Patient Related Outcome Measures, Volume 9, Issue (2018)

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Patient Related Outcome Measures, Volume 9, Issue (2018)

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Review

Review Article
Long-term safety and real-world effectiveness of fingolimod in relapsing multiple sclerosis
Charlotte Druart, Souraya El Sankari & Vincent van Pesch
Pages: 1-10
Published online: 21 Dec 2017
AbstractforLong-term safety and real-world effectiveness of fingolimod in relapsing multiple sclerosis | Full Text | References | PDF (251.5 KB)
  • 108 Views
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Original Research

Article
Calibration and validation of an item bank for measuring general physical function of patients in medical rehabilitation settings
Karon F Cook, Michael A Kallen, Deanna Hayes, Daniel Deutscher, Julie M Fritz, Mark W Werneke & Jerome E Mioduski
Pages: 11-16
Published online: 28 Dec 2017
AbstractforCalibration and validation of an item bank for measuring general physical function of patients in medical rehabilitation settings | Full Text | References | PDF (140.3 KB)
  • 60 Views
  • 2 CrossRef citations
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Article
Health-related quality of life in ANCA-associated vasculitis and item generation for a disease-specific patient-reported outcome measure
Joanna C Robson, Jill Dawson, Peter F Cronholm, Nataliya Milman, Katherine S Kellom, Susan Ashdown, Ebony Easley, John T Farrar, Don Gebhart, Georgia Lanier, Carol A McAlear, Jacqueline Peck, Raashid A Luqmani, Judy A Shea, Gunnar Tomasson & Peter A Merkel
Pages: 17-34
Published online: 23 Dec 2022
AbstractforHealth-related quality of life in ANCA-associated vasculitis and item generation for a disease-specific patient-reported outcome measure | Full Text | References | PDF (531 KB)
  • 155 Views
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Review

Review Article
Impact of siltuximab on patient-related outcomes in multicentric Castleman’s disease
Jenna Sitenga, Gregory Aird, Aabra Ahmed & Peter T Silberstein
Pages: 35-41
Published online: 23 Dec 2022
AbstractforImpact of siltuximab on patient-related outcomes in multicentric Castleman’s disease | Full Text | References | PDF (234.2 KB)
  • 95 Views
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Original Research

Article
Data quality, floor and ceiling effects, and test–retest reliability of the Mild Cognitive Impairment Questionnaire
Katherine Dean, Zuzana Walker & Crispin Jenkinson
Pages: 43-47
Published online: 23 Dec 2022
AbstractforData quality, floor and ceiling effects, and test–retest reliability of the Mild Cognitive Impairment Questionnaire | Full Text | References | PDF (161.5 KB)
  • 427 Views
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Review

Review Article
Psychological treatments for the management of postsurgical pain: a systematic review of randomized controlled trials
Judith L Nicholls, Muhammad A Azam, Lindsay C Burns, Marina Englesakis, Ainsley M Sutherland, Aliza Z Weinrib, Joel Katz & Hance Clarke
Pages: 49-64
Published online: 23 Dec 2022
AbstractforPsychological treatments for the management of postsurgical pain: a systematic review of randomized controlled trials | Full Text | References | PDF (253.7 KB)
  • 411 Views
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Open Access
Review Article
Outcomes in adult pectus excavatum patients undergoing Nuss repair
MennatAllah M Ewais, Shivani Chaparala, Rebecca Uhl & Dawn E Jaroszewski
Pages: 65-90
Published online: 30 Jan 2018
AbstractforOutcomes in adult pectus excavatum patients undergoing Nuss repair | Full Text | References | PDF (4 MB)
  • 175 Views
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Expert Opinion

Editorial
PCORnet’s Collaborative Research Groups
Mark J Pletcher, Christopher B Forrest & Thomas W Carton
Pages: 91-95
Published online: 23 Dec 2022
AbstractforPCORnet’s Collaborative Research Groups | Full Text | References | PDF (130.9 KB)
  • 80 Views
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Original Research

Article
Comorbidity in US patients with multiple sclerosis
Natalie C Edwards, Michael Munsell, Joseph Menzin & Amy L Phillips
Pages: 97-102
Published online: 13 Feb 2018
AbstractforComorbidity in US patients with multiple sclerosis | Full Text | References | PDF (507.9 KB)
  • 181 Views
  • 28 CrossRef citations
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Open Access
Article
Quality of life and burden of morbidity in primary care users with multimorbidity
Michele Peters, Laura Kelly, Caroline M Potter, Crispin Jenkinson, Elizabeth Gibbons, Julien Forder & Ray Fitzpatrick
Pages: 103-113
Published online: 16 Feb 2018
AbstractforQuality of life and burden of morbidity in primary care users with multimorbidity | Full Text | References | PDF (188.5 KB)
  • 180 Views
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Article
National Institutes of Health Toolbox Emotion Battery for English- and Spanish-speaking adults: normative data and factor-based summary scores
Ida Babakhanyan, Benjamin S McKenna, Kaitlin B Casaletto, Cindy J Nowinski & Robert K Heaton
Pages: 115-127
Published online: 15 Mar 2018
AbstractforNational Institutes of Health Toolbox Emotion Battery for English- and Spanish-speaking adults: normative data and factor-based summary scores | Full Text | References | PDF (246.7 KB)
  • 200 Views
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Article
Psychosocial distress and the preferred method of delivery of mind–body interventions among patients with head-and-neck cancer
Pinky Budhrani-Shani, Nicole G Chau & Donna L Berry
Pages: 129-136
Published online: 03 Apr 2018
AbstractforPsychosocial distress and the preferred method of delivery of mind–body interventions among patients with head-and-neck cancer | Full Text | References | PDF (157.4 KB)
  • 73 Views
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Open Access
Article
Quality of life after esophageal resection
Wendy Jo Svetanoff, Rose McGahan, Saurabh Singhal, Carrie Bertellotti & Sumeet K Mittal
Pages: 137-146
Published online: 04 Apr 2018
AbstractforQuality of life after esophageal resection | Full Text | References | PDF (245.5 KB)
  • 98 Views
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Open Access
Article
Provider use of a participatory decision-making style with youth and caregivers and satisfaction with pediatric asthma visits
Betsy Sleath, Delesha M Carpenter, Imelda Coyne, Scott A Davis, Claire Hayes Watson, Ceila E Loughlin, Nacire Garcia, Daniel S Reuland & Gail E Tudor
Pages: 147-154
Published online: 10 May 2018
AbstractforProvider use of a participatory decision-making style with youth and caregivers and satisfaction with pediatric asthma visits | Full Text | References | PDF (165.5 KB)
  • 94 Views
  • 10 CrossRef citations
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Open Access
Article
Development and validation of a revised instrument to measure burden of long-term medicines use: the Living with Medicines Questionnaire version 3
Barbra Katusiime, Sarah A Corlett & Janet Krska
Pages: 155-168
Published online: 28 May 2018
AbstractforDevelopment and validation of a revised instrument to measure burden of long-term medicines use: the Living with Medicines Questionnaire version 3 | Full Text | References | PDF (2.4 MB)
  • 222 Views
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Open Access
Article
Utilizing the Total Design Method in medicine: maximizing response rates in long, non-incentivized, personal questionnaire postal surveys
Fawz Kazzazi, Rebecca Haggie, Parto Forouhi, Nazar Kazzazi & Charles M Malata
Pages: 169-172
Published online: 06 Jun 2018
AbstractforUtilizing the Total Design Method in medicine: maximizing response rates in long, non-incentivized, personal questionnaire postal surveys | Full Text | References | PDF (219.3 KB)
  • 93 Views
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Article
The Relational Aspects of Care Questionnaire: item reduction and scoring using inpatient and accident and emergency data in England
Laura Kelly, Steve Sizmur, Susanne Käsbauer, Jenny King, Robyn Cooper, Crispin Jenkinson & Chris Graham
Pages: 173-181
Published online: 19 Jun 2018
AbstractforThe Relational Aspects of Care Questionnaire: item reduction and scoring using inpatient and accident and emergency data in England | Full Text | References | PDF (332.1 KB)
  • 104 Views
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Open Access
Article
Introduction of a web portal for an Individual Health Management and observational health data sciences
Dieter Melchart, Axel Eustachi, Stephan Gronwald, Erich Wühr, Kristina Wifling & Beatrice E Bachmeier
Pages: 183-196
Published online: 21 Jun 2018
AbstractforIntroduction of a web portal for an Individual Health Management and observational health data sciences | Full Text | References | PDF (3.3 MB)
  • 104 Views
  • 3 CrossRef citations
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Open Access

Methodology

Article
Comparison of statistical approaches for analyzing incomplete longitudinal patient-reported outcome data in randomized controlled trials
Ines Rombach, Crispin Jenkinson, Alastair M Gray, David W Murray & Oliver Rivero-Arias
Pages: 197-209
Published online: 21 Jun 2018
AbstractforComparison of statistical approaches for analyzing incomplete longitudinal patient-reported outcome data in randomized controlled trials | Full Text | References | PDF (1.5 MB)
  • 165 Views
  • 9 CrossRef citations
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Original Research

Article
Quality of life in coeliac disease: qualitative interviews to develop candidate items for the Coeliac Disease Assessment Questionnaire
Helen Crocker, Crispin Jenkinson & Michele Peters
Pages: 211-220
Published online: 04 Jul 2018
AbstractforQuality of life in coeliac disease: qualitative interviews to develop candidate items for the Coeliac Disease Assessment Questionnaire | Full Text | References | PDF (406.3 KB)
  • 238 Views
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Open Access
Article
A novel method of proxy reporting questionnaire based measures of health-related quality of life of people with dementia in residential care: a psychometric evaluation
Sarah C Smith, AA Jolijn Hendriks, Jemma Regan & Nick Black
Pages: 221-230
Published online: 05 Jul 2018
AbstractforA novel method of proxy reporting questionnaire based measures of health-related quality of life of people with dementia in residential care: a psychometric evaluation | Full Text | References | PDF (1.6 MB)
  • 94 Views
  • 5 CrossRef citations
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Review

Review Article
Patient considerations in the management of gout and role of combination treatment with lesinurad
Liza W Claus & Joseph J Saseen
Pages: 231-238
Published online: 18 Jul 2018
AbstractforPatient considerations in the management of gout and role of combination treatment with lesinurad | Full Text | References | PDF (187 KB)
  • 65 Views
  • 2 CrossRef citations
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Original Research

Article
Administering the Routine Activities domain of the Oxford Participation and Activities Questionnaire as a stand-alone scale: the Oxford Routine Activities Measure
David Morley, Sarah Dummett, Laura Kelly & Crispin Jenkinson
Pages: 239-243
Published online: 25 Jul 2018
AbstractforAdministering the Routine Activities domain of the Oxford Participation and Activities Questionnaire as a stand-alone scale: the Oxford Routine Activities Measure | Full Text | References | PDF (137.3 KB)
  • 61 Views
  • 2 CrossRef citations
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Open Access
Article
Patient-reported outcomes in head and neck cancer: prospective multi-institutional patient-reported toxicity
M Sean Peach, Daniel M Trifiletti, Carolyn Vachani, Karen Arnold-Korzeniowski, Christina Bach, Margaret Hampshire, James M Metz & Christine E Hill-Kayser
Pages: 245-252
Published online: 27 Jul 2018
AbstractforPatient-reported outcomes in head and neck cancer: prospective multi-institutional patient-reported toxicity | Full Text | References | PDF (282.5 KB)
  • 117 Views
  • 13 CrossRef citations
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Review

Review Article
Chronic fatigue syndrome and quality of life
Deb Roberts
Pages: 253-262
Published online: 01 Aug 2018
AbstractforChronic fatigue syndrome and quality of life | Full Text | References | PDF (189.2 KB)
  • 667 Views
  • 11 CrossRef citations
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Review Article
The employment of Patient-Reported Outcome Measures to communicate the likely benefits of surgery
Norman Briffa
Pages: 263-266
Published online: 16 Aug 2018
AbstractforThe employment of Patient-Reported Outcome Measures to communicate the likely benefits of surgery | Full Text | References | PDF (117.9 KB)
  • 162 Views
  • 18 CrossRef citations
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Review Article
Impact of reslizumab on outcomes of severe asthmatic patients: current perspectives
Alicia Padilla Galo, Marina Labor, Angelica Tiotiu, Ilaria Baiardini, Nicola Scichilone & Fulvio Braido
Pages: 267-273
Published online: 23 Dec 2022
AbstractforImpact of reslizumab on outcomes of severe asthmatic patients: current perspectives | Full Text | References | PDF (135.8 KB)
  • 66 Views
  • 5 CrossRef citations
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Open Access
Review Article
Sarilumab: patient-reported outcomes in rheumatoid arthritis
Chiara Crotti, Martina Biggioggero, Andrea Becciolini & Ennio Giulio Favalli
Pages: 275-284
Published online: 20 Aug 2018
AbstractforSarilumab: patient-reported outcomes in rheumatoid arthritis | Full Text | References | PDF (175.1 KB)
  • 139 Views
  • 10 CrossRef citations
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Open Access
Review Article
Health-related quality of life in patients with iron deficiency anemia: impact of treatment with intravenous iron
William E Strauss & Michael Auerbach
Pages: 285-298
Published online: 27 Aug 2018
AbstractforHealth-related quality of life in patients with iron deficiency anemia: impact of treatment with intravenous iron | Full Text | References | PDF (1.4 MB)
  • 355 Views
  • 26 CrossRef citations
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Original Research

Article
Satisfied patients and pediatricians: a cross-sectional analysis
Isha Patel, Travis Chapman, Fabian Camacho, Shameen Shrestha, Jongwha Chang, Rajesh Balkrishnan & Steven R Feldman
Pages: 299-307
Published online: 28 Aug 2018
AbstractforSatisfied patients and pediatricians: a cross-sectional analysis | Full Text | References | PDF (280.4 KB)
  • 65 Views
  • 2 CrossRef citations
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Review

Review Article
Selecting best-suited “patient-related outcomes” in older people admitted to an acute geriatric or emergency frailty unit and applying quality improvement research to improve patient care
Inderpal Singh & Shridhar Aithal
Pages: 309-320
Published online: 23 Dec 2022
AbstractforSelecting best-suited “patient-related outcomes” in older people admitted to an acute geriatric or emergency frailty unit and applying quality improvement research to improve patient care | Full Text | References | PDF (185.4 KB)
  • 160 Views
  • 6 CrossRef citations
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Review Article
Impact of novel antifibrotic therapy on patient outcomes in idiopathic pulmonary fibrosis: patient selection and perspectives
Bridget A Graney & Joyce S Lee
Pages: 321-328
Published online: 23 Dec 2022
AbstractforImpact of novel antifibrotic therapy on patient outcomes in idiopathic pulmonary fibrosis: patient selection and perspectives | Full Text | References | PDF (364.1 KB)
  • 206 Views
  • 24 CrossRef citations
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Review Article
Impact of blinatumomab on patient outcomes in relapsed/refractory acute lymphoblastic leukemia: evidence to date
Lindsey Hathaway, Jeremy Michael Sen & Michael Keng
Pages: 329-337
Published online: 02 Oct 2018
AbstractforImpact of blinatumomab on patient outcomes in relapsed/refractory acute lymphoblastic leukemia: evidence to date | Full Text | References | PDF (804.4 KB)
  • 172 Views
  • 15 CrossRef citations
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Review Article
Measuring and monitoring health-related quality of life responsiveness in systemic lupus erythematosus patients: current perspectives
Jamal Mikdashi
Pages: 339-343
Published online: 23 Dec 2022
AbstractforMeasuring and monitoring health-related quality of life responsiveness in systemic lupus erythematosus patients: current perspectives | Full Text | References | PDF (125.3 KB)
  • 134 Views
  • 12 CrossRef citations
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Review Article
The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
Jonathan P Evans, Alexander Smith, Chris Gibbons, Jordi Alonso & Jose M Valderas
Pages: 345-352
Published online: 24 Oct 2018
AbstractforThe National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK | Full Text | References | PDF (1.1 MB)
  • 417 Views
  • 36 CrossRef citations
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Review Article
The importance of patient-reported outcomes in clinical trials and strategies for future optimization
Rebecca Mercieca-Bebber, Madeleine T King, Melanie J Calvert, Martin R Stockler & Michael Friedlander
Pages: 353-367
Published online: 01 Nov 2018
AbstractforThe importance of patient-reported outcomes in clinical trials and strategies for future optimization | Full Text | References | PDF (247.3 KB)
  • 2101 Views
  • 200 CrossRef citations
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Review Article
Immune thrombocytopenia: improving quality of life and patient outcomes
Patrick Trotter & Quentin A Hill
Pages: 369-384
Published online: 23 Dec 2022
AbstractforImmune thrombocytopenia: improving quality of life and patient outcomes | Full Text | References | PDF (242.7 KB)
  • 362 Views
  • 30 CrossRef citations
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