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Research Papers

Development of the participation and environment measure for children and youth: conceptual basis

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Pages 238-246 | Accepted 01 Jul 2011, Published online: 16 Dec 2011

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Carlotta Rivella, Alice Zanetti, Marta Bertamino, Ludovica Primavera, Paolo Moretti & Paola Viterbori. (2023) Emotional and social functioning after stroke in childhood: a systematic review. Disability and Rehabilitation 45:25, pages 4175-4189.
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Ozgun Kaya Kara, Ceren Gursen, Sebahat Yaprak Cetin, Elif Nur Tascioglu, Seda Muftuoglu & Diane L. Damiano. (2023) The effects of power exercises on body structure and function, activity and participation in children with cerebral palsy: an ICF-based systematic review. Disability and Rehabilitation 45:22, pages 3705-3718.
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Linn Engdahl-Høgåsen & Marte Bentzen. (2023) How is the participation of individuals with disabilities studied and understood in current research within the sport context? A systematic literature review. International Review of Sport and Exercise Psychology 0:0, pages 1-33.
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Mark A. Ferro, Melissa Elgie, Megan Dol & Dominique Basque. (2023) Measurement invariance of the 12-item self-administered World Health Organization Disability Assessment Schedule (WHODAS) 2.0 across early and late adolescents in Canada. Disability and Rehabilitation 45:19, pages 3118-3124.
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Ozgun Kaya Kara, Barkin Kose, Sebahat Yaprak Cetin, Sedef Sahin & Koray Kara. (2023) Community Participation, Supports and Barriers of Adolescents with and without Attention Deficit Hyperactivity Disorder. Physical & Occupational Therapy In Pediatrics 0:0, pages 1-18.
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Jacinta R. Quartermaine, Tanya A. Rose, Megan L. Auld & Leanne M. Johnston. (2023) Participation measures that evaluate attendance and involvement for young people aged 15 to 25 years with cerebral palsy: a systematic review. Disability and Rehabilitation 0:0, pages 1-17.
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Saeideh Shahin, Briano DiRezze, Sara Ahmed & Dana Anaby. (2023) Development and content validity of the youth and young-adult participation and environment measure (Y-PEM). Disability and Rehabilitation 45:3, pages 549-561.
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Vanessa Tomas, Roopa Srinivasan, Vrushali Kulkarni, Rachel Teplicky, Dana Anaby & Mary Khetani. (2022) A guiding process to culturally adapt assessments for participation-focused pediatric practice: the case of the Participation and Environment Measures (PEM). Disability and Rehabilitation 44:21, pages 6497-6509.
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Friedolin Steinhardt, Anne-Stine Dolva, Reidun Jahnsen & Anna Ullenhag. (2022) Exploring two subdimensions of participation, involvement and engagement: A scoping review. Scandinavian Journal of Occupational Therapy 29:6, pages 441-463.
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Gaela Kilgour, Brooke Adair, Ngaire Susan Stott, Michael Steele, Amy Hogan & Christine Imms. (2022) Do physical activity interventions influence subsequent attendance and involvement in physical activities for children with cerebral palsy: a systematic review. Disability and Rehabilitation 44:9, pages 1682-1698.
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Anat Golos, Sophi Chapani Itkin & Hadas Ben-Zur. (2022) The Structured Preschool Participation Observation (SPO) for Children with ASD: Adaptation, Initial Psychometric Properties, and Children’s Participation. Physical & Occupational Therapy In Pediatrics 42:2, pages 198-214.
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Nora Shields, Amy Epstein, Peter Jacoby, Rachel Kim, Helen Leonard, Dinah Reddihough, Andrew Whitehouse, Nada Murphy & Jenny Downs. (2022) Modifiable child and caregiver factors that influence community participation among children with Down syndrome. Disability and Rehabilitation 44:4, pages 600-607.
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Nichola Shelton, Natalie Munro, Melanie Keep, Julia Starling & Lyn Tieu. (2021) Clinical practices of speech-language pathologists working with 12- to 16-year olds in Australia. International Journal of Speech-Language Pathology 23:4, pages 394-404.
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Yael Fogel, Sara Rosenblum & Naomi Josman. (2021) Participation Patterns of Adolescents with and without Executive Function Deficits: Parents’ Perspectives. Journal of Occupational Therapy, Schools, & Early Intervention 14:3, pages 325-342.
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Linjun Shi, Mats Granlund, Yue Zhao, Ai-Wen Hwang, Lin-Ju Kang & Karina Huus. (2021) Transcultural adaptation, content validity and reliability of the instrument ‘Picture My Participation’ for children and youth with and without intellectual disabilities in mainland China. Scandinavian Journal of Occupational Therapy 28:2, pages 147-157.
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Friedolin Steinhardt, Anna Ullenhag, Reidun Jahnsen & Anne-Stine Dolva. (2021) Perceived facilitators and barriers for participation in leisure activities in children with disabilities: Perspectives of children, parents and professionals. Scandinavian Journal of Occupational Therapy 28:2, pages 121-135.
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Lisa A. Chiarello, Robert J. Palisano, Lisa Avery & Steven Hanna. (2021) Longitudinal Trajectories and Reference Percentiles for Participation in Family and Recreational Activities of Children with Cerebral Palsy. Physical & Occupational Therapy In Pediatrics 41:1, pages 18-37.
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Indre Bakaniene & Audrone Prasauskiene. (2020) Patterns and predictors of participation in children and adolescents with spina bifida. Disability and Rehabilitation 42:26, pages 3771-3779.
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Chi-Wen Chien, Cecilia W. P. Li-Tsang, Phoebe Pui Pui Cheung, Ka-Yan Leung & Chung-Ying Lin. (2020) Development and psychometric evaluation of the Chinese version of the Participation and Environment Measure for Children and Youth. Disability and Rehabilitation 42:15, pages 2204-2214.
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Frida Lygnegård, Lena Almqvist, Mats Granlund & Karina Huus. (2019) Participation profiles in domestic life and peer relations as experienced by adolescents with and without impairments and long-term health conditions. Developmental Neurorehabilitation 22:1, pages 27-38.
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Noula Gibson, Annie Chappell, Amanda Marie Blackmore, Susan Morris, Gavin Williams, Natasha Bear & Garry Allison. (2018) The effect of a running intervention on running ability and participation in children with cerebral palsy: a randomized controlled trial. Disability and Rehabilitation 40:25, pages 3041-3049.
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Frida Marie Åström, Mary Khetani & Anna Karin Axelsson. (2018) Young Children's Participation and Environment Measure: Swedish Cultural Adaptation. Physical & Occupational Therapy In Pediatrics 38:3, pages 329-342.
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Susan W. Darzins, Christine Imms & Marilyn Di Stefano. (2017) Measurement of activity limitations and participation restrictions: examination of ICF-linked content and scale properties of the FIM and PC-PART instruments. Disability and Rehabilitation 39:10, pages 1025-1038.
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Snæfrídur T. Egilson, Gunnhildur Jakobsdóttir, Kjartan Ólafsson & Thóra Leósdóttir. (2017) Community participation and environment of children with and without autism spectrum disorder: parent perspectives. Scandinavian Journal of Occupational Therapy 24:3, pages 187-196.
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Lesley Pritchard-Wiart. (2017) Focusing on Participation: A Commentary on “Current Rehabilitation Practices for Children with Cerebral Palsy: Focus and Gaps”. Physical & Occupational Therapy In Pediatrics 37:1, pages 16-18.
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Yunwha Jeong, Mary Law, Paul Stratford, Carol DeMatteo & Hwan Kim. (2016) Cross-cultural validation and psychometric evaluation of the Participation and Environment Measure for Children and Youth in Korea. Disability and Rehabilitation 38:22, pages 2217-2228.
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L. Rosenberg & O. Bart. (2016) Different pathways to children’s enjoyment of participation in daily activities. Scandinavian Journal of Occupational Therapy 23:5, pages 366-373.
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Christine Imms, Sarah Mathews, Kelli Nicola Richmond, Mary Law & Anna Ullenhag. (2016) Optimising leisure participation: a pilot intervention study for adolescents with physical impairments. Disability and Rehabilitation 38:10, pages 963-971.
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Lyndal Carter, Deborah Black, Anita Bundy & Warwick Williams. (2016) Parent Perceptions of Children's Leisure and the Risk of Damaging Noise Exposure. Deafness & Education International 18:2, pages 87-102.
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Mary A. Khetani, Anna B. Cliff, Cathy Schelly, Lisa Daunhauer & Dana Anaby. (2015) Decisional Support Algorithm for Collaborative Care Planning using the Participation and Environment Measure for Children and Youth (PEM-CY): A Mixed Methods Study. Physical & Occupational Therapy In Pediatrics 35:3, pages 231-252.
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Kløve Nina & Østensjø Sigrid. (2015) A Comparative ICF-CY–Based Analysis and Cultural Piloting of the Assessment of Preschool Children's Participation (APCP). Physical & Occupational Therapy In Pediatrics 35:1, pages 54-72.
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Snæfrídur Thóra Egilson. (2014) School experiences of pupils with physical impairments over time. Disability & Society 29:7, pages 1076-1089.
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Yun-Wha Jeong. (2019) Participation Patterns of Korean Children and Environmental Factors in Community Settings. Journal of Korean Society of Occupational Therapy 27:2, pages 37-50.
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Aimee Piller, Tina Fletcher, Beth Pfeiffer, Karen Dunlap & Noralyn Pickens. (2018) Construct Validity of the Participation and Sensory Environment Questionnaire–Teacher Version. Assessment for Effective Intervention 44:3, pages 212-224.
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Jamie M Holloway & Toby M Long. (2019) The Interdependence of Motor and Social Skill Development: Influence on Participation. Physical Therapy 99:6, pages 761-770.
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Uzma Williams, Mary Law, Steven Hanna & Jan Willem Gorter. (2019) Personal, environmental, and family factors of participation among young children. Child: Care, Health and Development 45:3, pages 448-456.
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Catherine R. Hoyt, Andrew N. Van, Mario Ortega, Jonathan M. Koller, Elyse A. Everett, Annie L. Nguyen, Catherine E. Lang, Bradley L. Schlaggar & Nico U. F. Dosenbach. (2019) Detection of Pediatric Upper Extremity Motor Activity and Deficits With Accelerometry. JAMA Network Open 2:4, pages e192970.
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Sarah E. Reedman, Roslyn N. Boyd, Stewart G. Trost, Catherine Elliott & Leanne Sakzewski. (2019) Efficacy of Participation-Focused Therapy on Performance of Physical Activity Participation Goals and Habitual Physical Activity in Children With Cerebral Palsy: A Randomized Controlled Trial. Archives of Physical Medicine and Rehabilitation 100:4, pages 676-686.
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Verónica Schiariti, Eileen Fowler, Joline E Brandenburg, Eric Levey, Sarah Mcintyre, Theresa Sukal‐Moulton, Sharon L Ramey, Jessica Rose, Susan Sienko, Elaine Stashinko, Laura Vogtle, Robin S Feldman & James I Koenig. (2018) A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements Version 1.0 recommendations. Developmental Medicine & Child Neurology 60:10, pages 976-986.
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Carissa Lyons, Ted Brown & Helen Bourke-Taylor. (2018) The Classroom Environment Questionnaire (CEQ): Development and preliminary structural validity. Australian Occupational Therapy Journal 65:5, pages 363-375.
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Kristin L. Berg, Jonathon Medrano, Kruti Acharya, Amy Lynch & Michael E. Msall. (2018) Health Impact of Participation for Vulnerable Youth With Disabilities. The American Journal of Occupational Therapy 72:5, pages 7205195040p1-7205195040p9.
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Milena Milićević & Goran Nedović. (2018) Comparative study of home and community participation among children with and without cerebral palsy. Research in Developmental Disabilities 80, pages 74-83.
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Mary A Khetani, Erin C Albrecht, Jessica M Jarvis, David Pogorzelski, Emmy Cheng & Karen Choong. (2018) Determinants of change in home participation among critically ill children. Developmental Medicine & Child Neurology 60:8, pages 793-800.
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Tara L FitzGerald, Amanda K L Kwong, Jeanie L Y Cheong, Jennifer L McGinley, Lex W Doyle & Alicia J Spittle. (2018) Body Structure, Function, Activity, and Participation in 3- to 6-Year-Old Children Born Very Preterm: An ICF-Based Systematic Review and Meta-Analysis. Physical Therapy 98:8, pages 691-704.
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Snæfrídur T Egilson, Gunnhildur Jakobsdóttir & Linda B Ólafsdóttir. (2017) Parent perspectives on home participation of high-functioning children with autism spectrum disorder compared with a matched group of children without autism spectrum disorder. Autism 22:5, pages 560-570.
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Gregor R. Maxwell, Mats Granlund & Lilly Augustine. (2018) Inclusion Through Participation: Understanding Participation in the International Classification of Functioning, Disability, and Health as a Methodological Research Tool for Investigating Inclusion. Frontiers in Education 3.
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Stephanie Ryan, Jessica Fraser‐Thomas & Jonathan Weiss. (2017) Patterns of sport participation for youth with autism spectrum disorder and intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 31:3, pages 369-378.
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Vera Coelho & Ana Isabel Pinto. (2018) The Relationship between Children’s Developmental Functioning and Participation in Social Activities in Portuguese Inclusive Preschool Settings. Frontiers in Education 3.
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Benjamin Klein & Olaf Kraus de Camargo. (2018) A Proposed Functional Abilities Classification Tool for Developmental Disorders Affecting Learning and Behaviour. Frontiers in Education 3.
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Sofia Guichard & Catarina Grande. (2018) Differences between Pre-School Children with and without Special Educational Needs Functioning, Participation, and Environmental Barriers at Home and in Community Settings: An International Classification of Functioning, Disability, and Health for Children and Youth Approach. Frontiers in Education 3.
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Shani Mattinson, Marita Falkmer, Melissa H Black & Sonya Girdler. (2018) Participation profiles and the barriers and facilitators that impact on participation of children with Autism Spectrum Disorders living in regional and remote Western Australia. Scandinavian Journal of Child and Adolescent Psychiatry and Psychology 6:4, pages 1-13.
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Erica Di Marino, Stephanie Tremblay, Mary Khetani & Dana Anaby. (2018) The effect of child, family and environmental factors on the participation of young children with disabilities. Disability and Health Journal 11:1, pages 36-42.
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Feng-Hang Chang, Kwang-Hwa Chang, Tsan-Hon Liou & Gale G. Whiteneck. (2017) Validation of the Participation Measure–3 Domains, 4 Dimensions (PM-3D4D). Archives of Physical Medicine and Rehabilitation 98:12, pages 2498-2506.
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Sonya Meyer & Sara Rosenblum. (2017) Development and Validation of the Celiac Disease-Children’s Activities Report (CD-Chart) for Promoting Self-Management among Children and Adolescents. Nutrients 9:10, pages 1130.
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