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Original Articles

Living with severe aphasia: Tracking social exclusion

Pages 98-123 | Published online: 05 Apr 2011

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (116)

Sayampurna Ray, Brooke Ryan, Peter Baldwin, Shirley Thomas & Ian Kneebone. (2024) Communicative accessibility and prospective acceptability of a digital behavioural activation intervention for people with aphasia. Aphasiology 38:5, pages 895-918.
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Sue Sherratt. (2024) People with aphasia living alone: A scoping review. Aphasiology 38:4, pages 712-737.
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Christa M. Akers, Mary Boyle, Alexander M. Swiderski, William D. Hula, Robert Cavanaugh & Roberta J. Elman. (2024) Changes in Complete Utterances Following Communication-Based Group Treatment for Chronic Aphasia. Aphasiology 0:0, pages 1-31.
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Nancy Azevedo, Eva Kehayia, Gonia Jarema, Guylaine Le Dorze, Christel Beaujard & Marc Yvon. (2024) How artificial intelligence (AI) is used in aphasia rehabilitation: A scoping review. Aphasiology 38:2, pages 305-336.
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Catherine A. Off, Anya A. Leyhe, Carolyn R. Baylor, Jenna Griffin-Musick & Kirsten Murray. (2024) Patient Perspectives of a University-Based Intensive Comprehensive Aphasia Program for Stroke Survivors with Aphasia. Aphasiology 38:1, pages 22-49.
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Ana Carolina M. Serra, Luis M. T. Jesus, Madeline Cruice, Kate Swinburn & Maria Assunção C. Matos. (2023) The use of participatory workshops in the development of a new version of the Communication Disability Profile (CDP). Aphasiology 37:12, pages 1916-1943.
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Natalie F. Douglas, Brent Archer, Jamie H. Azios, Katie A. Strong, Nina Simmons-Mackie & Linda Worrall. (2023) A scoping review of friendship intervention for older adults: lessons for designing intervention for people with aphasia. Disability and Rehabilitation 45:18, pages 3012-3031.
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Noorain Alam, Sanjay Munjal, Naresh K. Panda, Raj Kumar & Shruti Gupta. (2023) Efficacy of Jellow app as an adjunct to stimulation therapy in improvement in language and quality of life in patients with chronic Broca’s Aphasia. Disability and Rehabilitation: Assistive Technology 18:5, pages 596-602.
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Yejin Lee$suffix/text()$suffix/text(), Katrina Fritz$suffix/text()$suffix/text(), Chaitali Dagli$suffix/text()$suffix/text(), Marjorie L. Nicholas & Lisa Tabor Connor. (2023) Social Support Fully Mediates the Association Between Communication Abilities and Social Participation Among Persons with Post-Stroke Aphasia. Aphasiology 37:7, pages 980-992.
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Jytte Isaksen, Suzanne Beeke, Analisa Pais, Evangelia-Antonia Efstratiadou, Apoorva Pauranik, Susannah K. Revkin, V. P. Vandana, Fabián Valencia, Jasmina Vuksanović & Caroline Jagoe. (2023) Communication partner training for healthcare workers engaging with people with aphasia: Enacting Sustainable Development Goal 17 in Austria, Egypt, Greece, India and Serbia. International Journal of Speech-Language Pathology 25:1, pages 172-177.
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Miranda L. Rose, John E. Pierce, Victoria L. Scharp, Catherine A. Off, Edna M. Babbitt, Jenna R. Griffin-Musick & Leora R. Cherney. (2022) Developments in the application of Intensive Comprehensive Aphasia Programs: an international survey of practice. Disability and Rehabilitation 44:20, pages 5863-5877.
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Rachel Barnard, Julia Jones & Madeline Cruice. (2022) Addressing patients’ communication support needs through speech-language pathologist-nurse information-sharing: Employing ethnography to understand the acute stroke context. International Journal of Speech-Language Pathology 24:5, pages 504-514.
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Deborah Hersh, David Azul, Clare Carroll, Rena Lyons, Ruth Mc Menamin & Jemma Skeat. (2022) New perspectives, theory, method, and practice: Qualitative research and innovation in speech-language pathology. International Journal of Speech-Language Pathology 24:5, pages 449-459.
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Molly Manning, Anne MacFarlane, Anne Hickey, Rose Galvin & Sue Franklin. (2022) The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults. Disability and Rehabilitation 44:14, pages 3440-3452.
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Beatriz Eugenia Guerrero-Arias, Yajaira Vanessa Acosta-Calle & María Camila Vásquez-Narváez. (2022) Aphasia and labour inclusion: therapy, biopower, and encuentros. Aphasiology 36:5, pages 648-667.
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Mauro Viganò, Giulia Gilardone, Dario Cassinelli, Francesca M. Fumagalli, Maria Scialla, Marco Gilardone, Roberta Dameno, Massimo Corbo & Alessia Monti. (2022) The Italian Aphasia Awareness Survey (IAAS): an online questionnaire about the public knowledge of aphasia in Italy, informative findings. Aphasiology 36:5, pages 599-617.
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Renee Heard, Hayley Anderson & Chloe Horsted. (2022) Exploring the communication experiences of stroke nurses and patients with aphasia in an acute stroke unit. Speech, Language and Hearing 25:2, pages 177-191.
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Ruth McMenamin & Sarah O’ Connor. (2022) An exploration of the coverage of aphasia in the Irish print media. Aphasiology 36:3, pages 337-352.
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Jamie H. Azios, Katie A. Strong, Brent Archer, Natalie F. Douglas, Nina Simmons-Mackie & Linda Worrall. (2022) Friendship matters: a research agenda for aphasia. Aphasiology 36:3, pages 317-336.
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Julia Borsatto, Lori Buchanan & Laura Pineault. (2022) Aphasia friendly Canada: The aphasia friendly business campaign. Aphasiology 36:2, pages 198-217.
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Claudia Repetto, Maria Paola Paolillo, Cosimo Tuena, Francesca Bellinzona & Giuseppe Riva. (2021) Innovative technology-based interventions in aphasia rehabilitation: a systematic review. Aphasiology 35:12, pages 1623-1646.
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Ruth McMenamin, Kate Faherty, Meadhbh Larkin & Laura Loftus. (2021) An investigation of public awareness and knowledge of aphasia in the West of Ireland. Aphasiology 35:11, pages 1415-1431.
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Sue Sherratt. (2021) Aphasia and dysphasia on the internet. Aphasiology 35:9, pages 1227-1237.
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Ruth McMenamin, Michael Griffin, Basia Grzybowska & Carole Pound. (2021) Working together: experiences of people with aphasia as co-researchers in participatory health research studies. Aphasiology 0:0, pages 1-22.
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Sue Sherratt & Linda Worrall. (2021) Posttraumatic growth following aphasia: a prospective cohort study of the first year post-stroke. Aphasiology 35:3, pages 291-313.
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Carole Anglade, Guylaine Le Dorze & Claire Croteau. (2021) How clerks understand the requests of people living with aphasia in service encounters. Clinical Linguistics & Phonetics 35:1, pages 84-99.
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Katherine Francis, Katina Swan, Tanya Rose, Marie Hopper, Zane Hopper, Ian Hughes, Melissa Lawrie & Rachel Wenke. (2021) The use and impact of a supported aphasia-friendly photo menu tool on iPads in the inpatient hospital setting: a pilot study. Aphasiology 35:1, pages 148-168.
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Carole Anglade, Guylaine Le Dorze & Claire Croteau. (2019) Service encounter interactions of people living with moderate-to-severe post-stroke aphasia in their community. Aphasiology 33:9, pages 1061-1082.
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Susan Booth, Elizabeth Armstrong, S. Caroline Taylor & Deborah Hersh. (2019) Communication access: is there some common ground between the experiences of people with aphasia and speakers of English as an additional language?. Aphasiology 33:8, pages 996-1018.
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Scott Barnes & Steven Bloch. (2019) Why is measuring communication difficult? A critical review of current speech pathology concepts and measures. Clinical Linguistics & Phonetics 33:3, pages 219-236.
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Cristina Romani, Lucinda Thomas, Andrew Olson & Louise Lander. (2019) Playing a team game improves word production in poststroke aphasia. Aphasiology 33:3, pages 253-288.
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Nicole Guinan & Clare Carroll. (2019) An investigation of hospitality industry students’ awareness and knowledge of aphasia. Aphasiology 33:3, pages 337-351.
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Emma Finch, Jennifer Fleming, Ashley Cameron, Jennifer Lethlean, Kyla Hudson, Samantha Dassanayake & Steven M. McPhail. (2018) Is an educational lecture a critical component of communication partner training?. International Journal of Speech-Language Pathology 20:7, pages 779-789.
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Susan Woelders, Wieke van der Borg, Karen Schipper & Tineke Abma. (2018) The meaning of aphasia centres from the perspectives of people with aphasia and their relatives: understanding participation in the Dutch context. Aphasiology 32:12, pages 1490-1512.
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Carissa K. Baier, Jerry K. Hoepner & Thomas W. Sather. (2018) Exploring Snapchat as a dynamic capture tool for social networking in persons with aphasia. Aphasiology 32:11, pages 1336-1359.
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Sarah Northcott & Katerina Hilari. (2018) “I’ve got somebody there, someone cares”: what support is most valued following a stroke?. Disability and Rehabilitation 40:20, pages 2439-2448.
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Ashley Cameron, Steven McPhail, Kyla Hudson, Jennifer Fleming, Jennifer Lethlean, Ngang Ju Tan & Emma Finch. (2018) The confidence and knowledge of health practitioners when interacting with people with aphasia in a hospital setting. Disability and Rehabilitation 40:11, pages 1288-1293.
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Ana Amaya, Celia Woolf, Niamh Devane, Julia Galliers, Richard Talbot, Stephanie Wilson & Jane Marshall. (2018) Receiving aphasia intervention in a virtual environment: the participants’ perspective. Aphasiology 32:5, pages 538-558.
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Jed A. Meltzer, Allison J. Baird, Richard D. Steele & Stephanie J. Harvey. (2018) Computer-based treatment of poststroke language disorders: a non-inferiority study of telerehabilitation compared to in-person service delivery. Aphasiology 32:3, pages 290-311.
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Clare Carroll, Nicole Guinan, Libby Kinneen, Denise Mulheir, Hannah Loughnane, Orla Joyce, Elaine Higgins, Emma Boyle, Margaret Mullarney & Rena Lyons. (2018) Social participation for people with communication disability in coffee shops and restaurants is a human right. International Journal of Speech-Language Pathology 20:1, pages 59-62.
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Heather R. Buhr, Jerry K. Hoepner, Hannah Miller & Chris Johnson. (2017) AphasiaWeb: development and evaluation of an aphasia-friendly social networking application. Aphasiology 31:9, pages 999-1020.
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Sarah J. Wallace, Linda Worrall, Tanya Rose, Guylaine Le Dorze, Madeline Cruice, Jytte Isaksen, Anthony Pak Hin Kong, Nina Simmons-Mackie, Nerina Scarinci & Christine Alary Gauvreau. (2017) Which outcomes are most important to people with aphasia and their families? an international nominal group technique study framed within the ICF. Disability and Rehabilitation 39:14, pages 1364-1379.
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Renee Heard, Robyn O’Halloran & Kathryn McKinley. (2017) Communication partner training for health care professionals in an inpatient rehabilitation setting: A parallel randomised trial. International Journal of Speech-Language Pathology 19:3, pages 277-286.
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Ashley Cameron, Steven M. McPhail, Kyla Hudson, Jennifer Fleming, Jennifer Lethlean & Emma Finch. (2017) A pre–post intervention study investigating the confidence and knowledge of health professionals communicating with people with aphasia in a metropolitan hospital. Aphasiology 31:3, pages 359-374.
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Lizet van Ewijk, Lotte Versteegde, Evelijn Raven-Takken & Katerina Hilari. (2017) Measuring quality of life in Dutch people with aphasia: development and psychometric evaluation of the SAQOL-39NL. Aphasiology 31:2, pages 189-200.
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Marie-Philippe Laliberté, Christine Alary Gauvreau & Guylaine Le Dorze. (2016) A pilot study on how speech-language pathologists include social participation in aphasia rehabilitation. Aphasiology 30:10, pages 1117-1133.
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Sukhpreet Aujla, Nicola Botting, Linda Worrall, Louise Hickson & Madeline Cruice. (2016) Preliminary psychometric analyses of two assessment measures quantifying communicative and social activities: the COMACT and SOCACT. Aphasiology 30:8, pages 898-921.
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Abby Foster, Robyn O’Halloran, Miranda Rose & Linda Worrall. (2016) “Communication is taking a back seat”: speech pathologists’ perceptions of aphasia management in acute hospital settings. Aphasiology 30:5, pages 585-608.
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Fiona Menger, Julie Morris & Christos Salis. (2016) Aphasia in an Internet age: wider perspectives on digital inclusion. Aphasiology 30:2-3, pages 112-132.
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Helen Kelly, Fiona Kennedy, Hannah Britton, Graham McGuire & James Law. (2016) Narrowing the “digital divide”—facilitating access to computer technology to enhance the lives of those with aphasia: a feasibility study. Aphasiology 30:2-3, pages 133-163.
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Kelly Knollman-Porter, Sarah E. Wallace, Karen Hux, Jessica Brown & Candace Long. (2015) Reading experiences and use of supports by people with chronic aphasia. Aphasiology 29:12, pages 1448-1472.
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Ashley Cameron, Steven M. McPhail, Kyla Hudson, Jennifer Fleming, Jennifer Lethlean & Emma Finch. (2015) Increasing the confidence and knowledge of occupational therapy and physiotherapy students when communicating with people with aphasia: A pre–post intervention study. Speech, Language and Hearing 18:3, pages 148-155.
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Jacqueline S. Laures-Gore & Tony W. Buchanan. (2015) Aphasia and the neuropsychobiology of stress. Journal of Clinical and Experimental Neuropsychology 37:7, pages 688-700.
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Ruth Mc Menamin, Edel Tierney & Anne Mac Farlane. (2015) Addressing the long-term impacts of aphasia: how far does the Conversation Partner Programme go?. Aphasiology 29:8, pages 889-913.
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Peggy J. Goetz & Marie Bloem. (2015) An Ethnography of Stroke Survivors in Their Church Communities. Journal of Disability & Religion 19:3, pages 243-261.
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Ruth Patterson, Amélie Robert, Richard Berry, Mallory Cain, Maryam Iqbal, Chris Code, Elizabeth Rochon & Carol Leonard. (2015) Raising public awareness of aphasia in southern Ontario, Canada: A survey. International Journal of Speech-Language Pathology 17:2, pages 121-126.
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Lise R. Jensen, Annelise P. Løvholt, Inger R. Sørensen, Anna M. Blüdnikow, Helle K. Iversen, Anders Hougaard, Lone L. Mathiesen & Hysse B. Forchhammer. (2015) Implementation of supported conversation for communication between nursing staff and in-hospital patients with aphasia. Aphasiology 29:1, pages 57-80.
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Simona Spaccavento, Angela Craca, Marina Del Prete, Rosanna Falcone, Antonia Colucci, Angela Di Palma & Anna Loverre. (2014) Quality of life measurement and outcome in aphasia. Neuropsychiatric Disease and Treatment 10, pages 27-37.
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Portia Woodman, Afsane Riazi, Carla Pereira & Fiona Jones. (2014) Social participation post stroke: a meta-ethnographic review of the experiences and views of community-dwelling stroke survivors. Disability and Rehabilitation 36:24, pages 2031-2043.
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Dimitra Fotiadou, Sarah Northcott, Ariadni Chatzidaki & Katerina Hilari. (2014) Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships?. Aphasiology 28:11, pages 1281-1300.
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Rose Hilton, Shona Leenhouts, Janet Webster & Julie Morris. (2014) Information, support and training needs of relatives of people with aphasia: Evidence from the literature. Aphasiology 28:7, pages 797-822.
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Maria Assunção C. Matos, Luis M. T. Jesus & Madeline Cruice. (2014) Consequences of stroke and aphasia according to the ICF domains: Views of Portuguese people with aphasia, family members and professionals. Aphasiology 28:7, pages 771-796.
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Jacqueline Hinckley, Erika Boyle, Diane Lombard & Lori Bartels-Tobin. (2014) Towards a consumer-informed research agenda for aphasia: preliminary work. Disability and Rehabilitation 36:12, pages 1042-1050.
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Pirkko Rautakoski. (2014) Communication style before and after aphasia: A study among Finnish population. Aphasiology 28:3, pages 359-376.
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Nina Simmons-Mackie & Karen E. Lynch. (2013) Qualitative research in aphasia: A review of the literature. Aphasiology 27:11, pages 1281-1301.
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Tuuli Niemi & Ulla Johansson. (2013) The lived experience of engaging in everyday occupations in persons with mild to moderate aphasia. Disability and Rehabilitation 35:21, pages 1828-1834.
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Jane Marshall, Abi Roper, Julia Galliers, Stephanie Wilson, Naomi Cocks, Sam Muscroft & Tim Pring. (2013) Computer delivery of gesture therapy for people with severe aphasia. Aphasiology 27:9, pages 1128-1146.
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Breanna Tomkins, Samantha Siyambalapitiya & Linda Worrall. (2013) What do people with aphasia think about their health care? Factors influencing satisfaction and dissatisfaction. Aphasiology 27:8, pages 972-991.
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Shelley Tregea & Kyla Brown. (2013) What makes a successful peer-led aphasia support group?. Aphasiology 27:5, pages 581-598.
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Clare McCann, Kendall Tunnicliffe & Ryan Anderson. (2013) Public awareness of aphasia in New Zealand. Aphasiology 27:5, pages 568-580.
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Kyla Brown, Bronwyn Davidson, Linda E. Worrall & Tami Howe. (2013) “Making a good time”: The role of friendship in living successfully with aphasia. International Journal of Speech-Language Pathology 15:2, pages 165-175.
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Aimee Dietz, Amber Thiessen, Julie Griffith, Angie Peterson, Erin Sawyer & Miechelle McKelvey. (2013) The renegotiation of social roles in chronic aphasia: Finding a voice through AAC. Aphasiology 27:3, pages 309-325.
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Isla Jones, Julie Marshall, Rebecca Lawthom & Jennifer Read. (2013) Involving people with communication disability in research in Uganda: A response to the World Report on Disability. International Journal of Speech-Language Pathology 15:1, pages 75-78.
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Ange Beringer, Kerstin Tönsing & Juan Bornman. (2013) The self-determined and partner-predicted topic preferences of adults with aphasia. Aphasiology 27:2, pages 227-251.
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Carol Legg & Claire Penn. (2013) A stroke of misfortune: Cultural interpretations of aphasia in South Africa. Aphasiology 27:2, pages 126-144.
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Kyla Brown, Linda E. Worrall, Bronwyn Davidson & Tami Howe. (2012) Living successfully with aphasia: A qualitative meta-analysis of the perspectives of individuals with aphasia, family members, and speech-language pathologists. International Journal of Speech-Language Pathology 14:2, pages 141-155.
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Tanya A. Rose, Linda E. Worrall, Louise M. Hickson & Tammy C. Hoffmann. (2012) Guiding principles for printed education materials: Design preferences of people with aphasia. International Journal of Speech-Language Pathology 14:1, pages 11-23.
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Sue Sherratt. (2011) Written media coverage of aphasia: A review. Aphasiology 25:10, pages 1132-1152.
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Sue Sherratt, Linda Worrall, Charlene Pearson, Tami Howe, Deborah Hersh & Bronwyn Davidson. (2011) “Well it has to be language-related”: Speech-language pathologists' goals for people with aphasia and their families. International Journal of Speech-Language Pathology 13:4, pages 317-328.
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J. Ross Graham, Shelialah Pereira & Robert Teasell. (2011) Aphasia and return to work in younger stroke survivors. Aphasiology 25:8, pages 952-960.
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Carole Pound. (2011) Reciprocity, resources, and relationships: New discourses in healthcare, personal, and social relationships*. International Journal of Speech-Language Pathology 13:3, pages 197-206.
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Sue Roulstone. (2011) Evidence, expertise, and patient preference in speech-language pathology. International Journal of Speech-Language Pathology 13:1, pages 43-48.
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Gill Pearl, Karen Sage & Alys Young. (2011) Involvement in volunteering: an exploration of the personal experience of people with aphasia. Disability and Rehabilitation 33:19-20, pages 1805-1821.
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Katerina Hilari. (2011) The impact of stroke: are people with aphasia different to those without?. Disability and Rehabilitation 33:3, pages 211-218.
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Kyla Brown, Linda Worrall, Bronwyn Davidson & Tami Howe. (2010) Snapshots of success: An insider perspective on living successfully with aphasia. Aphasiology 24:10, pages 1267-1295.
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Ruth J. P. Dalemans, Luc de Witte, Derick Wade & Wim van den Heuvel. (2010) Social participation through the eyes of people with aphasia. International Journal of Language & Communication Disorders 45:5, pages 537-550.
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NancyA. Paul & GregoryF. Sanders. (2010) Applying an ecological framework to education needs of communication partners of individuals with aphasia. Aphasiology 24:9, pages 1095-1112.
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WeiLeng Chue, MirandaL. Rose & Kate Swinburn. (2010) The reliability of the Communication Disability Profile: A patient-reported outcome measure for aphasia. Aphasiology 24:6-8, pages 940-956.
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CandaceP. Vickers. (2010) Social networks after the onset of aphasia: The impact of aphasia group attendance. Aphasiology 24:6-8, pages 902-913.
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Birgitta Sjöqvist Nätterlund. (2010) Being a close relative of a person with aphasia. Scandinavian Journal of Occupational Therapy 17:1, pages 18-28.
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Birgitta Sjöqvist Nätterlund. (2010) A new life with aphasia: everyday activities and social support. Scandinavian Journal of Occupational Therapy 17:2, pages 117-129.
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Ruth J.P. Dalemans, Luc P. De Witte, Anna J.H.M. Beurskens, Wim J.A. Van Den Heuvel & Derick T. Wade. (2010) An investigation into the social participation of stroke survivors with aphasia. Disability and Rehabilitation 32:20, pages 1678-1685.
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Nancy A. Paul & Gregory F. Sanders. (2009) Strategies Used by Communication Partners of Aphasic Speakers. Activities, Adaptation & Aging 33:3, pages 161-178.
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TanyaA. Rose, LindaE. Worrall, KryssT. McKenna, LouiseM. Hickson & TammyC. Hoffmann. (2009) Do people with aphasia receive written stroke and aphasia information? . Aphasiology 23:3, pages 364-392.
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Laura Flynn, Ashlyn Cumberland & Jane Marshall. (2009) Public knowledge about aphasia: A survey with comparative data . Aphasiology 23:3, pages 393-401.
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Katerina Hilari & Sally Byng. (2009) Health‐related quality of life in people with severe aphasia. International Journal of Language & Communication Disorders 44:2, pages 193-205.
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TamiJ. Howe, LindaE. Worrall & LouiseM. H. Hickson. (2008) Interviews with people with aphasia: Environmental factors that influence their community participation . Aphasiology 22:10, pages 1092-1120.
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Bronwyn Davidson, Tami Howe, Linda Worrall, Louise Hickson & Leanne Togher. (2008) Social Participation for Older People with Aphasia: The Impact of Communication Disability on Friendships. Topics in Stroke Rehabilitation 15:4, pages 325-340.
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Carole-Ann Greig, Renée Harper, Tanya Hirst, Tami Howe & Bronwyn Davidson. (2008) Barriers and Facilitators to Mobile Phone Use for People with Aphasia. Topics in Stroke Rehabilitation 15:4, pages 307-324.
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TamiJ. Howe, LindaE. Worrall & LouiseM. H. Hickson. (2008) Observing people with aphasia: Environmental factors that influence their community participation . Aphasiology 22:6, pages 618-643.
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Madeline Cruice. (2007) Issues of access and inclusion with aphasia. Aphasiology 21:1, pages 3-8.
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Wendy Greenspan, Sonia Vieira & Nadine Martin. Revealing linguistic and verbal short-term and working memory abilities in people with severe aphasia. Aphasiology 0:0, pages 1-36.
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