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Original Articles

Measuring health-related stigma—A literature review

Pages 307-334 | Published online: 23 Jan 2007

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (49)

Sarah E. Ratcliffe, Clare S. Smylie, Rebecca T. Pinkus, Ilan Dar-Nimrod, Ilona Juraskova & Haryana M. Dhillon. (2023) What is the optimal tool for measuring abortion stigma? A systematic review. The European Journal of Contraception & Reproductive Health Care 28:2, pages 97-112.
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S. Dubé, M. Santaguida, D. Anctil, C. Y. Zhu, L. Thomasse, L. Giaccari, R. Oassey, D. Vachon & A. Johnson. (2023) Perceived stigma and erotic technology: From sex toys to erobots. Psychology & Sexuality 14:1, pages 141-157.
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Ljubiša Pađen, Jane Griffiths & Nicky Cullum. (2022) “Negotiating a new normality” - a longitudinal qualitative exploration of the meaning of living with an open surgical wound. International Journal of Qualitative Studies on Health and Well-being 17:1.
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Gavin Breslin, Stephen Shannon, Garry Prentice, Michael Rosato & Gerard Leavey. (2022) Adolescent Mental Health Help-Seeking from Family and Doctors: Applying the Theory of Planned Behaviour to the Northern Ireland Schools and Wellbeing Study. Child Care in Practice 28:4, pages 522-535.
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J. A. Thomas, N. Ditchman & R. B. Beedle. (2022) The impact of knowledge, self-efficacy, and stigma on STI testing intention among college students. Journal of American College Health 70:5, pages 1415-1425.
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Anna M. Hood, Lori E. Crosby, Eva Hanson, Lisa M. Shook, Jeffrey D. Lebensburger, Avi Madan-Swain, Megan M. Miller & Zina Trost. (2022) The influence of perceived racial bias and health-related stigma on quality of life among children with sickle cell disease. Ethnicity & Health 27:4, pages 833-846.
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Seoyoon Woo, Weijiao Zhou & Janet L Larson. (2021) Stigma Experiences in People with Chronic Obstructive Pulmonary Disease: An Integrative Review. International Journal of Chronic Obstructive Pulmonary Disease 16, pages 1647-1659.
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Sarju Sing Rai, Elena V. Syurina, Ruth M.H. Peters, Irwanto Irwanto, Denise Naniche & Marjolein B.M. Zweekhorst. (2021) Assessing the prospect of a common health-related stigma reduction response: Cross-perspectives of people living with stigmatised health conditions in Indonesia. Global Public Health 16:12, pages 1856-1869.
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Tina Schröppel, Jörg Miehling & Sandro Wartzack. (2021) The role of product development in the battle against product-related stigma – a literature review. Journal of Engineering Design 32:5, pages 247-270.
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Sarah E. Bennett, Nicola Walsh, Timothy Moss & Shea Palmer. (2021) Understanding the psychosocial impact of joint hypermobility syndrome and Ehlers–Danlos syndrome hypermobility type: a qualitative interview study. Disability and Rehabilitation 43:6, pages 795-804.
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Marloes M. A. R. van Dorst, Wiebrich J. van Netten, Mitzi M. Waltz, Basu D. Pandey, Ramesh Choudhary & Wim H. van Brakel. (2020) Depression and mental wellbeing in people affected by leprosy in southern Nepal. Global Health Action 13:1.
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Chunbo Ren & Ming Lei. (2020) Positive portrayals of ‘living with HIV’ to reduce HIV stigma: do they work in reality?. Journal of Applied Communication Research 48:4, pages 496-514.
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Mitchell G. Weiss & Shubhangi R. Parkar. (2020) Facets of clinical stigma after attempted suicide in Mumbai, India. Anthropology & Medicine 27:2, pages 212-233.
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Daphna Yeshua-Katz, Stephen A. Rains, Emily B. Peterson & Kevin B. Wright. (2020) Digital stigma coping strategies: A meta-analytic review of the association between health-related stigma dimensions and social support messages shared online. The Information Society 36:1, pages 19-29.
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Qi Lu, Cuiyu Deng, Li Fu, Rui Wu, Lianxia Chang, Huaying Qi, Kuijie Wang, Lihong Jiang, Xuan Yang, Yulu Wang, Liya Li & Yue Zhao. (2019) Reliability and validity of a Chinese version of the Stigma Scale for Chronic Illness (SSCI) in patients with stroke. Topics in Stroke Rehabilitation 26:4, pages 312-317.
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Hanmei Fan & Reeva Lederman. (2018) Online health communities: how do community members build the trust required to adopt information and form close relationships?. European Journal of Information Systems 27:1, pages 62-89.
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Kelli Stidham Hall, Abubakar Manu, Emmanuel Morhe, Lisa H. Harris, Dana Loll, Elizabeth Ela, Giselle Kolenic, Jessica L. Dozier, Sneha Challa, Melissa K. Zochowski, Andrew Boakye, Richard Adanu & Vanessa K. Dalton. (2018) Development and Validation of a Scale to Measure Adolescent Sexual and Reproductive Health Stigma: Results From Young Women in Ghana. The Journal of Sex Research 55:1, pages 60-72.
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Tiffany H Taft & Laurie Keefer. (2016) A systematic review of disease-related stigmatization in patients living with inflammatory bowel disease. Clinical and Experimental Gastroenterology 9, pages 49-58.
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Elizabeth Corker, June Brown & Claire Henderson. (2016) How does self stigma differ across people with psychiatric diagnoses and rheumatoid arthritis, and how does it impact on self-esteem and empowerment?. Psychology, Health & Medicine 21:8, pages 993-1005.
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Lindsay J. Della, Mary Z. Ashlock & Tania B. Basta. (2016) Social Constructions of Stigmatizing Discourse Around Type 2 Diabetes Diagnoses in Appalachian Kentucky. Health Communication 31:7, pages 806-814.
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Wei Wei, Xiaoming Li, Sayward Harrison, Junfeng Zhao & Guoxiang Zhao. (2016) The relationships between HIV stigma, emotional status, and emotional regulation among HIV-affected children in rural China. AIDS Care 28:sup2, pages 161-167.
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D. Gove, M. Downs, M. Vernooij-Dassen & N. Small. (2016) Stigma and GPs’ perceptions of dementia. Aging & Mental Health 20:4, pages 391-400.
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Ruth Peters, Mimi Lusli, Marjolein Zweekhorst, Beatriz Miranda-Galarza, Wim van Brakel, Irwanto & Joske Bunders. (2015) Learning from a leprosy project in Indonesia: making mindsets explicit for stigma reduction. Development in Practice 25:8, pages 1105-1119.
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Pamela A. Kisala, David S. Tulsky, Natalie Pace, David Victorson, Seung W. Choi & Allen W. Heinemann. (2015) Measuring stigma after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Stigma item bank and short form. The Journal of Spinal Cord Medicine 38:3, pages 386-396.
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Samidi Navaratna, Koji Kanda, Samath D. Dharmaratne, Sampath Tennakoon, Ananda Jayasinghe, Niroshan Jayasekara, Katsutoshi Nagano, Yoshihide Obayashi, Asuna Arai & Hiko Tamashiro. (2015) Awareness and attitudes towards HIV/AIDS among residents of Kandy, Sri Lanka. AIDS Care 27:3, pages 387-391.
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Eshetu Girma, Anne Maria Möller-Leimkühler, Sandra Dehning, Norbert Mueller, Markos Tesfaye & Guenter Froeschl. (2014) Self-stigma among caregivers of people with mental illness: toward caregivers’ empowerment. Journal of Multidisciplinary Healthcare 7, pages 37-43.
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Lisa A. Martin, Michelle Debbink, Jane Hassinger, Emily Youatt, Meghan Eagen-Torkko & Lisa H. Harris. (2014) Measuring Stigma Among Abortion Providers: Assessing the Abortion Provider Stigma Survey Instrument. Women & Health 54:7, pages 641-661.
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Chunbo Ren, Stacey J. T. Hust & Peng Zhang. (2014) Chinese Newspapers' Coverage of HIV Transmission over a Decade (2000–2010): Where HIV Stigma Arises. Chinese Journal of Communication 7:3, pages 267-284.
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George C.T. Mugoya & Kacey Ernst. (2014) Gender differences in HIV-related stigma in Kenya. AIDS Care 26:2, pages 206-213.
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Stephen A. Rains. (2014) The Implications of Stigma and Anonymity for Self-Disclosure in Health Blogs. Health Communication 29:1, pages 23-31.
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Melissa A. Shepherd & Mary A. Gerend. (2014) The blame game: Cervical cancer, knowledge of its link to human papillomavirus and stigma. Psychology & Health 29:1, pages 94-109.
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Sophie Lebel, Andrea Feldstain, Megan McCallum, Sara Beattie, Jonathan Irish, Andrea Bezjak & Gerald M. Devins. (2013) Do behavioural self-blame and stigma predict positive health changes in survivors of lung or head and neck cancers?. Psychology & Health 28:9, pages 1066-1081.
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Katherine Gnauck, Jamie Ruiz, Nicole Kellett, Andrew Sussman, Mary Ann Sullivan, Maria Montoya, Nick Levin, Angelo Tomedi & Mutuku A. Mwanthi. (2013) Economic empowerment and AIDS-related stigma in rural Kenya: a double-edged sword?. Culture, Health & Sexuality 15:7, pages 851-865.
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ChristophA. Jacobi, PascalN.J.I. Atanga, LeonardK. Bin, VictorN. Mbome, Wilfred Akam, JohannesR. Bogner, Siegfried Kropf & Peter Malfertheiner. (2013) HIV/AIDS-related stigma felt by people living with HIV from Buea, Cameroon. AIDS Care 25:2, pages 173-180.
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Bassey Ebenso, Gbenga Adeyemi, Adegboyega O. Adegoke & Nick Emmel. (2012) Using indigenous proverbs to understand social knowledge and attitudes to leprosy among the Yoruba of southwest Nigeria. Journal of African Cultural Studies 24:2, pages 208-222.
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Teresa M. Pavia & Marlys J. Mason. (2012) Inclusion, exclusion and identity in the consumption of families living with childhood disability. Consumption Markets & Culture 15:1, pages 87-115.
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ThomasP. LeBel. (2012) Invisible Stripes? Formerly Incarcerated Persons' Perceptions of Stigma. Deviant Behavior 33:2, pages 89-107.
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S.A.M. Stevelink, W.H. van Brakel & V. Augustine. (2011) Stigma and social participation in Southern India: Differences and commonalities among persons affected by leprosy and persons living with HIV/AIDS. Psychology, Health & Medicine 16:6, pages 695-707.
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Carin Rensen, Sudhakar Bandyopadhyay, Pala K. Gopal & Wim H. Van Brakel. (2011) Measuring leprosy-related stigma – a pilot study to validate a toolkit of instruments. Disability and Rehabilitation 33:9, pages 711-719.
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A. Krishna Kumari, K. T. Harichandrakumar, K. Krishnamoorthy & L. K. Das. (2010) The stigmata and discrimination experienced, in southern India, by cases of lymphatic filariasis. Annals of Tropical Medicine & Parasitology 104:5, pages 421-426.
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NgoziC Mbonu, Bart Van den Borne & NanneK De Vries. (2009) A model for understanding the relationship between stigma and healthcare-seeking behaviour among people living with HIV/AIDS in sub-Saharan Africa. African Journal of AIDS Research 8:2, pages 201-212.
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Abdallah Badahdah, Najat Sayem & CarrieE. Foote. (2009) Development of a Yemeni AIDS stigma scale. AIDS Care 21:6, pages 754-759.
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Bobbie Person, David Addiss, L. Kay Bartholomew, Cecilia Meijer, Victor Pou, Guillermo Gonzálvez & Bart Van Den Borne. (2008) “Can It Be That God Does Not Remember Me”: A Qualitative Study on the Psychological Distress, Suffering, and Coping of Dominican Women With Chronic Filarial Lymphedema and Elephantiasis of the Leg. Health Care for Women International 29:4, pages 349-365.
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Yun Jung Choi & Dong Hee Cho. (2021) Explicit and implicit attitudes toward people with COVID-19: Need for community mental health services. Social Behavior and Personality: an international journal 49:11, pages 1-11.
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David A. Oladele, Ifeoma E. Idigbe, Sabdat O. Ekama, Titilola Gbajabiamila, Aigbe G. Ohihoin, Agatha N. David, Oliver C. Ezechi, Nkiruka N. Odunukwe & Babatunde L. Salako. (2021) “Their place is beyond the town's border”: A qualitative exploration of stigma associated with tuberculosis in rural and urban areas of Lagos, Nigeria. Health & Social Care in the Community 29:6, pages 1789-1798.
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Riddhi A. Babel, Peng Wang, Edward J. Alessi, Henry F. Raymond & Chongyi Wei. (2021) Stigma, HIV Risk, and Access to HIV Prevention and Treatment Services Among Men Who have Sex with Men (MSM) in the United States: A Scoping Review. AIDS and Behavior 25:11, pages 3574-3604.
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Bandar F Almutairi, Khaled W Alsaygh, Mazen M Altamimi, Abdulrahman S Alshammari, Ahmed M Alsomali, Sultan M Alanazi, Saud M Alzahrani, Ameer S Alsaad & Georgios Zacharakis. (2021) Internalized Weight Stigma: Prevalence and Association With Psychiatric Disorder Among Overweight and Obese Individuals. Cureus.
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