Kathryn Hogan, Lois Bogenschutz, Mary Pat Benham, Teresa Barnard, Page A.W. Anderson, Jennifer S. Li, Stephanie Burns Wechsler, Amanda Cook, Charles Sang, Wesley Covitz, Lori Jo Sutton, Kari Crawford, Summer Roberts, Deborah Palmer, J. Philip Saul, Andrew Atz, Geoffrey Forbus, Patricia Infinger, Aparna Choudhury, LuAnn Minich, Richard Williams, Angela Yetman, Marian Shearrow, Michelle Robinson, June Porter, Brian McCrindle, Jennifer Russell, Jack Colman, Svetlana Khaikin, Nancy Slater, Harry C. Dietz, William J. Ravekes, Mary Rykiel, Elisabeth Sparks, Gretchen MacCarrick, Jennifer Leadroot, Charles Canter, Angela Sharkey, Alan Braverman, Cheryl Rainey, John L. Jefferies, Timothy Slesnick, Hugo Martinez, Andres Menesses, Tunu Tenende, David Liang, Elisabeth Merkel, Bart Loeys, Julie De Backer, Jan Maarten Cobben, Thierry Sluysmans, Anne De Paepe, Bruce Gelb, Shubhika Srivastava, Tejani Mendiz-Ramdeen, Constance Weismann, Emily Lawrence, Stephanie Chin, Helen Ko, Jen Le Yau, Steven Webber, Stacey Drant, Jane Luce, Kevin Stiegler, Cheryl Kinnard, Cheri Stewart, Sue Sommers, Carol Madison, Luciana Young, Megan Domenico, Kathryn Waitzman, Carla Lozano, Charles Baker, Erin Zielinski, Heidi Vander Velden, Alison Overman, Mark Lewin, Amy Payne, David Rimoin, Mitchel Pariani, Robert Siegel, Asim Rafique, Paul Grossfeld, Arlene Smith, Terri McLees-Palinkas, Steven D. Colan, Elif Seda Selamet Tierney, Shari Trevey, Marga Rivera, Michael Artman, Erle Austin, H. Scott Baldwin, Daniel Bernstein, Timothy Feltes, Julie Johnson, Thomas Klitzner, Jeffrey Krischer, G. Paul Matherne, Kenneth G. Zahka, John Kugler, David J. Driscoll, Mark Galantowicz, Sally A. Hunsberger, Thomas J. Knight & Holly Taylor. (2019) Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome. The Journal of Pediatrics 204, pages 250-255.e1.
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Ileana Ratiu, Thomas B. Virden, Hope Baylow, Melissa Flint & Mitra Esfandiarei. (2018) Executive function and quality of life in individuals with Marfan syndrome. Quality of Life Research 27:8, pages 2057-2065.
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Dieter Benninghoven, Denise Hamann, Yskert von Kodolitsch, Meike Rybczynski, Julia Lechinger, Friedrich Schroeder, Marina Vogler & Eike Hoberg. (2017) Inpatient rehabilitation for adult patients with Marfan syndrome: an observational pilot study. Orphanet Journal of Rare Diseases 12:1.
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Tomoko Shimizu, Natsuko Seto & Yasuko Shimizu. (2017) Experiences of Marfan Syndrome Patients with a History of Cardiovascular Surgery. Journal of Japan Academy of Nursing Science 37:0, pages 96-104.
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Ju Ryoung Moon, Yong Ae Cho, June Huh, I-Seok Kang & Duk-Kyung Kim. (2016) Structural equation modeling of the quality of life for patients with marfan syndrome. Health and Quality of Life Outcomes 14:1.
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Gry Velvin, Trine Bathen, Svend Rand-Hendriksen & Amy Østertun Geirdal. (2016) Satisfaction with life in adults with Marfan syndrome (MFS): associations with health-related consequences of MFS, pain, fatigue, and demographic factors. Quality of Life Research 25:7, pages 1779-1790.
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Emily Connors, Richmond W. Jeremy, Alana Fisher, Louise Sharpe & Ilona Juraskova. (2015) Adjustment and Coping Mechanisms for Individuals with Genetic Aortic Disorders. Heart, Lung and Circulation 24:12, pages 1193-1202.
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Antonella Gritti, Simone Pisano, Gennaro Catone, Raffaella Iuliano, Tiziana Salvati & Paolo Gritti. (2015) Psychiatric and neuropsychological issues in Marfan syndrome. The International Journal of Psychiatry in Medicine 50:4, pages 347-360.
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G. Velvin, T. Bathen, S. Rand-Hendriksen & A.Ø. Geirdal. (2015) Systematic review of the psychosocial aspects of living with Marfan syndrome. Clinical Genetics 87:2, pages 109-116.
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Trine Bathen, Gry Velvin, Svend Rand-Hendriksen & Hilde Stendal Robinson. (2014) Fatigue in adults with Marfan syndrome, occurrence and associations to pain and other factors. American Journal of Medical Genetics Part A 164:8, pages 1931-1939.
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Brad T. Tinkle, Howard M. Saal, Robert A. Saul, Stephen R. Braddock, Emily Chen, Debra L. Freedenberg, Marilyn C. Jones, James M. Perrin & Beth Anne Tarini. (2013) Health Supervision for Children With Marfan Syndrome. Pediatrics 132:4, pages e1059-e1072.
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Nynke van Dijk, Mardi C. Boer, Barbara J. M. Mulder, Gert A. van Montfrans & Wouter Wieling. (2008) Is fatigue in Marfan syndrome related to orthostatic intolerance?. Clinical Autonomic Research 18:4.
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